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Top job
Association for Multiple Endocrine Neoplasia Disorders (AMEND), Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
CEO Needed for Small but Mighty Rare Disease Charity
Posted 2 days ago Apply Now
Top job
Nystagmus Network, Remote
£44,000 - £48,000 per year or £26,400 - £28,800 PRO RATED to 3 days per week
We are seeking an inspiring, hands-on leader to champion our community to guide our small charity forward and grow our impact.
Posted 1 day ago Apply Now
Top job
The General Assembly of Unitarian and Free Christian Churches, London (Hybrid)
£55,000 per year
Seeking an experienced individual to strengthen The General Assembly of Unitarian and Free Christian Churches at an exciting time of change.
Posted 6 days ago Apply Now

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Barnardos, Coleraine (On-site)
£13.45 per hour
Posted 1 day ago
Closing in 7 days
Hestia, City of London (On-site)
£46,285 per year
Posted 6 days ago
Closing in 4 days
Royal Holloway, University of London, Egham, Surrey (On-site)
£41,374 - £48,639 per year
Posted 3 weeks ago
Closing in 5 days
MND Association, Northampton (Hybrid)
£60,000per year
Posted 1 week ago
Bow Church, London (Hybrid)
£19,200 - £21,600 per year
Posted 3 days ago Apply Now
Page 43 of 110
Tonbridge, Kent (Hybrid)
£50,000 - £55,000 per year
Full-time
Permanent

Using Anonymous Recruitment

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Job description

This is an exciting opportunity for a new Chief Executive Officer to lead our well-respected rare disease patient organisation through the next phase of growth and impact, in particular focussing on financial sustainability and influencing health policy for these rare diseases.These sit alongside the other grass-roots duties of a small charity CEO, including working with our Medical Advisory Team to develop new and maintain existing patient education resources, and overseeing our support services including volunteers and a professional psychological counselling service. Reporting to and working with the Board of Trustees, the CEO will be responsible for delivering our 2027-2030 Strategic Plan, ensuring robust governance, and driving forward our mission to improve the lives of people affected by rare diseases.The CEO manages the part-time Executive Administrator and works with up to 30 current volunteers (patients, carers, and health professionals) to deliver services with impact.This role includes occasional weekend work, as well as approximately 15 days travel (national and international) per year to represent and advocate for the charities’ beneficiaries. 

Application resources
Organisation
Association for Multiple Endocrine Neoplasia Disorders (AMEND) View profile Organisation type Registered Charity Company size 1 - 5

The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers

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Posted on: 06 July 2026
Closing date: 05 August 2026 at 23:30
Tags: Project Management, Advocacy, Cancer, Health / Medical, Strategy, Sustainability, Wellbeing

The client requests no contact from agencies or media sales.