Advocacy and information officer jobs in BS49 4QY

Partnerships and Impact Specialist

Advocacy & Influence | Remote (UK-based)

Salary: £42,000 per annum

Hours: Full time (35 hours per week to be worked over 5 days)

Location: Home-based in the UK with occasional paid travel to our London office and for meetings – nationally and internationally

Contract: Fixed Term Contract until June 2029

Join Population Matters

We are a UK charity with a global remit. Our vision is of a world in which our human population lives fairly and sustainably with nature and each other. As we enter an exciting new phase of growth and influence, we’re looking for a strategic and collaborative Partnership and Impact Specialist to build trusted relationships with civil society and grassroots partners, amplify their leadership, and help translate Population Matters’ evidence, advocacy insights and learning into meaningful influence and impact.

About the Role

This role sits within our Advocacy and Influence Team and will play a central part in delivering our Empower to Plan programme and wider organisational strategy. You will identify, develop and sustain strategic partnerships with civil society organisations, particularly grassroots organisations in the Global South and Global North, co-creating approaches that strengthen partner objectives and Population Matters’ evidence-based advocacy.

You will also lead our organisational Monitoring, Evaluation, Accountability and Learning (MEAL) work, ensuring insights are captured, shared and embedded across our goals to strengthen impact. While managing the Partnerships and Impact Officer, and working collaboratively across research, advocacy, communications and fundraising, you will turn partner intelligence and learning into compelling case studies, briefings, proposals and influencing opportunities, supporting grassroots partners to strengthen their influence in local, national, regional and global decision-making forums.

Important Information

· This is a UK-based role

· Applicants must have the Right to Work in the UK

· We are unable to offer sponsorship

Apply Now

If you’re ready to play a vital role in a purpose-driven organisation and help shape a more sustainable future, we’d love to hear from you. Please submit a CV (not more than 3 pages) and answer the application questions explaining your interest in this role and how you meet the criteria in the Person Specification. A cover letter is not required. 

Closing date: Monday 21 September at 09:00am (BST)

Population Matters is an inclusive and diversity-friendly employer. We are committed to equality, diversity and inclusion across everything we do. We welcome and encourage applications from people of all backgrounds and do not discriminate based on disability, race, colour, ethnicity, gender, religion, sexual orientation, age and all other categories protected by law. Please refer to our full EDI statement attached with this advert.

If you require any adjustments to make the process more accessible, or to arrange an informal conversation about the role, please see contact details within our EDI statement attached below this advert. 

Interview dates

First round: Week commencing 28 September, online

Final round: Week commencing 5 October (in-person) at our office: Population Matters, The Chandlery, 50 Westminster Bridge Road, London SE1 7QY, UK

Thank you for your interest in Population Matters.

Please note that we do not accept unsolicited contact from recruitment agencies regarding this vacancy.

#partnerships #partnerships and impact #partnerships and impact specialist #monitoring evaluation accountability learning #impact #partnerships and impact specialist #partnerships #strategic partnerships #monitoring and evaluation #advocacy #grassroots partnerships 

The young people, children and families that we support are at the heart of everything we do at Mermaids.  The work that we do has significantly expanded and we now need a highly effective and experienced Youth Advocacy Manager to join the organisation.  The Youth Advocacy Manager plays a crucial role in empowering trans youth, advocating for their rights and fostering inclusive  and supportive communities where they can thrive.  This role is a core part of our management team and will drive the organization to ensure that youth voice is centred across all of our work.

Mermaids is an equal opportunity employer. We encourage applications from those with lived experiences (directly or indirectly) and/or close ties to the LGBTQ+ community. We actively support and encourage people from a variety of backgrounds and experiences to join us and shape what we do. We are particularly keen to receive applications from BPOC (black and people of colour) and/or disabled and trans candidates.

Join Navigate CIO and Make a Real Impact!

Are you passionate about making a difference in people's lives?

Do you have strong communication and problem-solving skills?

Whether you're experienced in money advice or looking for a career change, we provide full training and development opportunities to help you succeed in this role. At Navigate CIO, we are a registered charity dedicated to providing free, impartial, and confidential money and debt advice across Devon and Somerset.

Our work supports individuals and families facing financial hardship, helping them build financial resilience and regain control of their lives. This is more than just a job—it's an opportunity to transform lives and strengthen communities.

This role is funded by the British Gas Energy Trust (BGET), allowing us to provide specialist energy and money advice to those who need it most.

Why Join Us?

• Full training provided – no prior experience in debt advice needed.

• A rewarding role – support vulnerable individuals to improve their financial wellbeing.

• Career development opportunities – ongoing training and professional growth.

• Flexible working environment – work across various locations, including home visits and remote support.

• Supportive team culture – be part of a dedicated and passionate team that values collaboration.

About the Role

We are looking for a compassionate Debt & Energy Adviser to provide money, debt, and benefits advice to individuals who are often in crisis and face multiple barriers to accessing the support they need. The role primarily involves face-to-face home visits, supported by telephone, video, email, and digital advice. You will be at the forefront of delivering essential money and debt advice to clients with high level needs, helping them navigate their financial challenges.

Key Responsibilities:

• Assess and review client needs to ensure appropriate support.
• Identify and address barriers preventing clients from accessing money advice.
• Provide comprehensive, caseworker-level advice on money management, debt solutions, and financial capability.
• Develop individual action plans tailored to client needs, ensuring dignity and respect.
• Maintain accurate case records and documentation. 
• Deliver high-quality money advice services in partnership with key stakeholders.

• Offer tailored support, in clients homes, online and via telephone

What We’re Looking For:

We are looking for individuals with the right skills and attributes, even if you don’t have direct experience in money and debt advice. If you are passionate about helping others and eager to learn, we encourage you to apply!

Essential Skills & Attributes:

• Strong people skills – ability to build rapport and communicate effectively.
• Ability to support vulnerable individuals with multiple and complex needs.
• Empathy and a non-judgmental approach.
• Understanding of confidentiality, GDPR, and safeguarding policies.
• Ability to prioritise tasks and manage workloads effectively.
• IT proficiency (Word, Excel, email, case management systems).
• Ability to work independently and as part of a team.
• Willing and able to travel across Somerset for client appointments.
• A full DBS check will be required.

Desirable Skills & Experience:

• Experience in advice, advocacy, or support work (paid or voluntary).
• Knowledge of welfare benefits, housing, and debt advice.
• Experience in sectors such as mental health, addiction, housing, or social prescribing.
• Willingness to train as a DRO (Debt Relief Order) Intermediary.

Ready to Make a Difference? If you’re looking for a career where you can grow professionally while transforming lives, this is the perfect opportunity for you.

Apply today and start your journey towards empowering individuals and communities through financial resilience! 

Working closely with our Communications Lead, you'll focus on building our digital presence to grow the political and public support we need to put people at the heart of decision making.

Involve is leading the way in shaping a 21st-century democracy through innovative, high-quality public participation. We're now looking for a Digital Communications Officer to join our Advocacy and Communications Function, bringing digital communications skills that help us tell the story of our work in creative and engaging ways.

You'll create and deliver a steady stream of compelling content, work directly with project teams, partners and commissioners, and help build the political and public support we need to put people at the heart of decision-making.

Key responsibilities include:

• Creating and delivering engaging digital content across our social, web and email channels

• Supporting our major programmes of work and wider project teams with digital communications

• Helping us to grow and diversify our audiences to build political and public support for participatory democracy

• Bringing creative, platform-savvy thinking to how we tell Involve's story
   

If you enjoy using content and creativity to engage people, and like the idea of putting that to work for a stronger democracy, follow the link to find out more and we'd love to hear from you.

We're looking for a passionate and experienced Museum Data Manager to work on the Museum Data Service (MDS), supporting colleagues from the sector mapping and uploading their data to the service.

To apply

Application is through the Charity Job website, by CV and a covering letter that succinctly explains how you meet the Essential and Desirable criteria set out in the person specification. To ensure a fair process, names and email addresses will be redacted from all submissions before they are seen by those shortlisting. Please note that applications from people based outside the UK and/or without the right to work here will not be considered.

Your application will be confidential and the information you provide will only be used for the recruitment process. Please see our privacy notice. We look forward to hearing from you.

Aims and scope of the post

The Museum Data Manager helps museums through all the stages of bringing their collections data into the Museum Data Service (MDS). They help  make the onboarding process reassuringly quick and easy, particularly for those museum staff and volunteers with limited technical knowledge. The postholder also makes the ingested data as useful as possible to end users by mapping the various source data fields to Spectrum units of information.

MDS is a transformative service from Collections Trust, Art UK and the University of Leicester. It aims to connect and share all the object records across all UK museums, providing the raw material for anyone to work with this wealth of knowledge. The core MDS system uses Knowledge Integration’s CIIM middleware.

Main responsibilities and tasks

• Responding to museums that have expressed interest in joining MDS and leading them through the onboarding process.
• Setting up and managing organisations and user accounts in the MDS CIIM and where needed, Wikidata.
• Generating and filing customised data processing and data deposit agreements based on MDS templates.
• Helping museums export collections data from a range of collections management systems and other systems.
• Helping museums apply access permissions to their data in the MDS CIIM.
• Mapping source data fields to Spectrum units of information.
• Proactively liaising with, and helping, museums to update their MDS data at agreed intervals.
• Responding to enquiries from MDS CIIM users, troubleshooting non-technical problems and liaising with MDS technical support as needed.
• Helping to prepare guidance and deliver training relating to the onboarding process.
• Responding to enquiries about MDA codes that identify UK collection-holding organisations and their collections and maintaining the database of these.
• Undertaking data cleaning work for Collections Trust to support collections consultancy work.

General responsibilities

• Following the principles of Collections Trust’s policies and procedures and those of MDS.
• Additional duties as may reasonably be required from time to time.

Line management and key relationships

The Museum Data Manager has no line management responsibilities and reports directly to the Chief Executive of Collections Trust (for HR matters) and the MDS Head of Service (for MDS work). The postholder will work closely with the MDS Technical Manager alongside the User Engagement Officer (based at Art UK) and technical support team (based at the University of Leicester).

Person specification

Collections Trust is committed to encouraging equity, diversity and inclusion among our workforce, and eliminating unlawful discrimination. The aim is for our workforce to be truly representative of all sections of society and our sector, and for each employee to feel respected and able to give their best. The Museum Data Manager will need to be based in, and have the right to work in, the UK. This role is remote working, with occasional in-person meetings and conferences.

Essential knowledge, skills and qualities

• Three years’ experience working closely with museum collections data in at least one collections management system, preferably a Spectrum Compliant one.
• A good understanding of museum collections data and the way it is produced and shared in the sector.
• Good working knowledge of Spectrum: the UK Museum Collections Management Standard (version 5.1), particularly its units of information.
• Experience of showing others museum professionals how to perform IT-related tasks, ideally remotely via video.
• A rigorous approach to routine administration, with an excellent eye for detail and consistency.

Desirable knowledge, skills and qualities

• Good understanding of the main principles of UK data protection and copyright law.
• Strong communications skills, able to convey technical information to non-technical people.
• Autonomy and ability to manage time effectively.
• Ability to work well within a team.
• Enthusiasm, flexibility and proactive approach.
• Experience of different data formats, standards and data cleaning processes used in the cultural heritage sector and/or research.

Prospectus is delighted to be partnering with our client to recruit their next Chief Executive Officer.

The orgnisation is the UK's leading charity dedicated to improving the lives of people affected by Dravet Syndrome, a rare, severe and life-limiting neurological condition. Founded by parents in 2008, the charity has grown significantly and now supports hundreds of families across the UK through family support services, professional education, awareness raising and medical research.

As the charity enters its next phase of development, the organisation is seeking an ambitious and inspirational CEO to lead the organisation through its next stage of growth and impact.

Reporting to the Board of Trustees, you will provide strategic and operational leadership across the organisation, leading the delivery of the charity's future strategy while ensuring excellence in day-to-day operations. You will work closely with families, clinicians, researchers, industry partners, funders and policymakers, acting as a visible and credible ambassador for the charity across the sector.

This opportunity is ideally suited to a senior leader from a national charity or patient advocacy organisation who has successfully led organisational growth and transformation. You will bring experience of scaling services, income and organisational capacity, while retaining a strong understanding of hands-on leadership within a growing charity.

We are looking for a confident and influential leader with the presence and credibility to inspire supporters, stakeholders and partners, whether speaking at conferences, fundraising events or representing the charity nationally. Experience within a rare disease, neurological condition, disability, health or patient advocacy organisation would be highly advantageous, with direct rare disease experience particularly welcomed.

To be successful, you will bring:

• Significant senior leadership experience within a national charity, health or patient advocacy organisation.
• A proven track record of leading organisational growth and managing complexity through periods of change.
• Strong strategic and operational leadership skills, with the ability to balance long-term vision and day-to-day delivery.
• Outstanding relationship-building and stakeholder management capabilities.
• The confidence and presence to act as an engaging external ambassador and public spokesperson.
• A commitment to improving outcomes for individuals and families affected by complex health conditions.

This is a rare opportunity to lead a highly respected charity at an exciting time of progress and opportunity, including significant advances in rare disease research and treatment.
This role is home-based with regular UK travel and occasional international travel. Some evening and weekend work will be required.

At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process, then please contact Catherine Bunting at Prospectus.

Recruitment timeline:
First round interviews (via Zoom) - Friday 18th September
Final round interviews (London) - Monday 28th September

Who We Are

Animal Equality is an international animal protection organisation working with society, governments and companies to end cruelty to farmed animals. Animal Equality has offices in the United Kingdom, the United States, Germany, Italy, Spain, Mexico, Brazil and India.

Animal Equality releases investigative materials from inside factory farms and slaughterhouses, exposing the conditions that farmed animals face around the world. We publish our findings on television, in newspapers and online. We routinely secure mainstream media coverage, including on the BBC, ITV, Sky News, The Times, The Guardian, The New York Times and many more.

Animal Equality also advocates for political change. Our current campaigns include a UK ban on foie gras imports, increased enforcement of existing animal protection laws, legal protections for farmed fish, and Government subsidies for transitioning towards a plant-based food system.

We focus on farmed animals because of the scale and severity of the issue. More than a billion animals are confined and killed for human consumption every year in the UK. Farmed animals also often suffer in some of the worst ways: pigs typically endure painful mutilations; many chickens die of heart attacks; fish are confined in underwater cages, and some farmed animals are victims of deliberate abuse and neglect. But the problem is solvable! By utilising effective campaigning strategies, Animal Equality is having an impact for animals around the world and building a future where all animals are respected and protected and are no longer exploited for human consumption.

Animal Equality UK’s current key campaigns include:

• Strengthening enforcement of animal protection laws
• Halting the expansion of Scotland’s salmon farming industry
• Achieving a ban on foie gras imports
• Securing species-specific slaughter legislation for fish
• Inspiring the public to eat plants, not animals

About the Role

Animal Equality’s campaigns have driven Parliamentary debates, legal victories, corporate commitments, and major media coverage and inspired thousands of people to change their diets and take action for farmed animals.

We are seeking a dynamic, disciplined, and highly motivated Campaigns Officer to play a central role in growing our activist movement and delivering bold, high-impact campaigns across the UK and internationally.

This role is fundamentally about building people power. You will be responsible for significantly expanding our activist base – both online and in person – mobilising supporters into sustained action and organising impactful demonstrations that influence companies, governments, and public opinion.

The Campaigns Officer will regularly travel across the UK and internationally to organise and lead peaceful demonstrations, ensuring Animal Equality remains a visible, strategic, and compelling presence at key decision-making moments. You will be expected to travel frequently across Europe, sometimes at short notice; reasonable travel and accommodation costs will be covered by the organisation, as well as a daily stipend for plant-based subsistence. While not common, occasional evening or weekend work may be necessary to support campaigning activities. Any additional hours worked and agreed with your Manager can be reclaimed as TOIL.

Working closely with colleagues across departments and countries, you will help transform public support into coordinated action that drives measurable change for farmed animals trapped in the animal agriculture system.

Location: Remote in the UK. Must be able to travel to London team meet-ups once a month (at your own cost) and travel frequently across Europe.

For further information and to apply, please visit our website via the Apply button.

Closing date: 5pm on Friday, 18th September 2026.

Want to make a difference to people’s lives? Then join our small team at Immunodeficiency UK, a charity devoted to supporting people living with poor immune systems.

About Immunodeficiency UK

Our charity aims to create an environment that ensures those affected by immunodeficiency have the knowledge to live fully, manage their condition effectively, and have their health needs understood and addressed by the healthcare system.

Each year we help hundreds of people through our helpline, educational resources, practical support, hardship grants, and our strong patient voice. We work on a range of projects to help improve patient care. You can find out more about our work by visiting our website and reading our annual impact reports..

This is a varied and interesting opportunity working for a charity that goes above and beyond in supporting people with primary and secondary immunodeficiency. The role offers an opportunity to exercise your creativity on varied and interesting projects that can make a real difference. You will receive excellent support and encouragement from our CEO and Trustees.

Responsibilities

As the Digital Communications and Fundraising Officer, you will play a key role in raising the charity's profile and awareness of primary and secondary immunodeficiency, growing supporter engagement, and generating income to support our work.

• You’ll develop and implement a digital communications strategy
• You’ll create and publish content across our website, email, social media and digital publications
• You’ll manage the website, ensuring content is accurate, accessible and up to date
• You’ll produce multimedia content — graphics, video, photography and case studies
• You’ll manage our social media accounts and our monthly newsletter
• You’ll plan and deliver digital fundraising campaigns
• You’ll create fundraising appeals, supporter communications and impact reports
• You’ll gather and share impact stories using a storytelling approach

This job is for you if:

• You’re confident in managing social media and creating digital content
•  Are familiar with email marketing platforms, customer relationship management (CRM) systems and                WordPress
• Have experience in planning and delivering fundraising or marketing campaigns
• Have strong organisational skills and the ability to manage multiple priorities independently

Charity or non-profit experience is a plus, as are graphic design or video editing skills.

Diversity and inclusion

Immunodeficiency UK is committed to equality, diversity and inclusion, and welcomes applications from all suitably qualified candidates regardless of age, disability, gender identity, marital status, race, religion or belief, sex, sexual orientation, or any other protected characteristic.

Closing date is Friday 4th September at 5pm. Applications generated by AI will not be considered.

Interviews will take place the week commencing 14th September. 

Fantastic opportunity for a Fundraising and Grants Manager 

Advocacy After Fatal Domestic Abuse (AAFDA) is a well-established and respected national charity offering specialist and expert advocacy and peer support to families bereaved by fatal domestic abuse. We have an exciting opportunity to build upon and grow our fundraising success to date, in the role ofFundraising and Grants Manager. We are seeking an experienced fundraising professional, with the drive and determination to manage all aspects of our fundraising function.

AAFDA is currently funded by statutory bodies, trusts and foundations, corporates, events and individuals. Under your management, you will identify, cultivate and grow these existing and new fundraising streams.As AAFDA’s Fundraising and Grants Manager, you will be responsible for oversight and growth of voluntary and statutory funding income, including from individuals (regular and one-off gifts, major donors and legacy giving), community groups, trusts and foundations, corporates, the statutory sector (including Police and Crime Commissioners) and other benefactors. Starting from a strong foundation with multiple opportunities for growth, you will lead on the delivery of our ambitious, multi-year, multi-disciplinary fundraising strategy with an annual fundraising plan agreed with senior management.  With keen funder and customer awareness, you will regularly monitor and review both the plan and the strategy, in addition to working closely with our Finance Manager to manage diverse income streams and achieve income targets to fund AAFDA’s unique support and advocacy work with families bereaved by fatal domestic abuse.  Holding responsibility for maintaining and developing the website and building social media programmes, you will undertake an ambassadorial approach in all activity to assist our CEO and Director of Services to lead and manage the AAFDA brand and corporate identity, with a focus on generating earned income, by extending awareness of what AAFDA does and how successful we are.

This is a permanent role, subject to funding, but we will work hard (alongside you!) to secure this.

In return for joining us, we will offer you:

• 25 days annual leave per annum, plus bank holidays
• Excellent development and training opportunities
• Pension Scheme
• Healthcare Scheme
• Employee Assist Scheme

Application closing date: 11th September 2026 5pm 

We review applications on a rolling basis. We reserve the right to close this posting early if we find the right candidate, so early submission is strongly advised.

To apply please submit a supporting statement along with your CV.

Applicants will be shortlisted according to how well they meet the criteria in the person specification.  Please highlight and explain how you meet these in your supporting statement. If you have been shortlisted for interview, you will be informed by email. Regrettably, we are normally unable to acknowledge unsuccessful applicants. 

We welcome applications from candidates with experience of domestic abuse.  We are also committed to diversity and strongly encourage applications from those with Black or Minoritised backgrounds.

We are not currently able to accept applications if you do not hold permission to work in the UK.

Registered charity no: 1185078

Unlock the potential of the UK's leading charity for families with twins, triplets and more. 

For 50 years, Twins Trust has been the UK's leading charity dedicated to supporting families with twins, triplets and more. Through trusted information, practical support, research, campaigning and a thriving community, the charity helps families navigate every stage of their journey while championing lasting improvements in healthcare, public policy and wider society. 

Today, Twins Trust has strong foundations: a committed Board, a talented remote team, a clear strategic direction and a trusted national reputation. The opportunity now is to unlock its full potential—expanding its reach, strengthening its influence and ensuring many more families benefit from its support, expertise and advocacy. 

Chief Executive 

Circa £80,000 – £85,000 
Remote, with some travel to London  

As Chief Executive, you will provide inspiring strategic leadership to Twins Trust, leading the delivery of the current strategy while shaping the organisation's next phase of growth and impact. Working closely with the Board, staff, volunteers, and partners, you will strengthen the charity's financial sustainability, grow membership, diversify income, raise the charity's national profile and ensure it continues to be the trusted voice for families with twins, triplets and more. 

We are looking for a leader who brings: 

• A successful track record of strategic organisational leadership, with the ability to develop strategy, inspire teams and deliver sustainable organisational growth.

• An empowering and collaborative leadership style, with experience of coaching and developing high-performing teams within a values-led organisation.

• Experience of fundraising, income generation and income diversification, with the strategic mindset to strengthen long-term financial sustainability.

• Credibility as an external ambassador, with the ability to build influential relationships across healthcare, government, funders, members and the wider voluntary sector, increasing the organisation's profile and influence.

• An understanding of babies, children, parenting, maternal health, early years or closely related sectors, alongside a genuine commitment to improving outcomes for families with twins, triplets and more.

This is a rare opportunity to lead an organisation with strong foundations and exceptional potential. If you are excited by the opportunity to grow impact, strengthen influence, empower an outstanding team and help even more families with twins, triplets and more access the support they need, we would love to hear from you. 

How to Apply  

To find out more, please visit the Prospectus website.
 
To express your interest in the role, please contact Harjit Bola or Erica Ritchie at Prospectus. 

Recruitment Timeline 

Deadline for applications: Sunday 13 September 

Interviews with Prospectus: 16 – 21 September 

First interviews with Twins Trust: Tuesday 29 September 

Engagement sessions: Monday 5 October 

Final stage interviews: Monday 12 October 

Job Title:  Head of Finance

Reports to:                        Chief Executive

Direct Reports:                 Finance and Business Administrator

Location: Remote – With some travel to attend meetings and events (mainly  in London but also other project areas elsewhere in the UK)

Salary: £46,542 Pro Rata

Hours: 3-4 Days per week

 About Alexandra Rose Charity 

We should all be able to eat healthy food. But right now, healthy options cost more than twice as much as junk food. It’s getting harder and harder for people to put good food on the table. In fact, the poorest fifth of UK households would need to spend 50% of their disposable income to eat the UK Government’s recommended healthy diet. Access to a choice of high quality, culturally appropriate fruit & veg is an essential building block for our mental and physical health. We need to put this right. 

We’re on a mission to give people access to their choice of fresh fruit & veg, in the heart of their community. At Alexandra Rose, we are proud to deliver a mix of practical, place-based projects and national advocacy to shape a fairer future, where everyone can afford and enjoy fresh fruit & veg with dignity. 

If this aligns with how you see the world, and you want to use your skills and experience to help us build towards it, you’ll feel at home here. 

About the role  

We are looking for an experienced Head of Finance to help deliver our mission and support the growth and consolidation of the charity. As a member of our Senior Management Team, you will play a key role in implementing our new strategy as well as managing risk.

You will take overall responsibility for the organisation’s financial management, working closely with the Chief Executive and the Treasurer.

You will provide effective finance partner support to other functions within the charity to support its fundraising, operations and development.

You will also be responsible for the line management of the Finance & Business Administrator, working with the Chief Executive to both oversee and support the governance and compliance services function of the charity.

We want our organisation to reflect the diversity of the communities we work in, and we welcome applications from people from all backgrounds.

Interview Process: The selection process may include two interviews:

We are entering a period of unprecedented opportunity. Advances in treatment, increasing recognition of the condition, and growing awareness of healthcare inequalities provide a unique chance to strengthen our impact and expand our reach across the UK. Our ambition is bold: to engage and support at least 50% of the UK myasthenia community as members within the next five years, creating a movement that is representative, influential and impossible to ignore.

The successful candidate will lead the development of a thriving national community of people affected by myasthenia, ensuring that individuals and families feel connected, represented and empowered. They will transform community insight into meaningful campaigns, influence policy and healthcare decision-making, and position myaware as the authoritative voice for everyone affected by the condition.

Success in this role will be measured not only by influence and campaigning outcomes, but by the growth, engagement and mobilisation of our community. The Director will play a central role in delivering our ambition to reach, engage and retain 50% of the UK's myasthenia population as members and active supporters within five years, creating a change-maker movement that is representative of our goals.

Key Responsibilities

Community Growth and Engagement

• Contribute towards the development and delivery of a comprehensive membership growth strategy aimed at engaging at least 50% of the UK myasthenia community within five years.
• Build a deep understanding of the patient journey and identify opportunities to connect with people from diagnosis onwards.
• Lead the development of services, programmes and engagement approaches that increase membership recruitment, retention and participation.
• Ensure that people affected by myasthenia are at the heart of all organisational decisions, campaigns and strategic priorities.
• Create pathways for members, volunteers, supporters and ambassadors to actively contribute to myaware's work.
• Use data, insight and market intelligence to measure community reach, identify underserved groups and drive continuous improvement.

Campaigning, Policy and Influence

• Develop and implement a national campaigning and influencing strategy focused on awareness, equity of care, access to treatment and service improvement.
• Position myaware as a leading voice within healthcare, policy and rare disease discussions across the UK.
• Build strategic relationships with parliamentarians, government departments, NHS organisations, Integrated Care Boards, NICE, clinicians, researchers, industry partners and allied charities.
• Lead public affairs activity, including consultation responses, parliamentary engagement, policy briefings and stakeholder events.
• Ensure lived experience evidence informs policy development, healthcare decision-making and treatment access discussions.

Organisational Leadership

• Serve as a member of the Senior Leadership Team and contribute to organisational strategy and performance.
• Foster a culture of innovation, inclusion, collaboration and measurable impact.
• Work closely with fundraising, communications, partnerships, and service delivery colleagues to maximise organisational reach and effectiveness.

Awareness and Public Engagement

• Increase awareness and understanding of myasthenia among healthcare professionals, policymakers, media and the public.
• Lead initiatives that strengthen myaware's visibility, reputation and influence.
• Support the development of compelling campaigns, media activity and storytelling that inspire engagement and drive action.
• To be the spokesperson for myaware.

What Success Looks Like

Within five years, the postholder will have:

• Led significant growth in membership, progressing towards engaging at least 50% of the UK's myasthenia community.
• Increased participation in surveys, campaigns, events, volunteering and lived-experience activities.
• Established myaware as the recognised national voice for people affected by myasthenia.
• Secured meaningful influence in policy, healthcare and treatment access discussions.
• Generated evidence of improvements in awareness, service delivery, treatment access and patient representation.
• Built a highly engaged and empowered community capable of driving change at local, national and system levels.

Person Specification

Essential Experience

• Significant senior leadership experience within the charity, healthcare, membership, public affairs or advocacy sectors.
• Proven success in growing and engaging communities, memberships, movements or supporter bases at scale.
• Experience developing and delivering campaigning, influencing or public affairs strategies that have achieved measurable outcomes.
• Strong track record of building relationships with senior external stakeholders and decision-makers.
• Experience using data, insight and lived experience to shape organisational priorities and influence strategy.
• Experience leading, motivating and developing high-performing teams.

Essential Knowledge and Skills

• Outstanding strategic thinking and leadership abilities.
• Exceptional communication, influencing and relationship-building skills.
• Strong understanding of community mobilisation, supporter engagement and membership growth.
• Ability to translate complex healthcare and policy issues into compelling public narratives and calls to action.
• Strong analytical and performance management skills.
• Commitment to inclusion, co-production and patient-centred approaches.

Personal Attributes

We are looking for someone who is:

• Ambitious about building one of the UK's most engaged rare disease communities.
• Passionate about amplifying the voices of people with lived experience.
• Collaborative and inspiring.
• Politically astute and credible with senior stakeholders.
• Resilient, innovative and outcomes focused.
• Motivated by creating lasting change for people living with long-term health conditions.

Why Join Us?

myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia. 

This is a rare opportunity to build a community movement capable of transforming lives. You will lead the growth of a national membership community, shape policy and healthcare conversations, and help ensure that every person affected by myasthenia feels informed, supported, represented and connected.

Together, we aim to ensure that within five years, at least half of everyone living with myasthenia in the UK knows, trusts and actively engages with myaware as their community, their advocate and their voice.

We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition. 

We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors. 

Members of myaware have full access to a wide range of support services and events including our specialist benefits and welfare advisor. 

myaware supports people with myasthenia and their families.  We campaign for better medical services for people with myasthenia and work to inform medical professionals. 

The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK. 

Benefits

• Generous holiday allowance
• Perkbox account (global benefits and rewards platform)
• Group Life Assurance after 6 months of service 
• NEST workplace pension scheme
• Free inhouse staff benefits and welfare advice 
• Investment in your personal and professional development
• Annual salary review

Application instructions

Candidates should submit their CV and tailored covering letter by: 11:30pm on Friday.4th September

Provisional interview dates will be week commencing: 28.9.26

Interviews will be held over Microsoft Teams.

Applications submitted without a tailored cover letter will not be considered.

This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by myaware.

This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.

The client requests no contact from agencies or media sales.

World Physiotherapy (formerly known as the World Confederation for Physical Therapy) is the sole international organisation for physiotherapy, representing more than 600,000 physiotherapists worldwide through its 128 national/country member organisations. Founded 1951, World Physiotherapy is a registered charitable incorporated organisation in England and Wales (number: 1207425).  We have been in official relations with the World Health Organization (WHO) since 1956 and we are committed to advancing the science, standards and practice of physiotherapy and promoting the important contribution of the physiotherapy profession globally in improving health and wellbeing through policy advocacy, education and training, leadership development, health systems and capacity strengthening, research, standard-setting, quality assurance and accreditation.

World Physiotherapy is also a member of the World Rehabilitation Alliance (WRA), a WHO global network of stakeholders whose mission is to support the implementation of the Rehabilitation 2030 Initiative through advocacy activities. It focuses on promoting rehabilitation as an essential health service that is integral to Universal Health Coverage and to the realization of Sustainable Development Goal 3 (“Ensure healthy lives and promote well-being for all at all ages”).  Further information about World Physiotherapy can be found on our website.

Consultant opportunity: developing our long-term vision and strategy

Now in its 75th anniversary year, World Physiotherapy is seeking an experienced consultant(s) to co-ordinate the development of its Physio 2040 long-term aspirational vision and a five-year strategic plan (2027-32) that operationalises it.

This is a two-part but interlinked assignment.  Working closely with World Physiotherapy’s member organisations, global leadership, key stakeholders and staff, the successful consultant(s) will deliver an inclusive, evidence-based horizon-scanning and strategy development process, ensuring that our 2040 vision statement and strategic plan are completed ahead of the World Physiotherapy Congress in Guadalajara, Mexico in May 2027.

We are looking for a consultant or team of consultants who can:

• Coordinate and deliver the agreed vision and strategy development process, managing timelines, governance, stakeholder engagement and delivery milestones to ensure that both are completed on time and within budget.
• Facilitate workshops and engagement activities, develop the new strategic framework, support the approval process and help translate our new strategy into organisational priorities and work plans with appropriate reporting, monitoring, evaluation and learning embedded.

Budget

The total budget available for this evaluation is £20k, including all expenses and exclusive of all taxes.  All agreed activities and outputs must be delivered within this budget.

Further details regarding the payment schedule can be found in the World Physiotherapy - Request for Proposals Brief (below).

How to apply

Suitably qualified and experienced consultants interested in submitting a proposal should:

1. Review and consider the World Physiotherapy – Request for Proposals Brief (below).
2. Submit/ upload their proposal, fee/ pricing schedule and any supporting documentation, such as CVs and reference letters in the required format (submission link is included in the brief)
3. The deadline for proposals is on Monday 21 September 2026, 23:59 (UTC) 

Action for Global Health (AfGH) is an influential membership network convening more than 50 organisations working in global health. Its vision is a world where health equity is achieved, and every person has access to the quality healthcare they need without being forced into financial hardship.

AfGH’s strategy, extended to 2029, aims to ensure that stronger commitments from the UK Government help more people worldwide access affordable, high-quality healthcare suited to their needs. The network works by bringing together member organisations, civil society groups, and people with lived experience of health inequality – especially from low- and middle-income countries – to influence UK policy. It acts as a key link between global health civil society and government departments such as the Foreign, Commonwealth & Development Office and the Department of Health and Social Care, guided by its 10 health-equity principles.

AfGH is an independent network hosted by STOPAIDS, which provides legal, financial, HR, and administrative support.

The Position

As the Network Director, you will be responsible for convening and guiding the network, in partnership with the AfGH team, Steering Committee, wider membership and host organisation (STOPAIDS).

In this role, you will:

• Guide, oversee and review the implementation of AfGH’s 2022–2029 strategy.
• Secure AfGH’s ongoing financial sustainability and ensure accurate and clear financial reporting.
• Lead and coordinate AfGH’s policy and advocacy activities.
• Provide direction to the AfGH Secretariat, support the Membership & Development Director, line manage the Advocacy Manager, and manage relationships with STOPAIDS and Students for Global Health (partner organisation).
• Expand the AfGH membership to target groups and ensure that the network continues to engage and be driven by the membership.
• Ensure that AfGH continues to have appropriate governance in place in order to ensure effectiveness and accountability.

Benefits

We offer a number of benefits, including:

• A 28-hour (rather than 35-hour) working week policy, with no salary reductions. Staff are able to work reduced hours over 5 days or a 4-day week. We offer flexible working, with non-standard working hours.
• A home-based working policy with some access to co-working spaces across the UK and a monthly working-from-home allowance (included in salary).
• A group stakeholder pension scheme with 6% employer contributions.
• An individual learning and development budget allocated to staff members each year.
• 20 days’ annual leave per year (excluding bank holidays), plus 1 day for every year of service (up to 4 years).
• Enhanced maternity and paternity pay for employees with 1 year’s service or more.

To apply, please click the Apply button to complete our application form.

Closing date: 7th September 2026.

We reserve the right to close this advert early, should sufficient good applications be received.

Candidates must be UK-based with the right to work in the UK. Unfortunately, we cannot sponsor visa requests.

People living with or affected by health inequities, from Black, Asian or minority ethnic (BAME) backgrounds or from other minority groups are particularly encouraged to apply.