Carers engagement officer jobs in Leeds

Job Summary

Yorkshire’s Brain Tumour Charity is a small charity with big ambitions. We support brain tumour patients and families across Yorkshire and fund pioneering research in our region.

We're now looking for an exceptional Patient Empowerment Coordinator to lead the delivery of our exciting new Empowering Choices programme, funded by Macmillan Cancer Support.

This innovative project has been designed alongside people affected by brain tumours to ensure nobody faces their diagnosis alone. You'll help people in Yorkshire feel informed, confident and empowered throughout their journey by providing practical support, developing new resources, strengthening partnerships with NHS teams and creating opportunities for people to learn from others with lived experience.

This is a unique opportunity to shape a brand-new service from the ground up. You'll have the freedom to develop new ideas, build meaningful partnerships and make a lasting difference to the lives of brain tumour patients and their families across Yorkshire.

Responsible to:

Chief Executive Officer

Salary:

£25,500 – £26,500 (depending on experience)

Contract:

Fixed-term (24 months – subject to continued funding)

Hours:

Full-time (job-share considered, alongside flexible and hybrid working – we are open to conversations about how this role works best for you)

Location:

Your contractual place of work will be your home address. This is a community-based role covering Yorkshire, and you will spend much of your time visiting patients, partners and healthcare settings across the region. You may occasionally be required to attend our office in Leeds for team meetings, training or specific organisational needs.

Who This Role Is For:

This role would suit someone who:

• Is passionate about improving the lives of people affected by serious illness in Yorkshire
• Enjoys building trusted relationships with patients, carers and healthcare professionals
• Wants to develop an innovative new service that makes a real difference
• Thrives in a small, supportive organisation where they can shape their own work
• Is organised, compassionate and motivated by helping people feel more confident and informed

Key Responsibilities:

Patient Support & Empowerment

• Provide personalised practical and emotional support to people affected by brain tumours in Yorkshire throughout their journey
• Support patients before and after important appointments, helping them prepare questions and understand information
• Help people access the right services, information and support at the right time
• Promote confidence, wellbeing and self-advocacy through person-centred support

Developing Resources

• Lead the development of practical, accessible resources that help people in Yorkshire navigate life with a brain tumour
• Create appointment preparation tools, information guides and digital resources
• Ensure all resources reflect the voices and experiences of people with lived experience

Partnership & Community Engagement

• Build strong relationships with NHS neuro-oncology teams, Clinical Nurse Specialists and partner organisations
• Develop referral pathways that improve access to Yorkshire's Brain Tumour Charity services
• Represent the charity at partnership meetings, conferences and professional networks

Peer Support & Volunteer Coordination

• Create opportunities for people affected by brain tumours in Yorkshire to connect with others who share similar experiences
• Coordinate volunteers and buddies supporting the programme
• Ensure people with lived experience remain central to the design and delivery of the project

Monitoring & Project Delivery

• Monitor outcomes and demonstrate the impact of the programme
• Collect feedback and produce reports for Macmillan Cancer Support
• Help ensure the long-term sustainability and future development of the programme

Person Specification:

Knowledge & Experience

Essential

• Experience of delivering projects or services within the charity, health or community sector
• Experience of providing person-centred support
• Excellent communication and relationship-building skills
• Strong organisational skills with the ability to manage competing priorities
• Confident using Microsoft Office and other IT systems
• Ability to work independently whilst contributing positively to a small team

Desirable

• Experience working within cancer services, neurological conditions or long-term health conditions
• Experience working alongside NHS services
• Experience coordinating volunteers or community initiatives
• Experience of monitoring and evaluating projects
• Understanding of shared decision-making and co-production

Personal Attributes

• Compassionate, approachable and empathetic
• Calm, emotionally resilient and supportive
• Positive and encouraging
• Highly organised and self-motivated
• Flexible and willing to travel across Yorkshire
• Passionate about empowering people to make informed choices about their care

Other Requirements

• Full UK driving licence and access to a vehicle
• Willingness to work occasional evenings and weekends

About Yorkshire’s Brain Tumour Charity:

Founded in 2003, Yorkshire's Brain Tumour Charity provides vital support to brain tumour patients and their loved ones whilst funding innovative research across our region.

Our vision is a Yorkshire where nobody faces a brain tumour diagnosis alone.

We provide peer support groups, one-to-one wellbeing support, welfare advice, financial assistance and invest in pioneering research that improves outcomes for people affected by brain tumours.

What We Offer:

• Flexible and hybrid working, with a high degree of autonomy over how you structure your week
• A supportive and values-driven team environment
• Generous pension contribution (above statutory minimum)
• Opportunities for professional development and training
• The opportunity to lead an innovative Macmillan-funded programme with genuine impact
• A culture built around integrity, compassion, community and ambition

How to Apply:

Please send a CV and covering letter to:
David Grant-Roberts, CEO

For an informal conversation, please contact David

Application deadline: Sunday 30th August

Interviews: Week commencing 14th September

Senior Communications Officer

Ref: PR139

Hours: 28-35 hours per week (negotiable)

Salary: SCP25 £36,363 to SCP26 £37,280 (full time)

Contract: Permanent

Location: Carers Leeds supports hybrid working arrangements, in the Carers Leeds office, community locations, and from home.

Closing date: 11.59pm, 8 September

Interview date: 23 September

Vision

Our vision at Carers Leeds is that all unpaid carers in our city are recognised, valued and supported to live a fulfilling life.

Mission

Carers Leeds wants to improve the lives of unpaid carers across the city. We provide information, advice and support to unpaid adult and parent carers in Leeds. We aim to influence others to act and create positive change for unpaid carers.

What is an unpaid carer?

An unpaid carer is someone who provides help and support to a family member, friend or neighbour who couldn’t manage without their help. This could be due to illness, disability, mental health problems or substance misuse.

What we do

Established in 1996, Carers Leeds is a charity which provides information, advice and support to unpaid adult and parent carers across our city. We have a Support Line, carers support groups, one to one support and support in hospitals. Some of our services are open to all carers and some are targeted at specific groups of carers. Our services are provided to communities throughout Leeds. We work in partnership with others to deliver our service and to influence them to act to benefit unpaid carers.

Brief Role Description: 

This role will lead communications at Carers Leeds with the aim of identifying and engaging carers; raising awareness of caring and influencing others in the city to act to benefit carers; and fundraising. The postholder will work closely with the CEO, the Senior and Operational Management Teams to design and deliver the organisation’s communications strategy and plans.

Key Duties and Responsibilities:

· Work closely with the CEO and SMT to agree Carers Leeds communications strategy. Responsible for developing, updating and monitoring Carers Leeds communications plans, to ensure a co-ordinated approach to communications.

· Establish and maintain effective communications processes and good working relationships across the Carers Leeds team to support communication across service delivery, carer awareness, influencing and fundraising.  

· Oversee Carers Leeds communication channels, act as the point of contact for all media enquiries and build relationships with external stakeholders to amplify our messages and to reach key audiences. 

· Ensure consistent brand use across all our work, develop a suite of on-brand digital and print materials and provide communication support, guidance and training for staff and volunteers, where appropriate. 

This post is subject to a satisfactory a DBS check

Excellentterms and conditions including: 

· 25 days annual leave plus bank holidays (pro rata for part-time) 

· Flexitime

· Hybrid working (part home/part office based) 

Please submit online applications only. (No Agencies or CVs thanks)

Carers Leeds celebrates diversity and strives to be an equal, diverse, and inclusive organisation. We welcome applications from all sections of the community. Groups currently under-represented in our workforce are people from ethnically diverse communities, people with disabilities, younger and older workers, men, and transgender people.

Carers Leeds is a Limited Company Registered No. 3242065
Registered Charity No. 1058706

Are you passionate about supporting people and creating positive change?

Liver UK is the new name for the British Liver Trust and Children’s Liver Disease Foundation. We’re here to improve liver health for all and support everyone affected by liver disease or liver cancer.

We reach millions of people each year through our campaigns and services.

We are looking for an enthusiastic and compassionate Engagement Support Officer to help deliver our patient support, outreach and awareness programmes across the UK.

In this varied role, you'll support people affected by liver disease through online and face-to-face engagement activities, help deliver support groups and events, build relationships with patients and healthcare professionals, and contribute to national awareness campaigns.

We're looking for someone with experience of outreach, community engagement or support services, excellent communication skills, and the ability to manage multiple projects while working independently.

This is an exciting opportunity to join a growing national charity and play a direct role in improving liver health outcomes and supporting those affected by liver disease.

For full details of the role, responsibilities and person specification, please download the Job Description.

£26,455 for 31 hours (£29,868 FTE)
12 month contract
Home-based with some travel required 

To be suitable for the role you will be located in the North West, Yorkshire, the West Midlands or East Midlands.

#egagement support officer #outreach worker #engagement team #outreach team #outreach support #outreach community team #outreach officer

Liver UK is committed to equality, diversity and inclusion and welcomes applications from all backgrounds.

Please don’t delay in applying. We’re reviewing applications as they come in and may start interviews before the closing date.

About Scotland's Charity Air Ambulance
Scotland’s Charity Air Ambulance (SCAA) exists so nobody in Scotland suffers or dies because medical help cannot get there in time. People can get sick or have accidents anywhere and anytime. But in Scotland there are places where urgent medical help cannot reach people. Or help gets there too late. And when lives are at risk every minute matters. As a charity we rely on donations from the Scottish public, companies and communities to ensure that urgent medical help gets to the patient when it is needed, wherever they are and at whatever time of day.

The Role

We are looking for a skilled and proactive Data Management Officer to join the charity’s Data and Insights Function. You will be joining the charity at a time of significant opportunity as we continue to strengthen our approach to data, insight and supporter engagement.

The Data Management Officer will mainly be responsible for managing and developing our Customer Relationship Management (CRM) system and supporter data. This is an exciting opportunity for an experienced CRM and data professional who enjoys hands-on responsibility for systems, process improvement and data management, and enabling colleagues to deliver exceptional fundraising, marketing and supporter engagement activity. Working closely with teams across the charity, you will ensure our CRM remains effective, compliant and fit for purpose while helping us better understand and engage our supporters. Your work will directly contribute to our ability to raise funds and support our life-saving mission.

This role can be offered on a fully remote basis, with the option to work from Perth Airport, where SCAA headquarters are located or our Aberdeen base at Aberdeen Airport, if preferred. Occasional travel to our Perth base will be required for the successful candidate. SCAA supports flexible and hybrid working arrangements—our current approach typically includes two office days per week for those working on a hybrid basis. The usual hours and days of work will be Monday to Friday, 9am—5pm.

About You

Essential

• Proven experience managing CRM systems in a charity or fundraising context and being comfortable working with large datasets.

• Experience with data segmentation, ETL processes, transformation and import / export processes.

• Strong understanding of data protection legislation (e.g. GDPR).

• Understanding of Gift Aid regulations and charity fundraising compliance.

• Confident using query tools and an understanding of query-based data extraction.

• Strong IT skills with competency using the MS Office suite and Excel in particular.

• Strong interpersonal skills with the ability to work collaboratively across teams and support non-technical colleagues.

• Ability to analyse and translate data into clear findings for campaigns and reporting, including donor value analysis.

Our Benefits

• Pension: 12% employer’s & 5% employee’s contribution (after 3 months’ service)  
• Annual Leave: 36 days (incl. public holidays) + an extra day for your birthday (and additional days with long service)
• Death in Service benefit: 4 times annual salary
• Optional Private Medical Insurance plan and Cashplan
• Employee Assistance Programme
• Enhanced Maternity/Adoption/Paternity Pay
• Access to Blue Light Card
• Learning and Development Opportunities

Selection Process

Interviews will take place at our base at Perth Airport in Scone, or remotely, during the weeks commencing the 24th or 31st August 2026.

How to apply
Please refer to the full job pack on our website.

Application deadline is 5pm on Sunday 16th August 2026. 

Location: Hybrid working between our office, based in Horsforth, Leeds and home working is preferred, however, remote working will be considered for the right candidate. Nationwide travel will be required. 

We are the leading charity dedicated to fighting primary bone cancer and are uniquely placed to make a difference through research, information, awareness and support.

The Involvement Officer role sits at the junction of lived experience involvement and our charitable objectives and will build meaningful collaborations and alignment between those affected by primary bone cancer, researchers, healthcare professionals and other stakeholders. The successful candidate will be required to build relationships with and contribute to key organisations and initiatives, such as the FOSTER and Euro Ewing consortia, like minded charities and Sarcoma Patients Global Network.

The successful candidate will co-ordinate and grow our Patient and Public Involvement Panel, which currently focuses on bringing lived experience to shape and review primary bone cancer research; however, we are keen for the voices of our community to contribute to our work across all our charitable pillars including our Support & Information service and our Influencing & Advocacy work. You will also support and empower our panel to share the work of Bone Cancer Research Trust more widely to their networks, ensuring a greater awareness of the charity and the impact of our work. 

This is a varied position offering the chance to apply and further develop your expertise in involvement across areas such as the shaping and reviewing of research, the capturing and sharing of lived experience through written and video stories, ensuring our health information is patient focused and understandable, and advocating with and for patients both nationally and globally. 

We are looking for someone with a good grasp of both the scientific and patient landscapes, who can balance attention to detail with big-picture awareness and work confidently in highly collaborative settings with multiple stakeholders and partner organisations.  This role offers a unique opportunity to make a tangible contribution and ensure that our community’s voices drive progress across the UK and further afield.

The successful candidate will be a natural communicator and will excel at building and maintaining relationships with a variety of stakeholders. A background in cancer research or research funding would be advantageous.

If you are excited about joining our team, please read through this job pack to see if you have the right skills we are looking for. We look forward to hearing from you! 

Who we are

IPSEA (Independent Provider of Special Education Advice) is a national charity working to ensure that children and young people with special educational needs and disabilities (SEND) receive the educational support they are legally entitled to. Since we were formed in 1983, we have helped to improve the education experience of thousands of children and young people across England. We do this by providing free and independent legal advice and casework support for families, undertaking policy work and delivering training on the SEND legal framework.

What you’ll do

Reports to: Chief Executive

Location: Home-based or Hybrid (with frequent travel for events and meeting with parliamentarians and other stakeholders) 

We are seeking a Policy Manager to lead IPSEA's policy and influencing work to achieve positive change for children and young people with special educational needs and disabilities (SEND) and their families. Working closely with the Chief Executive, Head of Legal and Training, trustees and colleagues across the organisation, you will set strategic policy priorities and develop evidence-based influencing plans that support IPSEA's mission and long-term objectives.

Drawing on insights from our advice and tribunal services, legal expertise and the experiences of families, you will identify systemic issues within the SEND system and develop policy solutions that improve children and young people's access to the support and education to which they are entitled. You will ensure that IPSEA's policy positions are credible, legally robust and informed by the lived experiences of those we support.

You will lead IPSEA's engagement with government, Parliament and other key decision-makers, identifying opportunities to influence legislation, policy and practice at both national and local level. This includes overseeing responses to consultations, parliamentary inquiries and calls for evidence, as well as preparing briefings and strategic advice to support senior-level engagement and advocacy.

Working collaboratively with colleagues across legal, communications, fundraising and training teams, you will ensure IPSEA's policy, campaigning and public affairs activities are aligned and maximise the organisation's impact. You will also monitor developments across the political, legal and policy landscape, helping IPSEA respond proactively to emerging opportunities and challenges affecting the rights of children and young people with SEND.

This role offers the opportunity to make a real difference as part of a small, friendly, and dedicated team. If you are passionate about helping children and young people with SEND and have the skills and experience needed, we would love to hear from you.

Who are we looking for?

You will have significant experience in a senior policy and campaigning/public affairs role and have good knowledge of local and national government structure including the legislative process.

You the ability to build and maintain relationships with a range of stakeholders including MPs, civil servants, campaigners and parents. You exhibit tact and diplomacy and can be impactful with people of varying levels and experience.

Your research and critical thinking skills enable you to analyse policy and data to produce relevant reports and position papers. You have experience of drafting organisation responses to government consultations and parliamentary calls for evidence.

IPSEA should also reflect the communities we support. We would particularly like to hear from candidates from ethnic minority backgrounds, LGBTQIA+ people, under-served communities and disabled people, as well as those with lived experience of the SEND system, either as a child or as a parent/carer.

What we can offer you

• 5% employer pension contributions
• Healthcare cash plan
• Flexible working arrangements
• 25 days annual leave plus bank holidays plus an additional day off for your birthday (pro-rata if part-time).

To apply

Visit our website to download a recruitment pack and application form.

Deadline for applications: 9am on 7 September 2026.

First-round interviews: on 15 September 2026 in our offices in Takeley, Essex, with second-round interviews (online) on 18 September 2026.

NO AGENCIES PLEASE.

Job Purpose

Sequence ME & Long Covid is one of the most ambitious whole-genome sequencing studies ever undertaken into ME and Long Covid, co-led by Action for ME. Building on the success of DecodeME, this proposed £20 million study will use large-scale, long-read whole-genome sequencing to analyse the entire genetic code of 9,000 people with ME and 9,000 people with Long Covid - making it the world's largest 'long-read' whole-genome sequencing study of any disease.

Current funding supports project mobilisation, partnership development, and the development of the Long Covid arm of the study, including agreeing case definitions and gathering expressions of interest from people with Long Covid. Phase 2 has recently been confirmed, backed by £4.75m from the UK government and a further £174,414 from the WE&ME Foundation, and will focus on sequencing 6,000 ME/CFS samples previously collected through DecodeME using Oxford Nanopore's long-read sequencing technology, running alongside Phase 1.

You will play a pivotal role supporting the Sequence ME & Long Covid project in several different ways. Working closely with the project's management team and other team members, you will help ensure the smooth day-to-day running of this landmark study, providing administrative support to the various people and partners involved in delivering it.

As a self-starter, you will manage a range of tasks including meeting scheduling, taking meeting minutes, preparing governance documents, event administration, and broader project support - no two days will be the same.

You will need to maintain a high level of confidentiality at all times, particularly when supporting governance meetings and handling sensitive project documentation.

As a team player, you will provide comprehensive, confidential and organised administrative support, developing a deep understanding of the project and building strong, effective working relationships with colleagues, researchers and external partners.

Remote working at home can be challenging for some and works incredibly well for others. You will need to be able to work independently, use your own initiative, and remain proactive in maintaining good levels of communication with colleagues.

Key Duties

• Help monitor inboxes and respond to routine project enquiries in a timely and sensitive manner, escalating more complex matters as appropriate
• Assist the project's management team and other team members with meeting scheduling and diary coordination
• Take accurate minutes at project, management and other project-related meetings, and follow up and track resulting actions to completion
• Prepare, format and proof-read governance documents and papers
• Maintain and update project databases including the Teams channel, ensuring documents are saved correctly, other management information/recording systems to ensure accurate and timely record-keeping. Help with the tracking of expressions of interest from potential study participants.
• Provide administrative support for project events - from planning and logistics through to on-the-day support
• Help prepare presentations, slide decks and briefing materials for internal meetings, funders, partners and participant-facing communications
• Support the drafting, formatting and coordination of project communications, such as updates for partners, funders or the wider ME and Long Covid community
• Support coordination between internal teams and external partners, including research and funding partners
• Maintain project files and documentation in line with agreed communication operating procedures with internal and external partners ensuring information is well organised, up to date and easy for the team to access
• Maintain confidentiality at all times and in line with relevant policies and procedures, ensuring compliance with GDPR and that all data consent processes have been followed in relation to data protection
• Positively promote the work of the Sequence ME & Long Covid project and Action for ME at all times
• Undertake any other reasonable activity in line with the responsibilities of the post, as requested by the CEO, Business Development & Partnerships Manager, Senior Research Manager or the project's Management Team

Person Specification

Essential skills and experience

• Organisational skills - Highly organised with the ability to manage multiple tasks across a fast-moving research project, with attention to detail and accuracy maintained under pressure
• Communication - Excellent verbal and written communication skills, with the ability to interact effectively with diverse audiences including researchers, funders and people affected by ME and Long Covid
• IT literacy - Proficient with common office software, including Microsoft Office (Word, Excel, Outlook, Teams, PowerPoint), and able to quickly learn relevant project management, database or communications systems as needed
• Problem-solving - A creative and solution-focused mindset to address challenges and find innovative ways to improve processes
• Adaptability - Capable of managing changing priorities, working flexibly, and adapting to the needs of a fast-paced, ambitious research programme
• Initiative - A proactive approach, with the ability to work independently and take initiative, while also following clear instructions when given
• Teamwork - A collaborative team player with a proven ability to work effectively as part of a team, including a remote-working team spanning multiple partners and stakeholders
• Interest in the sector - A genuine interest in health research, the Third Sector, and a desire to take action to improve the lives of people with ME and Long Covid
• Experience - Demonstrable ability to be an effective administrator, ideally within a charity, research, or project environment. Experience supporting governance processes, events, or communications would be an advantage but is not essential

Desirable skills and experience

• Experience providing administrative support for scientific or research-related projects
• Experience writing and communicating with non-specialist or general audiences