Head of major donor fundraising jobs in edinburgh
JOB PROFILE
JOB TITLE: Lead Trusts & Grants Officer
RESPONSIBLE TO: Senior Trusts & Grants Manager
HOURS OF WORK: Full time 35 hours per week
LOCATION: Home working/ Hybrid
DURATION: Permanent
SALARY / GRADE: £32,330
KEY WORKING RELATIONSHIPS
• Senior Trusts & Grants Manager
• Trusts & Grants Officer
• Director of Fundraising, Marketing & Communications
• Chief Operating Officer
• Senior Leadership & Service Managers
• Grant making trusts and foundations
• Major Donors
PURPOSE OF THE ROLE
The Lead Trusts & Grants Officer is responsible for developing and delivering income from mid-value grant making funders, notably trusts and foundations. The role involves managing a dedicated pipeline of opportunities, writing and submitting compelling applications, and stewarding funder relationships. This position works closely with service teams to understand project needs and create accurate budgets and impactful funding proposals. This role will also provide direct line management to the Trusts & Grants Officer, supporting their professional development and ensuring the team's overall success in meeting fundraising targets.
MAIN DUTIES AND RESPONSIBILITIES
Fundraising and Grants Management
• Pipeline Management: Lead on prospecting, developing and managing the mid-value trusts and grants pipeline, focusing on bids around £20,000 - £70,000, including multiyear grants, ensuring a consistent flow of opportunities to meet team income targets. Developing the skills and ability to manage higher value and more complex strategic bids.
• Application Writing: Develop and submit compelling, high-quality grant applications and proposals for mid-value funders, working closely with service teams, ensuring accurate budgets and income against Adoption UK’s strategic priorities.
• Stewardship: Cultivate and maintain strong relationships with a portfolio of new and existing mid-value funders, providing timely and impactful reports to secure renewed funding, and developing relationships with key external contacts through excellent communication.
• Reporting: Oversee the accurate tracking of all applications, reports, and communications using team tracking methods, and the CRM database, providing regular progress updates to the Senior Trusts & Grants Manager.
• Collaboration: Work closely with the Senior Trusts & Grants Manager, the Trusts & Grants Officer, and service teams, to align fundraising activities with the organisation’s strategic priorities and annual income targets.
• Undertake other duties and projects as directed by the Senior Trusts & Grants Manager and Director of Fundraising, Marketing and Communications.
Team Management and Development
• Line Management: Provide line management and support to the Trusts & Grants Officer, including regular one-to-ones, appraisals, and professional development.
• Training and Mentoring: Guide the Trusts & Grants Officer on best practices for researching, writing, budgets, and stewarding of small-value grants.
Personal specification
Knowledge and experience
• Track record of successfully securing individual grant awards typically ranging between £10,000 and £50,000. (E)
• Knowledge of fundraising sector with specialist knowledge of grant making trusts and foundations, or similar grant/bid-writing experience (E)
• Experience in writing persuasive proposal documents and bids (E)
• Experience in developing and implementing fundraising policies and process to deliver strategic goals (E)
• Experience in supporting service teams to deliver complex projects on time and to budget (E)
• Experience in successfully stewarding multiple stakeholders including grant managers and major donors (D)
Qualifications and Education
• Graduate level or equivalent significant professional experience in fundraising/bid
Skills and abilities
• Ability to make decisions within area of responsibility, based on defined frameworks, policies, and procedures and/or based on knowledge of regulations and best practice (E)
• Shows good professional judgement (E)
• Can successfully operate matrix management of complex projects at a national level (E)
• Delivers high quality work with minimal supervision and direction (E)
• Able to communicate clearly and engage with stakeholders at all levels (E)
• Is successful in securing positive external relationships with stakeholders and supporters (E)
• Demonstrates personal credibility (E)
• Demonstrates experience and ability in impact reporting (D)
• Ability to research the sector to identify the best prospects (D)
• Has the capacity to deal with complex issues and is good at problem solving (D)
• An exceptional administrator with excellent organisational and writing skills (E)
• Self-starter, used to working to deadlines and delivering against KPIs (D)
Accountability
• Shows previous experience of achievement of income targets (E)
• Shows previous experience of excellent funder or similar relationship stewardship (E)
• Able to contribute to the development of income growth strategy and strategic goals (D)
Behaviours
• Takes pride in Adoption UK and promotes its values and mission in all interactions with external stakeholders.
• Demonstrates commitment to equality, diversity and inclusion in all aspects of role at all times.
• Contributes to an open and honest culture
• Encourages challenge and creativity, transparency and consistency.
• Leads by example.
• Offers outstanding service to members.
• Promotes cross-functional team working, sharing skills and knowledge
• Communicates clearly, seeking clarity when unclear and valuing the opinion of others.
• Values the opinion of others. Treating colleagues and other stakeholders with respect.
• Takes pride in own development, committed to achieving high standards and agreed objectives.
Adoption UK is the leading charity for adopted and care experienced people and adoptive families.
The client requests no contact from agencies or media sales.
We are delighted to be partnering with STEM Learning to find their next Head of Fundraising.
Fundraising has developed rapidly for the organisation in recent years, with investment, board-level commitment and a growing team driving success. With strong foundations in place and a portfolio of high-value partnerships across corporate, trust, foundation, and major donor income, they are now poised to scale their strategic influence and deepen their impact.
Reporting directly to the Chief Executive Officer and leading a five-strong team, the Head of Fundraising will shape and deliver the long-term fundraising strategy, strengthen the organisation's positioning as a trusted, high-impact partner, and drive sustainable, multi-year income growth that enables transformational change.
As Head of Fundraising, you will:
- Lead the development and delivery of a high-level fundraising strategy, securing multi-year six-figure+ partnerships across corporates, trusts, foundations, major donors and HNWIs
- Manage, develop and inspire a team of 5 direct reports (responsibility for 7), fostering a proactive, collaborative and high-performing culture
- Engage senior stakeholders including the CEO, Chair, Trustees and senior partners to unlock networks and open opportunities
- Represent the organisation at senior-level networking events, conferences and sector forums, influencing decision-makers and strengthening brand positioning
Essential skills and experience:
- A strategic, senior-level fundraiser with a proven track record delivering six-figure, multi-year partnerships from corporates. Experience across trusts, foundations, and/or major donors highly desirable
- A proactive new business mindset, with eagerness to meet with donors and attend events
- Strategic leadership experience, with proven ability to motivate and develop fundraising teams
- An experienced relationship-builder who has used confidence and gravitas to engage CEOs, trustees, C-suite leaders and high-net-worth individuals — and successfuly make compelling asks
STEM Learning offer a sector-leading employee benefits package, which includes 30 days annual leave in addition to bank holidays and up to 15% employer pension contributions.
This is a mostly home-based role, with travel to N.England and London for office time and meetings. There are travel-cost reimbursements available - please discuss.
Detailed briefing notes and full support with CV and cover letter will be provided for suitable applicants.
Please ensure that your CV aligns with the person spec above, or add notes to cover letter option.
Candidates meeting the essential criteria will be invited to an initial briefing and screening call. Full support will be provided with formal application, including cover letter writing.
QuarterFive and our clients know fundraising could better reflect the diverse backgrounds and experiences of the people the charity sector supports. We encourage individuals with relevant skills and experience to apply for roles regardless of age, disability, gender, sexual orientation, pregnancy and maternity, race, religion or belief.
Expert recruitment for fundraisers and charities.
About Dreams Come True
We deliver moments of magic with lasting impact to children living in poverty who have a serious illness, disability, or life-limiting condition. We are the only wish granting charity focused solely on children living in social deprivation in the UK.
About the Role
Dreams Come True is seeking an ambitious, strategic and highly skilled Head of Fundraising to lead and expand its income generation and manage and drive a high performing team. This senior role prioritises the development and delivery of an ambitious major donor and individual giving strategy - cultivating, stewarding, and upgrading supporters, including high-net-worth individuals and regular donors. Reporting directly to the CEO and working closely with the Senior Leadership Team, you will diversify income streams, maximise philanthropic support, and ensure the charity's long-term sustainability whilst leading, managing, motivating and inspiring the team.
Key Responsibilities
- Develop and implement a growth-oriented fundraising strategy, with a strong focus on major donor fundraising and individual giving (regular giving, donor journeys, legacy giving).
- Build a robust pipeline of major donors, personally managing relationships with high-value supporters, cultivating new prospects, and maximising lifetime value through tailored stewardship.
- Oversee the design and execution of engaging campaigns and supporter journeys for individual and legacy donors.
- Direct and support building other fundraising streams (trusts & foundations, events, digital, community), setting ambitious yet achievable income targets.
- Monitor, analyse, and report on fundraising performance, using data-driven insights to identify opportunities and refine approaches.
- Inspire, manage, and develop the fundraising team, fostering a culture of collaboration, high performance, and innovation.
- Ensure policy, governance and compliance with all relevant fundraising legislation and sector regulation.
- Represent the charity in external meetings, building networks and leveraging senior volunteers and Trustees to extend philanthropic reach.
- Translate complex beneficiary needs into compelling cases for support, proposals, and stewardship reports that resonate with donors and partners.
Person Specification
Essential:
- Demonstrated success in major donor fundraising, including personally securing substantial gifts (five and six figures); proven ability to build from scratch, cultivate and maintain relationships with high-net-worth individuals.
- Proven expertise in individual giving, including donor journeys, donor retention and engagement, and developing bespoke campaigns.
- Strong leadership skills, with a track record of building, motivating, and developing high-performing fundraising teams.
- Up-to-date understanding of the fundraising compliance environment (Fundraising Regulator's Code, GDPR, PECR).
- Outstanding communication, negotiation, and presentation skills, both written and verbal.
- Analytical mindset and the ability to use data to inform strategy, track performance, and drive growth.
- Creative approach to stewardship, recognising, thanking, and meaningfully involving supporters at all levels.
- Passion, resilience, and integrity aligned with the charity’s mission.
- A recognised fundraising qualification (e.g. Certificate/Diploma from the Chartered Institute of Fundraising or equivalent).
- Inspiring and experienced team leader.
Desirable:
- Experience with innovative donor engagement, digital tools, and CRM/database systems.
- Background in a similar scale or mission-driven UK charity.
How to Apply
Apply by submitting a CV and covering letter via CharityJob.
The client requests no contact from agencies or media sales.
The Society of Antiquaries of Scotland is seeking a talented Fundraising Officer to join us at a pivotal moment in our history. As we approach our 250th anniversary, we are launching an ambitious multi-million-pound campaign to purchase and redevelop a listed building beside the National Museum of Scotland, creating a new national centre for heritage research, learning, and engagement.
This is a rare opportunity to play a key role in shaping a transformational fundraising project from the ground up. Working closely with the Head of Fundraising, you will help build relationships with major donors, trusts, and corporate partners, develop inspiring fundraising materials, and contribute to communications and events that bring our story to life. If you are creative, motivated, and eager to make a real impact, we would love to hear from you.
Become part of something historic!
The client requests no contact from agencies or media sales.
Salary: £21,000–£28,000 (£35,000 FTE)
Contract: Permanent, Part-time (22.5–30 hours per week)
Location: Home-based within the UK, with occasional travel to London and fundraising events
Closing date: 14th November
Benefits: Flexible working arrangements, 28 days annual leave (pro rata), birthday leave, pension scheme, Employee Assistance Programme
We are delighted to be working with Overcoming MS to recruit a passionate and creative Fundraising Manager. Overcoming MS is a dynamic charity dedicated to supporting people living with multiple sclerosis through evidence-based lifestyle changes. This is an exciting opportunity to join a small, collaborative team and make a real impact by helping grow and diversify the charity’s income.
In this role, you will lead on community and event fundraising, individual giving, and donor stewardship. You’ll develop and implement fundraising plans, manage donor relationships, and deliver engaging campaigns and events. Working closely with the Head of Income Generation and wider team, you’ll help shape the charity’s fundraising strategy and support its mission to empower people with MS.
To be successful in this role, you will need:
- Proven experience in fundraising, donor relations, or a related field (ideally in a small charity setting)
- Excellent communication skills and the ability to create compelling fundraising materials
- Strong organisational and project management skills
- A digital-first mindset and confidence using digital platforms for fundraising
- A passion for Overcoming MS’s mission and values
For an informal discussion, please contact Ashby Jenkins Recruitment and ask to speak to Emma.
Ashby Jenkins Recruitment is a specialist charity recruitment agency. We are committed to equity, diversity, and inclusion and take a relationship-led approach to recruitment in the sector. You can read more about our commitment to diversity on our website.
If enough applications are received, we reserve the right to close the application period early.
Please quote reference 2752EI when applying.
We are recruiting for a Philanthropy Manager to manage a portfolio of dedicated major donors who contribute significant funding to the charity, developing and implementing inspiring supporter journeys that encourage repeated/ increased support. The postholder will work within a committed and supportive team environment, working collaboratively to raise awareness of the charity’s services, initiating and building mutually beneficial and sustainable relationships to ensure long-term support.
About Life:
Life is a UK charity for vulnerable women and families facing unexpected pregnancy or pregnancy loss. Life’s aim is to provide housing, care and support to vulnerable pregnant women (typically aged 16-25) who are in crisis situations, such as those facing homelessness (or at risk of), escaping abuse or other traumatic circumstances. We offer supported housing, a helpline and counselling service, and other practical and emotional support. Our services are inclusive; non-judgemental; and client-centred.
Our Values:
All our work is underpinned by the following universal human values:
- Humanity – All people are special and equal.
- Solidarity – We’re with you and for you.
- Community – We’re better together.
- Charity – Doing good for one another.
- Common good – Building a better world.
About You
Reporting to the Head of Fundraising, the postholder will work closely with the Individual Giving Manager and other fundraising team members to identify major donor prospects, ensuring thorough research and engagement to cultivate relationships and solicit major gifts. The role will also involve interacting with senior church contacts such as Archbishops and diocesan representatives who have a history of support, so whilst the charity is non-religious and non-political, sensitivity within this jurisdiction will be required.
Information about the role:
For further information, please see the attached job description.
Salary: £36,000 – £40,000 FTE
Hours: 21 hours per week over 3 days
Location: Home-Based with frequent travel to supporter locations and occasional travel to Head Office (Leamington Spa)
Please note that this vacancy may close earlier than the advertised closing date if a suitable candidate is found.
Benefits:
At Life we are passionate about providing our employees with a supportive and engaging environment. As well as ongoing development and training, we offer our:
- Generous holiday allowance, starting at 25 days per year, plus 8 Bank Holidays (pro rata for part time hours)
- Birthday Leave (applicable after 1 years service)
- Extra annual leave for long term service
- Company Pension Scheme
- Signed member of the Menopause Workplace Pledge
Safeguarding and Equality:
Life is committed to protecting all staff, volunteers and service users from harm of any kind. Life expects all staff and volunteers to share this commitment through our code of conduct.
We are committed to ensuring diversity and equality within our organisation by encouraging applications from all backgrounds.
All offers of employment will be subject to satisfactory references and appropriate screening checks. Life takes its obligation to protect the rights of children and vulnerable people very seriously; therefore, the successful candidate for this post will be also subject to extensive background checking, including an enhanced Disclosure and Barring Service check (DBS) which is paid for by the Charity.
The client requests no contact from agencies or media sales.
We’re excited to recruit our first Major Donors and Partnerships Coordinator to lead on securing and managing key relationships with corporate partners and major donors. This is a brilliant opportunity for someone with proven experience in corporate fundraising and major donor engagement to help shape CLAPA’s high value fundraising strategy from the ground up. If you're passionate about building meaningful partnerships and making a lasting impact, we’d love to hear from you.
You will play an active part in shaping and delivering corporate fundraising campaigns and stewardship activities, with a good level of ownership balanced by the support of an experienced income generation team.
As Major Donors and Partnerships Coordinator, you will contribute significantly to diversifying and sustaining CLAPA’s income. With an ambitious Income Generation Strategy in place, this is a timely opportunity to help strengthen CLAPA’s profile in corporate fundraising and partnerships. Building and maintaining strong, long-term relationships with donors and partners will be a core part of your role.
Working in a small and collaborative income generation team, you will need to be organised, proactive, and able to manage multiple priorities in a fast-paced environment. This position offers a supportive environment where you can grow your skills while making a meaningful contribution.
The Link to apply is listed in the attached Recruitment Pack or can be accessed via the Redirect to recruiter button.
The client requests no contact from agencies or media sales.
Our Client is a UK charity supporting vulnerable women and families facing unexpected pregnancy or pregnancy loss. Through supported housing, a helpline and counselling service, and practical, non-judgemental support, this Charity helps pregnant women, often aged 16-25 and in crisis due to homelessness, abuse, or other trauma, build safer, more stable futures. Grounded in the universal values of Humanity, Solidarity, Community, Charity and the Common Good, the Charity is strengthening philanthropy to increase impact nationwide. The team is now looking to appoint a Philanthropy Manager, and Prospectus is leading the search.
Philanthropy Manager
Part time, 21 hours per week over 3 days
Home-based with frequent travel to supporter locations; occasional travel to Leamington Spa Head Office
£36,000-£40,000 per annum (FTE)
The Philanthropy Manager will manage and grow a portfolio of dedicated major donors, developing inspiring, personalised supporter journeys that deepen engagement and secure repeat and increased gifts. Working within a committed and supportive team, you'll raise awareness of the Charity's services, build mutually beneficial relationships, and deliver sustainable long-term support through thoughtful cultivation, compelling proposals, and excellent stewardship.
Reporting to the Head of Fundraising and working closely with the Individual Giving Manager and wider fundraising colleagues, you will proactively identify and research prospects, plan targeted approaches, and lead solicitations. The role will also engage with senior church contacts (e.g. Archbishops and diocesan representatives) who have a history of support; while the Charity is non-religious and non-political, you'll bring sensitivity and confidence operating within these settings to advance shared philanthropic goals.
The successful candidate will bring a strong track record of securing four- and five-figure gifts, crafting persuasive cases for support, and managing high-value pipelines from identification to stewardship. You'll be a collaborative relationship-builder with excellent written and verbal communication, rigorous research skills, and the ability to tailor engagement for diverse audiences while upholding the Charity's values and client-centred ethos.
At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process then please contact Femke Vorstman at Prospectus.
If you feel you meet some of the criteria but not all, we really hope you'll enquire and learn more. Prospectus can advise and support on each part of the role and hopefully your application, so we look forward to hearing from you.
In order to apply please submit your CV in the first instance. Should your experience be suitable, we will arrange for a meeting to brief you on the role. You'll then have all the information you need to formally apply. We are looking forward to connecting with you soon.
We are recruiting for an Individual Giving Manager to drive and deliver our ambitious fundraising strategy in order to support the work of Life. The Individual Giving Manager will create, test, monitor and evaluate appeals and campaigns, lead on Legacy (and in-memoriam) giving, lottery and raffle and other income streams associated with individual giving.
About Life:
Life is a UK charity for vulnerable women and families facing unexpected pregnancy or pregnancy loss. Life’s aim is to provide housing, care and support to vulnerable pregnant women (typically aged 16-25) who are in crisis situations, such as those facing homelessness (or at risk of), escaping abuse or other traumatic circumstances. We offer supported housing, a helpline and counselling service, and other practical and emotional support. Our services are inclusive; non-judgemental; and client-centred.
Our Values:
All our work is underpinned by the following universal human values:
- Humanity – All people are special and equal.
- Solidarity – We’re with you and for you.
- Community – We’re better together.
- Charity – Doing good for one another.
- Common good – Building a better world.
About You
Reporting to the Head of Fundraising, the postholder will work closely with colleagues across the Income Generation and Marketing teams to deliver on a positive donor/ supporter experience with the aim of retention of current supporters for the long-term as well as acquisition of new donors, maximising the potential of all of our supporters. It forms a central part of the overall fundraising strategy, with the ultimate aim of growing our individual giving income to increase the impact of the charity and benefit those needing support in pregnancy, pregnancy loss or in the early years of having a baby.
Information about the role:
For further information, please see the attached job description on our website.
Salary: £36,000 – £40,000 per annum
Hours: 35 hours per week
Location: Home Based with occasional travel to Head Office (Leamington Spa)
Please note that this vacancy may close earlier than the advertised closing date if a suitable candidate is found.
Benefits:
At Life we are passionate about providing our employees with a supportive and engaging environment. As well as ongoing development and training, we offer our:
- Generous holiday allowance, starting at 25 days per year, plus 8 Bank Holidays (pro rata for part time hours)
- Birthday Leave (applicable after 1 years service)
- Extra annual leave for long term service
- Company Pension Scheme
- Signed member of the Menopause Workplace Pledge
Safeguarding and Equality:
Life is committed to protecting all staff, volunteers and service users from harm of any kind. Life expects all staff and volunteers to share this commitment through our code of conduct.
We are committed to ensuring diversity and equality within our organisation by encouraging applications from all backgrounds.
All offers of employment will be subject to satisfactory references and appropriate screening checks. Life takes its obligation to protect the rights of children and vulnerable people very seriously; therefore, the successful candidate for this post will be also subject to extensive background checking, including an enhanced Disclosure and Barring Service check (DBS) which is paid for by the Charity.
The client requests no contact from agencies or media sales.
About you
Do you want to use your skills to make it possible for people with myeloma to live longer and better lives?
Myeloma UK is looking for a motivated and experienced Special Events professional to join our Philanthropy team.
Special events play a vital role in engaging our supporters, inspiring their support, and raising vital income for the charity. Throughout 2026 we have a range of events planned, including private dinners, receptions and large fundraisers in London and Edinburgh.
Special Events is an area of growth for the charity, and this is an exciting opportunity to work alongside our major donor team and senior volunteers and supporters to develop and deliver an engaging fundraising events programme.
Experience in Special Events is essential, ideally in a charity environment. The successful candidate will have excellent event management skills, experience of working with senior stakeholders, and the ability to deliver creative and engaging events to inspire donor support.
About the role
Myeloma UK is embarking on an ambitious five-year income generation strategy, which aims to double our income by 2030.
The post holder will lead the planning and delivery of a programme of high-quality events. You will work with colleagues from across the charity to develop programmes that will engage our audiences and communicate the impact we deliver as a charity. You will have excellent interpersonal skills and the ability to work with a range of stakeholders.
About us
Myeloma UK is the only UK charity focused on the incurable blood cancer, myeloma and its related conditions. We provide support and influence access to treatments, while researching a cure. Thanks to life-extending treatments and support, today many people affected by myeloma are able to live longer and to live well. Together, we support, so no one faces myeloma alone.
We are committed to bringing together the best and brightest people to help us ensure that every person affected by myeloma has an empowered present and a hopeful future.
Our ultimate goal is to find a cure and make myeloma history. Until then, our mission is to help every person living with myeloma, live well, for as long as possible. We are committed to diagnosing myeloma earlier, discovering and sharing knowledge, transforming the patient experience and influencing positive change.
Our culture
Wellbeing and staff engagement are at the heart of our culture. We offer employees a range of benefits including a pension salary exchange scheme, flexitime, flexible working which includes both home and hub-based office working, health plan, employee assistance plan and holiday purchase scheme. We are committed to providing learning and development opportunities for all our employees
How to apply
If you think you would be a great fit for this role, get in touch and tell us more about yourself by sending the following:
1. A cover letter telling us more about you and what you think makes you a good fit for this role
2. A CV that sets out your career history, with key responsibilities and achievements
Applications close on 9am 10 November 2025 and interviews will be held w/c 17 November 2025.
Myeloma UK is an equal opportunities employer and always welcomes applications from suitably qualified and eligible candidates regardless of:
· sex
· race
· disability
· age
· sexual orientation
· gender reassignment
· religion or belief
· marital status
· or pregnancy and maternity
Please note, you will be asked to provide evidence of your eligibility to work in the UK prior to interview selection.
The client requests no contact from agencies or media sales.
About us
Genetic Alliance UK is the national charity working to improve the lives of the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. We are an alliance of over 220 charities and support groups, uniting patient voices to campaign for timely diagnosis, better care, and improved access to treatments.
We host Rare Disease UK (the national campaign for implementation of the UK Rare Diseases Framework) and SWAN UK (the only dedicated support network for families of children with undiagnosed genetic conditions) and we run the annual Rare Disease Day campaign.
About the role
This is a creative and purpose-driven role at the heart of our charity’s communications. As Senior Communications Officer, you’ll help us tell powerful stories, share our impact, and build connections with our members, supporters and partners.
You’ll lead on producing engaging digital content, managing our social media and newsletters, and keeping our website fresh and accessible. You’ll also support light-touch fundraising campaigns, helping us grow our income and supporter base.
This is an ideal role for someone who enjoys combining creativity with strategy, you’ll use your writing, design and digital skills to make our work visible and compelling, while ensuring the voices of those living with rare conditions remain at the centre of everything we do.
You’ll work closely with the Head of Membership and Communications and our new Director of Engagement and Impact, contributing ideas that strengthen how we engage all our audiences.
About you
We’re looking for someone who is:
-
A strong communicator with at least two years’ experience in a communications role.
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Skilled in producing visual and written content for websites, social media and newsletters.
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Confident using digital tools (e.g. Canva, Adobe suite, Wordpress/Drupal).
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Organised, creative, and comfortable working both independently and collaboratively.
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Motivated by making a difference for people affected by genetic, rare and undiagnosed conditions.
Experience in the health, social care or charity sector would be an advantage, but curiosity and empathy matter just as much as direct experience.
What we offer
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Generous pension (5% employer, 3% employee)
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25 days annual leave (pro rata) plus bank holidays
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Full office closure over Christmas and New Year
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Flexible, home-based working with supportive team culture
Location: Home-based (UK) – occasional travel required
Salary: £29,705 (pro rata £23,764 for 0.8 FTE)
Contract: Permanent, 28 hours per week (0.8 FTE)
Closing date: 27 November 2025
The client requests no contact from agencies or media sales.