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Family Support Coordinator
Dravet Syndrome UK
Key Information
About Us
Dravet Syndrome UK (DSUK) is the leading UK charity supporting people affected by Dravet Syndrome, a rare and severe form of epilepsy that impacts the whole family. Founded by parents in 2008, we provide family support, professional education and fund vital research to improve lives and create hope for the future. [Family Sup...JD v1 (1) | Word]
About the Role
We're looking for a compassionate and organised Family Support Coordinator to help deliver practical, emotional and financial support to families affected by Dravet Syndrome.
Working closely with the Head of Family Services, you'll be a key point of contact for families, supporting enquiries, coordinating grants, managing online communities, helping organise family events, and ensuring families can access the information and support they need.
This is a varied and rewarding role combining family support, community engagement, event coordination and administration.
Key Responsibilities
Family Support
Grants & Community Support
Events & Engagement
Administration
About You
Essential
Desirable
Why Join Us?
We are looking for a passionate and motivated Volunteer & Digital Services Coordinator to manage our volunteer programme and our Helpline & Digital Service.
In this role, you will recruit, train, supervise and support all volunteer roles (Helpline & Digital Service, art group and admin volunteers) and develop the volunteering provision at SARA, including organising SARA community events to engage volunteers. You will also have oversight of SARA’s Helpline & Digital Services (helpline, live chat and email service) for survivors of sexual violence. To do this, you will promote SARA’s digital services in Greater Manchester and beyond, develop the digital services procedures, line manage helpline sessional workers, ensure service user confidentiality, safeguard service users using the digital services, coordinate the on-call safeguarding rota for the digital services, identify service user themes, and collect and record all service area data.
Supporting survivors of sexual violence. Formerly TRC / Trafford Rape Crisis
The client requests no contact from agencies or media sales.
About the opportunity
You will help drive the quality and impact of our key stage 2 (KS2), key stage 3 (KS3) and key stage 4 (KS4) English tutoring programmes through improving our English resources. You will create training materials and provide advice and support to our volunteers and our (mostly) non-teaching staff members who manage these volunteer tutors day to day. You will be engaged in our AI tutoring pilot including undertaking pedagogical reviews of potential English AI tutoring tools.
Deadline: Sunday, 26th July
Interviews: Monday, 3rd August 2026
Start date: Ideally, Thursday, 1st October 2026
Contract and hours: 0.6FTE (all year) or 0.8FTE (term time only), 12-month fixed-term maternity cover contract. A full working week is 37.5 hours.
Duties and responsibilities
Person specification
Qualification criteria:
We are looking for someone who is/has:
We are looking for the following attributes, though you might be more experienced in some areas than others:
You will likely be more successful in this role if you:
Award-winning national education charity working towards a world in which no child’s life chances are limited by their socio-economic background.
The client requests no contact from agencies or media sales.
Lead the operations, governance and compliance that enable Solving Kids' Cancer UK to deliver its mission and impact for children and families affected by neuroblastoma. Reporting to the Chief Executive, you will play a critical role in ensuring the charity operates effectively, compliantly and sustainably.
This broad and varied leadership role spans governance, risk, HR, IT, data protection and organisational operations, supporting delivery of the charity's strategy through robust systems, policies and processes. Acting as Company Secretary, you will work closely with the CEO and Board of Trustees, providing advice on governance, regulatory requirements and best practice. As a member of the Leadership Team, you will oversee key operational functions, lead cross-organisational projects and deputise for the CEO where required.
Who are we looking for?
We are looking for a strategic, highly organised and values-driven leader with strong experience in charity operations, governance and compliance. You will have a track record of ensuring organisations are well run, compliant and effectively managed, with the ability to oversee multiple operational areas and support strong governance and decision-making at Board level.
You will be comfortable working across a broad remit, including governance, risk, HR, IT and data protection, and confident providing clear, practical advice to senior leaders and trustees.
Person specification
Key requirements include:
See our Recruitment Pack for the full role description and specification and for information about Solving Kids' Cancer UK.
This is an opportunity to make a significant contribution at the heart of a small, ambitious charity where strong operations are a vital enabler of impact for children and families.
Location: Home-based, within easy reach of London, with regular travel to the London office and occasional UK-wide travel.
First-stage interview: Thursday 6 August
Second-stage interview: Thursday 13 August
Our vision is a future where no child dies of the childhood cancer neuroblastoma or suffers due to the treatment they receive.
The client requests no contact from agencies or media sales.