80 Charitable foundations jobs

We are seeking a dynamic and highly motivated individual with excellent communication skills who will be a first point of contact with our membership network. 

You will proactively increase member engagement whilst nurturing existing relationships and demonstrating commitment to promoting the value of helplines. 

This role is supporting the Partnership and Engagement manager to deliver a sustainable membership and partnership model that keepspace in a constantly moving and diverse climate. 

You will be central in supporting HLP’s sustainability and will helpto progress continued growth and attract new and diverse collaborations. 

You will be regularly front facing with members and the wider public, so should be confident presenting on video as well as in person, and comfortable engaging a diverse range of stakeholders. 

The role is predominantly home-based with regular travel to meetings and events. 

We offer attractive staff benefits including 25 days’ annual leave rising with length of service, a company pension scheme, free life assurance and an employee assistance programme. HLP is committed to equality of opportunity. 

Join a passionate committed team with a lead role in driving forward social justice through community-led action and partnership development!

You will work in alliance with the Community Savers Leadership and key partners to support creative organising for gender, housing, climate, and economic justice across Manchester neighbourhoods. This role is funded by the National Lottery Community Fund (Reaching Communities).

You will need:

• A deep understanding of the context for facilitating community action and community-led development projects in areas experiencing long term and intersecting inequalities.
• The ability to maintain a positive ‘can do’ attitude while negotiating complex and potentially obstructive political or relational dynamics.
• Skills & experience in the following areas: community-led action; advocacy; campaigns, fundraising, communications, leadership development, brokering partnerships, equality diversity and inclusion, conflict resolution, safeguarding.

Role summary: You will work with the Community Savers Leadership and key partners on the strategic development of community action, projects, and partnerships that reduce health inequalities and promote social justice. This will include networking and building relationships with existing and potential statutory and non-statutory partners; bringing in appropriate expertise to achieve community-led development projects; direct support for community action such as community-led research projects and partnerships; community mapping, visioning and action planning; supporting reflection and evaluation; and sharing learning widely. You will also supervise the coordination support provided to affiliated groups and leaders by our Community Action Coordinator (Manchester); ensuring a community-led process underpins leadership and associational development.

Please download the application pack for further information and a full job description noting that this is a 0.6% FTE 3-year fixed term contract (actual salary pro rata).

Note that Community Savers is a majority women-led and transinclusive movement. Membership is open to anyone of any gender identity and community action aims to benefit all people in the areas where we work. Leadership and governance structures seek to celebrate and amplify the voices of working class women.

Julie’s Bicycle is seeking a visionary, collaborative and values-led Chief Executive to lead the organisation into its next chapter.

About Julie’s Bicycle

Julie’s Bicycle is a pioneering not-for-profit organisation mobilising the arts and culture sectors to take action on the climate crisis. For nearly two decades, we have been at the forefront of the creative climate movement, working to put culture and creativity at the heart of climate action. We believe culture has the power to challenge, inspire and move people; to shape how we think, feel and act; and to help transform our future now.

Our work brings together cultural and environmental expertise to support practical action, build leadership, inform policy and strengthen collective impact. Through our programmes, tools, training, consultancy, campaigns and partnerships, we support artists, creative organisations, policymakers and changemakers to respond to the climate, nature and justice crises with confidence, imagination and purpose. To date, Julie’s Bicycle has worked with thousands of organisations and individuals, in the UK and globally, helping to equip people, places and policies with the knowledge and power to drive sustainable change.

Why this opportunity has arisen

This is a defining moment for Julie’s Bicycle. After 19 years of inspirational founding leadership, our Founder and Chief Executive, Alison Tickell, is stepping down from the role. As we approach our 20th anniversary, Julie’s Bicycle is renewing its strategy and theory of change. The climate, nature and justice crises continue to evolve, and so too must the leadership, partnerships and solutions needed to create meaningful change. This creates a significant opportunity for a new Chief Executive to honour a powerful legacy while shaping a bold, clear and ambitious next chapter for the organisation.

What we are looking for

We are looking for an exceptional Chief Executive who can provide strategic and organisational leadership, strengthen Julie’s Bicycle’s voice and influence, and ensure the organisation continues to deliver impact at the intersection of culture and climate. The successful candidate will work closely with an experienced Board and dedicated staff team to refine and deliver our next phase of strategy, sharpen our priorities, build sustainable income and communicate our distinctive value with clarity and conviction.

This is both an outward-facing and deeply organisational role. Externally, our next Chief Executive will be a visible and credible advocate across culture, climate and environmental networks, able to build partnerships, engage funders and policymakers, convene people around shared purpose, and speak persuasively about the role of arts and culture in responding to the climate crisis. Internally, they will inspire, empower and support a talented and values-led team, strengthening leadership capability, systems, decision-making and accountability while protecting the inclusive, creative and collaborative culture that makes Julie’s Bicycle special.

We are keen to hear from experienced senior leaders with a track record of organisational and people leadership, strategic development, partnership building and income generation. We expect our CEO to demonstrate a strong understanding of the relationship between culture, climate and wider social and environmental change, and to bring a deep knowledge and experience of the UK cultural landscape and key institutions and stakeholders, and/or a deep knowledge and experience of national and international climate policy and advocacy environments. However, we are also keen to hear from you if you are passionate about the intersection of culture and climate/environmental issues, but would benefit from a period of phased support to fully immerse yourself in the breadth of issues, sectors and contexts in which JB operates.  

This is an opportunity to lead a pioneering organisation with purpose and ambition: protecting what makes Julie’s Bicycle distinctive, strengthening the foundations that will help it thrive, and turning the power of culture into meaningful and lasting climate action.

To learn more about the opportunity and how to apply, please download the full appointment brief.

Closing Date:  18 October 2026

People Beyond Profit Conversations:  22 October2026 - 5 November 2026

JB Interviews:

First stage:  12 November 2026

Second stage:  19 November 2026

Join Clergy Support Trust's outstanding External Relations Team as External Engagement Officer (12-month maternity cover) and play a key role in fundraising, events, and digital comms. Use your creativity and organisational skills to support historic events, engage supporters, and make a real impact for clergy families.

About the Role
The External Engagement Officer provides vital administrative and operational support across fundraising, events, and communications. This is ideal for someone in their second role, looking to develop a broad range of skills in a supportive environment. Working in a small and dynamic team, the External Engagement Officer supports and leads on projects, with a focus on communications, fundraising, events, marketing, and press. 

About the candidate:

• Highly organised and technologically adept (especially with CRM systems like Salesforce)
• Motivated, with at least 1 year of experience in communications, fundraising, or event management
• Confident, resilient, and able to coordinate complex event logistics
• Strong written and verbal communication skills
• Team-oriented, adaptable, and committed to the wellbeing of the clergy community

Key Responsibilities

1. Fundraising and Data Support

• Manage contacts and maintain up-to-date CRM records
• Add weekly bank donations to Salesforce and reconcile monthly income
• Lead on thanking supporters (managing emails/cards)
• Assist with legacy giving administration
• Support prospect research for fundraising
• Liaise with Finance Team on income and gift processing

2. Events – Logistics and Administration

• Manage guest lists, RSVPs, and name badges using CRM
• Act as point of contact for event bookings and assist with seating plans
• Provide on-site support at events (registration, hospitality, donor care)
• Post-event coordination including post-event feedback 

3. Communications and Digital Engagement

• Monitor and manage team inboxes
• Assist with social media management including DMs, replying to comments, and content creation
• Oversee logistics of print advertising (bookings, invoicing, transfer of creative files)

4. General / Team Support

• Maintain inventory of fundraising/event materials
• Proactively update Salesforce with missing information
• Provide general admin support and contribute creative ideas

This is a fantastic opportunity for an individual looking for a broad-scope role to development their skills in comms, engagement, events and fundraising in a high-performing team.

Are you a proactive and detail-oriented finance professional, with experience of charity accounting and a customer-focused approach? Do you take pride in ensuring income is accurately recorded and reported and enjoy working with data? The Royal Marsden Cancer Charity is seeking a Finance Officer (Income) to play a key role within our Finance team, helping to ensure the Charity's income is managed accurately and efficiently.

About the Role: The Finance Officer (Income) is a vital member of the Finance team, responsible for the accurate accounting, reconciliation, and reporting of the Charity's diverse income streams. You will manage the monthly income reconciliation process, prepare income journals, support Gift Aid accounting, and work closely with colleagues across Finance, Data and Fundraising teams to ensure income is recorded correctly and allocated to the appropriate funds and appeals.

The role offers the opportunity to gain broad experience across charity finance, including income accounting, fund accounting, Gift Aid, audit support, and financial controls. You will contribute to maintaining robust financial processes and help ensure the Charity can maximise the impact of every donation received.

Why Join Us?  The Royal Marsden Cancer Charity supports one of the world’s leading cancer centres, funding ground-breaking research, cutting-edge equipment, and extraordinary patient care. We’ve exceeded our fundraising goals in recent years and aim to raise at least £215 million during our current five-year strategic period.

This is an exciting opportunity to further strengthen and develop the Finance function so it is well positioned to support the Charity through its five-year strategy, while playing a meaningful role in improving the lives of people living with cancer.

Ideal Candidate: You will have experience working within a finance team and be working towards a finance qualification, with strong organisational skills and excellent attention to detail. You will be comfortable working with large volumes of financial data, performing reconciliations, and investigating discrepancies.

You will bring strong Excel skills, a proactive and collaborative approach, and the ability to manage competing priorities while meeting deadlines. Experience supporting audit or year-end processes and working with financial systems is essential. Above all, you will be committed to RMCC's purpose and values and motivated by the opportunity to make a meaningful difference.

What We Offer

· 27 days annual leave + bank holidays

· Generous pension scheme with up to 6% employer contribution (increasing to 8% after two years of employment)

· Flexible working options

· Study support for accountancy exams

· Life insurance, employee assistance programme, shopping and other discount schemes and more

· Bright, modern offices in Chelsea and Sutton with subsidised canteens

 Inclusion Matters

We are committed to building a diverse and inclusive workforce that reflects the communities we serve. We welcome applications from all backgrounds and walks of life.

If this sounds like the opportunity for you, we’d love to hear from you.

How to Apply

To apply, please submit your CV and cover letter of no more than 2 pages via CharityJob.

Closing date: Monday 21st September 2026 (11.30pm)

Please note: To avoid disappointment, you are advised to submit your application as soon as possible as we reserve the right to close the vacancy early if a high volume of applications is received. This is to ensure that we can manage application levels whilst maintaining a positive candidate experience. Unfortunately, once a vacancy has closed, we are unable to consider further applications.

We are seeking a Relationship Fundraiser.  This is an exciting and varied role incorporating developing corporate partnerships, supporting volunteer fundraisers, organising fundraising events, and building relationships with community groups.

Sight Support West of England exists to reduce the impact of sight loss, supporting blind and partially sighted people across the county to lead independent lives and to secure equal access to services. 

The role is based in Bristol, Bath and South Gloucestershire, and you will be travelling around the area to meet supporters and attend fundraising events.  You will need to regularly attend our office in Bristol.  There will also be occasional travel to our partner offices in Devizes (Wiltshire) and Cheltenham. 

As Relationship Fundraiser, you will be playing a key role in ensuring the financial success and stability of our charity.  There is a wide salary band depending upon experience.  You might be coming to this role as a fundraiser, looking to develop your career, or as an established fundraiser looking to use your skills in your local community. 

Full details of the post can be found in the attached Job Description and Person Specification, along with details of how to apply for this post.  Sight Support is committed to equality and valuing diversity, and welcome applications from all backgrounds. If you would like to discuss any elements of the role in advance of applying, please do contact us for an informal discussion.

We are looking for a senior partnerships officer who will ensure our vital work to address the
environmental crisis is well funded, working to secure new partnerships and stewarding existing
funder relationships.

This multifaceted role works across teams to coordinate and deliver Green Alliance’s fundraising
activities and grant management. Collaborating with the organisation’s policy and political
experts, you support the creation of creative and impactful new project proposals that address
environmental problems and support the organisation’s strategy. You will identify funders for this
through prospecting and relationship building and will guide proposals through processes to
secure funds. You will monitor the organisation’s progress against fundraising targets and lead on
management of our funding pipeline.

Stewardship of existing funding relationships is a significant part of this role which means
ensuring we have excellent communication with our funders, making sure they receive high
quality reports on Green Alliance’s impact and supporting the team to see our funders as partners.
You will manage our Business Circle and maintain relationships with its members and support
efforts to recruit new business members into Green Alliance Task Forces.

Excellent communication skills are at the heart of this role, both written and verbal. You will be
confident, efficient, and resourceful; calm under pressure and enjoy building strong relationships
with a variety of senior stakeholders, as well as working independently. Strong skills in relation to
organisation, administration and prioritisation are essential.

You will need to understand, or be willing to learn about, the political and environmental policy
contexts we work in.

Please note that we reserve the right to close this vacancy early and interview suitable candidates as applications are received. You are encouraged to apply as soon as possible.

Stewardship helps Christians to be the best stewards of the resources God gives them.  

Every year we support tens of thousands of people with everyday giving through to strategic philanthropy, and help thousands of churches, charities and Christian workers to strengthen their finance and governance.

We operate with the financial scope and technical complexity of a mid-sized financial services institution, but with a clear Christian mission at our heart. Amongst other things, we safely received and granted out over £134m from our Donor Advised Fund in 2025, deliver payroll services to over 900 clients each month, reach thousands with our products and campaigns, and still have ambitious plans to grow.

The Chief Digital Officer (CDO) will see digital and technology not simply as a function or infrastructure, but as a ministry enabler: creating the systems, platforms and experiences that enable increased generosity, strengthen churches and charities, and scale Kingdom impact. A key part of the role is enabling scalable growth across both Giving and Ministry Services, with a focus on platform development, product capability, data infrastructure, insight-led decision making and innovation.

This role is a new addition to a well-established Executive team, who work with high levels of trust, candour and care, and who value laughter, integrity and grace as much as strategic insight and financial acumen.

The CDO will need to work from our office near Barbican, London at least one day a week. 

Do you want to be part of a dynamic and innovative fundraising team? Do you want to raise money for some of society’s most pressing challenges and play a key role in an ambitious fundraising and volunteering campaign?

We are looking to recruit a Philanthropy Officer to join us at this very exciting time. The Philanthropy Officer will be responsible for the relationship management of a portfolio of around 100 prospective donors in order to raise funds for a range of key projects. They will be responsible for the entire prospect relationship management process including researching, cultivating, asking and stewarding. 

This role will play an integral part in supporting donations to improve student experience and across key areas of research.

As part of an award-winning team and led by some of the most respected names in higher education fundraising, you’ll get the chance to work across the team and wider university to encourage new donors to make long-term, sustainable and significant £10k plus gifts. You will also have the opportunity to work with our senior team on proposals to top donors enabling you to get experience of working with some of the most successful and experienced major gift fundraisers in the UK Higher Education sector. 

You will be provided with a robust induction and an ongoing training program that will include support from the University as well as expert external providers.

As a Philanthropy Officer you will have responsibility for managing a portfolio of current and prospective donors. You will have the confidence to ask for donations, be a strong communicator, and be passionate about making a difference to some of the biggest challenges the world faces.

The Philanthropy Officer will take ownership of the end-to-end relationship management process of a prospect, from initial research to stewardship activity:

1. Personally manage a portfolio of circa 100 of the University’s (4- and 5-figure) donors and prospective donors, maintaining close relationships with each prospect and integrating them with the University whenever possible to bring the prospective donors to the point where you can ask for philanthropic support.

2. Secure over £100,000 of donation pledges in the first year and develop a sustainable pipeline of prospects and philanthropic income.

3. Demonstrate an understanding that successful fundraising is based on building effective relationships, which match a prospective donor’s philanthropic interest with an area of strength and/or opportunity at the University. Be responsible for the end-to-end relationship management process of your contacts including:

· Identifying new prospective donors from your networks.

· Making the approach and managing a cultivation process, tailored to your prospect.

· Understanding the University’s campaign priorities and bringing them to life for individual supporters. through various communication channels.

· Asking confidently, passionately and effectively for key priorities.

· Building long-term relationships that are centred on the donor, including maximising volunteering opportunities where appropriate.

· Stewarding the donor once a gift is made, ensuring the individual remains connected to the University, the project, and the impact which they have made.

4. Responsible for adhering to relevant fundraising regulation and GDPR whilst ensuring fundraising processes are ethical and that due diligence is undertaken as necessary.

5. Deliver against set targets including money raised, asks made, meetings secured and gift close rate.

6. Communicate effectively with prospects, donors, volunteers, alumni, academics, researchers and businesses using a wide range of communication skills.

7. Communicate effectively with prospects and donors by phone, email, LinkedIn, letter and face-to-face.

8. Work internally with academics to showcase projects to potential donors and work with colleagues across the university to bring gifts to fruition.

9. Work closely with the Volunteering, Events, Campaign Management, Donor Experience, Regular Giving and Legacy Teams to maximise opportunities for collaboration with prospective donors.

10. Working in partnership with other fundraisers and members of DARO including sharing best practice and ensuring prospect development by playing in senior stakeholders at the right time.

11. Use Blackbaud CRM to record meetings and proposals effectively to allow accurate performance monitoring and reporting.

12. Take ownership of all processes and communications in relation to your prospects to include writing proposals, first approach communication, thank you letters and gift paperwork as appropriate.

13. Work with the Philanthropic Finance Team to ensure pledges are fulfilled and donations are correctly managed.

14. Being familiar with methods of tax efficient giving in the UK.

15. Seeking out opportunities for professional development.

16.  Fosters a fair and equitable workplace for all staff.

17.  Supports the University’s sustainability agenda through resource efficient working.

18.  Any other duties commensurate with the grade.

COMMUNITY PROJECTS WORKER

OASIS NORTH BRISTOL

HOURS: 8 HOURS PER WEEK (0.2FTE)

CONTRACT: 12 MONTH FIXED TERM CONTRACT (Extension dependent on funding)

SALARY:  £5,673.80 per annum (FTE £28,369 pa for 1FTE)

Want to develop, coordinate and manage a food insecurity and community cohesion project offering a diverse range of activities and support for the local community?

Want to enable families and local residents to thrive?

Want to lead a dynamic, passionate and impactful team of volunteers?

Oasis’ vision is for community, a place where everyone is included, making a contribution and reaching their God-given potential.  We have an exciting opportunity for a Community Projects Worker to join Oasis North Bristol. Our Community Projects Worker will work with families and residents across the community to develop positive activities and services which promote a sense of belonging and help break the cycle of disadvantage.

We’re looking for an individual who has a passion for supporting families and adults, and developing community led activities. The role will involve supporting families and adults in the community, but also families in our local Oasis academies, inspiring and enabling local people to be an active voice and developer in their local area.

Key responsibilities include:

· To work with the Youth & Community Lead and other team members/partners as required to create and implement a strategy and vision for our food insecurity work.

· Ensuring effective financial management and income generation to sustain and expand services

· Managing and growing a team of volunteers, ensuring alignment with Oasis’ ethos and values.

· Building strong partnerships with local stakeholders to support the delivery of impactful community projects.

· Work directly with families and the wider community in a non-judgemental way empowering them and their families to get the most out of the opportunities available.

· Create opportunities for families and the community to get involved in shaping and delivering the work of the community projects.

· Developing and maintaining monitoring and evaluation frameworks to demonstrate the impact of activities.

· Ensure compliance with health and safety, safeguarding, and other statutory requirements.

The successful post holder must have:

· Excellent organisational and interpersonal skills, with the ability to build positive working relationships.

· Good standard of basic education, including English and Maths Level 2

· Proven experience of community work as a volunteer or professionally

· Experience of managing and working with volunteers

· Ability to build long lasting, positive relationships with both young people and adults

· A commitment to the Oasis ethos and values, including inclusion, equality, and perseverance.

This is an exciting opportunity to be part of a growing national organisation, making a real difference to communities on a local level. As part of the package, Oasis offers:

As part of the package, Oasis offers:

· A pension scheme, offering 7% employer contribution.

· A generous holiday allowance, starting at 25 days per year (plus 8 Bank Holidays).

· Policies which promote well-being and are family friendly.

To apply, please send your CV and a Supporting Statement (no more than two A4 pages).

Please expand on your CV to tell us about relevant skills, experience and qualification you have, that relate to the job description and person specification.

Completed applications should be returned by 9am Wednesday 23rd September 2026.

Interviews will take place Thursday 1st October 2026.

We actively encourage applications from people of all ethnic backgrounds and underrepresented groups. If you require any assistance to overcome potential barriers during the recruitment process, please let us know. 

We appreciate you may wish to use AI to support elements of your application but we strongly encourage all candidates to submit applications that genuinely reflect their own skills, achievements and lived experiences. It's what makes your application stand out!

Oasis is committed to making a difference to the lives of the communities it works in, and as such you must show a willingness to demonstrate commitment to the values and behaviours which flow from the Oasis ethos.  We are committed to safeguarding and promoting the welfare of children and young people. We expect all staff to share this commitment and to undergo appropriate checks, including enhanced DBS checks.

The successful candidates must have the right to work in the UK.  Oasis cannot assist with sponsorship or visas.

Oasis supports Equal Opportunities.  Registered Charity No. 1163889

EVENTS CO-ORDINATOR

Sheffield Hospitals Charity is looking for a talented Events Co-ordinator to lead the delivery of a growing portfolio of fundraising and engagement events from flagship fundraising events to brand awareness initiatives, you'll play a key role in creating experiences that make a real difference. 

What you'll do:

• Plan and deliver a varied programme of events from concept to evaluation.
• Build strong relationships with supporters, volunteers and partners.
• Help grow participation, income and awareness of Sheffield Hospitals Charity.
• Work as part of an ambitious and supportive fundraising team. 

We'd love to hear from you if you have:

• Experience delivering successful events and managing multiple projects.
• Strong organisational and communication skills.
• A proactive, creative and solutions-focused approach.
• The ability to thrive in a fast-paced environment. 

We're looking for someone who is organised, proactive and confident managing multiple projects at once. You'll be a natural relationship-builder with a creative mindset, excellent communication skills and a passion for delivering outstanding experiences. You'll have the opportunity to shape an established events programme, bring fresh ideas to the table and help improve the lives of patients, families across Sheffield. 

If you're looking for a role where you can make your mark and deliver events with real impact, we'd love to hear from you. 

If you feel you have relevant skills and experience, please submit your CV and supporting statement to Sandra Smith, Senior Consultant via the Charisma Charity Recruitment website.

Location: Sheffield (hybrid working available) 

Closing date for applications: 21st September
First client interview: 2nd October 
Second client interview: TBC

We welcome and encourage applications from people of all backgrounds. We do not discriminate on the basis of disability, race, colour, ethnicity, gender, religion, sexual orientation, age, veteran status or other category protected by law. 

Charisma is committed to inclusive and accessible recruitment processes. If you have any reasonable adjustments or wish to apply for this role under the Disability Confident Scheme, please contact our Operations Teams. Charisma will ensure all candidates who disclose that they wish to apply under the Disability Confident Scheme and that meet the minimum criteria for the role will receive an opportunity to interview with the Charisma Consultant representing the role.

Who we are
We are OUTpatients, the UK’s LGBTIQ+ cancer charity. Proudly led by and for our community, we are here to shake up the system, advocate for equity, and stand up for every LGBTIQ+ person affected by cancer. Our passion to support others is born out of personal experience; we understand what it’s like to not see yourself reflected in the services you use, and feel like you are left in the margins at a time when you most need personalised support. That is why we host peer support, educate healthcare professionals and help to shape national policy so that nobody has to go through cancer alone.

The position

The Chief Operating Officer is one of three new senior leadership roles we're creating alongside our CEO, the first time OUTpatients has built a leadership team of this kind. It's a genuine opportunity to shape how a fast-growing charity operates, not simply maintain what already exists.

You'll be the CEO's key partner in turning our five-year strategy into a well-run, sustainable organisation: leading a team of six, taking ownership of our finances, risk and governance, and building the systems and structures that let our small, passionate team deliver more, safely and well.

Working closely with our incoming Head of Fundraising & Business Development and Chief Medical Officer, and deputising for the CEO when needed, your work will directly shape how many more LGBTIQ+ people affected by cancer we're able to reach.

To learn more about the role, please read the attached Job Description.

Yorkshire Wildlife Trust is one of the UK’s fastest growing nature conservation organisations and seeks to appoint a Fundraising Research Officer.

This is a unique opportunity to join the Fundraising Team at Yorkshire Wildlife Trust, and we can’t wait to have you on board. As a member of a dynamic and fast-paced team, you’ll provide critical support in researching and mapping our internal and external networks, in addition to delivering essential work to grow the Trusts philanthropic portfolio.

A curious and inquisitive mindset is key to this role, with a desire to fact find and build connections across Yorkshire and beyond. You will have a natural skill for data processing and communication, whilst also being able to creatively interpret your findings and write reports. You will lead, develop and implement research processes and cooperate collaboratively with colleagues of all levels. You will have your finger on the pulse of fundraising sector trends and be able to provide insight in risk research, due diligence and marketing. We are a very creative and ambitious team, and so a common-sense approach to problem solving and enthusiasm are essential for success in this role.

Research skills are essential to this role, and so an undergraduate degree is required, with desired experience at postgraduate level, too.

How to apply:

Please submit an up-to-date CV and supporting statement. When writing your supporting statement, please ensure you describe your relevant knowledge, skills and experience aligned to the Person Specification within the Job Description. Please be aware that if you only submit a CV, your application may not be considered.

Please DO NOT include any personal details (name, address etc) on your supporting statement.

Closing date: Sunday 4th October at midnight

We reserve the right to close this vacancy early should we receive a high volume of suitable applications. We therefore encourage interested candidates to apply as soon as possible.

Interview date: Tuesday 20th October

Please note that applications received after the closing deadline may not be considered. The Trust regrets that it is unable to give feedback on unsuccessful applications.

We want our people to flourish, just like nature, and so we are committed to creating a movement that recognises and truly values individual differences and identities. We value diversity and creating an inclusive culture where everyone can be themselves and reach their full potential.

We are also a member of the Disability Confident Scheme. This means we are committed to offering an interview to disabled applicants who meet the minimum criteria for the post. Where a post is oversubscribed (i.e. there are more candidates meeting the minimum criteria than we can offer interviews to), we will carefully balance inviting a mix of the highest scoring disabled and non-disabled applicants.

An exciting opportunity!

This is a rare and genuinely exciting opportunity to lead the UK's only dedicated charity supporting children, adults and families affected by MPS, Fabry disease and related lysosomal storage disorders. Following the current Chief Executive's planned move to become Managing Director of Rare Disease Research Partners (RDRP) in January 2027, the incoming CEO will take the helm of an organisation with over forty years of history, a trusted national reputation and a growing role on the international rare disease stage. The successful candidate will shape the strategic vision for more than 1,800 families, oversee the close partnership between the Society and its research subsidiary RDRP, and champion the patient and family ethos that sits at the heart of the organisation's work. It is an opportunity to combine ambitious strategic leadership with deeply meaningful, human impact, working alongside a committed Board, Senior Leadership Team and wider community of clinicians, researchers and pharmaceutical partners.

As our next Chief Executive, you will

• Define and deliver the MPS Society’s strategic vision.
• Provide confident oversight of governance, finance, compliance and reporting.
• Effectively manage the operational alignment between the MPS Society and RDRP.
• Always keep the members and family voice at the heart of strategy, service design and decision-making.
• Build and maintain senior-level relationships with statutory bodies, government agencies, pharmaceutical partners, clinical expert centres and other key stakeholders to support the Society’s objectives, influence policy and practice, and protect its professional reputation.
• Act as a visible and credible public voice to raise awareness, improve visibility, support, treatment access and outcomes for people affected by MPS, Fabry disease and related conditions.
• Collaborate with other rare disease bodies, patient organisations and other key audiences.
• Lead and empower the senior leadership team through effective delegation, early involvement in strategic discussions, clear accountability and support for individuals to flourish.
• Encourage an open, supportive work environment allowing creativity and building staff confidence.
• Help shape the future of the MPS Society.

About you

•  Self-motivated, with the drive to lead the organisation through a period of change and transition.
• Unquestionable probity and personal integrity, given the trust placed in the CEO by families, trustees and partners.
• Exemplary written and verbal communication skills, able to convey complex scientific and clinical information to audiences ranging from clinicians to families with no prior knowledge of MPS disorders.
• Strong self-awareness, with insight into their own leadership style and impact on others.
• Emotional resilience, able to sustain performance while supporting a community facing life limiting conditions.
• A collaborative and empowering leadership style, able to build trust, delegate effectively and help individuals across the organisation flourish.
• Genuine passion for the Society's mission, with a family and member-first ethos.
• Confidence to build relationships across a wide range of stakeholders, from beneficiaries and Trustees to politicians, media and pharmaceutical partners.
• A proactive, positive approach, comfortable reacting to change and organising their own work to meet deadlines.
• Confidence speaking publicly on behalf of the organisation and the people it represents.

Why join us?

A close-knit, values-led culture. With just over thirty staff across the Society and RDRP combined, this is a place where the CEO can know the team personally, work closely with families day-to-day, and see the direct results of decisions rather than managing at a distance through layers of bureaucracy.

• Genuine autonomy to shape direction. The Board is explicitly looking to the new CEO to bring fresh thinking on technology, AI, and digital tools, and to give real freedom to modernise fundraising, services, and engagement rather than simply maintaining what already exists.
• A stable foundation to build from over forty years of track record, trusted relationships and a strong national reputation mean the incoming CEO can focus energy on vision and growth rather than firefighting or rebuilding credibility from scratch.
• Proximity to cutting-edge science: the Society's close relationship with RDRP gives the CEO regular exposure to advances in rare disease research and treatment access, while day-to-day research leadership sits with the RDRP Managing Director, allowing the CEO to focus on strategy, people and sustainability.
• A high-visibility, high-influence platform. Regular contact with government, pharmaceutical companies, clinicians and international rare disease bodies offers strong opportunities to build a public profile and personal network well beyond the charity sector.
• A team that already shares the mission. Staff are described as passionate about the Society's aims, and as having a family-first ethos, so the new CEO inherits a culture to lead and empower rather than one that needs to be built from the ground up.
• Work with a different kind of return. Beyond salary and career progression, this role offers the less tangible reward of knowing that strategic and financial decisions translate, into better support for families facing some of the rarest conditions in the country.

Benefits

Join us and you will be working for a caring charity offering:

• A competitive salary
• Generous annual leave
• Extra leave between Christmas and the New Year
• Contributory pension
• Life assurance (subject to the conditions of the scheme)
• Employee assistance programme offering support 24/7

Further information

The successful candidate must be eligible to work in the UK.

The main duties, responsibilities and requirements of this role can be viewed in the job description on our website.

Salary to be agreed depending on experience and will be pro-rata for part time hours.

This is an essential car user post. The applicant must hold a current UK driver’s licence, with no more than 6 points, have access to a car and be able and willing to drive UK wide as required.

This senior role requires flexibility in working hours and location.  It is primarily offered on a hybrid basis with a minimum of 2 days in our Amersham, Buckinghamshire, office each week. As part of the role, UK and overseas travel is necessary, which may on occasion include early morning and/or evening working and sometimes overnight stays. We have policies in place to ensure that any unsociable hours worked over the weekend are fairly compensated through TOIL.

This role will require an Enhanced Disclosure and Barring check (DBS) details of which can be found in the job description.

For an informal discussion about the role or the work of the MPS Society, please contact Dr Fiona Stewart.  Contact details can be found on the full job description. Kindly note, meetings with other relevant people will be available to shortlisted candidates at interview stage.