Clinic liaison officer jobs
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Join BBS UK and help deliver compassionate support within NHS highly specialised clinics, supporting children and families living with Bardet-Biedl syndrome.
At Bardet-Biedl Syndrome UK (BBS UK), we are dedicated to improving the lives of those affected by this rare genetic condition. Our charity provides specialist support services that help children, young people and families feel informed, supported and able to navigate complex health and care systems, working in partnership with NHS Highly Specialised BBS Clinics.
We are seeking a compassionate and organised individual to join our Clinics Support Team as a Patient Liaison Officer (PLO). This role offers a unique opportunity to deliver charity-led support within specialist paediatric clinics at Great Ormond Street Hospital, working alongside NHS multi-disciplinary teams while remaining part of a close-knit and supportive charity team.
About the Role
As a Patient Liaison Officer, you will play a vital role in ensuring families feel prepared, supported and heard before, during and after their clinic appointments. You will provide emotional and practical support, advocacy and system navigation, helping families to understand their care and access appropriate support, while referring more complex casework to BBS UK’s specialist Advice Service.
You will:
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Support families before, during and after NHS Highly Specialised BBS clinic appointments
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Facilitate clinic attendance by preparing families for appointments, addressing concerns and helping to reduce “Did Not Attend” rates
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Attend specialist BBS clinics at Great Ormond Street Hospital, and St Thomas' Hospital, providing on-the-day support to families and clinicians (Approximately 2-4 days per month)
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Act as a key point of contact between families and clinical teams, supporting communication and information-sharing
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Provide light-touch advocacy, information and signposting in relation to health, education, social care and local authority support
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Identify unmet needs or emerging issues during clinic interactions and refer families to the BBS UK Advice Service for specialist advocacy and follow-up
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Support families during key transition points, particularly the move from paediatric to adult services
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Maintain accurate and confidential records using BBS UK’s CRM system (CharityLog)
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Contribute to service evaluation, quality improvement and the wider work of BBS UK
This is a home-based role with attendance at clinics in central London and occasional travel to other clinic sites and BBS UK events. Travel expenses will be reimbursed in line with BBS UK policies.
Who We’re Looking For
We are looking for an experienced individual with a background in supporting children and families, who can work confidently in a clinic-based, people-facing role.
Essential Experience & Skills
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Experience working with children, young people and families, ideally within health, social care, education or the voluntary sector
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Strong communication skills, with the ability to engage sensitively with families experiencing distress or uncertainty
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Experience providing emotional and practical support to individuals with complex or long-term conditions
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Ability to organise and manage multiple tasks, prioritise effectively and work independently
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Good IT skills, including Microsoft Office and case management/CRM systems (e.g. CharityLog)
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Understanding of safeguarding principles and professional boundaries
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A strong commitment to improving outcomes for people living with rare or complex conditions
Desirable Experience & Skills
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Knowledge of Bardet-Biedl Syndrome or other rare or genetic conditions
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Experience working alongside or within NHS services or multi-disciplinary teams
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Understanding of education, health and social care systems in England
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Experience supporting families affected by disability or visual impairment
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Ability to travel for work, including clinic attendance (travel expenses reimbursed)
Why Join BBS UK?
BBS UK is a small, dedicated charity making a meaningful difference to the lives of children, young people and families affected by Bardet-Biedl Syndrome. Our Clinics Support Team is widely recognised by families and clinicians as an essential part of the specialist BBS service.
By joining us, you will:
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Have a direct and positive impact on families at critical points in their care journey
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Be part of a supportive, values-driven charity team
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Work flexibly from home while delivering face-to-face support in specialist clinics
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Receive training, supervision and ongoing professional development
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Contribute to a nationally recognised rare disease support service
Additional Information
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DBS Check: An enhanced DBS check is required for this role
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Safeguarding: Completion of safeguarding training within the first month of employment
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Flexible Working: Occasional evening or weekend work may be required, with time off in lieu provided
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Hours: This is a permanent, part-time role (20 hours per week)
How to Apply
If you’re passionate about supporting children and families living with a rare condition and would like to be part of a dedicated charity team, we’d love to hear from you.
If you would like to discuss the role before applying, details can be found in the application pack.
Application Deadline: 8th February 2026
Registered Charity
6 - 10
We support and empower our community, champion wellbeing, and raise awareness, ensuring understanding, support, and hope for all affected.
The client requests no contact from agencies or media sales.
Thank you!
Salary: Up to £GBP £51,100 annual gross
Hours: Full-time
Duration: Permanent
Location: UK or global within 2-3 hours’ time difference of the UK. Regular travel to Manchester required. Minimum deployment time overseas 40%.
Our operations are growing – can you provide excellent operational management for our life-saving humanitarian health operations?
We are seeking an experienced humanitarian health operations professional to join our team. As our new Operations Manager you will join a newly created Operations function and play a key role in its development and success. Our operations are growing rapidly and we need someone who can thrive in providing excellent operational management alongside developing our systems and processes. You will manage a portfolio of programmes and responses both from the HQ and in the field.
Humanitarian health needs are growing. UK-Med is an NGO providing emergency health support in times of crisis and humanitarian emergencies. We provide clinical support, as well as training and capacity building for health professionals around the world, with particular focus on countries vulnerable to outbreaks, natural disasters or with weakened health systems due to complex emergencies. As a key partner of the UK Emergency Medical Team (EMT), we work closely with DFID and the WHO, but we are also growing our own programmes. Our work has never been more vital, with disease outbreaks and disasters becoming more frequent, complex and severe.
We provide humanitarian health surge support to health systems facing exceptional challenges. Our responses can range from individuals or small teams of technical experts providing advice and capacity building through to a full field hospital providing primary healthcare and surgical interventions.
Our ideal candidate will be passionate about UK-Med’s humanitarian mission and excited by the prospect of developing systems and processes to support this. You will have significant experience in humanitarian health operations including working in the field. You will be comfortable working at pace and thrive on achieving challenging objectives and meeting rapidly changing demands.
We offer a competitive salary and benefits along with a friendly working environment and the opportunity to make a real difference through humanitarian work. UK-Med is a growing and developing organisation with a committed team of staff, volunteers and members.
How to apply
We strongly recommend that you read the Candidate Information Pack – Operations Manager - January 2026 before applying.
To apply, please complete the questions and submit your CV through our Online Jobs Portal as soon as possible.
Applications must be submitted no later than 9th February, 2026.
UK-Med is committed to safeguarding of our personnel and beneficiaries and has a zero-tolerance approach to sexual exploitation and abuse. We conduct thorough vetting before any appointment is confirmed.
UK-Med is committed to the principles of diversity, equality, and inclusion. We strive to provide an inclusive and supportive environment where employees feel respected and supported to be able to fulfil their potential.
The client requests no contact from agencies or media sales.
Thank you!
A rare chance to join an incredibly supportive and inclusive employer that values hard work, flexiblity and employee well-being, and recognised by the GM Good Employment Charter! We are a small but vastly experienced team of family support/volunteer Coordinators, delivering highly respected volunteer-led home visiting support to families in the early years.
We are looking for someone to provide direct support to families and also recruit, train and support a team of local parent/carer volunteers who will provide weekly home visiting and community support to families.
You will work with other professionals from universal and specialist services to provide a coordinated response to families’ needs. You will assess need and risk prior to carefully matching volunteers with families or offering direct support, working as part of multi agency support, ensuring information sharing and safeguarding is at the forefront of your work. This will include instigating Early Help assessments, preparing for and attending Child in Need and Child Protection meetings.
You will have an understanding of recruiting, carefully selecting and managing volunteers to ensure they feel supported and fully trained to offer effective support to families in order to get the best outcomes for the family and in particular the children.
You will be experienced in working with families in their own home - skilled in recognising and responding to safeguarding concerns, be apt in completing strengths-based assessments and conversations and have a deep understanding of the issues families can face and the link with childhood development and difficulties they may experience later in life.
Registered Charity
11 - 20
Supporting families to give their children the best possible start in life, because we believe childhood can't wait
The client requests no contact from agencies or media sales.