Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
PNH Support is celebrating its 10 year anniversary this year! Much has changed for patients living with the ultra-rare blood condition paroxysmal nocturnal haemoglobinuria (PNH) during this time including the development of a number of new treatments which have transformed many lives. Despite this, patients still face other continuing challenges, for example, dealing with fatigue and the psychological impact of living with a chronic disease. Importantly, patients also need their voices to be represented independent of healthcare professionals. As PNH Support can only continue to support the PNH community with the help of Trustees and volunteers, we are seeking new Trustees to become actively involved in our management and governance including the implementation of our recently developed 5 year strategy. Whether you are an experienced Trustee, or are considering your first appointment, wewould love to hear from you!
Our vision is “No PNH patient in England, Wales and Northern Ireland is alone. All are represented and enabled to live to their full potential with PNH.”
Our mission is to provide support through peer-to-peer contact, educational resources and advocacy.
The Board has recently undertaken a stakeholder engagement exercise to develop our new 5 year strategy to 2030 and new Trustees joining our Board will assist with executing and implementing this plan. Our Board will play a vital role in shaping the future of PNH Support, guiding our strategic direction, setting the budget, and making key decisions on significant initiatives. This is an exciting time to be joining PNH Support as our Board is expanding to drive the new 5 year strategic vision forward!
Becoming a Trustee at PNH Support is both a privilege and a responsibility. This role provides a unique opportunity to make a meaningful impact to the lives of people affected by PNH as well as for their families. As a Trustee, you will help guide the charity, ensuring we stay true to our mission and achieve significant results. Your leadership and insights will be vital to the charity’s success.
The Trustee Board is a diverse and committed team that provides governance and oversight. They ensure that the charity operates ethically, efficiently, and in line with its strategy.
This is an exciting time to be joining PNH Support as our Board is expanding to drive the new 5 year strategic vision forward! Becoming a Trustee at PNH Support is both a privilege and a responsibility. This role provides a unique opportunity to make a meaningful impact to the lives of people affected by PNH as well as for their families. As a Trustee, you will help guide the charity, ensuring we stay true to our mission and achieve significant results. Your leadership and insights will be vital to the charity’s success.
The Trustee Board is a diverse and committed team that provides governance and oversight. They ensure that the charity operates ethically, efficiently, and in line with its strategy. You are not expected to have in-depth knowledge of the legislation governing our work, as we will provide the necessary support and training as required. However, it’s important to be aware
that such legislation exists, and to ensure that PNH Support has the appropriate policies, procedures, and reporting mechanisms in place to maintain compliance where required.
Key responsibilities include:
- Strategic Leadership: Shaping and guiding PNH Support’s vision and future direction in line with the new 5 year strategy.
- Legal and Regulatory Compliance: Ensuring adherence to UK charity laws and fulfilling all reporting obligations.
- Financial Oversight: Monitoring the charity’s finances, safeguarding its assets, and managing risks effectively.
- Governance and Accountability: Promoting transparency, participating in decisionmaking, and overseeing management practices.
- Advocacy and Representation: Acting as an ambassador for the charity, promotingits mission and values to the wider community.
The client requests no contact from agencies or media sales.
Thank you!
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Are you passionate about ‘The Creative Arts’? At Bloomin’ Arts, we see and hear the difference made when ensuring disabled adults have opportunities to be artists and leaders within visual art, drama, dance, and theatre. As a Trustee you will share a responsibility to oversee how our charity is managed and run. Ensuring what we do is always in our participant’s best interest.
Do you recognising ‘art and culture’s’ place in society. Could you help us achieve our future objectives and impact our ability to empower the lives of disabled adults through the creative arts. As Chair, you will play a vital role in:
- · Supporting the development and growth of our charitable arts organisation.
- · Driving our commitment to disability provision and leadership within the arts.
- · Leading with empathy to tackle challenges and direct change where needed.
- · Leading governance and compliance in line with the charity commission.
- · Advocacy and support fundraising as an ambassador for the charity, leveraging your networks to advance the charity’s reach and influence.
- · Ensuring our values and disabled artists (participants) remain at the heart of everything we do.
We are seeking a candidate with:
- · Ideally experience of charitable sector and/or arts and culture management.
- · A strong connection to or lived experience of disability.
- · Ability to lead and inspire other trustees and our staff.
- · Dedication to the role to ensure your contribution and leadership makes a positive difference.
- · Ability to be in person at Trustee Meetings, held at our venue in RH7.
Why it’s an exciting time to join us:
- · This is a time of growth for us as a charity.
- · The challenges we face, we approach positively and openly.
- · We are constantly working to improve awareness and build our relationships to increase our reach and impact.
- · We love finding people who share our passion and vision and will stretch our viewpoints.
- · We celebrate diversity and make inclusion part of what we do every day.
Length of term and time requirements:
Chair to join ideally for a 3 year term and opportunity for a further two.
Approximately 4-6 hours per month inc preparation and attendance for trustee meetings.
Renumeration:
Your services are always hugely appreciated, but services are offered on a voluntary basis and receive no renumeration except expenses reasonably incurred.
You will be required to have informal conversations with:
1st Step - Community Engagement Coordinator.
2nd Step - CEO ( digitally or in person).
3rd and following steps to further help you understand charity and Trustee Board as necessary.
Registered Charity
1 - 5
Enabling opportunities for disabled adults within the creative arts.
The client requests no contact from agencies or media sales.
Thank you!
The Trans Learning Partnership (TLP) is in the process of evolving into a new, independent charity: the Trans Research Partnership (TRP). This transition will be completed by the end of 2025. As part of this transition, we’re recruiting up to five founding trustees to help shape the future of TRP.
TRP will be a trans-led research charity that centres trans voices and produces rigorous, community-led research to inform policy, practice, and public understanding. Our values include trans leadership, intersectional justice, ethical rigour, collaboration, safety, autonomy, imagination, and hope.
We’re looking for people who:
- Are committed to trans liberation and TRP’s mission
- Can contribute time and skills to setting up a new charity
- Bring experience in governance, research, fundraising, equity, or community organising
We especially welcome applications from the global majority, those with working-class backgrounds, and others underrepresented in charity leadership.
Time commitment: ~1–2 days/month. Meetings are remote-first. Expenses reimbursed. Training and mentorship provided.
Deadline: Wednesday 13th August 2025 at 23:59
Interviews: 26 or 28 August (online)
The client requests no contact from agencies or media sales.