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CLOSING DATE: 18 JANUARY 2026
IA is offering an exciting opportunity for a compassionate and experienced Stoma and Pouch Care Specialist Nurse to help us lead and develop our strategic clinical support services to people living with an ileostomy or an internal pouch.
The successful applicant will have been in a similar role for at least 12 months as an experienced Stoma/Pouch Specialist Nurse and qualified to at least (NHS) Band level 6. As someone who is passionate about helping people who have been through, or are considering life-changing surgery, your empathetic approach, high standards and professionalism together with your excellent clinical knowledge and experience will put the patient at the heart of everything that you do.
In addition to direct support through one of our many communications channels, your clinical experience will help us to further our charitable aims, developing additional strategic services supported by our team of staff, trustees and volunteers, many of whom have been through life changing surgery themselves.
As someone who is flexible in their approach and is prepared to think outside of the box, each day will offer a different challenge. Whether you are representing IA at external meetings, on various multi-disciplinary committees or advocating for improvements in products and services available to people living with a stoma and internal pouch, your strong voice and stakeholder management skills will represent both the charity and the voice of the patient.
As a hybrid role, the successful applicant is expected to be a self-starter with drive and determination to help us to grow our services and develop our patient support model. The successful appplicant will primarily be based from home (UK only) however the role will include travel to support charity meetings and events, in addition to furthering our strategic aims through networking. Occasional travel to head office in Essex will be required.
Your up-to-date CV, of up to 3 pages, showing all current and past experience to support your application in addition to a covering letter of up to 300 words explaining why you believe you are suitable for the role.
The client requests no contact from agencies or media sales.
About the role
You will be home based and will need to travel in the UK, Eire, Europe and further afield as the role develops.
You will need some storage space available for Charity materials.
If you are self-driven, motivated, and want to help others achieve something amazing in support of Histiocytosis UK, we would love to hear from you.
You are likely to be in a similar role at another charity or have the right experience and transferable skills from another sector. You’ll be confident, enthusiastic, and an exceptional influencer with great customer care and communication skills.
There will be ample opportunity to shape the role, lead on specific projects and put your ideas into action.
The role will be mainly remote working so your experience and motivation will be key in this role so that we can achieve tangible results.
Who we need?
You will be an excellent communicator, face to face, online, phone or email. You know the importance of listening, and you are the sort of person that brings focus and calm to difficult situations. Prioritising your workload is second nature. Perhaps most importantly of all, you’re energised and driven by a passion for learning and making life better for those with a long term and/or serious illness.
A degree is not essential, but a communication and fundraising skills qualification is desirable. It is important that you have a high standard of writing, and that you are on good terms with your computer, particularly MS office, email and maybe even Mailchimp, Zoom, Sage Accounting, Spreadsheets etc.
The client requests no contact from agencies or media sales.