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Top job
Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted 1 day ago Apply Now
Top job
The Honeypot Children's Charity, Dalleagles (Hybrid)
£33,600 - £35,200 per year
Shape the future for young carers as our Operations Manager – lead services, inspire teams, and make a lasting difference every day.
Posted 6 days ago

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Greenpeace UK, London (Hybrid)
£48,396 - £55,644 (appointments are typically made at the start of the range, with flexibility for exceptional candidates)
Posted 1 week ago Apply Now
Charity People, Romford (Hybrid)
£80,000 - £100,000 per annum
Posted 1 day ago Apply Now
TLC: Talk, Listen, Change, Manchester (Hybrid)
£28,398 - £34,266 per year
We’re recruiting a Communications Lead to join our team.
Posted 1 day ago
Somerset Wildlife Trust, TA1, Taunton (Hybrid)
£26,227 per annum, FTE (£15,736 per annum for 22.5 hours per week)
Posted 1 week ago
Closing in 2 days
FORWARD (Foundation for Women's Health, Research and Development), London (Hybrid)
£31,500 per year - PRO RATA
Posted 3 weeks ago Apply Now
Guy's and St Thomas' Foundation, Southwark (Hybrid)
£70,000 - £74,000 per year
Posted today
PACE, Camden Town (On-site)
£50,000 - £55,000 per year
Posted 2 weeks ago Apply Now
Fund for Global Human Rights, Spitalfields (Hybrid)
£69,110 per year
We are excited to introduce this newly created role Learning & Assessment Manager.
Posted 1 week ago Apply Now
Page 17 of 25
Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
Full-time
Permanent

Using Anonymous Recruitment

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Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

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Posted on: 06 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.