Head of strategy and governance jobs in Home based

Employment Type: Full time
Location: Remote · Multiple locationsIreland · UK
Salary: £62,000 - £72,000 (GBP)25 days holiday plus other benefits.
Seniority: Senior
Closing date: 9:00am, 4th May

About GLAN

GLAN is an independent non-profit organisation made up of lawyers, investigators and campaigners. We pursue legal action against powerful actors involved in serious human rights violations and environmental harms, working across borders with international and local grassroots organisations. 

Our vision is justice across borders.

We are a fully remote team - our committed colleagues are spread across multiple countries, and we have offices in Ireland and the UK.

We currently work across three key focus areas: 

• Accountability for Atrocity Crimes
• Environment and Climate Litigation
• Abuses in Value Chains

About the role

The Chief Operating Officer at GLAN will play a crucial role in steering the team in the successful implementation of the charity’s organisational strategy, and will be responsible for ensuring the day-to-day smooth running of the organisation – in order to build a sustainable, compliant, resilient and well-governed organisation.

The ideal candidate

We are looking for an experienced leader with a proven track-record of delivering financial oversight and overseeing complex budgets and projects to completion in a fast-paced environment. We are looking for someone who possesses excellent people skills, who is emotionally intelligent and can guide a dynamic team remotely.

The Chief Operating Officer will be responsible for the delivery of core services and will manage a core team of staff to deliver Finance, HR, Fundraising, Communications and Governance.

The ideal candidate will have demonstrable experience in a similar role, with in depth understanding of how charitable, purpose driven organisations operate. You must have excellent leadership skills, a solid grasp of data analysis and performance metrics, financial planning and budgeting skills, and an advanced understanding of business planning, budget and project management.

Key Responsibilities

Senior Leadership

• Lead the Senior Leadership team in the implementation of our revised organisational strategy 2027-2030.
• Ensure organisation-wide financial oversight and operational business planning.
• Provide guidance and support to GLAN’s team.
• Deputise for the CEO when necessary and take ownership of high-level decision-making.

Operational oversight

• Maintain operational oversight so that legal, advocacy, funding and finance align with GLAN’s organisational strategy.
• Oversee and facilitate the flow of information between the legal and operational teams so that our legal case works aligns with finances, commitments to funders, team capacity, and communications plans.
• Ensure that systems enable on-going monitoring of expenditure so that fundraising and finance are aware of gaps/underspends.
• Help ensure cases/teams are sufficiently resourced in terms of staff capacity.
• Ensure joined up working, and provide strategic guidance when challenges arise.

People and culture

• Provide strong leadership to ensure a professional and healthy working culture.
• Build on GLAN’s existing commitments to a working culture that is in line with our values, overseeing team-wide consistency to HR line-management, 1:1’s, annual 360 reviews and performance.
• Oversee recruitment, onboarding, performance management, and staff development and staff feedback.
• Ensure policies on anti-racism, equality, diversity, inclusion and wellbeing are embedded in how we work.
• Support the embedding of GLAN’s values across GLAN’s work.
• Oversee relationship and dialogue between GLAN’s SLT and Trade Union representatives.

Governance and Board relationships

• Lead on ensuring that GLAN is compliant with our legal, regulatory, health & safety, data protection / GDPR and employment law obligations.
• Ensure we have all necessary policies in place and take the lead on coordinating the establishment and review of existing and further policies. Oversee the regular review of GLAN’s risk management frameworks and our risk register.
• Oversee GLAN’s governance structures (internal reporting, Board meetings etc.), ensuring decisions are well informed and documented.

Financial oversight

• Oversee financial operations: budgeting, forecasting, cash flow, expenditure controls, financial reporting, payroll.
• Ensure compliance with accounting standards, audit requirements and donor / funder financial reporting obligations.
• Manage relationships with external accountants, auditors, banks, and financial service providers.
• Ensure best practices are followed and financial risk is identified and managed appropriately.

Operations

• Ensure the smooth running of IT, data protection, office management. Managing relationships with our external providers.

Person Specification

Essential

• Minimum of 8 years of experience in senior leadership roles, delivering successful organisational financial oversight- with expertise in business planning and complex project management.
• Demonstrable experience of high-level budgeting, forecasting, auditing, proven accountability for ensuring financial sustainability and compliance.
• Minimum of 10 year’s line management experience.
• Excellent strategic thinking and planning skills, able to bridge between high-level strategy and operational detail.
• Sound judgement, risk-management and governance experience; familiarity with compliance, data protection / GDPR, employment law etc.
• Exceptionally organised and able to manage multiple priorities.
• Excellent verbal and written communication skills; ability to present complex operational, financial or legal information clearly.
• Strong collaborative approach, ability to work across teams, offer guidance to other senior level staff, and clear people management skills.
• Expertise in ensuring compliance with relevant legislation, policies, and procedures, particularly in the charity sector.
• Understanding of UK charity law and governance, including experience with Board of Trustees.
• Aptitude in decision making and problem solving, and confidence in providing guidance to boards and CEO.
• Warm, people-centred and positive approach.
• Emotionally intelligent, able to self-reflect, be honest and conduct open conversations with sensitivity.
• Solution-orientated, able to anticipate and resolve challenges.
• Strong alignment with GLAN’s values and our mission.
• Strong commitment to diversity, equity and inclusion and committed to GLAN’s ongoing anti-racist learning and practice.
• Commitment to developing an organisational culture in which our team thrives and we can achieve meaningful impact in our work.
• Ability to handle difficult situations and handle confidential information.
• Ability to balance GLAN’s operational priorities with our values.

Desirable

• Experience of operating in non-profit / mission-driven / legal organisations.
• Previous experience working in a human rights or environmental protection focussed setting.
• Legal or compliance experience.
• Experience of change management and scaling teams or systems.
• Experience of hybrid / remote team leadership .
• Experience of supporting culture building.
• Experience of working to decolonial commitments.
• Experience of delivering organisational change programmes.
• Legal or compliance experience.
• Experience of change management and scaling teams or systems.
• Experience of hybrid / remote team leadership 
• Commitment to equity, learning and continuous improvement.
• Knowledge of HR practices and employment law.
• Fundraising experience.
• Accountancy qualification, Leadership or management qualifications, Project management qualifications e.g. Prince2

Equality, Diversity & Inclusion

We particularly welcome applications from candidates with lived experience of the issues that GLAN works on. We strongly encourage applications from disabled candidates, older candidates, and Black and racially minoritised candidates, who are currently underrepresented in our organisation. We use an anonymised recruitment process to ensure fairness. Each applicant will be individually assessed against the essential criteria regardless of age, gender, ethnicity, sexual orientation, disability, religion, or belief. We will use positive action on the basis of race and/or disability in case of a tie break situation.

Our values

Decolonial - We are committed to building decolonial, anti-racist, and anti-oppressive approaches at GLAN.

Collective Power - We believe lasting change is built through collective action and power sharing. 

Responsive - Working across interconnected global systems that are ever in flux, we aim to be adaptable, nimble and responsive to make the biggest impact we can. 

Steadfast - We know the kind of change we want to see won’t happen overnight, that’s why we strongly value patience and persistence. 

Self-Reflective - We recognise the power and privilege we hold as an organization. We’re committed to fostering a culture of honesty, reflection, and continuous learning, constantly examining how we work within the system and why to help us strengthen both our organisation and the movements we support work within the system.

How to apply

To apply, please use our application portal. Applications are due by 9am 4 May 2026. We will not review applications sent via LinkedIn or email.

GLAN does not use AI to review applications, and we ask candidates to avoid its use in this process. We want to read about people’s experience in their own words.

If you need any reasonable adjustments, including this job pack to be sent in a larger font, in order to apply for this role, please contact us.

We are seeking a dynamic Head of Housing Support to lead our national Housing Support Services, ensuring clients receive exceptional, trauma‑informed care in safe, compliant and high‑quality homes. This is a pivotal role that influences service delivery, operational performance, and the long‑term vision for Life’s housing provision.

As Head of Housing Support, you will:

Lead & Inspire

• Provide strategic leadership for Housing Support Services across the UK.
• Manage and motivate Support Services Managers and Tenancy Sustainment Officers to deliver outstanding client‑focused support.
• Embed a culture of collaboration, high performance and trauma‑informed practice.

Drive Operational Excellence

• Oversee the implementation of the Housing Strategy, ensuring the safety, compliance and quality of all homes.
• Work closely with the Estates Team to maintain high housing standards and meet regulatory obligations.
• Oversee tenancy management, rent setting, arrears management and income recovery.

Shape the Future

• Influence policy, develop best‑practice procedures and contribute to organisational strategy.
• Build strong partnerships with local authorities, housing developers and external stakeholders.
• Represent Life at networking events and act as an ambassador for the charity.

Lead with Purpose

• Champion safeguarding, ensuring training, oversight and adherence to all safeguarding policies.
• Produce reports and KPIs for the Board, Senior Leadership Team and Operational Leadership Team.
• Support the financial sustainability of the Housing department, including budget management and cost‑saving initiatives.

About You

We’re looking for someone who is:

• A values‑driven leader committed to Life’s mission and vision.
• Experienced at senior management level within supported housing (multi‑million‑pound scale desirable).
• Skilled at leading high‑performing teams and developing individuals.
• A confident communicator with excellent relationship‑building and presentation skills.
• Knowledgeable in tenancy support, housing compliance, safeguarding and quality service delivery.
• Highly organised, strategic, creative and able to work under pressure.
• Passionate about trauma‑informed practice and delivering outstanding client outcomes.

Relevant housing or management qualifications (such as CIH Level 4) are desirable but not essential with strong experience.

About Life:

Life is a national pregnancy support charity that helps over 60,000 people a year. Through our services, we help people – whoever they are – to meet pregnancy or pregnancy loss with courage and dignity so they can flourish.

Our services include

• Supported housing and community support
• Counselling and skilled listening
• Free pregnancy tests and baby supplies

Our values

All our work is underpinned by the following universal human values:

• Humanity – All people are special and equal
• Solidarity – We’re with you and for you
• Community – We’re better together
• Charity – Doing good for one another
• Common good – Building a better world

Information about the role:

For further information, please see the attached job description.

Please note, driving licence and own vehicle are required.

Salary: £45,655 per annum

Hours: 35 hours per week, 5 days per week

Location: Home Based with Extensive Travel across Midlands and South East

Benefits

At Life we are passionate about providing our employees with a supportive and engaging environment. As well as ongoing development and training, we offer our:

• Generous holiday allowance, starting at 25 days per year, plus 8 Bank Holidays (pro rata for part time hours)
• Birthday Leave (applicable after 1 years service)
• Extra annual leave for long term service
• Company Pension Scheme
• Signed member of the Menopause Workplace Pledge

Safeguarding and Equality

Life is committed to protecting all staff, volunteers and service users from harm of any kind. Life expects all staff and volunteers to share this commitment through our code of conduct.

We are committed to ensuring diversity and equality within our organisation by encouraging applications from all backgrounds.

All offers of employment will be subject to satisfactory references and appropriate screening checks. Life takes its obligation to protect the rights of children and vulnerable people very seriously; therefore, the successful candidate for this post will be also subject to extensive background checking, including an enhanced Disclosure and Barring Service check (DBS) which is paid for by the Charity.

About Us
The National Landscapes Association represents and supports the UK’s National Landscapes (Areas of Outstanding Natural Beauty) The Association is a charity and non-profit membership organisation. The team advocates, communicates and fosters collaborative action which supports the UK’s network of National Landscapes to be as effective as possible. We champion the interests of National Landscapes with governments and coordinate the delivery of national projects.

About the Role
As Head of Partnerships and Fundraising, you will lead the development and delivery of an ambitious income generation and partnership strategy for the National Landscapes Association. This is a pivotal senior role, focused on securing and growing diverse funding streams, including corporate partnerships, philanthropy, grants and strategic collaborations to support the long-term resilience of the organisation and the wider National Landscapes network.

You will drive new business, negotiate high-value partnerships and oversee a strong pipeline of opportunities, while leading and supporting a high-performing Development Team. Working closely with the Chief Executive, Board and key partners, you will operate at a strategic level, shaping propositions, building influential relationships and positioning National Landscapes as a compelling investment opportunity within the environmental and nature-based solutions space.

Key Responsibilities

• Income generation & strategy: Lead the development and delivery of an ambitious income diversification strategy, identifying and securing funding from corporate partnerships, philanthropy, grants and strategic collaborations.
• New business development: Drive the full partnership lifecycle from prospect identification and relationship building through to proposal development, negotiation and deal closure for high-value opportunities.
• Partnership development & stewardship: Build and maintain strong, trusted relationships with funders and partners, ensuring high-quality account management and delivery against agreed outcomes.
• Team leadership & performance: Lead and support the Development Team, setting clear objectives, fostering a positive team culture, and ensuring delivery against income targets and pipeline goals.
• Strategic positioning & influence: Work with the Chief Executive and Board to shape compelling partnership propositions, represent the organisation externally, and position National Landscapes as a leading partner for investment in nature.
• Governance, reporting & insight: Ensure robust pipeline management, forecasting and reporting, while maintaining oversight of legal, financial and reputational considerations across partnerships.

See the role description for more information.

Why Join Us?
At the National Landscapes Association, you’ll be part of a passionate and forward-thinking team making a meaningful impact. You’ll gain exposure to a wide range of high-profile policy issues, work alongside experts across the UK, and help shape the future of our most valued landscapes.

Royal Voluntary Service has an opportunity available for a Head of Philanthropy & Partnerships to join our team, working from home. You will join us on full-time, permanent basis, and in return, you will receive a salary ranging from £50,434 per annum.

About the Head of Philanthropy & Partnerships role:

Royal Voluntary Service mobilises volunteers to support people in need and the NHS. Our volunteers work with healthcare teams and in communities providing practical help and emotional support when people are struggling to cope.
 
About the Head of Partnerships & Philanthropy role:

This is a newly created, senior leadership role responsible for building and scaling a high-value income stream across corporate partnerships, high-net-worth (HNW) individuals, and philanthropy at Royal Voluntary Service.
 
The role will lead the development and execution of a strategy to generate £1m+ in sustainable annual income, with a strong focus on new business acquisition, strategic relationship development, and long-term value creation. 

What Makes This Role Attractive

• Opportunity to build a function from scratch with CRO-level sponsorship 
• High visibility across leadership and Board 
• Ability to shape a modern, commercially-driven fundraising model 
• Direct impact on scaling income and social outcomes

Hours: 35 per week, Monday - Friday. 

Location: Homebased with occasional national travel

This is what we're looking for:

Experience

• Proven track record of delivering £1m+ income targets in: 
• Corporate partnerships 
• Philanthropy / major donor fundraising

Skills & Capability

• Highly commercial with a new business mindset 
• Exceptional relationship builder with gravitas at senior level 

Leadership Style

• Proactive, entrepreneurial, and outcomes-focused 
• Comfortable operating in a newly created role with ambiguity 

This is what you'll be doing:
 
Income Generation & Strategy

• Develop and deliver a clear partnerships & philanthropy strategy aligned to RVS growth objectives 
• Own and deliver against a £1m+ annual income target, with defined pipeline metrics 

Corporate Partnerships

• Design and secure strategic, multi-year corporate partnerships (5–6 figure+ value) 
• Target organisations aligned to RVS mission (CSR/ESG agendas, employee engagement, volunteering) 

This is all the other great stuff you'll be getting:

• A salary ranging from £50,434 per annum 
• 26 days’ holiday (pro rata) plus paid statutory Bank Holidays (pro rata)
• Up to 2 days paid volunteer leave a year, through our employer supported volunteer scheme
• Ten weeks’ company sick pay following successful completion of probation
• A great pension scheme with 8% employer contributions
• 2 x Base Salary Death in Service Benefit, subject to qualification
• Enhanced Family Leave schemes
• An employee benefits package that gives access to an exclusive rewards website to get discounts and cashback online
• A 24-hour doctor line, financial support with dental/optical and other therapies
• A free and confidential employee assistance programme with up to six face-to-face counselling sessions included
• Opportunities to discuss flexible working
• Opportunities to develop new skills and progress your career
• The chance to make a positive, lasting impact that changes lives, communities, and society

If you feel have the skills and experience to become our Head of Partnerships & Philanthropy please click ‘apply’ today, we’d love to hear from you!

The closing date for this role is 1 May 2026. However, we reserve the right to close this vacancy early should sufficient applications be received. Please do not delay your application we often get a lot!
 
Join Royal Voluntary Service and together we can change lives, change communities and change society.

Trusts and Foundations Manager
Permanent | Full time
Ideally 1 or 2 days a week in either in Coventry or Middlesbrough
circa £38,000 - £45.000 per annum

Are you an experienced trusts & foundations fundraiser looking to join a much loved charity which supports babies and young children who have life-limiting and life-threatening conditions.

Aquilas is delighted to be supporting Zoe’s Place in the appointment of a new Trusts and Foundations Manager, a key role at an exciting time of growth for the charity.

About the charity

Zoe’s Place is the only baby specific hospice charity in the UK, providing specialist palliative, respite and end of life care for children aged 0 to 5 with life limiting and life-threatening conditions. They offer a safe, nurturing and joyful environment where families can feel completely supported. With their dedicated nurses delivering 24-hour care, they work together to make every moment of childhood count.

About the role:

Supporting the delivery of Zoe’s Place overall income generation strategy, by researching, record keeping, applying and reporting to a portfolio of trusts and foundations to deliver long term sustainable income growth for the Trust. Overall accountability for capital projects across the Trust

Key Responsibilities:

Account manage the trust and foundations fundraising function   

• Contribute to the maintenance of a comprehensive database for both hospice sites of all relevant grant making trusts and keep up to date with changes in the sector.
• Develop and write applications and bids to a wide range of funders as required.
• Work collaboratively with the Head of Fundraising and fundraising colleagues to ensure all funding opportunities are maximised
• Manage and develop relationships with new and existing funding partners.
• Work collaboratively with Director of Clinical Services, clinical teams and finance to prepare bids and reports.
• Ensure funding partners receive timely and appropriate information about the progress and outcomes of projects including written reports and evaluation in accordance with requirement.
• Responsible for delivery of income targets.
• Ensure excellent relationships are maintained with current, past and prospective funders so the Zoes Place Trust name is associated with honesty and high standards of service delivery.
• Organise visits and tours for trustees of charitable foundations if requested to both Middlesbrough and Coventry sites.

 Administration and pipeline

• Use our fundraising CRM and in line with GDPR to ensure accurate and timely record keeping allowing for good stewardship.
• Carry out detailed research on prospective foundations, identify and maintain a calendar for submitting applications.
• Working with an income pipeline / tracker to ensure accurate and timely financial forecasting, identifying risk to income and mitigating accordingly.
• Ensure activities comply with current law, guidance and best practice of the Fundraising Regulator

Person Specication:

• strong track record in Trusts and Foundations fundraising
• Experience of working in the charity Sector
• Excellent and persuasive writing skills and a sharp eye for details
• Excellent interpersonal and verbal communication skills

To Apply:

To receive a candidate pack or arrange a confidential conversation, please contact:

Kieran McGorrian, Head of Not for Profit Appointments, Aquilas (contact details in candidate pack)

Applications close 5pm Monday 20th April

Aquilas are wholly committed to equality of opportunity and diversity and we warmly welcome applications from all suitably-qualified candidates.  We are truly invested in our candidates and being supportive and informative throughout the application journey

We are looking for a dynamic, values-led, strategic leader to drive our mission for migration justice and social work solidarity. The role entails oversight of the operations and strategy of the organisation, responsibility for financial management and fundraising, maintaining the health of the organisation and embedding anti-racist and anti-opressive values into every aspect of the organisation. 

Self-Employed Chartered Surveyors Sought

 Based in the Midlands and North of England

Flexible, Project-Based Consultancy Making a Difference

Are you an experienced Chartered Surveyor, seeking meaningful work on a flexible basis? Do you want to use your skills to help amazing organisations doing good in the world?

The Ethical Property Foundation is the UK’s only dedicated property advice charity serving the voluntary sector. (Registered Charity Number 1101812) Each year, we provide over 900 organisations with expert, independent property advice and education. We are now looking for one or more self-employed Chartered Surveyors - general practice surveyors and building surveyors to join our team and help deliver affordable consultancy services to the voluntary sector.

About the Role

This is a self-employed, project-based opportunity. Assignments typically require 4-5 days of work (not full-time) and include:

· Lease renewals and rent review advice

· Development of client property strategies

· Options appraisals

· Property acquisition advice

· Property disposal advice

You may also have opportunities to design and deliver property-related webinar training.

Our Associate Property Advisers work flexibly from home, with occasional client site visits across England, Wales, and Scotland.

What we’re looking for

We’re seeking Chartered Surveyors (or equivalent) with:

• Strategic thinking and reporting skills
• Specialisms such as facilities management and / or architectural experience
• General practice skills
• We also have opportunities for building surveyors who can offer a charity rate on their standard fee.

You’ll need excellent communication skills to engage and empower our clients—many of whom support vulnerable people in challenging circumstances—and the ability to investigate, analyse, and propose practical property solutions.

Why join us?

Our clients support a diverse range of causes and manage every type of property imaginable. In the past year, we’ve advised on office buildings, church premises, oast houses, former schools, libraries, theatres, fields, industrial units, and more.

You’ll be part of a team of extraordinary senior property professionals who share a passion for making a positive impact.

Key details

• Day Rate: £220
• Working Hours: Flexible, variable based on agreed project deadlines
• Location: Work from home with travel as required for site visits
• Professional Indemnity Insurance: The post holder falls within the definition of ‘Person Employed’ and are therefore included within EPF’s PI insurance.
• DBS Clearance: Provided by EPF
• Reporting To: Head of Property Services

Start date

By mutual agreement.

Interested in using your property expertise to make a difference? 

Role Overview

This is an exciting opportunity to shape Shine’s strategic direction while managing the operational delivery of our services for children, young people, and families aged 0–25. Building on the success of our Little Stars/Ser Bach programme for members aged 0–12 and the development and extension of the FIRE (Friendship, Independence, Resilience, Empowerment) programme for those aged 13–25, you will play a key role in shaping the future of our support for children, young people and their families.

Working across England, Wales, and Northern Ireland, you will lead the delivery of an established, evidence-based programme that improves health, social, and emotional outcomes for those living with spina bifida, hydrocephalus, and associated conditions.

You’ll lead a passionate team and work closely with Shine’s Adult Services Team (25+), Health Team, Wales and Northern Ireland Managers and wider colleagues across the organisation to ensure work is coordinated, complementary, and beneficial to members. At the same time, you’ll forge strong partnerships with NHS professionals, statutory services, and voluntary organisations—driving collaboration that will support our vision of providing consistent, high-quality support for children, young people and families nationwide.

Key Responsibilities:

• Leadership & Team Management
• Programme Development & Delivery
• Monitoring, Evaluation & Reporting
• Member Support & Engagement

Please see the full Job Description & Person Specification below and on our website. 

Benefits to working at Shine:

• Competitive salary: Review due April 2027
• Regular working hours, and no shift work (some very occasional weekends or evenings)  
• 3% pension contribution
• 25 days annual leave plus bank holidays, with additional discretionary leave between Christmas and New Year
• Additional annual leave awarded for ‘long service’
• Opportunity to purchase additional annual leave
• Broadband allowance for home-based roles
• Life insurance after 12 months’ employment  
• Access to our Employee Support Programme and Mental Health First Aiders 
• Support to learn and develop 

How to apply 

Shine is a Disability Confident employer and will offer guaranteed interviews if a disabled applicant meets the minimum criteria for the job. 

If you would like to discuss the role with our Deputy CEO, Gill Valentine, please contact Shine to arrange a convenient time for a call. 

To apply please submit your CV and supporting statement, which should outline your interest and explain how you meet the role criteria. 

We understand that you may wish to use AI tools to help you with some aspects of your application but we do expect tailored applications which are personalised to your experiences and not generic applications which are completely AI generated. We encourage candidates to be transparent about AI usage in their applications. 

*Please note applications without a supporting statement will not be accepted* 

Closing date: Thursday 16th April 2026 at 11pm 

Interviews:  Monday 27th April 2026  

Please note: we reserve the right to interview suitable candidates before the closing date, therefore we encourage applications as soon as possible. 

• Travel required: 15 days / year (approx.)
• Location: Home-based in either UK, Germany or Spain.

We are seeking a Researcher to support the activities of the Patient Evidence Department of Myeloma Patients Europe (MPE).

Please send your CV and cover letter at recruitment @mpeurope. org. Applicants must have the right to work in the UK, Germany or Spain. Applications without a cover letter will be rejected. 

The following tasks and core responsibilities are non-exhaustive and subject to change depending on needs of the organisation.

Job Purpose

The Researcher will support the Patient Evidence department in generating, analysing and communicating patient-centred evidence to inform clinical, regulatory, industry, academic and policy decision-making, and to fuel progress across MPE programmes and activities. The role involves working with qualitative and quantitative data, supporting research projects and contributing to evidence-based outputs that amplify patients’ experiences and needs. The Patient Evidence department conducts our own patient-focussed research and collaborates on external projects with patient and medical organisations, universities, clinical teams, industry partners and regulatory bodies.

Main Duties and responsibilities

Perform the following duties in conjunction with and under the guidance of the Head of Patient Research:

• Independently design research projects and develop research protocols aligned with MPE’s research strategy, including surveys, interviews and literature reviews.
• Support the development of proposals to secure public and private funding to support research activities.
• Independently conduct assigned research tasks in accordance with project deliverables and timelines.
• Conduct and analyse qualitative (interviews, focus groups) and quantitative research (surveys).
• Conduct desk research (systematic and non-systematic literature reviews) on topics such as patient experiences, health systems and psychosocial impacts of myeloma.
• Maintain accurate records of participant data, safeguarding the confidentiality of participants and patient data, as necessary.
• Write up research results and prepare visualisations of data for different audiences (including for patients, clinicians, academic journals).
• Disseminate research results including presentations at international and national conferences, internal and external meetings and workshops. Represent MPE at internal/external meetings when needed.
• Collaborate with communications colleagues to design strategies to disseminate our research to wider audiences.
• Collaborate with relevant stakeholders to develop recruitment and involvement strategies to enhance participation from underserved groups and from different parts of Europe.
• Engage with patients, families, clinicians, patient organisations and other stakeholders involved in MPE patient evidence projects and other myeloma research.
• Provide administrative and organisational support for the Research Advisory Committee.
• Contribute to our member research support training programme including delivering workshops and training events on research design and methodology.

Other responsibilities

• Undertake any other reasonable duties as required by the Head of Patient evidence.
• Critically appraise and provide advice to the wider MPE team on research and evidence requests.
• Build good relations with members, internal and external stakeholders (including doctors, researchers and medical representatives within companies).
• Respond to external patient organisations’ requests on research and evidence topics.
• Attend scientific congresses and meetings and stay abreast of important developments related to myeloma patient evidence.
• Develop content for MPE website, social media and other communications.
• Participate in advisory boards for the pharmaceutical industry.
• Engage with training and continuing professional development.

Essential criteria

• An undergraduate degree in a relevant subject (such as psychology, social sciences, health policy, health and social care, public health or related fields)
• Master’s degree in a relevant subject (MRes Health Research, MPH, or health-related subject MSc with substantive research component)
• A minimum of 3 years experience conducting applied health research
• Knowledge and experience of qualitative and quantitative research methodologies including surveys, focus groups and interviews applied to health-related research
• Strong skills in qualitative, quantitative or mixed-methods analysis.
• Understanding of principles of Good Clinical Practice in research.
• Proficient at Office suite – Word, Excel, PowerPoint (or equivalent), and specialist quantitative/qualitative analysis software (e.g. SPSS/R, or Atlas/Nvivo).
• Ability to work from home in a virtual setting with a team spread across Europe.
• Strong listening, communication and presentation skills.
• Rigorous work methods and high attention to detail.
• Demonstrated excellence in writing, proofreading, and editing in English.

Desirable criteria

• A PhD in a related field
• Project management experience
• Experience in cross-national research
• Experience in working with patients, researchers, doctors and representatives from the pharmaceutical industry desirable
• Experience in systematic or non-systematic literature review
• Publications in peer-reviewed journals
• Familiarity with patient-reported outcomes (PROs) and patient experience data
• Knowledge/expertise of cancer patient experience research
• Knowledge of drug development process and clinical trials
• Knowledge and experience of ethical review procedures
• Fluency in additional European languages

Personal attributes

• Organised, with excellent project management and time management skills.
• Ability to lead and work independently on assigned tasks and take appropriate initiative.
• A motivated and self-aware team player, who can work independently or collaboratively with equal success.
• Ability to explain complex scientific terms and knowledge into lay language.

We offer:

• Opportunity to contribute to impactful, patient-centred work at a European level.
• An exciting position in the emerging field of evidence-based patient advocacy, working together with key patient advocacy leaders across Europe.
• Permanent position with flexible hours giving the opportunity to progress and to integrate in a dynamic, friendly and multi-cultural team working from different European cities.

About MPE

Myeloma Patients Europe (MPE) is a pan-European organisation representing 57 myeloma and amyloidosis patient groups from over 35 European countries. It is registered as an international non-profit organisation under Belgian Law. A Board mainly composed of patients and caregivers is elected by the membership to oversee the strategy and governance of the organisation. A team of 14 staff members runs remotely the day-to-day operations, programmes and services within 4 divisions: Access and Policy, Medical Education and Scientific Engagement, Patient Evidence and Member and Patient Community Programmes.

MPE’s vision is a world where every person affected by myeloma has access to the knowledge, diagnostics, treatment and care they need to have the best possible outcomes and quality of life.

Our mission is to drive advocacy by empowering the myeloma community through research, education and collaboration.

Read more about our strategic goals for 2025-2030 here: w ww.mpeurope.or g/about-mpe/our-goals/

About the Patient Evidence department

The MPE Patient Evidence department was established in 2020 to generate evidence to better understand and articulate patients’ perspectives, influence decision-makers and use evidence as a driving force for progress across our strategic goals.  The team is led by Dr Eilidh Duncan and our goal is to lead the development of robust patient evidence to improve experiences, outcomes and access for myeloma patients and their families. We achieve this by spearheading novel patient research initiatives that address gaps in the evidence and ensure the meaningful inclusion of patient perspectives in research design, conduct and interpretation. We use the evidence we generate internally to fuel progress across all MPE programmes and activities and externally by decision-makers including those in clinical, regulatory, industry, academic and policy settings.

The deadline for applications is 1 May 2026 and all applications will be reviewed immediately afterwards. Our hiring team will schedule interviews with successful candidates to take place in the following weeks. We will be in touch following the review period regarding next steps. 

If you have any questions in the meantime, please reach out to us at our recruitment email address.

CEO

• Salary for FTE: £62,000 - £75,000 dependant on experience
• 38 hours a week over 5 days (flexibility for right candidate)
• Home-based with travel for events and meetings

Reporting into the Board of Trustees, we are seeking an inspirational CEO for the PDA Society, who can lead with humility and curiosity, empowering and supporting our staff along the journey. They will be responsible for the day-to-day management of the charity and its staff and volunteers, and will oversee the development of our training products, research and support services, whilst ensuring sustainable growth in impact and income.

This is a fantastic opportunity to join a trusted enterprise within the PDA community with a strong mission and a committed, values driven team. The successful candidate will be passionate about improving the lives of PDAers and their families. You will be energetic, creative and bring new ideas for enhancing the charity’s reputation, through nurturing existing relationships and developing new ones to achieve the charities goals. Our ideal candidate will have lived experience of autism, PDA or other neurodivergence although this is not essential.

Closing date for applications: Midnight on 22nd April 2026

Interviews with Trustees:  April / May 2026