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We believe that change for people affected by ME won't just happen; it must be made. That's why action and impact are at the heart of everything we do. Whether that's helping people today with support, information, or care. Or working towards securing future change through our research and campaigning work. The intent of everything we do is to pursue positive impact for the lives, rights, and futures of people affected by ME.

As Communications Manager you will play a pivotal role in delivering strategic, impactful communications that advance Action for ME’s work, improve understanding and recognition of ME and support fundraising efforts

The Communications Manager will be responsible for the day-to-day delivery of the communications strategy, leading a team of two other communications staff. You will work closely with colleagues across the fundraising, policy, research and services departments, delivering clear and compelling storytelling, and maximising visibility across media, digital platforms and key stakeholder networks.

Key duties

Leadership and Management

• Work to ensure that people with ME are at the heart of everything we do through meaningful engagement and participation to influence all aspects of communications and marketing.

• Contribute to the development of, and then lead implementation of, the Communications Strategy, ensuring the appropriate involvement of key stakeholders, scoping, evaluating, and improving our practice.

• Maintain a data-insight led approach to the communications work providing regular management information and key performance indicator reports.

• Work as a member of the Extended Leadership Team.

• Line manage Communications Team members, supporting them to set and achieve performance objectives through regular one-to-ones and 12-monthly appraisals.

• Be responsible for Communications budget and the relationship with services providers required for the production of the charity’s digital and printed information and support resources.

Communications and Marketing

• Raise the profile of the impact of ME, and of Action for ME and its work, to enable the organisation to reach more people and better support need, by establishing a regular cadence of appropriate but innovative product across all main social media channels.

• Ensure fundraising is supported by embedding clear calls to action around donations and membership growth as a matter of course.

• Under the direction of the Director of Fundraising, develop all website, press and social media content for charity appeals.

• Market the charity’s Support and Healthcare services, including key digital and printed information and support resources, to the ME community and the professionals working with them, working closely with respective service leads.

• Contribute to income generation by working closely with the Director of Fundraising to develop the communication and marketing materials needed to implement the organisation’s Fundraising Strategy.

• Coordinate the charity’s response to any crisis communications, including developing appropriate crisis management plans and working outside of office hours as required.

• Establish effective systems/processes for gathering, supporting, maintaining, and managing case studies for a range of purposes (including press and media opportunities, public affairs and policy work, and fundraising).

• Draft and issue press releases and media statements and ensure appropriate follow-up by telephoning journalists, contacting picture desks etc. as appropriate.

• Alongside the CEO and any commissioned agency, develop relationships with key press, media and communications stakeholders to enhance the charity’s work.

• Oversee the production of the annual report, on budget, to schedule, taking overall editorial responsibility for content.

• Oversee the ongoing development of our digital engagement including our website and social media and being the point of contact on website issues.

• Fulfil the role of brand gateway keeper, ensuring all digital and printed communications, including information and support resources, adhere to brand guidelines, house style and organisational tone.

• Maintain an up-to-date knowledge and oversight of how ME and related key issues (e.g. Long Covid) are discussed in the media and wider ME community.

• Build networks to enhance the charity’s strategic communications and marketing work.

• Build and maintain an effective social media monitoring regime, ensuring fit for purpose rules of engagement are in place and applied consistently.

Other Key Accountabilities 

• Ensure that all relevant service standards are met including compliance with best practice, legal and regulatory frameworks and internal standards.

• Ensure best value in all our work.

• Undertake any other duty within your ability and within reason, as may be required, from time-to-time, at the discretion of your line manager.

• On occasions, provide management support and cover within the organisation, as needed.

• Act as an advocate for the charity and its work.

Person specification

Experience, Knowledge and Understanding 

• A minimum of 2 years’ experience working in a communications management role

• Experience of developing integrated, insight and audience-led communications plans including social media

• Experience of website and brand management

• Experience of delivering successful campaigns

• Experience of engaging with press and/or media including writing press releases and media briefings

• Experience of working collaboratively with different teams/departments

• Experience of working in charity communications (desirable)

• An understanding of ME and the impact on people affected by it (desirable)

• Experience of integrating fundraising with communications (desirable)

Skills, Behaviours and Values

• Adaptable and highly organised with an ability to work methodically, managing and prioritising a varied workload, use your own initiative, work independently, and work well in a team.

• Strong MS Office skills including the ability to use Word, Excel, databases and web-related programmes and software.

Community Fundraising Assistant - North 

Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research?

Brain Tumour Research is an exciting, innovative, and ambitious charity. We are passionate about finding a cure for brain tumours through the establishment of dedicated Brain Tumour Research Centres of Excellence around the UK.​

After a successful 2025, we’re building on our momentum and looking ahead with ambition. As our work continues to expand, so does our impact. We are now looking for passionate people to join us on the next stage of our journey!

It is a fantastic time to be joining us and we are keen to share this with likeminded and talented individuals. We currently have an opening for a Community Fundraising Assistant - North, to join our Community and Digital Fundraising team.

• Do you want to make a difference in one of the most innovative and exciting medical research fundraising charities in the UK?
• Are you able to provide friendly and professional support to fundraisers and supporters?   
• Do you have experience in supporting events or community activities?
• Do you live in either Scotland, North East England, North West England or the East Midlands? 

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Have you answered Yes to these questions?

Does this sound like the opportunity to really take the next step in your career?

Excited to learn more about this position? Then please take a read through our recruitment pack which is included within this advert.​​​

If you have the skills and ambition that we are looking for we are excited to receive your application.  We are really looking forward to welcoming a new member to our team!​

We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process.  Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.

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We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.​

We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.

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