Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Wolfram Syndrome UK (WSUK)
WSUK is a small national charity based in West Sussex that supports children, young people and adults affected by Wolfram Syndrome (WS) and their parents/wider families. WS is an ultra-rare genetic disorder which causes a complex range of symptoms, including diabetes mellitus, vision problems, renal problems, deafness, and neurological problems. WSUK provides current, accurate and family-friendly information, raises awareness of WS among health professionals and the public, and helps to fund WS research. For further information visit the Wolfram Syndrome UK website
WSUK Adult Support Co-ordinator Role
WSUK is seeking a part-time adult support co-ordinator (2.5 days per week, working over 4-5 days, 0.5 FTE, £14.1k-£15.6k per annum), based in the Midlands area. This home-based role will provide support to WS affected adults and their families to help improve the quality of their lives. Through liaising with professionals (including the WS expert clinical team at Queen Elizabeth Hospital (QEH), Birmingham), external or advocacy organisations, this role will help facilitate access to the services to which WS affected adults and their families are entitled. The adult support co-ordinator will help adults and their families to increase their confidence and independence in living with their condition. This role will also act as an important point of contact for WS affected adults, providing advice and support in confidence.
Skills and experience
Applicants should have several years’ experience in a similar position, working with people affected by sensory loss, long-term medical / genetic condition, or disability. Applicants should also have a strong desire to help improve the lives of adults living with a long-term condition or disability and be confident in talking with people with a range of abilities and diverse cultural backgrounds.
Applicants should have experience in working effectively as part of a remote team, be confident in working independently and in managing conflicting priorities.
Some limited UK travel will be required (particularly to meet WS affected adults during their WS clinic visit at QEH, Birmingham (6 clinics per year) and the annual WS conference. An enhanced DBS check will be required.
Registered Charity 
1 - 5
The client requests no contact from agencies or media sales.
Thank you!
Operations and Finance Officer
Pathfinders Neuromuscular Alliance
18 hours per week | £16–£17 per hour
12-month contract (with potential to extend)
Flexible / Remote working
Pathfinders Neuromuscular Alliance is a user-led national charity supporting people with muscle-weakening conditions. We provide peer support, advocacy, research and campaigning to improve quality of life and drive systemic change.
We are now recruiting an Operations and Finance Officer to strengthen our internal systems and help ensure the smooth and sustainable running of the organisation.
About the Role
This is a key Officer-level role supporting financial administration, governance processes, HR coordination and organisational systems. You will work closely with the CEO and support the trustee board.
You will not hold financial sign-off authority, but you will be responsible for ensuring processes are accurate, organised and compliant.
Key Responsibilities
-
Setting up supplier payments for CEO approval
-
Importing and reconciling bank statements in accounting software
-
Supporting budget tracking and financial record keeping
-
Inputting payroll data and liaising with payroll providers
-
Collating and submitting DBS applications
-
Tracking HR processes (supervisions, appraisals, probation reviews)
-
Organising trustee and staff meetings
-
Maintaining policy review schedules and compliance deadlines
-
Improving and documenting internal systems and processes
About You
We particularly encourage applications from people with lived experience of neuromuscular conditions or other long-term disabilities. Reasonable adjustments will be provided throughout the recruitment process and in the role.
We are looking for someone who:
-
Has experience in administration, finance or operations
-
Is highly organised and detail-oriented
-
Is comfortable using spreadsheets and digital systems
-
Can manage multiple deadlines and confidential information
-
Is confident escalating queries where needed
-
Shares our commitment to equity, co-production and inclusion
Experience in the charity sector is welcome but not essential.
What We Offer
-
Flexible working arrangements
-
A supportive, values-driven team
-
The opportunity to shape and strengthen a growing national charity
-
A genuine commitment to lived experience leadership
To apply, please submit your CV and a short covering statement outlining why you are interested and how you meet each criteria.
Interviews will be held on Monday 13th April
To apply, please submit your CV and a short covering statement outlining why you are interested and how you meet the criteria.
The client requests no contact from agencies or media sales.
Thank you!
The main purpose of this role is to write persuasive funding applications to secure the income needed to enable Cerebral Palsy Plus to continue its work.
The postholder will build and maintain strong relationships with new and existing supporters and contribute to the development of all areas of fundraising.
The part-time fundraiser will also work with the Director to contribute to the development and implementation of Cerebral Palsy Plus’s Income Generation & Fundraising strategy.
The client requests no contact from agencies or media sales.