Clinical trustee volunteer jobs in Birmingham

Job Description:

We are seeking a Health and Science Information Manager to lead the development of highquality health information and research communications for people affected by polycystic kidney disease (PKD). This is an exciting opportunity to shape how individuals access, understand and engage with trusted information throughout their journey, from diagnosis and day-to-day management, to the latest scientific and clinical research developments. In this role, you will oversee our extensive portfolio of patient information resources, ensuring all content is accurate, accessible, evidence-based and aligned with the PIF TICK quality standard. You will identify opportunities to create new and engaging resources that meet the evolving needs of the PKD community, using innovative approaches to improve how information is delivered across multiple channels. A key part of the role will be translating complex scientific and medical research into clear, compelling and patient-friendly content. You will help increase awareness of clinical research opportunities, communicate emerging developments in PKD science, and support greater understanding of how research can shape future treatments and care. We are looking for someone with strong strategic thinking, excellent editorial judgement, and the ability to communicate complex health and scientific information with clarity and empathy. This role would suit someone passionate about improving lives through trusted health information while helping connect people to the future of PKD research. 

RESPONSIBILITIES:

Health information management and quality:

• Support the development and management of the PKD Charity’s health information portfolio across digital and print platforms

• Ensure all content meets PIF TICK standards, including robust processes for development, review, updating and governance

• Maintain oversight of the full information catalogue, ensuring content is accurate, consistent and aligned with current clinical guidance

• Work with clinicians, researchers, and people with lived experience to co-produce and review content Content development and user need

Content development and user need:

• Identify gaps in current provision and lead the development of new information resources

• Ensure content is clear, accessible, inclusive, and tailored to the needs of different audiences

• Use patient insight, feedback and data to continuously improve the quality and usability of information Innovation in information deliver.

Research and science communication:

• Explore new ways of delivering information beyond written formats (e.g. video, audio, webinars, digital tools)

• Improve how information is presented and accessed across the website and other platforms

• Stay up to date with best practice in health information and digital engagement Research and science communication

• Monitor developments in PKD research, treatments, and clinical trials

• Translate complex scientific and medical information into clear, engaging, and accurate content for non-specialist audiences

• Work with the Communications Manager and wider colleagues to plan integrated campaigns, awareness activity and audience engagement.

• Develop compelling stories, updates and features that bring research to life and show its relevance to people affected by PKD.

• Work with colleagues to increase awareness, understanding and interest in PKD research.

Building engagement with research:

• Help create a culture of interest and engagement in research across the PKD community

• Develop content that builds understanding of how research works and why it matters

• Support communication around studies and clinical trials to ensure patients feel informed.

Collaboration and stakeholder engagement

• Work collaboratively across the organisation to ensure consistency and alignment in messaging

• Build relationships with healthcare professionals, researchers, and external partners

• Involve patients and volunteers meaningfully in content development and review

Quality, monitoring and impact:

• Monitor the reach and effectiveness of health information and research communications

• Maintain accurate records of content review cycles and updates in line with PIF requirements

• Use insight and evaluation to continuously improve content and delivery 

ABOUT YOU:

• Strong Content and Editorial Skills: You have experience producing high-quality written content, with excellent attention to detail and the ability to present complex topics clearly and accurately.

• Health or Science Communicator: You have experience working with health, medical or scientific information and can translate technical material into accessible language for public audiences.

• Collaborative Relationship Builder: You work well with others, build positive working relationships quickly, and enjoy partnering with colleagues across different functions to achieve shared goals.

• Confident Team Player: You are comfortable working closely with colleagues such as communications, fundraising, support and leadership teams, contributing ideas and supporting collective priorities.

• Strategic and Proactive: You can see the bigger picture, identify opportunities for improvement and take initiative to drive projects forward.

• Organised and Self-Motivated: You are comfortable managing your own workload, balancing priorities and delivering high-quality work in a remote setting.

• Values-Driven: You are motivated by improving lives, empowering patients with trusted information and supporting progress in PKD research.

HOW TO APPLY:

For information on how to apply, please read the job pack for further details.

Location: Remote (Based in England & Wales with occasional travel required)

Salary: £24,479 - £25,360 pro rata (£9,792 - £10,144 actual)

Hours of work: 14 hours per week 

Contract type: Permanent

Why work for Kids Matter?

• Generous annual leave – 25 days (plus bank holidays) per year pro rata, with time off between Christmas and New Year's additional to this allowance.
• Remote working contribution – receive £26/month pro rata towards the costs of working from home and/or using a co-working space.
• Access to coaching sessions, training opportunities and our Employee Assistance Programme (a confidential support service for staff).
• Flexible working across weekdays to suit your schedule.

About us

Kids Matter is one of the UK’s fastest growing children’s charities.

Our vision is to see every child in need raised in a strong family. Our mission is to reduce the impact of poverty on children through community-based parenting programmes.

Research shows that group-based early intervention parenting groups are the most effective way to support children in need. We train peer facilitators in local churches - the largest voluntary body in the country - to run our affordable, accessible and highly effective parenting programmes, written by Clinical Psychologists. They come alongside parents and carers, building long-lasting community in addition to encouraging confidence and learning positive parenting skills.

We value difference and diversity, and we want our workplace to be built on shared values of equality and mutual trust, with team members representing the wide range of backgrounds and experiences that exist within the UK. We therefore actively encourage applications from people of diverse backgrounds and varied experiences, particularly those who are African, Afro-Caribbean, Asian or part of other minority ethnic communities, who have lived experience of the impact of low-income/low-support circumstances, and who are living with a disability or identify as being neurodivergent.

About the role

The Accounts Assistant role involves:

• Processing day-to-day finances, ensuring all bank accounts and transactions are reconciled and coded correctly on Xero at month end.
• Ensuring all income is accurately processed and recorded on Xero and our CRM system (Beacon).
• Generating invoices as required, inputting into Xero, and chasing outstanding payments
• Overseeing and managing the expense card system (Volopa), topping up individual cards as required and processing payments
• Supporting the Finance Manager in the planning and production of accurate annual budgets.
• Supporting the Finance Manager with preparing documents required for annual audit.

About you

Are you organised with good attention to detail? Do you have booking training or experience? Are you a Christian with an active faith in Jesus? Do you have a passion for Kids Matter’s vision of seeing every child in need raised in a strong family?

Then we would love to hear from you!

How to apply

You can apply for the Accounts Assistant position by clicking ‘Apply via Website’ and completing a copy of our online application form.

The deadline for applications is Monday 25th May at 4pm. All successful and unsuccessful applicants will be notified by email.

We also ask for all applicants to submit an Equal Opportunities Monitoring Form, which will be sent to you to complete following the submission of your application. This form will be used for anonymous analysis to ensure our overall recruitment procedures are fair and transparent. It will never be viewed or used as part of the selection process. It is optional to submit this form.

If you would like any application/interview support or you need any reasonable adjustments throughout the application process, or if you would like an informal phone call to ask questions or discuss the role, please contact Katie Washington (HR & Systems Manager).

Please see the job pack for more details on the role and application process.

Job Description

Key responsibilities:

1. Events Marketing

• To oversee the scheduling, production and distribution of promotional e-mails for our events. Liaise with comms team to promote events across AvMA media platform To work on the development of the events pages on the new AvMA web site. Ensuring event web pages are kept up-to-date. To carry out data analysis and web analytics to determine what people are responding to and to highlight the areas we may need to focus/re-focus.

Events Logistics & Management

• In conjunction with the Head of Events, to undertake the production and organisation of events, including inviting and liaising with speakers and arranging event logistics. Effective liaison with speakers, ensuring they have all the information required to participate in the event and providing deadlines for receiving their presentation and biography. To work on site at events as required and run smaller events on your own. Duties will involve setting-up and administering registration, liaising with the venue, greeting speakers and exhibitors, dealing with enquiries from delegates and making sure the event runs smoothly. Production of the online conference documentation, to include speaker presentations.

Research & Event Development

• Help identify and research potential subject areas on which we may want to run events. Keep a close eye on the medico-legal events sector market and other events taking place. Help identify potential new sponsors and exhibitors for our events.

Events CRM

• Develop a sound understanding of AvMA’s new CRM, ensuring we optimise it for the efficient and effective marketing of events.
• To assist if/as required with bookings and booking queries for AvMA’s events.

Other

• To support the Events Department’s quality initiatives and to suggest continuing improvements where needs arise.
• To undertake other duties commensurate with the post as may be required.
• Deputise for the Head of Events when necessary 

Person Specification

Essential:

1. An understanding of, and commitment to, the values and objectives of AvMA.
2. Excellent interpersonal skills, with the ability to develop effective and positive working  relationships with a wide range of individuals and organisations.
3. Highly motivated self-starter with the ability to manage and prioritise workload and meet targets.
4. Excellent written and verbal communication skills. Confidence in liaising with speakers, sponsors and delegates.
5. Experience of organising events and on-site management of events, including in-person and online events/webinars.
6. Marketing copy writing ability, proof-reading skills, outstanding attention to detail.
7. Experience of using e-mail marketing platforms (e.g. Dot Digital) and social media to promote events and maintaining event web pages.
8. A high level of IT and digital literacy skills, including Office 365, Microsoft Dynamics and Adobe  In Design
9. Staying calm under pressure, a proactive and solutions focussed approach to problem-solving, ability to independently think on your feet.
10. Demonstrable commitment to Equality, Diversity and Inclusion

Desirable:

• Experience of working within a charity.
• Experience of working in healthcare and legal sector events.
• Knowledge or experience of healthcare, the NHS or patient safety work.
• Understanding/experience of Search Engine Optimisation.