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Help Change the Future of Polycystic Kidney Disease Research

Patient & Public Involvement and Engagement (PPIE) Manager

PKD Charity
Remote (UK-based) | Part-time (22.5 hours / 3 days per week)
Salary: £33,000–£35,000 FTE pro rata (£19,800–£21,000 actual)

The PKD Charity is looking for an exceptional communicator and relationship-builder to lead patient involvement in groundbreaking PKD research.

This is not a standard engagement role.

You will help ensure that the voices, experiences and priorities of people living with polycystic kidney disease directly influence research, clinical studies and future healthcare decisions across the UK.

PKD affects around 70,000 people in the UK. It causes kidney failure, lifelong health complications and reduced life expectancy. There is currently no cure.

We believe research is stronger when patients are genuinely heard — not consulted as an afterthought.

That’s where you come in.

The Opportunity

As our Patient & Public Involvement and Engagement (PPIE) Manager, you’ll lead and shape involvement activity through the PKD Research Hub, working alongside patients, researchers, clinicians and partners to make research more inclusive, meaningful and impactful.

You’ll:

• Lead and support our Patient Involvement Panel
• Facilitate high-quality patient engagement and focus groups
• Work directly with researchers and industry partners
• Champion authentic lived experience in research decision-making
• Support awareness of clinical studies and research opportunities
• Create compelling patient stories and engagement content
• Help influence the future direction of PKD research in the UK

We’re Looking For Someone Who:

• Understands the power of meaningful patient involvement
• Can confidently manage relationships with patients, researchers and stakeholders
• Has experience in PPIE, health research, healthcare or the charity sector
• Is an excellent facilitator and communicator
• Brings empathy, professionalism and initiative
• Wants to make a tangible difference every single day

Experience in rare disease, kidney health or long-term conditions is welcomed but not essential.

Why Join Us?

At the PKD Charity, you’ll join a passionate national charity working to improve lives through:

• Research
• Advocacy
• Support
• Education
• Patient voice

This is a rare opportunity to shape a growing area of work with real national impact — while working flexibly as part of a supportive, mission-driven team.

What We Offer

✔ Fully remote working
✔ Flexible part-time hours (3 days / 22.5 hrs)
✔ 25 days annual leave pro rata + bank holidays
✔ Pension scheme
✔ Meaningful, purpose-driven work
✔ Opportunity to influence national research activity

Apply Now

For details on how to apply, please see the application pack.

Deadline 9am Monday 1st June. Interviews will provisionally be held online on Wednesday 10th June. However we will monitor applications on a rolling basis and may approach for interview at an earlier date. If we find the right candidate we may close the recruitment campaign at an earlier time, so we encourage you to get your applications in at the earliest opportunity.

About Parenting for Lifelong Health:

Parenting for Lifelong Health (PLH) aims to empower parents to improve child development, reduce family violence, and promote mental health. We give parents the support they need, the skills that work, and trusted advice they can count on to protect and support their children’s health, safety and development. Our parenting courses are developed with families, powered by low-cost and accessible technology, backed by rigorous evidence, and delivered within systems. Originally founded as an initiative in 2012 in collaboration with UNICEF and the WHO, Parenting for Lifelong Health was established as a UK charity in 2022 and since then has reached over 8 million families in more than 35 countries. 

PLH Values  

• Courage We have the courage to design for the big picture and complex problems with a commitment to creating sustainable solutions that last.
• Evidence We believe our work transforms the lives of children, families, and communities. Evidence of impact guides every decision, and we are relentless in pursuing the greatest impact with the least investment of time and resources required for parents and providers.
• Playfulness Parenting and child wellbeing thrives on play — and so do we. We experiment, learn from each other, as well as from parents and children, and create playful and engaging products and programmes that inspire joy, curiosity, and connection.
• Respect Everyone brings something essential. We show kindness in our team, honesty with our partners, and deep respect and empathy for parents and children, and those who are on the frontline of providing services for them.

PLH has a strong commitment to diversity, inclusion, and equity in how we work, who we work with, and what we do. Candidates from minority and disadvantaged backgrounds are strongly encouraged to apply.

PLH also has a strong commitment to the Prevention of Sexual Exploitation and Abuse (PSEA). All candidates considered for the role will be subject to background and reference checks in their country of residence.

Benefits: Flexible remote-working, home office set-up, unlimited annual leave, professional development opportunities, enhanced pension contributions, enhanced statutory leave provisions including maternity and paternity leave.

About the role:

The Finance Manager is responsible for PLH’s financial systems, controls, and compliance. The role is responsible for ensuring smooth financial operations, accurate and timely reporting, and full compliance with UK Charity Commission requirements and donor regulations.

The position acts as:

• the primary point of contact between PLH and its outsourced accounting firm;
• the operational counterpart to a strategic Senior Director of Finance; and
• the primary source of financial support for programme teams. 

Responsibilities:

Financial Operations

• Act as the primary organisational contact for the outsourced accounting firm, setting expectations, reviewing performance, and ensuring service quality.
• Oversee the monthly financial close process, reviewing outputs from the outsourced accounting firm and producing management reports and key financial insights, including:

○ Cash flow and liquidity position

○ Income recognition

○ Restricted vs unrestricted funds

○ Project-level budget variance and cost recovery

• Maintain and update PLH’s Financial Model to reflect actuals, updated revenue and expense projections, and key variances against the approved annual budget, highlighting any significant issues or risks to the Senior Director of Finance.
• Regularly update forecasts based on actual performance and current assumptions within PLH’s Financial Model.
• Manage PLH’s project budgets and work closely with project managers, enforcing consistent standards of budget management, forecasting, and financial reporting.
• Oversee the monthly payroll process, ensuring accuracy, compliance with local regulations, and timely coordination with external providers.
• Manage internal accounts payable and receivable processes, ensuring appropriate controls, approvals, and segregation of duties.
• Manage and maintain PLH’s expense management and banking systems.
• Oversee PLH’s donation processing systems, with a strong focus on fraud prevention, anti-money laundering, and donor due diligence. 

Financial Compliance

• Review accounting records and supporting documentation prepared by the outsourced accounting firm.
• Ensure compliance across all donor-funded projects, in line with donor regulations and PLH’s internal financial policies.
• Enforce and evaluate strong financial policies and internal controls, regularly reviewing and aligning these systems with UK Charity Commission guidance and reporting requirements.
• Lead audit preparation, coordinate internal inputs, and act as primary day-to-day contact for external auditors.
• Organise the completion and submission of PLH’s annual return and HMRC corporate tax return.
• Monitor exchange rate fluctuations and advise the Executive and Operations teams on mitigation measures (including approved salary adjustments) to buffer sharp decreases in currency value, in line with organisational policy. 

Essential criteria:

• Fully or part-qualified professional accountant (ACCA, CIMA, ACA, CPA, or equivalent), or demonstrably equivalent professional experience.
• Minimum of five years’ experience in a finance role, including at least two years in a finance management or senior finance position.
• Demonstrable experience overseeing monthly close processes and producing high-quality management accounts and financial reports.
• Strong experience monitoring budgets, maintaining rolling forecasts, and updating financial models based on actuals and revised assumptions.
• Experience preparing for, coordinating, and supporting audits, including liaison with external auditors.
• Advanced Excel or Google Sheets skills, including complex formulas, linked models, and scenario-based inputs and assumptions.
• Strong experience working with cloud-based accounting systems and the ability to rapidly become fully proficient in PLH’s finance systems.
• Strong understanding of internal financial controls, segregation of duties, and financial policy compliance in a regulated environment.
• Ability to work with outsourced accounting or payroll providers, ensuring accuracy, quality control, and timeliness.
• High attention to detail, analytical rigour, and ability to interpret financial data to support evidence-informed decision-making.
• Ability to communicate financial information clearly to non-finance colleagues and support budget-holder capacity-building. 

Preferred criteria:

• Bachelor’s degree in accounting, finance, economics, business administration, or a closely related quantitative discipline.
• Experience working within a UK-registered charity and familiarity with Charity Commission guidance and reporting requirements.
• Experience implementing or maintaining financial policies and procedures aligned with UK charity governance standards.
• Experience managing multi-currency transactions and foreign exchange exposure, ideally using Xero or comparable systems.
• International donor compliance experience, particularly with institutional or multilateral funders (e.g. UNICEF, UN agencies, WHO, major foundations). 
• Demonstrated success working in early-stage or scaling organisations, with the ability to operate both independently and collaboratively.
• Experience working with globally distributed teams and multiple country contexts.
• Confidence delivering financial guidance or training to project managers and non-finance staff.
• High level of proficiency in written and spoken English. 

Please note that Parenting for Lifelong Health uses AI-assisted tools to help review and shortlist applications. See our Privacy Statement for more information. 

Are you our next Trusts Fundraising Officer?

If you have a talent for story telling, are looking for a role where your words can make a lasting impact and are passionate about giving vulnerable young people life changing opportunities, then this is the job for you. We’re seeking a talented individual who can tell our story and help secure vital funding from trusts and grant-makers.

Trusts and other grant-makers are an important source of funding for our charity. As we look ahead, we’re expanding our Trusts fundraising portfolio to meet the growing needs of our programmes. This is where you come in.

As our Trusts Fundraising Officer, you’ll be an inspiring storyteller whose enthusiasm for our work shines through in your writing. You’ll play a key role in researching new funders, crafting compelling funding applications and keeping our supporters engaged with our work. Your work will involve developing case studies and gathering evidence to show the need for our services. This will help secure sustainable funding. You’ll be supported by our experienced Trusts Fundraising Manager to build lasting relationships with funders. Together, you’ll keep them engaged and informed about the positive impact they’re making on the young people we support.

The Trusts Fundraising Officer must be self-motivated, well organised, able to multi-task, have good administration skills and understand the “power of the outdoors”.  Paid or voluntary experience in a fundraising environment is essential.  This is a great opportunity for somebody looking to take the next step in their career, with plenty of scope to develop your skills and experience within a supportive team. Whilst the role is home-based you must live in the South West to ensure easy access for in-person meetings.

The Charity

At the Youth Adventure Trust, we use outdoor adventure to empower vulnerable young people from Swindon, Wiltshire and Somerset to fulfil their potential and lead positive lives in the future. We work with them to build resilience, develop confidence and learn skills that will last a lifetime, helping them to face the challenges in their lives. Dedicated support, guidance and mentoring from our staff and volunteers ensures young people receive the maximum benefit from our long-term intervention. Our aim is to make a lasting improvement to the lives of vulnerable young people. All our services are provided completely free of charge to the young people who are nominated by schools and other youth organisations to take part.

We’re proud to offer our programmes completely free of charge to participants which means the fundraising team is crucial. With ambitious plans to help more young people over the coming years, our Events Fundraising Officer role is an exciting opportunity to make a real difference. You’ll be well-supported as part of a small fundraising team with a big heart, with plenty of opportunities to visit our programmes and see the tangible impact of your work. 

What We’re Looking For:

• Outstanding communication skills – You can write clearly, persuasively and passionately. You’re confident speaking to others about the charity’s work.

• Writing experience – You have experience writing successful funding applications, proposals, or compelling articles, ideally but not necessarily with a  fundraising focus

• Fundraising experience - You may not have written a grant application before but you should have some paid or voluntary experience in a fundraising capacity.

• Attention to detail – You take pride in your work, have a good eye for detail and a thorough approach.

• Creativity - able to put together eye-catching proposals, impact graphics and social media posts.

• Self-motivation and organisation – You’re able to manage your own time and prioritise effectively.

• Passion for the outdoors and youth development – You understand the importance of giving vulnerable young people outdoor experiences and are willing to put on your waterproofs and join in on our activities and camps to witness first-hand the difference the Youth Adventure Trust makes.

• Willingness to learn - if you think you have what it takes but don’t have lots of experience as a Trusts Fundraiser, this role comes with plenty of scope to develop your writing skills and gain experience within a supportive team environment.

Safer Recruitment

The Youth Adventure Trust is committed to safeguarding and promoting the welfare of young people and requires all employees to share this commitment. The suitability of all prospective employees will be assessed during the recruitment process in line with this commitment and in compliance with current employment legislation, and relevant safeguarding legislation and statutory guidance.