Data manager volunteer roles

VOLUNTEER CHAIR/COORDINATOR

Across the UK, our 65 local branches help disabled people live the lives they choose. Our network of skilled volunteers respond to thousands of requests each year to design and make customised equipment free of charge.

As your local Chair or Coordinator, you’ll take the lead in making sure your local branch works as effectively as possible. You’ll recruit, induct, and support other branch volunteers to make sure your branch’s activities meet the needs of your local disabled community.

You’ll bring your leadership, communication, organisation, and motivational skills to this role.

What the role involves

This is a varied role where local need shapes what you’ll be working on, but it often includes:

•  Coordinating the activities of our local branch to undertake and meet the needs of  referrals in your area

• Coordinating and chairing the branch meetings

• Leading the branch’s shared responsibility for planning and completing referrals

• Coordinating the recruitment, induction, and ongoing support of new local branch volunteers

• Approving income and expenditure with the other branch bank account signatories  and ensuring with the Treasurer that our financial requirements and policies relating to branches are followed

• Ensuring the branch’s activities comply with policies to keep people safe

• Regularly communicate and act as a key contact between staff and volunteer

What you’ll need for this role

Essential

• Confident in leading and chairing a meeting

• Confident using Microsoft Office, the internet and email

• Willingness to attend local events to promote the charity’s work

• Ability to understand and follow external and internal policies and procedures• Able to keep people’s personal details safe

• Willing to follow Remap policies and procedures – and a commitment to our values

Desirable

• Confident in communicating with different audiences, including decision-makers and volunteers

• Able to delegate and motivate the activities of others

• Enthusiastic about raising awareness of the charity’s work in the local area

• Willingness to develop skills and experience

You’ll also need to complete the induction checklist and some online training, as well as a DBS check.

Why volunteer

When you volunteer with us, you join a community of committed people with a passion for helping to improve the lives of others. We’re a volunteer led organisation and we couldn’t do what we do without you – your hard work, skills and commitment.

N.B. We’ll reimburse any out-of-pocket expenses during your time with us.

Would you like to support people who have served in the Armed Forces?  You don’t need a military background, just the ability to listen, some basic I.T skills and good written and spoken English.  If so, this could be the role for you.

Our Branch provides lifelong support to anyone who has ever served, in the British Army, Royal Navy and Royal Air Force and their dependants. We also give support to those who has been in the Merchant Navy, Seafarers, Fishermen and their dependants, and British Airways staff past and present. Our main role is seeking welfare benevolent grants on behalf of clients who reside in the 26 counties in the Republic of Ireland. They can arrange anything from household goods, funeral costs, mobility aids or other general needs. Legal fees are not considered. We would advise clients to seek state and local benefits by signposting them to the relevant agencies.

What is a caseworker?

Caseworkers visit clients to work out what type of help they need, this might be funds for special equipment for someone with a disability, adaptions to a property so an older client can remain at home or funds for a rental deposit.  Caseworkers also sign-post clients onto specialist local services for advice on benefits, housing, mental health, debt, finding work etc.

Why do we need you?

Volunteer Caseworkers are the lifeblood of SSAFA, supporting a growing number of people in need of financial, practical and emotional support. Clients come from all backgrounds and age groups and may have served in WW2 or in a more recent conflict like Iraq or Afghanistan.  Our trained volunteers listen without judgement to assess and provide tailored support to help people navigate life in and beyond military service.  We need you to join your local SSAFA team to help us achieve this.

When would you be needed and where would you be based?

The essential part of the role is visiting clients, so you will need access to a vehicle or another way to travel to meet clients at home or in a care home setting. Our volunteers are based at home with a yearly AGM invite.

What does this role involve?

• Contacting clients and arranging to meet them at a mutually convenient time

• Meeting clients and completing a form to assess their circumstances

• Sign-posting clients onto local services providing specialist advice

• Keeping in touch with your branch so they know your availability

• Keeping up to date with training and SSAFA news so that you are best able to support clients

• Being a positive ambassador for SSAFA remembering that anyone you meet could be a potential client, volunteer or fundraiser

• Volunteering within the standards and values of SSAFA including observing our policies such as the

Volunteering policy and data protection policy (these will be covered in your training and local induction.)

What can you gain from this volunteering role?

• Support people in your community with a military background and their dependents

• Use your skills, knowledge and life experience to benefit others

• Support from your local SSAFA branch and the wider SSAFA community

• Experience, training and skills that you can highlight on your CV and in job interviews

• Better physical and mental health – studies show that volunteers live longer and experience lower levels of stress and depression!

What training and support will you receive?

• On-line or face to face instructor led training and e-learning modules, to prepare you for your voluntary role.

• Access to a range additional e-learning courses as well as local opportunities for your personal and professional development.

• Local induction including assigning a person from the team who will be your main point of contact. •

• Range of support from central and regional volunteer operations team.

• Reimbursement of out-of-pocket expenses

What skills or experience do you need?

• Good listening and communication skills including written and spoken English

• Respectful and non-judgemental with clients, their family, other agencies and SSAFA colleagues

• Willingness and ability to learn basic digital skills.  Ability to send and receive emails – you will receive your own SSAFA email address which you will be required to use when exercising your role  

• Ability to make enquires on behalf of clients by phone, email, letter or by filling in forms

• If required, willingness to use our on-line case management system (this is covered in the caseworker training course)

• Ability to keep within boundaries of the role with regards to friendship or giving advice

• Reliable attitude, contact clients promptly, keep appointments, update the branch regarding your availability 

• Access to public transport or a car to travel to appointments with clients

• Friendly and approachable with some experience of coordinating people and admin

•       Practice confidentiality and data protection in line with SSAFA policies. 

We welcome volunteers of all backgrounds, abilities, races, sexual orientations, socio-economic backgrounds, and of all faiths and none. SSAFA are committed to making reasonable adjustments to support volunteers with disabilities, so they have access to the same opportunities and experiences as volunteers who do not.

Minimum Age: 18  

Safer Recruitment: SSAFA undertakes a systematic approach and utmost care at every step of the process of volunteer recruitment, selection, and retention to ensure that those recruited are suitable and appropriate. Measures taken at points along this journey work together to make volunteering at SSAFA a positive and safe experience

References Required: Yes. We will ask for two references, this can be former employers or people that know you well (other than relatives)

Is a criminal record check required?  Yes, Garda Vetting, this is provided by SSAFA at no cost to the potential volunteer.

Could you look after the finances for the local SSAFA service in your area? You don’t need a military background, just some basic I.T and finance skills. If so, this could be the role for you.

What is a Branch Treasurer?

There are SSAFA branches throughout the UK and overseas. These are divided into small local areas that we call divisions. Each branch has a treasurer overseeing the divisions that, in turn each have a treasurer of their own. This is a key role involving financial planning and financial administration.

Why do we need you?

We’ve been supporting the Armed Forces community since 1885. Our clients come from all backgrounds and age groups and may have served in WW2 or in a more recent conflict like the Falklands or Afghanistan.

There are SSAFA branches throughout the UK and overseas who support local volunteers to deliver services to veterans, serving personnel and their families. Some branches are divided into smaller divisions to ensure the best local service delivery. Each branch has a team of volunteer caseworkers, support volunteers, executive roles and fundraisers.

One of the key ways we help people is by tapping into various sources of funding on their behalf. Monitoring and reconciling this flow of funding into and out of SSAFA accounts is important to ensure clients receive timely support and we are able to account for all charitable funds in our care.

When would you be needed and where would you be based?

As part of your local branch, you might have access to an office, but many volunteers are based at home. This flexible role involves using our on-line financial management system and on-line bank accounts and so can be done when and where suits you best. You will need to attend a number of branch committee meetings each year.

What would you be doing?

· Maintaining and reconciling local bank accounts and recording transactions

· Supporting divisions to manage their local finances.

· Making and recording all authorised payments

· Preparing year end accounts and financial statements including arranging an independent review

· Working with the branch secretary, advise on a local fundraising programme to cover branch running costs.

· Identify and manage the return of any surplus monies from grants as appropriate.

· Providing reports to the branch committee and to SSAFA’s Central Office

· Maintaining accurate records using our on-line finance management system

· Being a positive ambassador for SSAFA remembering that anyone you meet could be a potential client, volunteer, or fundraiser.

· Volunteering within the standards and values of SSAFA including observing our policies such as the Volunteering policy and data protection policy (these will be covered in your training and local induction.)

The remit of this role may change over the next 12-18 months depending on the outcome of a trial currently being undertaken.

What can you gain from this volunteering role?

· Gain experience of holding a responsible role in a well-respected charity

· Use your skills, knowledge, and life experience to benefit others.

· Support and friendship from your local SSAFA branch and the wider SSAFA community

· Experience, training and skills that you can highlight on your CV and in job interviews.

· Reimbursement of out-of-pocket expenses

· Better physical and mental health – studies show that volunteers live longer and experience lower levels of stress and depression!

What training and support would you receive?

· Role specific training to prepare you for your voluntary role – treasurers webinar (with some pre-course learning), and financial management system training.

· Mandatory on-line training modules to complete at home, so you are up to date on how to keep clients, their families safe and personal information safe.

· Support from the branch Chair and the Finance team based as our central office.

· Access to a range of e-learning courses

· Support from the Volunteer Support Manager and the Volunteer Support Team based at our central office.

· Reimbursement of out-of-pocket expenses

· Volunteers will be covered by SSAFAs Public Liability Insurance whilst carrying out the role.

What are we looking for?

· Friendly and approachable people with some experience of financial administration

· Good written and spoken English.

· Ability to be respectful and non-judgemental with volunteers, other agencies and SSAFA colleagues.

· Ability to send and receive emails – you will receive your own SSAFA email address.

· Willingness to use our on-line banking and on-line finance management system (this is covered in training)

· Reliable attitude: contact volunteers promptly, keep appointments etc.

· Ability to maintain confidentiality and keep information safely.

· Access to public transport or a car to gravel to meetings etc.

We welcome volunteers of all backgrounds, abilities, races, sexual orientations, socio-economic backgrounds, and of all faiths and none. SSAFA are committed to making reasonable adjustments to support volunteers with disabilities, so they have access to the same opportunities and experiences as volunteers who do not.

Minimum Age: 18

Safer Recruitment: SSAFA undertakes a systematic approach and utmost care at every step of the process of volunteer recruitment, selection, and retention to ensure that those recruited are suitable and appropriate. Measures taken at points along this journey work together to make volunteering at SSAFA a positive and safe experience.

References Required: Yes. We will ask for two character references, this can be a former employer or someone that know you well (other than a relative)

Is a criminal record check required? No

Ref: V254 | Service Group Supporter | West Kent

We’re looking for one or two service group supporters over the age of 18 years old, based at Beefeater, Hilden Manor, Hildenborough, TN10 3AN. 

You’ll be volunteering, fortnightly, on a Friday between 10:00am and 11:30am.

As a stroke group supporter you will be part of a team assisting in the running of one (or more) of these service groups and in doing so you help make a real difference to the lives of stroke survivors.

The volunteers will:

· Support people to take part in activities organised for the group.

· Assist our staff in arranging activities for the group, providing information and researching local activity options.

· Meet and greet group members and support our staff in setting-up and clearing away venues for group meetings.

· Help with other tasks to help the group run smoothly such as risk assessments and gathering feedback from people who attend.

· You might also assist stroke survivors in developing their communication skills in small groups. You would be willing to learn and use the technique, called ‘supported conversation’, that is used to support people with communication difficulties.

A Disclosure and Barring Service (DBS) check is required for this role.

Interested in this role?

Find out more by clicking the link below to take you through to our Stroke Association website. Here you can find our Service Group Supporter Role Description and contact details for the Volunteer Manager.

About Us

Stroke Association

Finding strength through support

The Stroke Association is the only charity in the UK providing lifelong support for all stroke survivors and their families. We provide tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke. 

We’re here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.

It’s only thanks to the generosity of our supporters and donors that we can provide vital support. 

Stroke Association is driven by our ambition to improve the lives of everyone affected by stroke. This means we’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by Our approach to solving inequity in stroke, we are prioritising listening to, and learning from, lived experience across our charity.

We are working to improve the representation of this lived experience at all levels within the Stroke Association and we are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how we work.

We are a Disability Confident employer, and we are making great progress focusing on flexible working, reasonable adjustments and access to work. Our charity has a variety of staff network groups and we're committed to continuously improving our diversity and inclusion efforts. If you have questions, or access needs, we’re happy to discuss any support and adjustments we can make throughout the recruitment process so that you’re able to contribute your best in a way that meets your needs.

Could you look after the finances for the local SSAFA service in your area? You don’t need a military background, just some basic I.T and finance skills. If so, this could be the role for you.

What is a Branch Treasurer?

There are SSAFA branches throughout the UK and overseas. These are divided into small local areas that we call divisions. Each branch has a treasurer overseeing the divisions that, in turn each have a treasurer of their own. This is a key role involving financial planning and financial administration.

Why do we need you?

We’ve been supporting the Armed Forces community since 1885. Our clients come from all backgrounds and age groups and may have served in WW2 or in a more recent conflict like the Falklands or Afghanistan.

There are SSAFA branches throughout the UK and overseas who support local volunteers to deliver services to veterans, serving personnel and their families. Some branches are divided into smaller divisions to ensure the best local service delivery. Each branch has a team of volunteer caseworkers, support volunteers, executive roles and fundraisers.

One of the key ways we help people is by tapping into various sources of funding on their behalf. Monitoring and reconciling this flow of funding into and out of SSAFA accounts is important to ensure clients receive timely support and we are able to account for all charitable funds in our care.

When would you be needed and where would you be based?

As part of your local branch, you might have access to an office, but many volunteers are based at home. This flexible role involves using our on-line financial management system and on-line bank accounts and so can be done when and where suits you best. You will need to attend a number of branch committee meetings each year.

What would you be doing?

• Maintaining and reconciling local bank accounts and recording transactions
• Supporting divisions to manage their local finances.
• Making and recording all authorised payments
• Preparing year end accounts and financial statements including arranging an independent review
• Working with the branch secretary, advise on a local fundraising programme to cover branch running costs.
• Identify and manage the return of any surplus monies from grants as appropriate.
• Providing reports to the branch committee and to SSAFA’s Central Office
• Maintaining accurate records using our on-line finance management system
• Being a positive ambassador for SSAFA remembering that anyone you meet could be a potential client, volunteer, or fundraiser.
• Volunteering within the standards and values of SSAFA including observing our policies such as the Volunteering policy and data protection policy (these will be covered in your training and local induction.)

The remit of this role may change over the next 12-18 months depending on the outcome of a trial currently being undertaken.

What can you gain from this volunteering role?

• Gain experience of holding a responsible role in a well-respected charity
• Use your skills, knowledge, and life experience to benefit others.
• Support and friendship from your local SSAFA branch and the wider SSAFA community
• Experience, training and skills that you can highlight on your CV and in job interviews.
• Reimbursement of out-of-pocket expenses
• Better physical and mental health – studies show that volunteers live longer and experience lower levels of stress and depression!

What training and support would you receive?

• Role specific training to prepare you for your voluntary role – treasurers webinar (with some pre-course learning), and financial management system training.
• Mandatory on-line training modules to complete at home, so you are up to date on how to keep clients, their families safe and personal information safe.
• Support from the branch Chair and the Finance team based as our central office.
• Access to a range of e-learning courses
• Support from the Volunteer Support Manager and the Volunteer Support Team based at our central office.
• Reimbursement of out-of-pocket expenses
• Volunteers will be covered by SSAFAs Public Liability Insurance whilst carrying out the role.

What are we looking for?

• Friendly and approachable people with some experience of financial administration
• Good written and spoken English.
• Ability to be respectful and non-judgemental with volunteers, other agencies and SSAFA colleagues.
• Ability to send and receive emails – you will receive your own SSAFA email address.
• Willingness to use our on-line banking and on-line finance management system (this is covered in training)
• Reliable attitude: contact volunteers promptly, keep appointments etc.
• Ability to maintain confidentiality and keep information safely.
• Access to public transport or a car to gravel to meetings etc.

We welcome volunteers of all backgrounds, abilities, races, sexual orientations, socio-economic backgrounds, and of all faiths and none. SSAFA are committed to making reasonable adjustments to support volunteers with disabilities, so they have access to the same opportunities and experiences as volunteers who do not.

Minimum Age: 18

Safer Recruitment: SSAFA undertakes a systematic approach and utmost care at every step of the process of volunteer recruitment, selection, and retention to ensure that those recruited are suitable and appropriate. Measures taken at points along this journey work together to make volunteering at SSAFA a positive and safe experience.

References Required: Yes. We will ask for two character references, this can be a former employer or someone that know you well (other than a relative)

Is a criminal record check required? No

Could you help to raise vital funds for SSAFA in your local area? You don’t need a military background, just the ability to get on with all kinds of people and some occasional free time.

What is a Branch Fundraiser?

As part of a local team, our fundraisers represent SSAFA at events, and in public. The role includes helping at fayres, street collections, concerts, quizzes, raffles, sporting events etc.

Why do we need you?

SSAFA branches rely on regular charitable income to fund all the necessities behind our support for clients. This includes volunteer travel expenses, phone bills, publicity and grants for clients in urgent need. A varied programme of fundraising also keeps the SSAFA profile high in the local community, so everyone knows who we are and how we can help.

When would you be needed and where would you be based?

This role involves being out and about at public events and would suit someone looking to give the occasional day, half day or evening to support SSAFA; when and where would be flexible to suit you.

What would you be doing?

Examples of tasks would include:

• Being part of a team with collection/buckets tins at events, supermarkets, shopping centres, etc.
• Acting as a marshal at a public event e.g. handing out water to runners, supervising parking etc.
• Being part of a team running a stall at an event, Armed Forces Day, fayre, county show etc.
• Helping with putting up posters, building gazebos, serving refreshments, packing/unpacking cars etc.
• Being a positive ambassador for SSAFA, engaging people of all backgrounds and interests
• Volunteering within the standards and values of SSAFA including observing our policies such as the Volunteering policy and data protection policy (these will be covered in your training and local induction.)

The remit of this role may change over the next 12-18 months depending on the outcome of a trial currently being undertaken.

What can you gain from this volunteering role?

• Use your skills, knowledge and life experience to benefit others
• Give tangible and practical support to your local branch by raising funds used directly to support clients
• Support from your local SSAFA branch and the wider SSAFA community
• Experience, training and skills that you can highlight on your CV and in job interviews
• Better physical and mental health – studies show that volunteers live longer and experience lower levels of stress and depression!

What about training and support?

• Fundraising workshops
• Training modules to complete at home, so you are up to date on how to keep clients, their families and personal information safe
• Access to a range of e-learning courses, fundraising guidance and marketing materials
• Local Fundraising Coordinator
• Fundraising Manager (per region)
• Access to the Fundraising and Marketing teams based at our central office
• Reimbursement of out-of-pocket expenses

What are we looking for?

• Friendly and approachable people
• Confident people who feel happy to engage with the public, potential clients, volunteers and SSAFA colleagues face-to-face
• Reliable attitude, staying connected the Fundraising Coordinator about your availability
• Ability to maintain confidentiality and keep information safely
• Access to public transport or a car to get to events

We welcome volunteers of all backgrounds, abilities, races, sexual orientations, socio-economic backgrounds, and of all faiths and none. SSAFA are committed to making reasonable adjustments to support volunteers with disabilities, so they have access to the same opportunities and experiences as volunteers who do not.

Minimum Age: 16

Please note: If you are under 18 you are not allowed by law to volunteer at a street collection, raffle or an event serving alcohol. If you are under 16, please contact us, you will need to volunteer with a parent or adult responsible for your safety.

Safer Recruitment: SSAFA undertakes a systematic approach and utmost care at every step of the process of volunteer recruitment, selection, and retention to ensure that those recruited are suitable and appropriate. Measures taken at points along this journey work together to make volunteering at SSAFA a positive and safe experience.

References Required: Yes. We will ask for two references, this can be former employers or people that know you well (other than relatives)

Is a criminal record check required? No

Role overview

We are looking for self-motivated individuals who can work efficiently and independently to help us create an exciting and dynamic fundraising strategy to maximise income generation and raise awareness of the organisation. 

Main duties of the role

• Contribute to the development of fundraising ideas
• Research and evaluate local and national trends for activities and make recommendations
• Support the development of the events calendar
• Plan and support the delivery of fundraising events and activities acting as an ambassador for YSS
• Adhere to company policies, particularly our Equity, Diversity and Inclusion policy, GDPR policy and Safeguarding policy.

What we're looking for:

• Keen interest or experience of fundraising
• Disciplined in home working
• Ideas and up to date thinking to reach target audience
• Able to travel to the office when needed (e.g., occasional meetings in Worcester)

What we can offer:

• Autonomous working within a small friendly team.  Flexible working arrangements
• Basic training in relevant social media platforms and management tools (if required)
• Access to specialist advice from our business partners and analysts to further your knowledge and experience.
• Experience of networking across multiple organisations both in the public and private sector
• References for your C.V /job applications

Go Dharmic is seeking a dedicated and detail-oriented volunteer to assist in managing and growing our online stores on Shopify and eBay. This role supports our fundraising efforts, with all proceeds going toward humanitarian aid, food relief, and environmental initiatives.

Key Responsibilities:

• Manage product listings on Shopify and eBay (descriptions, pricing, photos)

• Support inventory tracking and order fulfillment coordination

• Monitor customer queries and provide timely responses

• Assist with basic marketing tasks, such as promotions and social media integrations

• Analyze sales reports and suggest improvements to drive growth
   

Ideal Candidate:

• Experience with Shopify and/or eBay platforms

• Strong attention to detail and organizational skills

• Interest in social impact, charity, or nonprofit work

• Able to commit a few hours per week remotely

Ealing Foodbank is looking for Trustees. We would particularly welcome applications from those with experience in one (or more) of the following areas: fundraising and communication.

Who we are

Ealing Foodbank is a local charity, serving people in Ealing who need emergency food. We are open 8 times a week at 7 locations around Ealing. We give out around 1300 food parcels a month. We want to make sure people visiting the foodbank get the right help to resolve their crises where possible. We work together with Crosslight advice (debt and benefit advice) and Ealing Law Centre (housing and benefit advice) to achieve this.

Being a trustee

As a trustee you can use your skills to contribute towards supporting those in crisis in our local community.

As Trustee you will be expected to:

• Understand and support Ealing Foodbank’s work and aims
• Reflect our vision, values, strategy and policies
• Work closely with the rest of the board to formulate and review our strategic aims
• Ensure our policies and practices are in line with our aims
• Ensure Ealing Foodbank functions within the necessary legal and financial requirements
• Ensure resources are used effectively and efficiently
• Monitor and evaluate the performance of the organisation
• Make time to read necessary paperwork
• Attend board meetings
• To help promote the organisation to a wide audience of potential funders and beneficiaries and community stakeholders
• Use your skills, wisdom to benefit the board and organisation
• Fulfil other duties as required occasionally by the board

Skills, attributes and experience

• Knowledge of (can be gained) and commitment to the work of Ealing Foodbank.
• Willingness to actively participate in discussions concerning needs of the foodbank’s beneficiaries, staff, and the trustee board.
• Willingness to act in the best interest of the charity.
• Sound, independent judgement and ability to think creatively.
• Working effectively as a team member and demonstrating a willingness to learn and develop.

Time commitment

Trustee meetings are held 6 times a year, normally in the evening from 7pm at our office. Trustees are expected to undertake additional work for the charity between meetings, subject to their availability and skill set.

 Please note the Trustee role is voluntary and unremunerated, though reasonable expenses can be reimbursed.

Applications

Applicants must have a connection with Ealing borough.

Ealing Foodbank is an independent Christian charity affiliated with the Trussell network. The Christian faith underpins everything that Ealing Foodbank does and stands for as expressed in our Vision, Mission and Values statement. We therefore ask trustees to sign our statement of faith, which we will email to you.

Please click 'how to apply' for details on how to apply.

Are you passionate about making a meaningful impact in the rare disease community?

Are you interested in supporting the growth of a thriving charity that is expanding its reach and ambition?

If so, Beacon for Rare Diseases is looking for at least two new Trustees to help shape our future and strengthen our support for individuals and families affected by rare conditions.
 

About Beacon for Rare Diseases

Beacon for Rare Diseases is a small but growing charity dedicated to transforming outcomes for those living with rare diseases by building a united rare disease community with patient groups at its heart.

Patient groups are a lifeline for rare disease patients and their families. When a rare diagnosis is made, many people are simply handed a one-page Google printout of the condition and told to go home and live their lives as best as they can. No one knows anything about the condition. There is no treatment. There is nothing anyone can do. The alarming lack of knowledge, support and understanding from the healthcare sector propels these individuals and families into isolation with more questions than answers.

Patient groups break this isolation by connecting people with shared conditions, helping them share experiences, answering questions, and driving change in neglected rare diseases. At Beacon, we help these patient groups form, grow, and professionalise – helping them be the best they can be to support the whole rare disease community.  

Since founding in 2012, we have expanded our programmes and outreach, aiming to improve diagnosis, treatment, and support services across the UK and beyond. In this time, we have supported over 400 rare disease patient groups. As such, our patient group Empowerment Programme continues to drive our organisation’s core mission: we have over 600 users on our e-learning platform, The Resources Hub, and had 296 live training event attendees in the last year.  

This core patient group training is now supplemented by a leading role in the European REMEDi4ALL consortium for drug repurposing, and a role in the Hub for LifeArc’s new Translational Centres for Rare Disease. Our growing project diversity and impact is driven by our enthusiastic and committed team, which has grown from three people in 2018 to a peak of 12 staff in 2024-25. This charity also benefits from a stable leadership group, with our CEO and COO spending 10 and 9 years respectively at Beacon.

“Beacon helps make what seems impossible, possible.”

The trustee role

As we enter an exciting new phase of development under a new Chair of Trustees, we are looking for Trustees who can bring fresh expertise to our board.

We are particularly interested in recruiting:

• A Trustee with lived experience of a rare disease or of patient group leadership, to help ensure our work remains grounded in the real needs of our community and to guide patient-centred decision-making.
• A Trustee with financial expertise, to review and advise on our financial reporting, oversight, and strategic financial planning.
• A Trustee with fundraising and investment experience, especially someone able to help Beacon broaden its network and build long-term relationships with funders keen to support the charity on a sustainable basis.

About the Role

As a Trustee, you will help set the strategic direction of Beacon for Rare Diseases, oversee the organisation’s activities, and support its ongoing growth. Your responsibilities will include ensuring compliance with charity regulations, financial stewardship, and working with the team on fundraising and partnership development. There will also be opportunities for advocacy and raising awareness about rare diseases at a national level, both through Beacon’s own events and projects, and representing Beacon in the wider rare disease community.

This is an exciting opportunity to influence the future of a charity that is expanding its reach and capabilities nationally and internationally, helping us to better serve our community and increase our impact.

Main duties and responsibilities

• Attend quarterly board meetings.
• Provide strategic advice and guidance to the CEO and staff.
• To provide oversight on the charity’s finances and governance – including the review of management accounts and contribution to the annual accounting process.
• To attend an annual day-long strategy meeting with the board and employees, and at least one Beacon event each year (reasonable travel expenses where in-person attendance is required will be covered).
• To provide support, advice or training for Beacon’s patient engagement events on an ad hoc basis and based on your experience.
• To advocate for Beacon and rare disease patient groups through your work and network, offering connections that support the organisation’s goals, and represent Beacon, our mission and interests at external events with the support or guidance of the CEO, board and Beacon team.
• To help ensure the sustainability of Beacon as an organisation and the fulfilment of our mission, to ensure no one walks their rare disease journey alone.

About You

We are looking for individuals who are committed to improving outcomes for people with rare diseases and who can bring fresh perspectives and expertise to our Board. Specifically:

• For the lived experience role: personal experience of a rare disease or patient group leadership and a passion for advocacy and patient support.
• For the financial role: experience in financial management, reporting, auditing, or strategic financial planning.
• For the fundraising and networking role: experience in large fundraising campaigns – whether charitable or corporate investment – a diverse network, and success engaging with high-net-worth individuals.

You should be an enthusiastic team player, comfortable with governance and strategic discussion, and eager to help Beacon navigate its next chapter of growth.

Benefits of Joining

This is a voluntary role, but with potential to guide the continued growth and development of an ambitious charity, well positioned in the field of rare diseases – an issue likely to grow in importance and relevance with the rapid advances in genetic science, and the increased focus on health equality and equity in the UK and beyond.

You will get the opportunity to:

• Contribute to a pioneering, expanding charity with a vital mission.
• Gain governance experience and develop leadership skills.
• Be part of a passionate community making a real difference to lives affected by rare diseases.
• Play a key part in shaping the future direction of Beacon for Rare Diseases.

How to Apply

Please send your CV and a short cover letter outlining your interest and relevant experience to the email in the full job description. We welcome applications from diverse backgrounds and are committed to equality and inclusion.

The deadline for applications is 4th August 2025. Shortlisted candidates will first be invited for a phone conversation, followed by a formal interview process including the opportunity to meet the team and observe a Trustee meeting.
 

FAQs

What is the time commitment?
Trustees typically meet quarterly, with additional time required for committee involvement and specific projects. We estimate around 4–6 hours per month, adaptable to your availability.

How long is the term for a Trustee?
Beacon does not currently have a fixed term of trusteeship, though trustees are required to resign and seek re-election by the board every two to three years. We may explore more fixed term appointments in the future and would look for at least a two-year commitment from any new trustees.

Where are meetings held?
The majority of meetings are held online using zoom. In person strategy days are generally held in Cambridge, close to the train station, though locations in central London may also be explored for face-to-face meetings in the future.

Do I need to be a UK citizen, or based in the UK?
No. Beacon is open to appointing trustees from outside the UK, but, as a UK registered charity we need to retain a majority of our board and our focus within the UK. If you are seeking to apply for this position from beyond the UK, we recommend you contact Beacon to discuss your application in advance.

I have no prior experience as a trustee – can I still apply?
Absolutely. We welcome applications from all backgrounds and will provide support and resources to help you succeed in the role.

About Roots Academy 

At Roots Academy, we’ve built a learning experience that’s changing the lives of the ummah’s future leaders, change-makers and visionaries.

Our vision is enabling university students to live God-centred lives, so we teach structured, engaging and transformative face-to-face foundational Islamic education to over 2,000 students across the UK, Ireland, Canada & Australia.

Role Summary:

The Fundraising Lead for Roots Academy Canada will be responsible for developing and executing fundraising strategies to support the expansion of Roots Academy’s programs.

This role is critical in ensuring that Roots Academy has the financial resources needed to deliver high-quality Islamic education to communities around the world.

The ideal candidate will be passionate about the mission of Roots Academy, skilled in engaging donors and securing funding through various channels, and able to build lasting relationships with key stakeholders.

Key Responsibilities:

Community Engagement:

• Develop and implement a dynamic fundraising plan that includes a variety of strategies tailored to Roots Academy’s target audiences, including university MSAs, mosques, and Islamic organisations.

• Identify and build partnerships with key community organisations, MSAs, and Islamic centres to create collaborative fundraising opportunities.

• Stay adaptable to emerging opportunities for funding, leveraging both traditional and innovative approaches to engage and attract potential donors.

Relationship Building:

• Actively engage with MSAs, Islamic centres, and community organisations to establish Roots Academy as a cause worth supporting and to cultivate long-term donor relationships.

• Collaborate with MSAs and community partners to organise local fundraising events, campaigns, and other initiatives that resonate with the community.

• Serve as a liaison between Roots Academy and these partner organisations to foster a spirit of collaboration and mutual support.

• Work closely with MSAs and community organisations to retain donors by creating meaningful engagement opportunities and maintaining a sense of involvement with Roots Academy’s mission.

Campaign Management:

• Lead and coordinate diverse fundraising campaigns, including online initiatives, MSA-driven campaigns, and in-person events like benefit dinners and community gatherings.

• Work with Roots Academy’s marketing team to create campaign materials and digital content, ensuring that each initiative is tailored to engage and inspire potential donors.

• Coordinate and oversee logistics for events, ensuring a smooth and impactful experience for all participants and maximising fundraising outcomes.

Tracking and Reporting:

• Maintain accurate records of fundraising activities, donor interactions, and campaign outcomes to ensure transparency and accountability.

• Provide regular reports to the leadership team on fundraising efforts, adapting strategies as needed based on campaign performance and community feedback.

• Use data to evaluate the effectiveness of different fundraising approaches, enabling continuous improvement in future efforts.

Skills and Qualifications:

• Fundraising Experience: Proven experience in developing and executing successful fundraising strategies, particularly for nonprofit organisations, educational initiatives, or Islamic institutions.

• Community-Oriented: A deep understanding of the Muslim community in Canada, especially in relation to university students and local mosques.

• Relationship Building: Proven experience in building and maintaining meaningful relationships with a wide variety of stakeholders.

• Project Management: Strong organisational skills with the ability to support program delivery efficiently.

• Communication: Excellent communication skills, with the ability to engage diverse audiences, from students to community leaders.

• Commitment to Ihsaan: This role requires someone who strives to deliver their responsibilities with ihsaan.

• Dedication to Service: A heart for khidma (service), and a desire to make a positive impact on the lives of young Muslims through education.

What We Offer:

• Be part of a team of 100+ dedicated volunteers from across the globe.

• Receive continuous rewards for those that seek Islamic knowledge from the Roots platform. 

• Be a part of a growing organisation that aims to revive and educate Muslims from a grassroots perspective.

• Receive in-house tarbiyah sessions to develop your deen. 

Please note this is an unpaid volunteer position. 

Volunteers are entitled to claim expenses incurred for food, travel and equipment, in line with our Expenses policy. 

Romsey charity looking for volunteer Trustees – do you have some time to spare to support this long-established and well-known local cancer support charity?

Romsey Cancer Support Centre (Jane Scarth House and Jane’s Charity Shop) is looking to appoint two Trustees. Applications from people with experience in finance and fundraising are specifically welcomed. We would be looking for someone to start as soon as convenient and to serve for an initial term of 3 years.

All the information about our charity and what is involved in being a Trustee with us can be found in our Information Pack. 

If you are interested, have questions or would like to know a bit more about what is involved then please contact Bridget Brook by email giving your email and phone number and we will arrange to have a call or meet up.

This recruitment round does not have a closing date and we will be interviewing and appointing as we receive applications.

Hive is a community arts charity in Shipley, Bradford. We deliver arts and crafts courses, workshops and projects from our centre in Shipley and across Bradford District. We believe that creativity contributes to good health and wellbeing and helps to bring communities together.

We're seeking new Trustees to join our board to oversee our vision and leadership and our legal and financial responsibilities.

Trustees are responsible for ensuring that the charity carries out its activities for the public benefit, in line with its charitable objectives and powers.

The Trustees take collective responsibility and have a legal duty to:

• comply with the charity’s governing document and the law
• act in the charity’s best interests
• manage the charity’s resources responsibly
• act with reasonable care and skill
• ensure the charity is accountable.

In particular we are currently looking for people with experience or skills in HR, finances, safeguarding and governance, but you do not need any special qualifications or previous experience of being a Trustee.

All Hive Trustees should:

• be committed to Hive’s charitable objectives:
  • the advancement of education for the public by the provision of vocational and other training courses; and
  • the provision of facilities for recreation and leisure time activities for people who have need of them by reasons of age, infirmity or disablement, poverty or social and economic circumstances with a view to improving the conditions in life of such persons.​
• be passionate about creativity and the creative arts
• have a positive, non-judgemental attitude to working with people of any ethnic background, culture or religion, gender, family status, sexual identity or who may have a disability.
• approach challenges and problems positively and creatively
• have good independent judgement
• be willing to speak their mind openly but sensitively, and to listen to others
• show empathy towards others
• demonstrate strategic vision
• understand the need for, and be committed to, confidentiality and safeguarding
• work well as part of a focused team, and be prepared to adopt collective decisions
• be willing and able to devote sufficient time and effort to the role
• be enthusiastic and reliable
• follow Nolan’s seven principles of public life:
  • selflessness
  • integrity
  • objectivity
  • accountability
  • openness
  • honesty
  • leadership.

About QuilomboUK

QuilomboUK is a pioneering organisation committed to advancing diversity, equity, inclusion (D&I), and social justice. Through our People First philosophy, we foster workplaces where every voice is heard and valued. Join our remote team to amplify our mission through strategic, inclusive communication that drives engagement, equity, and belonging.

Role Overview

As the Specialist: Talent Communications, you will shape QuilomboUK’s narrative by designing and delivering impactful internal communications and HR marketing strategies. You’ll craft compelling messaging for talent initiatives (e.g., D&I, wellbeing, performance) and lead the creation of employee newsletters, alumni engagement, and employer branding campaigns. This role is ideal for a creative storyteller passionate about using communication as a tool for social justice and organisational change.

Key Responsibilities:

Internal Communication Strategy

• Develop and execute a comprehensive internal communication strategy that aligns with HR and business objectives, ensuring clarity, consistency, and cultural relevance.
• Partner with HR, leadership, and cross-functional teams to communicate talent priorities (e.g., DE&I goals, wellbeing programs, performance frameworks).
• Use data-driven insights to refine communication channels for maximum engagement in a remote environment.

Content Creation & Distribution

• Design and distribute monthly newsletters for professionals and alumni ambassadors, highlighting key updates, success stories, and social justice initiatives.
• Create visually engaging content (e.g., infographics, videos, podcasts) to promote talent programs, ensuring accessibility for diverse audiences.
• Maintain an editorial calendar to prioritise timely, mission-aligned messaging.

Talent Initiative Messaging

• Craft clear, inclusive messaging for HR campaigns (e.g., anti-racism training, mental health resources, recognition programs) to drive awareness and participation.
• Embed social justice principles into all communications, ensuring language reflects QuilomboUK’s values and amplifies marginalised voices.
• Develop toolkits for managers to cascade key messages effectively across teams.

HR Marketing & Employer Branding

• Collaborate with the Talent Acquisition team to design an HR marketing strategy that enhances QuilomboUK’s employer brand and attracts diverse talent.
• Produce content for careers pages, social media, and recruitment campaigns that highlight our culture, D&I commitments, and employee stories.
• Analyse retention and engagement metrics to refine messaging that supports talent retention.

D&I Integration

• Ensure all communications reflect QuilomboUK’s DE&I goals, using inclusive language and imagery.
• Partner with ERGs (Employee Resource Groups) to co-create content celebrating diverse identities and perspectives.
• Lead initiatives to educate employees on equity topics through targeted campaigns (e.g., cultural awareness months, disability inclusion).

Qualifications

• Experience: 3+ years in internal communications, HR marketing, or content creation, preferably in DE&I-focused or mission-driven organisations.
• Skills:
• Exceptional copywriting and storytelling abilities for diverse formats (newsletters, scripts, social media).
• Proficiency in design tools (e.g., Canva, Adobe Creative Suite) and communication platforms (e.g., Google Chat).
• Strong stakeholder management skills, with the ability to influence leaders and collaborate across teams.
• Knowledge:
• Understanding of DE&I communication best practices and trauma-informed messaging.
• Familiarity with employer branding strategies and talent lifecycle touchpoints.
• Alignment: Passionate about QuilomboUK’s mission and the role of communication in driving equity.

Personal Attributes

• A creative visionary who balances innovation with cultural sensitivity.
• Empathetic listener who translates complex ideas into relatable, actionable content.
• Detail-oriented organiser who thrives in a fast-paced, remote environment.
• Advocate for inclusive language and accessible communication design.

Why Join QuilomboUK?

• Impact: Shape narratives that advance social justice and employee belonging.
• Creativity: Experiment with multimedia storytelling in a values-driven environment.
• Culture: Join a collaborative team where authenticity and courage are celebrated.
• Flexibility: Remote work with autonomy and opportunities for growth.

The Professional Development Programme with Quilombo UK is a 16-week UNPAID opportunity that requires a minimum commitment of 12 hours per week, Monday to Friday.

QUILOMBO UK is dedicated to fostering an inclusive workplace environment that values diversity and promotes equality for all employees. As part of our commitment to upholding these principles, we adhere to the guidelines outlined in the Equality Act 2010. We firmly believe in creating a workplace where all individuals are respected and treated fairly. Discrimination of any kind will not be tolerated.

Amplify voices. Ignite change. #CommunicateForJustice #PeopleFirst #InclusiveStorytelling