Fundraising volunteers volunteer volunteer roles in Manchester

Chair of Trustees - The Family Place Foundation

We are recruiting a new Chair of Trustees to lead our Board and support the next stage of our charity’s development.

Location: Remote, with occasional in‑person trustee meetings (typically once or twice a year) held in the Clyro/Herefordshire area.

Time commitment: Approximately 1–2 days per month. This includes six trustee meetings a year, occasional ad‑hoc discussions and light‑touch support between meetings (for example reviewing policies or responding to emails).

Remuneration: Voluntary role (reasonable expenses reimbursed)

About us

Established in 2020, we are a small, well-established charity with a strong grounding and a clear purpose. We raise funds to provide support to adopted, fostered and kinship care children and their families to improve emotional wellbeing, strengthen relationships, and reduce the impact of early trauma. In collaboration with leading UK practitioners, we support the delivery of a range of services providing essential therapeutic care and family support that isn’t covered by statutory funding. Services offered include Family Activity Days, Specialist Clinical Workshops, Advisory Consultations and Family Respite Camps. We also work to raise awareness of the challenges faced by children who cannot live with their birth families. We are a warm, committed team with a strong reputation for high‑quality support, clear governance, and genuine care for the families we serve.

To learn more about our work, please search online for “The Family Place Foundation”.

We are now seeking a Chair of Trustees to help guide the charity through its next stage of development, including shaping our emerging Family Foundations project, a significant new early‑years initiative for the charity, alongside our ongoing portfolio of funded projects delivered through our specialist partner. This is an exciting opportunity to join a dedicated Board and a small operational support team who care deeply about the families we serve and the long‑term sustainability of the organisation.

The charity is currently led by a Board of four trustees, supported by two part‑time operational staff and a small group of volunteers.

As Chair, you will provide leadership to the Board, ensure effective governance, and help the charity continue enabling the delivery of high‑quality, trauma‑informed support. You will work closely with the trustees and operational colleagues to help shape strategy, strengthen partnerships, and ensure the charity remains compliant, resilient, and focused on its mission. You will also play a key role in strengthening the charity’s governance and fundraising, which in turn enables the therapeutic delivery carried out by our specialist partner. 

A supportive handover will be provided to ensure a smooth and confident transition into the role.

Person Specification

We are looking for someone who brings:

• Warmth, clarity and good judgement, with a balanced, proportionate approach to governance.

• A genuine commitment to improving the lives of adopted, fostered and kinship care children and an understanding of the challenges faced by families affected by early trauma.

• Confidence in chairing discussions, helping the Board reach clear, well‑considered decisions.

• An understanding of good governance, including risk, safeguarding and compliance (or a willingness to learn).

• The ability to work collaboratively with trustees and our small operational support team, offering encouragement and constructive challenge while supporting the charity’s governance and fundraising role, which enables the specialist delivery work carried out by our partner.

• Strategic thinking, with the ability to help shape the charity’s direction and ensure long‑term sustainability.

• Reliability, integrity and a calm, steady approach, keeping the charity’s purpose at the centre of decision‑making.

• Meets the eligibility requirements to serve as a charity trustee, as set out by the Charity Commission.

Helpful but not essential:

• Experience of chairing a board or committee

• Experience in charity governance, education, social care, therapeutic work, or community leadership would be helpful, but we are open to a wide range of backgrounds.

• Lived or professional experience related to adoption, fostering, trauma or family support.

What We Offer

• A warm, committed Board, small operational support team and group of volunteers who work collaboratively and value clear communication.

• A meaningful opportunity to shape the future of a small but growing charity with a strong reputation for high‑quality, trauma‑informed support.

• Flexible time commitments that fit around work and family life.

• A chance to make a tangible difference to adopted, fostered and kinship-care children and young people, and the families who care for them.

How to apply

Please apply through the CharityJob platform with your CV and a short supporting statement outlining your interest in the role and your relevant experience. 

If you would like an informal conversation before applying please contact the charity directly using the details provided on our website. We would be happy to arrange a conversation with the current Chair or another member of the Board if you would like to learn more about the role.

We welcome applications from people of all backgrounds and lived experiences.

Have you got a passion for making an impact in your local community?

 Could you support us by being our ambassador and a speaker within your local community to help Caudwell Children to raise funds that support disabled and neurodivergent children to realise their full potential?

 What will you be doing?

· Represent the organisation at community events, ensuring a welcoming atmosphere and sharing information about Caudwell Children

· Build positive relationships with local businesses, schools, and community groups to encourage support.

· Give presentations to community groups to raise awareness

 What skills would be useful?

· Friendly, approachable and confident speaking with new people

· Organised

· Creative and enthusiastic about fundraising

· Public speaking experience or confidence to learn

 What’s in it for you?

· Relevant training, mentoring and support will be provided

· Gain experience to add on to your CV

· Utilise your skills and learn new ones.

· Social opportunities

· Access to wellbeing support

· Out of pocket travel expenses can be reimbursed

· We strive to make reasonable adjustments and improve accessibility

How much time are you expected to give and when?

Volunteering is flexible. The brilliant thing about this role is you can do as much or as little as you like.  Weekdays or weekends, daytime or evenings, there is lots of choice.

 Where is the role located?

Looking for volunteers based across Staffordshire, support provided remotely.

Minimum age for this role: 16

At St John Ambulance we are looking to embed ourselves within our communities, delivering support which is tailored to the needs of those communities whilst providing a positive experience for our Volunteers.

We are recruiting in Oldham, Rochdale & Tameside Network

We need leaders who are passionate about making a difference in their communities, who care about helping and developing others, who will lead and inspire a volunteer movement across a geographical area to deliver Community First Aid, Community Education and Community Fundraising as well as develop our offering for young people. Through leading a team of Volunteer leaders, you will drive excellence in delivery, develop an inclusive and diverse volunteering experience for new and current volunteers, and help navigate through change to build a bigger and better St John Ambulance.

As a member of our network leadership team, you’ll get a huge sense of satisfaction and pride through supporting a team and our volunteers to deliver our essential services. It’s great for you, great for your community and great for our nation.

We will make sure you will have access to a proper induction to volunteering with SJA and the training you need for the role you take on. We will also provide you with a supportive environment while you are volunteering with us. Information about our volunteer roles are included in the role descriptions. What you can expect from SJA, and what we expect from those who volunteer with us, is included in the volunteer charter.

Volunteers would be expected to attend training for the role both online and in person, to attend regularly network weekly meetings to enable them to keep their skills up to date.

If you are successful you will need to undertake relevant training for the role, details of which will be discussed after you have been appointed.

• Closing date for these opportunities is: 31/07/2026
• Interviews will take place Date, Times and Location to be advised
• Inductions and training or this role will take place Date, Times and Location to be advised

To apply for this opportunity please follow the link below:

Are you passionate about helping others? Could your skills and experience help shape the future of wellbeing support within the pharmacy profession?

Pharmacist Support – the profession’s independent charity – is recruiting lay trustees to join our Board and help guide the future direction of the charity at a time when wellbeing support across the profession has never been more important.

Recent Workforce Wellbeing Survey findings highlight continued high levels of stress and burnout across pharmacy, reinforcing the growing need for accessible and compassionate support for pharmacists and their families, trainees and students.

This is an exciting opportunity to use your professional experience, lived perspective and insight to help shape the charity’s strategy, governance and future development, ensuring Pharmacist Support continues meeting the changing needs of those it supports throughout their lives and careers.

About Pharmacist Support

Pharmacist Support is an independent, trusted charity providing free and confidential support to pharmacists and their families, former pharmacists, trainees and students.

We listen without judgement and help people navigate challenges including workplace pressures, financial difficulties and mental health and wellbeing concerns.

Established in 1841, Pharmacist Support has evolved from Benevolent Fund roots into a modern, forward-looking charity championing wellbeing across the profession.

About the role

We are particularly keen to hear from:

• Individuals with experience in the charity or voluntary sector
• Skills or expertise in areas such as finance, HR, governance, digital or fundraising.
• Individuals with lived experience of the charity’s services
• Those who can bring fresh perspectives, skills and insights from outside the pharmacy profession

Our aim is to build a Board of Trustees that is representative of the people and communities we support. We welcome applications from individuals of all ages, backgrounds, cultures and levels of experience.

If you are passionate about supporting others and feel your skills, experience or lived perspective could benefit our dynamic and innovative charity, we would love to hear from you. Previous trustee experience is not essential and full induction, training and ongoing support will be provided.

Pharmacist Support is committed to promoting equality, valuing diversity and creating an inclusive environment for our beneficiaries, staff, volunteers and trustees.

Time commitment

The role requires approximately one day per month across:

• Four Board meetings per year
• Four sub-committee meetings per year
• Preparation and reading time
• Occasional involvement in charity events, working groups or training

Board meetings are usually held in Manchester during the day, although virtual attendance can be accommodated where required. Sub-committee meetings are generally held virtually in the evening.

Reasonable expenses incurred to facilitate attendance at meetings will be reimbursed.

How to apply

To apply, please send:

• An up-to-date CV outlining your employment history, experience/qualifications as well as your contact details.
• A Supporting Statement (no more than 800 words)
  • Demonstrating how you meet the criteria outlined in the Person Specification
  • Outlining why you are interested in being a trustee for Pharmacist Support and what you could bring to the board of trustees
• In your email, please state which role you are applying for (either pharmacy or lay) and indicate where you heard about the role.

Full details on the work and impact of Pharmacist Support, along with Trustee Recruitment Pack and application details can be found on our webiste.

Closing date: 12 noon Monday 3 August 2026

If shortlisted, you will be invited to an interview with a panel of current Trustees in Manchester.

Interviews will take place on one of the following dates: 10, 11 and 14 September 2026

Successful applicants will initially be appointed for a three-year term, with the opportunity for reappointment subject to satisfactory peer appraisal and trustee term limits.

As part of the appointment process, trustees will be required to confirm they are eligible to act as a charity trustee.

Becky’s Child Foundation is a dynamic non-profit organization  in Uganda committed to uplifting vulnerable communities across society. We work with children, women, youth, families, and marginalized groups through education, healthcare, livelihood support, protection services, and community empowerment programs. Our mission is to create lasting impact by restoring hope, dignity, and opportunities to those who need it most.

Role Overview

We are seeking a creative, passionate, and digitally savvy Social Media Volunteer to amplify our voice online. You will help tell powerful stories, build meaningful connections with supporters, and drive engagement that translates into real-world impact for vulnerable communities.

Key Responsibilities

• Develop and manage engaging content (images, reels, carousels, stories, and short videos) across Instagram, Facebook, LinkedIn, TikTok, and X (Twitter).
• Grow our online presence, increase followers, and boost community engagement.
• Create monthly content calendars aligned with our programs and fundraising campaigns.
• Identify trending topics and opportunities to raise awareness about vulnerable groups.
• Collaborate with the team to produce authentic, impactful storytelling content (with full consent and safeguarding standards).
• Monitor performance analytics and provide simple monthly reports.
• Support fundraising drives and donor engagement initiatives.

Who We’re Looking For

• Deep passion for social impact and supporting vulnerable communities.
• Proven experience or strong skills in social media management and content creation.
• Excellent writing and communication skills in English (knowledge of other languages is an advantage).
• Proficiency with content tools such as Canva, CapCut, or similar apps.
• Self-motivated, creative, and able to deliver consistently with minimal supervision.
• Understanding of social media best practices, algorithms, and analytics.

Note: This is a volunteer role, but we provide:

• Official volunteer certificate and recommendation letter
• Professional experience and portfolio building
• The joy of making a tangible difference in people’s lives
• Pathway to future paid roles as the organization grows

How to ApplySend the following

• Your CV or Portfolio
• Links or samples of your previous social media work
• A brief note (maximum 200 words) explaining: Why you want to volunteer with Becky’s Child Foundation
• How many hours per week you can commit

Let’s use the power of social media to change lives.
Every story shared is a life touched.

Becky’s Child Foundation – Restoring Hope. Building Dignity. Creating Impact.

As a Volunteer Donor Relationship Co-ordinator, you will play a crucial role in forming and maintaining relationships with our donors, ensuring they feel valued and appreciated, whilst forming & implementing a strategy to keep them donating. This role would suit someone who is confident, enthusiastic about building strong connections, and passionate about the welfare of refugees & asylum seekers.

Key responsibilities:

• Identify and approach local high net worth individuals/businesses to approach for a regular donation
• Develop a donor relationship strategy aimed at maximising engagement and satisfaction.
• Personally reach out to existing donors to thank them for their contributions (& send seasonal cards/other personalised messages to maintain positive relationships).
• Build relationships by engaging with donors via phone calls and emails to understand their motivations for donating and gather feedback used to improve our efforts.
• Encourage previous donors to continue their support.
• Keep detailed and accurate records of all our donor interactions to ensure we have up-to-date information on our supporters.
• Create and distribute surveys to gain insights into our donors’ needs and expectations.
• Further down the line, host webinars or live Q&A sessions to answer donor questions and provide updates on our work.

Requirements:

• Strong communication abilities
• Proficiency with google docs/sheets
• Excellent organisational skills
• A confident individual who is comfortable engaging with a diverse range of people
• Pro-active approach and work with minimum supervision
• Can commit a minimum of 2 hours per week

Are you interested in making a difference to the lives of children and young people? Is there a skatepark in your area? If so, this role could be for you.

We are a UK registered youth development charity that uses teaching and learning to skateboard in a structured and supportive environment as a platform to develop the skills and abilities of children and young people.

The Role: Chapter Leader

As a Chapter Leader with the Skateboarding Foundation (SF), your role is to set up and run a Local Chapter that gives young people access to skateboarding and life skills through the SF ‘Eduskate’ programme.

Training, materials, resources, equipment and ongoing support, advice and guidance will be provided.

Key responsibilities

Your key responsibilities include:

• Setting up and running the chapter
• Recruiting coaches
• Recruiting learners
• Coordinating the delivery of the coaching programme
• Raising funds and spreading the word
• Helping us monitor and evaluate the programme
• Giving three/four hours a month of your time

You’ll have overall responsibility for the chapter’s activities, compliance, and smooth running. You’ll provide direction and support to your chapter committee, chair meetings, and ensure volunteers, coaching programmes, and fundraising are well managed.

The role involves motivating the team, planning chapter development, and stepping in where needed to keep things on track. You’ll also liaise with the national Board of Trustees, keeping them informed of key decisions and changes. 

Strong leadership, organisation, and a passion for youth development (and ideally skateboarding) and the charity’s mission are essential.

Are you passionate about tackling clothing poverty and keeping good clothing in use? Do you want to use your voice, experience, or platform to help others? Join Sharewear Clothing Scheme as a Volunteer Ambassador and help us to reach people we could never reach alone.

We’re looking for people who care deeply about social justice, community, and clothing circularity. We particularly welcome volunteers with lived experience of clothing poverty or hardship, whose insight helps us shape how we engage with and support others with dignity.

Whether you’re confident in community spaces, connected in corporate settings, or active online, we have three flexible Ambassador roles:

Community Ambassador

Help raise awareness locally, represent Sharewear at events, and inspire people to get involved.

Corporate Ambassador

Use your professional networks to open doors to partnerships, sponsorship, and clothing circularity opportunities.

Digital Ambassador

Use your online presence to amplify our message and help more people understand clothing poverty and its impact. 

Help Shape Healthier Futures for Children and Families

Can you help drive the future success of a growing national charity?

HENRY (Health, Exercise, Nutrition for the Really Young) is seeking passionate and strategic individuals to join our Board of Trustees at an exciting point in our journey.

For over 15 years, HENRY has worked alongside parents, carers, communities and professionals to give babies and young children the healthiest possible start in life. Our evidence-based programmes, training and support help families build healthy habits, strengthen relationships and improve long-term wellbeing, particularly in communities experiencing the greatest health inequalities.

Today, HENRY supports more than 21,000 families every year and trains professionals across health and early years services nationwide. Last year alone:

• 21,662 families received support through our programmes, workshops and one-to-one services
• 9,608 parents and babies benefited from infant feeding support
• 88% of participants reported leading a healthier family lifestyle
• 96% rated our programmes and workshops as good or great
• 35% of families we supported were from the most deprived communities in the UK

As we work towards our vision of a healthy and happy start for every baby and child, we are entering a new phase of growth and development. Our ambitious 2030 strategy focuses on expanding our reach, strengthening sustainability, increasing our influence, and maintaining quality and impact as we grow.

About the Role

As a Trustee, you will play a key role in shaping HENRY's future. Working alongside fellow Board members, you will provide strategic leadership, support good governance, oversee organisational sustainability and help ensure we continue delivering meaningful impact for families across the UK.

This is a strategic, non-operational role that offers the opportunity to contribute your expertise while making a lasting difference to children's lives.

Who We're Looking For

We are particularly interested in individuals with experience in:

• Marketing and Communications
• Income Generation and Fundraising
• Legal and Contractual Matters

We also welcome candidates with:

• Previous trustee or governance experience
• Experience of scaling organisations
• Knowledge of early years, health or family services
• Relevant lived experience
• A strong commitment to equality, diversity and inclusion

Why Join HENRY?

Joining our Board is both a responsibility and a rewarding opportunity to create lasting social impact.

As a Trustee, you will:

• Help tackle health inequalities affecting babies and young children
• Influence the strategic direction of a respected national charity
• Develop your leadership, governance and board-level experience
• Work alongside a collaborative and experienced Board and executive team
• Gain insight into a charity delivering impact at scale across the UK

We are committed to building a diverse Board that reflects the communities we serve and encourage applications from people of all backgrounds aged 18 and over.

If you share our belief that every child deserves the best possible start in life, we'd love to hear from you and explore how your skills and experience can help shape HENRY's next chapter.

Ready to make a difference? Read our attached Trustee Recruitment Pack and click 'redirect to recruiter' to be forwarded to our application portal. 

Closing date: 9am Wednesday 19th August 2026
Interviews: week commencing 14th September 2026

HENRY is committed to safer recruitment and safeguarding. As a result, all successful trustee applicants will be required to complete a DBS check.

At St John Ambulance we are looking to embed ourselves within our communities, delivering support which is tailored to the needs of those communities whilst providing a positive experience for our Volunteers.

We need leaders who are passionate about making a difference in their communities, who care about helping and developing others, who will lead and inspire a volunteer movement across a geographical area to deliver Community First Aid, Community Education and Community Fundraising as well as develop our offering for young people. Through leading a team of Volunteer leaders, you will drive excellence in delivery, develop an inclusive and diverse volunteering experience for new and current volunteers, and help navigate through change to build a bigger and better St John Ambulance.

As a member of our network leadership team, you’ll get a huge sense of satisfaction and pride through supporting a team and our volunteers to deliver our essential services. It’s great for you, great for your community and great for our nation.

We will make sure you will have access to a proper induction to volunteering with SJA and the training you need for the role you take on. We will also provide you with a supportive environment while you are volunteering with us. Information about our volunteer roles are included in the role descriptions. What you can expect from SJA, and what we expect from those who volunteer with us, is included in the volunteer charter.

Volunteers would be expected to attend training for the role both online and in person, to attend regularly network weekly meetings to enable them to keep their skills up to date.

If you are successful you will need to undertake relevant training for the role, details of which will be discussed after you have been appointed.

• Closing date for these opportunities is: 31/08/2026
• Interviews will take place - Date, Times and Location to be advised
• Inductions and training or this role will take place - Date, Times and Location to be advised

We are seeking committed individuals to join our Management Committee, supporting the strategic oversight and governance of Help4Homeless.

This is a voluntary leadership role responsible for ensuring the charity operates effectively, ethically, and in line with its mission to support people experiencing homelessness in Peterborough.

Management Committee members carry out trustee-style responsibilities, providing oversight, guidance, and accountability for the organisation, without being part of day-to-day operations.

Key Responsibilities

• Provide strategic oversight of Help4Homeless and its long-term direction
• Act in the best interests of the organisation and its beneficiaries at all times
• Attend committee meetings and contribute to decision-making and planning
• Support and challenge the leadership team to ensure effective delivery of services
• Monitor the organisation’s activities, impact, and overall performance
• Help ensure financial transparency and responsible use of funds
• Identify risks and help ensure appropriate safeguarding and compliance measures are in place
• Uphold the values, mission, and reputation of Help4Homeless
• Act as an ambassador for the organisation within the community
• Declare and manage any conflicts of interest appropriately

Please Note

Although this role is titled Management Committee Member, it carries responsibilities equivalent to a trustee position, including governance, oversight, and accountability. The committee collectively ensures the organisation is well-managed and acting in the public interest.

Location

On-site / Hybrid – Peterborough, UK

Working Hours

Approx. 2–6 hours per month (including meetings and review responsibilities)

Expenses

Reasonable expenses may be covered where agreed in advance.

Reports To

Collective responsibility as part of the Management Committee

Works Alongside

• Founder / Operations Lead
• Directors and Senior Volunteers
• Community Engagement Team
• Social Media and Fundraising Teams

Skills & Experience

• Commitment to helping people experiencing homelessness
• Good judgement and ability to think strategically
• Willingness to take responsibility for governance decisions
• Strong communication and teamwork skills
• Ability to act independently and objectively
• Experience in charity, business, community work, or leadership (desirable but not essential)

Important Governance Note

Help4Homeless is currently transitioning from an informal community group into a more structured organisation. Management Committee members will play a key role in shaping governance, policies, and long-term sustainability.

Why Join Us

This is an opportunity to help shape a growing grassroots charity making a direct impact in Peterborough, ensuring that every donation goes directly toward supporting people in need.

Help older people claim welfare benefits through home visits, form-filling and friendly support.

About Us

Age UK Buckinghamshire is a local, independent charity and part of the wider Age UK Network. We support older people across the county through vital services including befriending, information and advice, dementia support, practical help at home, and welfare benefits support - helping people stay independent, connected, and supported.

Our work is more important now than ever. Many older people face growing challenges such as the rising cost of living, social isolation, and difficulty accessing support. 

As demand for our services continues to increase, community support is essential to help us reach more people in need. By raising awareness of what we do, we can ensure that older people know where to turn for help, and inspire others to support our work through volunteering, fundraising, and partnership.

What do Welfare Benefits Volunteers do?

Help older people boost their income by becoming a Welfare Benefits Volunteer.

Many older people face financial difficulties because they are not claiming all the welfare benefits they are entitled to. At Age UK Buckinghamshire, we support older people to access the benefits they deserve by offering personalised advice and practical help.

Our trained volunteer advisors visit people in their own homes to guide them through the claims process, completing benefit forms on their behalf and ensuring applications reflect their individual circumstances.

Following full training, you will be matched with clients for one-off home visits, usually lasting one to two hours. Along the way, there’s often time for a friendly chat, and perhaps a cup of tea, while making a real difference to someone’s quality of life.

What skills does a Welfare Benefits Advisor need?

• Empathy and patience with older people
• A professional, friendly and approachable manner
• Attention to detail and good record-keeping skills
• A non-judgemental approach
• Willingness to learn about older people’s benefits

What training do we provide?

Successful applicants complete 2 training sessions covering the needs of older people and welfare benefits.  At the end of this initial training, you will be “buddied” with one or more experienced volunteers, first as an observer and later as an advisor until you have the knowledge and confidence to undertake one-to-one visits.

How much time do we expect you to give?

Once trained, you can commit to as many or as few visits per week as you wish. Each visit takes, on average, about 1 – 2 hours.  There are quarterly meetings that provide support and additional training days from time to time to keep up with new legislation.

What is our commitment to you?

• We will provide initial and ongoing training to help you develop your knowledge and skills.
• We will continue to support you in your role, providing information and advice as necessary.
• We will discuss with you any problems you may have with your role, or any concerns we have.
• We will reimburse reasonable, approved out of pocket expenses.

The BDFA is seeking a new Volunteer Treasurer/Trustee to join our passionate and dedicated Board.

URGENTLY REQUIRED

As a trustee, you will play a key role in shaping the strategic direction of the BDFA, ensuring strong governance, and helping to improve the lives of children, young people, and families affected by Batten disease across the UK.

The overall role of Treasurer is to maintain an overview of the organisation’s affairs, ensure its financial viability and ensure that proper financial records and procedures are maintained.

As our Treasurer, you will:

• Oversee, approve and present budgets, accounts and financial statements
• Assure that the financial resources of the organisation meet its present and future needs
• Prepare and present financial reports to the Board
• Ensure that appropriate accounting procedures and controls are in place
• Have oversight of and give guidance to BDFA Accounting & Financial Administration Officer
• Attend board meetings
• Present financial overview at the AGM

Ideal Background:

Fully qualified chartered accountant/financial qualifications and experience. Some experience of charity finance and fundraising.

We welcome suitably qualified applicants who share our commitment to inclusion, integrity, and advocacy, and who are willing to contribute their time, skills, and experience to drive meaningful change.

Trustees meet regularly (virtually and occasionally in person) and contribute to board discussions, sub-committees, and strategic projects, including attending our in person meeting once a year.

This is a voluntary role, but the personal and social impact is immeasurable.

URGENTLY REQUIRED

About us

Batten disease is a very rare genetic disorder that affects the brain and nervous system. Symptoms sometimes begin in infancy and sometimes later in childhood, after apparently normal early development. Occasionally it may start in adulthood. In individuals suffering from Batten disease, nervous system function steadily declines, causing a wide variety of neurologic problems, including loss of vision and seizures. The life expectancy of a child born with Batten disease can vary, depending on the form of the disease and the age of onset. Some children die in early childhood, while others may be able to live into their teens or twenties.

The BDFA was registered as a charity in 2001 and our mission is “to enable children and adults who are affected by Batten disease to live life to the full and to provide families with the care and support they need so that they do not walk this path alone.” The BDFA offers informed guidance and support to families and the professionals who work with them, as well as actively raising awareness, and promoting research into the management of Batten disease to improve patient care pathways and ultimately find a cure.

Work Location: Remote

Are you an experienced content professional looking to use your skills for a meaningful cause?

Burning Nights CRPS Support is seeking a passionate and creative Content Lead Volunteer to help shape and deliver engaging content that raises awareness of a rare chronic pain condition, Complex Regional Pain Syndrome (CRPS), supports those impacted and strengthens our charity’s voice across multiple platforms.

This is an exciting leadership opportunity to guide and inspire a team of volunteer content writers, oversee content planning and development, and play a key role in delivering our communications strategy. From website articles and member publications to awareness campaigns and digital content, your work will help ensure that people living with CRPS, their families, healthcare professionals and supporters have access to high-quality, accurate and engaging information.

As a national charity supporting thousands of people affected by CRPS across the UK, we are looking for someone who combines strategic thinking with a hands-on approach, has excellent communication skills, and is passionate about making a real difference.

By joining our friendly and ambitious team, you will gain valuable leadership experience, develop your communications and marketing expertise, expand your professional network, and directly contribute to improving the lives of people living with one of the most painful long-term conditions known to medicine.

Key Tasks and Objectives

• Lead a team of content writer volunteers.
• Lead and co-ordinate internal projects, activities and campaigns that help build awareness of our organisation and its aims.
• Building, leading and inspiring the content team, ensuring goals are agreed and communicated to support the achievement of our overall aims and projects.
• Ensuring all content is on-brand, consistent in style, quality, and tone of voice, and ideally optimised for search and user experience across channels, including our website, our members' magazine, and social media.
• Supporting the development of a communications strategy from the 3-year charity's strategy, focusing on the content section.
• The implementation of a functional content calendar
• Establishing workflow for requesting, creating, editing, publishing, and repurposing content
• Operate as the point of contact for content volunteers in the team.
• To also be an active part of the content team as a content writer.
• Identifying, initiating and leading on content projects which align to the strategy and realise our goals.
• Collaborate with the team
• To contribute to the Annual Report or other reporting documents.
• Protecting our charity brand identity, ensuring it is delivered consistently, both internally and externally.
• Promote the charity across all our channels and forms of communication.
• Ensure effective, regular communication to both internal and external audiences.
• Support the review of progress and effectiveness of the Communications Strategy on an annual basis.

What are we looking for?

About You

To be successful in this role you will:

• Have a real enthusiasm for excellence, innovation, continuous improvement and change.
• Be a team leader who is positive, hands-on and able to get the best out of a team.
• Have excellent interpersonal skills and are adept at building relationships with different stakeholders.
• Have the ability to think strategically but also enjoy being at an operational level to support your team and key stakeholders.
• Have a high level of attention to detail.
• Have the ability to prioritise, plan and organise projects and to manage expectations.

Experience and Skills

• The ability to communicate (verbal and non-verbal) to a wide variety of audiences including the public, various forms of media and on an individual basis.
• Experience in building and leading a team.
• Previous experience of working or volunteering for charities and/or volunteer organisations is desirable but not required.
• Creativity 
• Good IT skills.
• Ability to motivate and enthuse others.
• To be a part of a team.
• Previous experience in marketing, communications, or related fields.
• Strong leadership skills with the ability to motivate and inspire volunteers.
• Experience of using Canva or similar design packages.
• A strong network of PR and media contacts would be highly advantageous.

What's in it for you?

This is an exciting opportunity to use your communications and leadership skills to make a genuine difference to the lives of people affected by Complex Regional Pain Syndrome (CRPS), a debilitating and often misunderstood pain condition.

As our Content Lead Volunteer, you will play a key role in shaping how a national charity communicates with thousands of people across the UK. You will have the opportunity to lead and develop a team of talented volunteers, influence content strategy, and help raise awareness of a rare condition that urgently needs greater understanding and recognition.

In return, you will:

• Gain valuable leadership and management experience within the charity sector.
• Develop and enhance your content strategy, communications and marketing skills.
• Build experience of managing and motivating a remote volunteer team.
• Play a strategic role in shaping the voice and messaging of a growing national charity.
• Expand your professional network and collaborate with passionate volunteers, trustees and healthcare stakeholders.
• Receive ongoing support, training and development opportunities.
• Enjoy flexible, remote volunteering that can fit around your existing commitments.
• Experience the satisfaction of knowing your work is helping people living with CRPS and their families access support, information and hope.

Most importantly, you will ensure that no one affected by CRPS has to face their journey alone.