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About the role
As Head of Research and Evaluation, you will be responsible for the development and delivery of our research and evaluation strategies. This work will help us to understand and provide insight into the challenges and difficulties faced by families with disabled children, the quality of services we provide and the difference our support makes for the families we serve.
You will ensure that the voice of families is at the centre of our research and evaluation approach to help shape existing and new programmes and services, and our policy and public affairs work.
If you join us, you’ll be:
- Leading the continued development and implementation of Family Fund’s research and evaluation strategies.
- Developing and overseeing our evaluation and service quality frameworks, including our Theory of Change outcomes measurement framework.
- Championing the ‘voice of families’, embedding their lived experience at the heart of our research.
- Managing and delivering high-quality research and evaluation projects/initiatives.
- Producing accessible, engaging, and impactful research outputs for a variety of audiences.
- Promoting the use of innovative and participatory research methodologies.
- Presenting and disseminating research findings internally and externally, including at events, conferences, and through publications.
- Developing and maintaining strong relationships with stakeholders and representing Family Fund in strategic research partnerships, networks, and advisory forums.
- Commissioning external research and evaluation where appropriate, ensuring quality, value for money.
- Maintaining oversight of the team’s input to government/ funder reporting, ensuring timely and accurate submissions aligned to contractual and organisational requirements.
- Providing visible, hands-on leadership and line management to the Research and Evaluation Team.
About you
For this role you will need to have experience in developing and managing research and evaluation strategies, frameworks, activities and production of subsequent products. You will also need to have experience of working in partnership with other organisations, and of resource and budget management.
To be successful in this role, you will need excellent analytical skills as well as sound knowledge of quantitative and qualitative methodology and best practice through the research cycle. You will need to have good writing skills and an ability to communicate effectively with different audiences. You will also need to have the ability to interpret and present research in an accessible and engaging way.
You will be a self and team motivator with excellent communication skills, and the ability to develop and sustain positive relationships with a range of stakeholders. You will be pro-active and driven to succeed.
About us
Family Fund is a great place to work for great people. We provide a challenging and rewarding working environment where every staff member can make their mark.
We are a values based organisation and we aim to show our values in all that we do. Read our staff stories here, and see how our staff display our values every day.
We commit to inclusion, equity and diversity and we welcome applications from all parts of the community. Family Fund is a Disability Confident Leader. We will invite to interview all disabled applicants who meet the requirements for the role. If you have a disability, and are happy to let us know, please highlight this in your covering letter. We have also signed the Armed Forces Covenant and we welcome applications from the Armed Forces Community.
How to apply
Please read and download the job description.
When you’re ready to apply, complete the online application and submit a CV and a covering letter. Your letter will need to explain what skills and qualities you would bring to the team.
Please note that the successful candidate will be required to complete pre-employment checks that meet the Baseline Personnel Security Standard. This includes a right-to-work check, a basic check for unspent criminal convictions, and an employment history verification for the last three years.
Our mission is to make life better for families raising disabled and seriously ill childen.
The client requests no contact from agencies or media sales.
Head of Research and Engagement
Salary: £34,032 pro rata for 21 hours per week (£56,720 FTE)
Letchworth Garden City/ home working (hybrid)
Part time (21 hours a week)
Permanent
Flexible working considered
Lead research, insight and engagement that helps shape better MS care. If you are an experienced neurology or MS healthcare professional with strong leadership, research and stakeholder skills, this is an opportunity to turn evidence and lived experience into action for people affected by MS.
Join our friendly team
We are looking for someone who can bring people together around evidence, insight and improvement. You will be confident working with health professionals, researchers and external partners, and able to translate findings into clear, practical outputs that support better services and care. You will bring strong communication, project management and analytical skills, with the ability to lead a small portfolio and build trusted relationships across the MS community.
Our charity
The MS Trust is a UK charity which is here to help everyone make sense of MS. We are here for everyone affected by MS, from the moment of diagnosis and throughout their journey. We're here today, tomorrow and every day after that.
The role
Head of Research and Engagement: This is a senior and varied role where you will lead and oversee our research grants, MS service mapping, supported research and Helpline. Working closely with the Director of Services, you will set priorities, manage key roles, develop stakeholder relationships and make sure our research and mapping findings are shared clearly, accurately and accessibly. You will help strengthen our engagement with the NHS, professional bodies and partners, ensuring our work is rooted in real experience and has practical impact for people with MS.
What we can offer
· 28 days annual leave per year plus bank holidays, which increases with length of service to 30 days.
· Company pension with enhanced employer contribution. Salary Sacrifice scheme available.
· Death in Service benefit.
· Enhanced maternity, paternity and adoption pay.
· Sick pay.
· Hybrid working.
· Employee assistance Programme
· Fantastic office location with free parking, local to town centre and train station. Good transport links to London and Cambridge.
· Learning and development policy to develop all staff.
· Cycle to work scheme, Volunteering day and Season ticket loans.
To find out more and apply
Please visit our website to download a job pack and application form (CVs will not be considered).
As part of our commitment to equality, diversity and inclusion (EDI), we appreciate your time completing the form, as this allows us to keep our recruitment process fair and neutral.
Closing date: 7th September 2026 at 9.00am
First Interviews: 21st September 2026
We exist to give everyone living with MS the knowledge and confidence they need to feel more in control of their MS today and every day.
The client requests no contact from agencies or media sales.
We are seeking an ambitious and motivated Head of Research to oversee the delivery of our research funding programme. You will ensure our funding is delivered strategically with the greatest impact possible for people affected by MND. You will manage our research team to oversee the development and delivery of effective funding schemes, partnerships and initiatives, whilst ensuring the outputs of our research are monitored and evaluated, to communicate our impact and inform our future activities.
This is a key role in our small, agile organisation that will involve close working across the charity, and the research community. We are looking for someone with strong experience in research and people management, working experience in drug discovery, with excellent communication skills and strong motivation to make a difference for people affected by MND.
Team Structure:
You will report to the Director of Research and manage a team of four: three Research Programme Managers and a Research Officer.
Key responsibilities:
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Have day-to-day responsibility for distribution of the charity’s research funding, developing detailed annual plans and delivering against time and budget;
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Be responsible for overseeing governance and compliance for all research funding activities, including adherence to standards set by the Association of Medical Research Charities;
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Identify opportunities for improvements to grant management systems, processes and documentation and work closely with the research team to ensure they are implemented;
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Maintain oversight of the research programme budget, working closely with the research and finance teams to plan, monitor and forecast;
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Oversee the development and implementation of new funding schemes and research initiatives to ensure our funds are delivered for maximum impact and address gaps in the research landscape;
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Oversee the setup and delivery of large collaborative research programmes including managing relationships with joint funders and other partner organisations;
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Build and maintain strong relationships with the research community, including members of our review committees and grant holders;
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Oversee the development and implementation of a robust impact evaluation framework to monitor, report and evaluate the impact of the research we fund and use this information to inform our future funding activities;
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Ensure the outputs of our research funding activities inform the work of the charity, working with the research and communication teams to create and disseminate compelling and engaging scientific content to engage supporters and drive income;
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Maintain a strong understanding of the MND research landscape, using those insights to inform our research activities;
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Develop a high performing team, ensuring team members are supported and developed to contribute to their full potential in the achievement of the charity’s aims;
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Oversee the delivery of research events e.g. annual meetings to bring together our researchers;
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Support the development and implementation of future research strategies, working closely with the Director of Research;
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Represent the Foundation at external meetings including international conferences;
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Deputise for the Director of Research as required;
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Undertake other appropriate work as required by the Director of Research.
Skills and experience required:
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Educated to postgraduate level, or with similar experience in a relevant biomedical science subject e.g. biochemistry, molecular sciences, neuroscience, pharmacology;
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Working experience of drug discovery, gained either in the bio-pharmaceutical industry or an academic setting;
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Significant experience in research management, ideally within a charity or government funding organisation;
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Proven leadership and people management skills with direct line management experience;
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The ability to think strategically, navigate uncertainty and adapt to evolving environments;
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A great communicator, with excellent written and oral skills and the ability to build and maintain relationships with a wide range of stakeholders;
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Motivated to make a real difference for those living with MND and future generations.
Please note, this role involves occasional overnight stays from home, occasional international travel and occasional attendance at meetings and events during evenings and weekends. Candidates must have the existing right to work in the UK.
We are My Name'5 Doddie Foundation and we're absolutely committed to our goal: A World Free of MND



The client requests no contact from agencies or media sales.