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Harris Hill Charity Recruitment Specialists, London (Hybrid)
£80k - 85k per year
Posted 2 weeks ago Apply Now
Closing in 3 days
MS Society UK, N4, London (Hybrid)
£44,339 per annum
Posted 1 week ago
Save the Children, Farringdon (Hybrid)
£50,100 pa + generous benefits
Posted 2 weeks ago
Closing in 6 days
Hackney CVS, Hackney (Hybrid)
£60,000 per year
Seeking a senior leader to oversee our work to advocate for the voluntary and community sector (VCS) in Hackney & The City of London.
Posted 4 days ago
Closing in 4 days
Sheila McKechnie Foundation, London (On-site)
£60,000 - £72,000 per year
Posted 3 weeks ago
Closing in 5 days
Reengage, Remote
Salary – £30,000 per annum; FTE £18,000 pro rata
Posted 2 weeks ago
Harris Hill Charity Recruitment Specialists, W2 5ES (On-site)
£67,991 p.a. (The salary is on a progressive pathway)
Posted 2 weeks ago Apply Now
Closing in 3 days
Thrive, Battersea (On-site)
£28,000 per year
We seek a Specialist STH Practitioner to provide high quality STH) programmes for adults in our gardens in London & outreach settings.
Posted 6 days ago Apply Now
Young Roots, Greater London (Hybrid)
£45,199.2 per year (pro rata)
Posted 4 days ago Apply Now
SATRO, Guildford, Surrey (Hybrid)
£18,000 - £25,600 per year (FTE £30,000 - £32,000 per year)
Posted 1 week ago
Page 9 of 9
Remote
£48,000 - £50,000 per year
Full-time
Permanent

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Job description

About Metabolic Support 
Metabolic Support is the UK umbrella patient organisation for people affected by Inherited Metabolic Disorders (IMDs) – rare, lifelong genetic conditions affecting around 40,000 people in the UK and over 1.4 million worldwide. Since 1981, we have been at the forefront of rare disease advocacy, research, newborn screening and community support, empowering people with IMDs to live well. 

About the Role 
This is a senior, strategic and hands-on role leading our fundraising and communications activity. You will drive sustainable income growth, raise our profile nationally and internationally, and tell our community’s stories with clarity, compassion and impact. 

Working closely with the Chief Executive, you will shape and deliver an ambitious fundraising strategy, develop diverse income streams, and build strong relationships with trusts, foundations, corporates, major donors and supporters. You will also lead our communications and brand, ensuring consistent, high-quality messaging across all channels. 

As part of a small, agile team, this role suits a confident self-starter with emotional intelligence, strong leadership skills and a passion for making a tangible difference in rare disease. 

Key Responsibilities 

  • Lead and deliver an integrated fundraising and communications strategy 

  • Grow income across trusts & foundations, corporate partnerships, individual giving, major donors, community and events 

  • Act as an external ambassador for Metabolic Support 

  • Oversee communications, marketing, social media and brand development 

  • Manage donor relationships, stewardship and CRM (Nutshell) 

  • Provide fundraising forecasts, reports and budgets to the Board 

  • Ensure compliance with GDPR and fundraising regulations 

About You 

  • Proven experience in fundraising, communications or income generation 

  • Strong track record in at least one key fundraising area (e.g. trusts, corporates, major donors) 

  • Excellent written and verbal communication skills 

  • Confident relationship-builder and storyteller 

  • Highly organised, proactive and comfortable working autonomously 

  • Strong alignment with Metabolic Support’s mission and values 

Other Information 

  • UK-based with eligibility to work in the UK 

  • Willingness to travel and work occasional evenings/weekends 

Application resources
Organisation
Metabolic Support UK View profile Organisation type Registered Charity Company size 6 - 10
Refreshed on: 06 February 2026
Closing date: 02 March 2026 at 13:16
Tags: Communications, Fundraising, Community Fundraising

The client requests no contact from agencies or media sales.