Fundraising group volunteer volunteer volunteer roles in Belfast

Join the pack. Lend a hand. Change lives. Join your local fundraising group as a volunteer.

Are you looking for a volunteering opportunity where you can meet new people and raise funds that will change lives?  Join a Guide Dogs group near you for fun, fundraising and four-legged friends.

Did you know it costs £102,000 to raise, train, and support a guide dog from birth to retirement.

We have a range of roles from being a group member, to taking on a lead role such as Group Coordinator, Deputy Coordinator, Treasurer, Merchandise Coordinator or Collection Box Coordinator.

Why become a fundraising volunteer:

As well as making a huge difference to people’s lives, volunteering with your local Guide Dogs fundraising group is a great way to spend some of your free time and give back.

• Inspire people to support Guide Dogs and make a difference to someone with sight loss.
• Have fun finding new events and places to volunteer at.
• You’ll meet lots of special dogs – from young puppies in training to incredible guide dogs in partnership.
• You’ll empower others to get involved with Guide Dogs.
• You’ll learn new skills and we’ll provide all the training you need for your role.
• You can take on as much or as little as you want, and you can fit the role around your other commitments.

Who you are:

We appreciate our volunteers’ passion and energy, but we also value your unique skills, perspectives and personalities.

• Inspire others: Do you have lots of ideas that could motivate others? We need more inspirational volunteer leaders and fundraisers who can bring their energy and unique perspective to our local fundraising groups.

• Bring your skills: Could you help organise a calendar of events, take care of ordering merchandise, or count the funds raised by your local team? We need more volunteer treasurers, secretaries, and merchandise coordinators to support our fundraising groups.

• Help take Guide Dogs into your community: Are you well connected or do you love going to new places and meeting new people? We need more volunteer fundraisers to help at our events and spread the word about our work.

Training and pre-agreed expenses available.

Visit our webiste to see what roles are available where you live. 

Alex, The Leukodystrophy Charity (Alex TLC) is a small, independent rare disease charity competing for essential resources within an extremely competitive arena.

Like many other small charities, we have grown organically from an informal support group to the recognised voice for leukodystrophy patients and their families. In order to fulfil our charitable objectives we need to increase and sustain our corporate income levels.

Could you spare a few hours a week to help us?

ABOUT THE ROLE

We are looking for volunteers, preferably with corporate fundraising experience to:

• research the corporate giving landscape and the interests of potential donors

• identify potential corporate donors and partners whose corporate social responsibility (CSR) goals align with our mission and values

• approach local and national businesses in person and over the telephone to inform them of the work of Alex TLC

• keep a record of all approaches

Time Commitment

• This role is flexible and can easily fit round your other commitments. 

Location of Volunteering

• Homebased

ABOUT YOU

• an interest in Alex TLC and the work that we do

• access to a computer/laptop with an internet connection, and a printer

• basic understanding of the complexities of leukodystrophy

• excellent written skills

• excellent organisational and administrative skills

Benefits to you:

• Meeting and working with new people

• The ability to volunteer around your own commitments

• Learning new skills whilst having fun!

• Adding to your CV

• Helping those affected by leukodystrophies

We can only accept applications from UK residents. 

Background information:

Harry’s HAT is a UK-based charity focussing on paediatric hydrocephalus. Our mission is to make life better for children and their families who are affected by hydrocephalus. We work towards this aim through:

• Awareness: raising awareness of paediatric hydrocephalus through workshops and training.

• Research: supporting research and funding training (for front-line medical, health and social care workers) to increase understanding of the condition.

• Signposting and support: directing families affected by the condition to organisations that can offer support, advice and guidance and by providing access to our peer-to-peer programme. We do not, however, provide advocacy.

We currently have a vacancy on our Trustee Board for an individual with experience in fundraising and income generation. The Charity is ambitious about extending its reach and ensuring that more families and professionals can benefit from our work. To achieve this, we recognise the importance of growing and diversifying our income.

Key responsibilities of the role:

• Actively participating in Trustee Board meetings.

• Attending quarterly Fundraising and Risk Group meetings, held in the evening for approximately 1.5 hours.

• Working closely with the CEO to support the fundraising pipeline and to ensure all grant applications complement the mission and values of the charity.

• Working with the CEO and other Trustees to strengthen the charity’s fundraising strategy and ensure it aligns with our long-term goals.

• Supporting the development of sustainable income streams, including grants, corporate partnerships, individual giving, and community fundraising.

• Providing ad-hoc input on subjects raised by the Trustee, staff, and volunteer teams.

• Voting on grant applications from medical professionals and clinical researchers. Trustee would also be able to participate in specific projects if they wished to.

Required skills and experience:

The ideal candidate will have experience of fundraising or income generation in a charity or relevant setting. The key attributes for the role are as follows:

• Knowledge of different fundraising approaches such as grants, corporate partnerships, or community fundraising.

• Strong interpersonal and communication skills.

• Ability to display sound judgement and objectivity.
• Experience of working in partnership with healthcare or other relevant organisations or programmes.

• Clear understanding of the importance of safeguarding.

• Discretion when working with sensitive information, and strict adherence to confidentiality when required. Time commitment

• Attendance at six Trustee Board meetings per year (usually Sunday evenings, 18:00–19:30, via Teams).

• Attendance at quarterly Fundraising and Risk Group meetings (1.5 hours, evening).

• Attendance at two 1-2-1 meetings per year with the Chair of Trustees.

• Participation in the AGM and other relevant meetings as needed.

• Timely responses to communications from Trustees, staff, and volunteers.

• Completion of mandatory online training modules. Term and remuneration

• The initial term is 1–3 years, which can be extended by agreement.

• This is a voluntary role. Out-of-pocket expenses will be reimbursed.

• All new Trustees, including the Vice Chair, will serve a 3-month probation period.

#trustee #fundraising 

The Stroke Association - Fundraising Project Volunteer

Our Regional Fundraising Team work closely with individuals, groups, and organisations who are raising money for us or have the potential to raise funds. This can be through our campaigns, active challenges, partnerships or through their own ideas. Fundraising is important to our charity as our specialist support, research and campaigning are only possible with the generosity of supporters. In this role you will help with projects that will help us find new fundraising supporters, help with promoting our campaigns or be involved with ensuring our supporters have a fantastic experience

What the role involves:

As a fundraising project volunteer, there are a wide range of activities that you might be involved with. When you enquire about volunteering, we will find out about your interests and skills to find the right projects for you to support us with. Tasks may vary throughout the year. They include:

• Researching organisations and community groups that may be able to support the charity financially.
• Promoting our fundraising campaigns in communities to encourage them to get involved.
• Helping ensure our supporters have a great experience by thanking them, wishing them good luck or sharing charity updates. This could be through cards, emails or phone calls.
• General administrative tasks on word or excel.
• Support with our events in person if they are near to you. This could involve meeting fundraisers, cheering along our runners or talking about the charity.

Who the role might suit:

• To be an effective fundraising project volunteer you will need a methodical approach to work and be able to follow agreed systems and processes.
• Our fundraising project volunteers need to be thorough with a good eye for detail, and able to use office equipment and relevant computer software.
• Some of the tasks involved will need you to be someone who can communicate effectively in writing, over the phone and in person.
• You will have ongoing support from our staff but will spend much of your time working on your own so you will need to be someone who is comfortable working without direct supervision.

What the role can offer you personally:

• Being a fundraising project volunteer means you will gain practical experience of working in a busy team, supporting our ongoing work and on a variety of projects that make a real difference to people’s lives. 
• The role provides an opportunity to learn new keyboard and IT skills and use various software and database packages.
• Fundraising project volunteers also find it helps them develop new skills with a well-respected charity which can improve their CV and employability.
• You would be able to see how your support has made an impact by seeing the amount of money raised or hearing feedback from our supporters.

Training for this role:

We provide all of our volunteers with training, so they feel confident in the role and give the best possible support to stroke survivors.

Essential training for the role will include some modules on our learn system, such as GDPR, safeguarding and information security. Other training may be required depending on the tasks you complete. We will confirm this as part of your induction.

We also offer a range of optional training courses to support you in your role and to support your knowledge of the Stroke Association.

We also offer ongoing support and expenses where appropriate.

Where and when you would volunteer:

The role is a remote volunteering role that you will complete from home at a time that suits you. There may be times when we invite you along to virtual meetings, but times would be discussed.

A Disclosure and Barring Service (DBS) check, an Access NI check or membership of the Protecting Vulnerable Groups (PVG) scheme is not required for this role.

Our vision is for there to be fewer strokes, and for people affected by stroke to get the help they need to live the best life they can.

Our core purpose is to be the trusted voice of stroke survivors and their families. We want to drive better outcomes in stroke prevention, treatment and lifelong support for everyone affected by stroke.

This role is advertised as part of TPP's Free Giving Back Services. This volunteer advertisement copy has been supplied to TPP and applicants apply direct to the organisation. Please contact the organisation directly if you have any questions about this volunteer role.

Cats Protection is the UK’s leading feline welfare charity and our vision is a world where every cat is treated with kindness and an understanding of its needs. Cats are at the centre of everything we do and our objectives are: homing, neutering and educating people about cats and their care. We help thousands of cats across the UK each year thanks to our network of dedicated volunteers, staff and supporters.

A bit about this role

As a charity we are able to help thousands of cats each year thanks to the generous donations we receive from members of the public. Our fundraising team leaders have the exciting and varied role of inspiring our fundraising volunteers to plan and deliver local fundraising events. Using their passion and imagination, they oversee a small team of fundraising volunteers who come together to raise the vital funds needed to cover costs such as veterinary bills and food. Our fundraising team leaders support their team of volunteers in all aspects of their roles, making sure our volunteers are happy, confident and supported.

What can you expect to be doing?

• Supporting and encouraging a team of fundraising volunteers in the Horsham and district area
• Planning fundraising events and activities with your team
• Allocating tasks before and during fundraising events
• Keeping financial records from fundraising events
• Encouraging and promoting a professional image of Cats Protection 
• Following policies and guidelines and ensuring licences and permits are obtained for events

A bit more information about this role and the team

• This is a flexible role. The amount of time you offer can work to your availability and convenience.
• There may be opportunities for your activities to be fully remote and/or admin based if you'd prefer.
• You will need your own transport if you wish to attend events, ideally a car or van since items, stock and equipment will usually be needed.
• We ask that you complete training to support you in your role. This can be completed online if you have access to the internet and the necessary device (computer/laptop/tablet etc). Support can be offered or paper versions of much of the training if needed.

What are the benefits to you and the cats?

You will develop new skills, expand your knowledge and make a significant contribution to improving the lives of cats and kittens by helping raise funds and awareness through organising local events. You will also meet new people, make new friends and be part of a dedicated team of volunteers.

We’re looking for someone with

• Great people skills and the ability to bring out the best in others
• Excellent organisational skills
• The ability to prioritise and delegate
• An appreciation of the importance of handling money and charity resources responsibly
• Fine-tuned communication skills and a passion for engaging with people within your local community
• Basic IT skills to use Cats Protection systems - training and support can be provided
• Committee volunteers need to be aged 18+

Time expectation

Our fundraising team leaders usually spend three to four hours per week in this role, which is flexible and can be shared by more than one volunteer if needed.

Support, guidance and keeping you safe

At Cats Protection we believe our volunteers should be happy and confident in their roles. We provide support and guidance from our National Cat Centre and through our regional and local volunteer groups and teams. We offer engaging online and face-to-face training, expenses and have policies and processes to help volunteers get the most out of their time with us.

The wellbeing of our people is important and at Cats Protection we are committed to safeguarding children, adults at risk and all those that we come into contact with as part of our activities.

Could you help to raise vital funds for SSAFA in your local area? You don’t need a military background, just the ability to get on with all kinds of people and some occasional free time.

What is a Branch Fundraiser?

As part of a local team, our fundraisers represent SSAFA at events, and in public. The role includes helping at fayres, street collections, concerts, quizzes, raffles, sporting events etc.

Why do we need you?

We’ve been supporting the Armed Forces community since 1885. Our clients come from all backgrounds and age groups and may have served in WW2 or in a more recent conflict like the Falklands or Afghanistan.

There are SSAFA branches throughout the UK and overseas who support local volunteers to deliver services to veterans, serving personnel and their families. Some branches are divided into smaller divisions to ensure the best local service delivery. Each branch has a team of volunteer caseworkers, support volunteers, executive roles, and fundraisers.

SSAFA branches rely on regular charitable income to fund all the necessities behind our support for clients. This includes volunteer travel expenses, phone bills, publicity, and grants for clients in urgent need. A varied programme of fundraising also keeps the SSAFA profile high in the local community, so everyone knows who we are and how we can help.

When would you be needed and where would you be based?

This role involves being out and about at public events and would suit someone looking to give the occasional day, half day or evening to support SSAFA; when and where would be flexible to suit you.

What would you be doing?

• Be part of a team with collection/buckets tins at events, supermarkets, shopping centres, etc.
• Acting as a marshal at a public event e.g., handing out water to runners, supervising parking etc.
• Being part of a team running a stall at an event, Armed Forces Day, fayre, county show etc.
• Helping with putting up posters, building gazebos, serving refreshments, packing/unpacking cars etc.
• Being a positive ambassador for SSAFA, engaging people of all backgrounds and interests
• Volunteering within the standards and values of SSAFA including observing our policies such as the Volunteering policy and data protection policy (these will be covered in your training and local induction.)

The remit of this role may change over the next 12-18 months depending on the outcome of a trial currently being undertaken.

What can you gain from this volunteering role?

• Use your skills, knowledge, and life experience to benefit others.
• Give tangible and practical support to your local branch by raising funds used directly to support clients.
• Support from your local SSAFA branch and the wider SSAFA community
• Experience, training and skills that you can highlight on your CV and in job interviews.
• Better physical and mental health – studies show that volunteers live longer and experience lower levels of stress and depression!

What training and support would you receive?

• Role specific training to prepare you for your voluntary role - fundraising workshops.
• Mandatory on-line training modules to complete at home, so you are up to date on how to keep clients, their families safe and personal information safe.
• Access to a range of e-learning courses, fundraising guidance, and marketing materials
• Local Fundraising Coordinator
• Fundraising Manager (per region)
• Access to the Fundraising and Marketing teams based at our central office.
• Reimbursement of out-of-pocket expenses
• Volunteers will be covered by SSAFAs Public Liability Insurance whilst carrying out the role.

What are we looking for?

• Friendly and approachable people
• Confident people who feel happy to engage with the public, potential clients, volunteers and SSAFA colleagues face-to-face.
• Reliable attitude, staying connected the Fundraising Coordinator about your availability.
• Ability to maintain confidentiality and keep information safely.
• Access to public transport or a car to get to events.

We welcome volunteers of all backgrounds, abilities, races, sexual orientations, socio-economic backgrounds, and of all faiths and none. SSAFA are committed to making reasonable adjustments to support volunteers with disabilities, so they have access to the same opportunities and experiences as volunteers who do not.

Minimum Age: 16

Please note: If you are under 18 you are not allowed by law to volunteer at a street collection, raffle or an event serving alcohol. If you are under 16, please contact us, you will need to volunteer with a parent or adult responsible for your safety.

Safer Recruitment: SSAFA undertakes a systematic approach and utmost care at every step of the process of volunteer recruitment, selection, and retention to ensure that those recruited are suitable and appropriate. Measures taken at points along this journey work together to make volunteering at SSAFA a positive and safe experience.

References Required: Yes. We will ask for two character references, this can be a former employer or someone that know you well (other than a relative)

Is a criminal record check required? No

Our Community Volunteers are vital in enabling us to continue to feed the 3 million children we feed every day and to help us reach the next child. They use their talents in their communities to spread the story of Mary’s Meals.

What is the role of a Community Volunteer?

Some of the things you can do as a community volunteer:

• Help us to share our story – arrange and give Mary’s Meals talks to local community organisations, schools, churches and faith groups to raise vital awareness and funds
• Use your networks and contacts to book talks, stalls and events and help us share our story
• Organise fundraising events in your local area such as coffee mornings, quizzes, supermarket bag packs and bucket collections
• Organise film screenings in your community to show Mary’s Meals films
• Volunteer at local fundraising and awareness events such as film screenings, bucket collections or concerts
• Promote Mary’s Meals’ fundraising campaigns and events in your community and across their networks and contacts
• Distribute and display promotional materials
• Place collection tins in local community areas
• Host community engagement events about Mary’s Meals’ work
• Come together as a group with other local volunteers to support each other with this work
• Lead a group in your community to fundraise for Mary’s Meals

What support and resources will I receive?

• Support, encouragement, and guidance from your local Supporter Engagement Officer
• A comprehensive induction to Mary’s Meals
• Opportunities to join online or in person volunteer meetings and briefings
• Training and if desired, public speaking training
• Resources to fulfil your role
• A regular volunteer update e-mail

What are the benefits of volunteering for Mary's Meals?

• Feeling part of the global Mary’s Meals movement to end world hunger
• Learning new skills and gaining experience as part of a growing and vibrant organisation
• Meeting new like-minded people
• Increasing confidence and team-working skills.
• Developing communication skills (verbal and written)
• Feeling empowered to have your voice heard, knowing that you are playing an active role in changing the lives of those who need it the most.

Our Community Volunteers will work alongside our County Representatives to support our Fundraising Team by being the public face of Combat Stress in their local county, and will help build support from individuals and groups by raising awareness and funds. Income generation is key to our continued success and the support of volunteers enables us to raise more funds to support former servicemen and women, so that when a veteran is having a tough time, we’re there to help tackle the past and to help them take on the future. 

• A full induction to Combat Stress and its work, including training an appropriate materials to support you in the role.
• Ongoing support, advice and guidance from the Regional Community Fundraiser.
• Learn and develop fundraising skills
• Meet new people and be actively engaged in your local community.
• Learn new transferable skills & improve your CV.
• Develop self-confidence.
• Receive reimbursement for out of pocket expenses.
• Be part of the UK’s leading Charity for veterans’ mental health.
• Have the reward of knowing you will be making a positive contribution to the lives of UK Veterans and their families.

Plateful Café works to relieve poverty and isolation amongst refugees, asylum seekers and ethnic minorities in Lewisham. Our commitment is to reach the most vulnerable people in our community and open a pathway to employment for people who have asylum here. Refugees will benefit from workshops, training skills and knowledge relevant for the catering industry. Plateful Cafe are committed to creating an inclusive environment for all volunteers and team members. We are an equal opportunities provider and actively encourage applications from people with a refugee background.

What will the role involve?

• Looking for partnership opportunities with the private sector.
• Assisting with the development and ongoing work of Businesses Fundraising Action Group.
• Assisting in planning fundraising strategies with local businesses.
• Reporting on businesses partnerships and recent developments at Plateful Café.
• Working in partnership with the Plateful Café fundraising team.

Essential:

• Excellent communication skills.
• Experience of working with corporates.
• Expertise in new project creation and developing business links.

Desirable:

• Previous experience in fundraising and/or marketing.

What difference will you make?

• Helping to establish a new Business support group and a sustainable long-term funding structure.
• Developing and maintaining a funding mix, not relying on only one stream of funding.
• Helping local refugees find employment and enter the workforce much sooner than they otherwise might.

Our County Representatives (CR) will support our Fundraising Team by being the public face of Combat Stress in their local county, and will help build support from individuals and groups by raising awareness and funds. Income generation is key to our continued success and the support of volunteers enables us to raise more funds to support former servicemen and women, so that when a veteran is having a tough time, we’re there to help tackle the past and to help them take on the future.

Hours:The role is flexible. You can give as much or as little time as you are able. However, we do ask you ideally commit enough time to build meaningful awareness and support on your base.

What are the benefits of volunteering for Combat Stress?

• A full induction to Combat Stress and its work, including training and appropriate materials to support you in the role such as t-shirts, banners and cheer sticks. 
• Ongoing support, advice and guidance from the Senior Challenge Officer. • Learn and develop fundraising skills.
• Meet new people and be actively engaged in your local community.
• Helping our fundraisers to feel great and keeping them motivated throughout their challenge.
• Receive reimbursement for out of pocket expenses 
• Be part of the UK’s leading Charity for veterans’ mental health.
• Have the reward of knowing you will be making a positive contribution to the lives of UK Veterans and their families.

This is an exciting opportunity for passionate, innovative individuals to join our small but dynamic charity and make a lasting difference for people affected by alopecia.​Alopecia UK is a national charity with a vision for a world where people affected by alopecia live the life they want. The charity’s mission is to offer support, community and education to improve the lives of those with alopecia.

We are seeking talented trustees to strengthen our strategic leadership and support smooth succession as current trustees reach the end of their terms. This is an ongoing recruitment process, and we welcome applications at any time, particularly from those with expertise in the following areas:

• Charity fundraising: Leadership in a fundraising environment, ideally within the charity sector.
• Communications & Marketing: Senior communications or marketing role, with strong audience engagement insight.
• Legal: Experience providing legal advice at a senior level, preferably with charity or governance exposure.
• Dermatology in the NHS: Experience of treating patients with alopecia, with a deep knowledge of clinical pathways and related challenges in primary and secondary care.

About Alopecia UK

Founded in 2004, we work to help adults, young people and children affected by alopecia. This includes those with alopecia, as well as their loved ones. We are a small charity, with an annual income under £500,000, working nationally across the UK. Despite being small, we are the largest alopecia charity in the UK and have big ambitions to continue our growth and development, reaching more people than ever before. We agreed a new strategy in May 2025, and are committed to our key goal, which is to increase our reach, particularly in the communities that haven’t yet found us.

We have a fantastic and dedicated staff team (5.4 FTE) and board of Trustees. We also rely upon the generosity of volunteers, many of whom have personal experience of alopecia themselves. Alopecia UK receives no statutory funding from the government and is funded by community fundraising, donations, funding grants, and corporate partnerships.

​Alopecia UK Trustee Board

The Alopecia UK Trustee Board are a group of dedicated volunteers who are committed to Alopecia’s aims.

The Trustee Board meets four times a year (two face-to-face meetings and two virtual meetings). Face-to-face meetings tend to be held on Saturdays from approximately 10am-4pm. Virtual meetings tend to be held midweek from approximately 6.30-8.30pm.

Trustees are encouraged to participate in charity campaigns and attend flagship events, e.g., our Big Weekend and Alton Towers trip. Trustees are not paid, but out-of-pocket expenses are reimbursed. Trustees serve at least three years
 

Could you speak up for hungry children?

What is the role of a Speaker Volunteer?

Help us share the story of Mary’s Meals and our life-changing work feeding hungry children at school in some of the world’s poorest communities by giving Mary’s Meals talks to local community organisations, schools, churches and faith groups to raise vital awareness and funds.

What difference will i make?

• You will enable us to reach more people with the story of Mary’s Meals
• You will support our staff in their work to feed the next hungry child
• You will promote Mary’s Meals’ in your community 
• You will ensure our records are up-to-date and accurate
• You will help us provide a good service to supporters

What support and resources will i receive?

• Support, encouragement, and guidance from your local Supporter Engagement Officer
• Resources to fulfil your role, including presentation slides, notes and talk scripts
• A comprehensive induction to Mary’s Meals
• Public speaking training
• A regular volunteer update e-mail
• Opportunities to join online or in person volunteer meetings and briefings

What are the benefits of volunteering for Mary's Meals?

• Feeling part of the global Mary’s Meals movement to end world hunger
• Learning new skills and gaining experience as part of a growing and vibrant organisation
• Meeting new like-minded people
• Increasing confidence and team-working skills
• Developing communication skills (verbal and written)
• Feeling empowered to have your voice heard, knowing that you are playing an active role in changing the lives of those who need it the most.

We are seeking individuals who can empower children and young people, to support and share our mission within their current school or youth provision setting (Brownies, Guides, Cubs, Scouts and Youth Groups).
You will encourage your group to share the mission of Mary's Meals, raise awareness of our work and fundraise.

What support and resources will i receive?

• Support, encouragement, and guidance from your local Supporter Engagement Officer
• A comprehensive induction to Mary’s Meals
• Opportunities to join online or in person volunteer meetings and briefings
• Resources to fulfil your role
• A regular volunteer update e-mail

What are the benefits of volunteering for Mary's Meals?

• Feeling part of the global Mary’s Meals movement to end world hunger
• Learning new skills and gaining experience as part of a growing and vibrant organisation
• Meeting new like-minded people
• Increasing confidence and team-working skills
• Developing communication skills (verbal and written)
• Feeling empowered to have your voice heard, knowing that you are playing an active role in changing the lives of those who need it the most.

Metabolic Support UK are excited to share that we are looking for new Trustees to join our board.

Following the retirement of several Trustees we’re keen to broaden the range of skills and experiences represented. Our work is guided by people with lived experience, and our Board of Trustees plays a central role in shaping our strategy and ensuring that our values are embedded across everything we do.

We welcome applications, particularly from those with expertise in the following areas:

• Charity fundraising: Leadership in a fundraising environment, ideally within the charity sector.
• Clinical Dietitians: Experience of supporting patients with IMD's with a understanding of the challenges faced around diet and IMD's.
• Young adult with a diagnosed IMD: who has lived experience of an IMD and has navigated the process of healthcare from paediatric to adult care.
• Researcher: Experience of Rare Disease treatment research.

Appointments are made on merit, and we are committed to creating a diverse, inclusive Board that truly reflects the communities we serve.


About Metabolic Support UK

Metabolic Support UK is the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs.

Since its inception in 1981, our organisation has strived to support those in the rare community, expanding new-born screening, accelerating the development of orphan drugs, and acting instrumentally in establishing EURORDIS, ensuring people living with IMDs have the best quality of life possible.

Metabolic Support UK Board of Trustees
Metabolic Support UK Board of Trustees are a group of dedicated volunteers who are committed to the charities aims.

The Trustee meets four times a year (virtual), with meetings held during the week from approximately 2.30-4.30pm

Trustees are encouraged to participate in charity campaigns and attend flagship events, e.g., our Annual Community Conference. Trustees are not paid, but out-of-pocket expenses are reimbursed. Trustees serve a three year term.