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• Travel required: 15 days / year (approx.)
• Location: Home-based in either UK, Germany or Spain.

We are seeking a Researcher to support the activities of the Patient Evidence Department of Myeloma Patients Europe (MPE).

Please send your CV and cover letter at recruitment @mpeurope. org. Applicants must have the right to work in the UK, Germany or Spain. Applications without a cover letter will be rejected. 

The following tasks and core responsibilities are non-exhaustive and subject to change depending on needs of the organisation.

Job Purpose

The Researcher will support the Patient Evidence department in generating, analysing and communicating patient-centred evidence to inform clinical, regulatory, industry, academic and policy decision-making, and to fuel progress across MPE programmes and activities. The role involves working with qualitative and quantitative data, supporting research projects and contributing to evidence-based outputs that amplify patients’ experiences and needs. The Patient Evidence department conducts our own patient-focussed research and collaborates on external projects with patient and medical organisations, universities, clinical teams, industry partners and regulatory bodies.

Main Duties and responsibilities

Perform the following duties in conjunction with and under the guidance of the Head of Patient Research:

• Independently design research projects and develop research protocols aligned with MPE’s research strategy, including surveys, interviews and literature reviews.
• Support the development of proposals to secure public and private funding to support research activities.
• Independently conduct assigned research tasks in accordance with project deliverables and timelines.
• Conduct and analyse qualitative (interviews, focus groups) and quantitative research (surveys).
• Conduct desk research (systematic and non-systematic literature reviews) on topics such as patient experiences, health systems and psychosocial impacts of myeloma.
• Maintain accurate records of participant data, safeguarding the confidentiality of participants and patient data, as necessary.
• Write up research results and prepare visualisations of data for different audiences (including for patients, clinicians, academic journals).
• Disseminate research results including presentations at international and national conferences, internal and external meetings and workshops. Represent MPE at internal/external meetings when needed.
• Collaborate with communications colleagues to design strategies to disseminate our research to wider audiences.
• Collaborate with relevant stakeholders to develop recruitment and involvement strategies to enhance participation from underserved groups and from different parts of Europe.
• Engage with patients, families, clinicians, patient organisations and other stakeholders involved in MPE patient evidence projects and other myeloma research.
• Provide administrative and organisational support for the Research Advisory Committee.
• Contribute to our member research support training programme including delivering workshops and training events on research design and methodology.

Other responsibilities

• Undertake any other reasonable duties as required by the Head of Patient evidence.
• Critically appraise and provide advice to the wider MPE team on research and evidence requests.
• Build good relations with members, internal and external stakeholders (including doctors, researchers and medical representatives within companies).
• Respond to external patient organisations’ requests on research and evidence topics.
• Attend scientific congresses and meetings and stay abreast of important developments related to myeloma patient evidence.
• Develop content for MPE website, social media and other communications.
• Participate in advisory boards for the pharmaceutical industry.
• Engage with training and continuing professional development.

Essential criteria

• An undergraduate degree in a relevant subject (such as psychology, social sciences, health policy, health and social care, public health or related fields)
• Master’s degree in a relevant subject (MRes Health Research, MPH, or health-related subject MSc with substantive research component)
• A minimum of 3 years experience conducting applied health research
• Knowledge and experience of qualitative and quantitative research methodologies including surveys, focus groups and interviews applied to health-related research
• Strong skills in qualitative, quantitative or mixed-methods analysis.
• Understanding of principles of Good Clinical Practice in research.
• Proficient at Office suite – Word, Excel, PowerPoint (or equivalent), and specialist quantitative/qualitative analysis software (e.g. SPSS/R, or Atlas/Nvivo).
• Ability to work from home in a virtual setting with a team spread across Europe.
• Strong listening, communication and presentation skills.
• Rigorous work methods and high attention to detail.
• Demonstrated excellence in writing, proofreading, and editing in English.

Desirable criteria

• A PhD in a related field
• Project management experience
• Experience in cross-national research
• Experience in working with patients, researchers, doctors and representatives from the pharmaceutical industry desirable
• Experience in systematic or non-systematic literature review
• Publications in peer-reviewed journals
• Familiarity with patient-reported outcomes (PROs) and patient experience data
• Knowledge/expertise of cancer patient experience research
• Knowledge of drug development process and clinical trials
• Knowledge and experience of ethical review procedures
• Fluency in additional European languages

Personal attributes

• Organised, with excellent project management and time management skills.
• Ability to lead and work independently on assigned tasks and take appropriate initiative.
• A motivated and self-aware team player, who can work independently or collaboratively with equal success.
• Ability to explain complex scientific terms and knowledge into lay language.

We offer:

• Opportunity to contribute to impactful, patient-centred work at a European level.
• An exciting position in the emerging field of evidence-based patient advocacy, working together with key patient advocacy leaders across Europe.
• Permanent position with flexible hours giving the opportunity to progress and to integrate in a dynamic, friendly and multi-cultural team working from different European cities.

About MPE

Myeloma Patients Europe (MPE) is a pan-European organisation representing 57 myeloma and amyloidosis patient groups from over 35 European countries. It is registered as an international non-profit organisation under Belgian Law. A Board mainly composed of patients and caregivers is elected by the membership to oversee the strategy and governance of the organisation. A team of 14 staff members runs remotely the day-to-day operations, programmes and services within 4 divisions: Access and Policy, Medical Education and Scientific Engagement, Patient Evidence and Member and Patient Community Programmes.

MPE’s vision is a world where every person affected by myeloma has access to the knowledge, diagnostics, treatment and care they need to have the best possible outcomes and quality of life.

Our mission is to drive advocacy by empowering the myeloma community through research, education and collaboration.

Read more about our strategic goals for 2025-2030 here: w ww.mpeurope.or g/about-mpe/our-goals/

About the Patient Evidence department

The MPE Patient Evidence department was established in 2020 to generate evidence to better understand and articulate patients’ perspectives, influence decision-makers and use evidence as a driving force for progress across our strategic goals.  The team is led by Dr Eilidh Duncan and our goal is to lead the development of robust patient evidence to improve experiences, outcomes and access for myeloma patients and their families. We achieve this by spearheading novel patient research initiatives that address gaps in the evidence and ensure the meaningful inclusion of patient perspectives in research design, conduct and interpretation. We use the evidence we generate internally to fuel progress across all MPE programmes and activities and externally by decision-makers including those in clinical, regulatory, industry, academic and policy settings.

The deadline for applications is 1 May 2026 and all applications will be reviewed immediately afterwards. Our hiring team will schedule interviews with successful candidates to take place in the following weeks. We will be in touch following the review period regarding next steps. 

If you have any questions in the meantime, please reach out to us at our recruitment email address.

The Director of Charitable Impact is a senior leadership role responsible for defining, driving, delivering (operating), and evidencing Ben’s charitable impact. The postholder will lead the strategic and operational delivery of health, wellbeing, and support and specialist services, ensuring the charity demonstrably improves lives while strengthening its position as a credible, trusted health and wellbeing charity and thought leader for the automotive community.

Job Title: Director of Charitable Impact
Organisation: Ben – Motor & Allied Trades Benevolent Fund (The Automotive Industry Charity)
Location: Home Based, UK (with regular travel)
Salary: c. £80,000 – £90,000 per annum + £5,000 car allowance
Reports to: Chief Executive Officer
Direct Reports: Support Services Lead and Specialist Services Lead

This role combines strategic leadership, operational performance, service innovation, impact measurement, and external influence to ensure Ben delivers meaningful, measurable, and visible outcomes for those who need it most.

Key Responsibilities

Strategic Leadership & Impact

• Lead the development and delivery of Ben’s Charitable Impact Strategy aligned to organisational vision and priorities.
• Ensure the charity delivers clear, measurable, and demonstrable outcomes for individuals, families, and the wider automotive workforce.
• Embed an outcomes-driven culture focused on evidence, learning, and continuous improvement.
• Translate strategy into operational delivery plans, KPIs, and impact frameworks.

Service Delivery & Operations

• Oversee the effective delivery of all charitable programmes and services, ensuring they are high quality, accessible, safe, and impactful.
• Drive service innovation to meet emerging health, financial, and social wellbeing needs across the automotive sector.
• Ensure services are delivered efficiently, sustainably, and in line with regulatory, safeguarding, and quality / clinical governance standards.
• Use insight and data to inform service design, resource allocation, and performance improvement.

Health & Wellbeing Leadership

• Lead Ben’s evolution into a recognised, credible health and wellbeing charity for the automotive industry.
• Ensure services reflect best practice in mental health, physical wellbeing, financial resilience, and social support.
• Build partnerships with health, wellbeing, and sector specialists to strengthen service quality and credibility.
• Champion prevention, early intervention, and whole-person health and wellbeing approaches.

Impact Measurement & Evidence

• Develop and embed robust impact measurement, evaluation, and reporting frameworks.
• Ensure the charity can clearly demonstrate social value, outcomes, and return on investment to stakeholders.
• Lead production of impactful insight, data, and evidence to inform decision-making and external positioning.
• Strengthen the charity’s ability to use evidence to attract funding, partnerships, and sector influence.

Thought Leadership & External Influence

• Position Ben as a leading voice on health and wellbeing in the automotive industry.
• Develop insight, campaigns, and sector engagement that raise awareness of issues affecting automotive people.
• Represent Ben externally with credibility and authority across industry, health, and charity sectors.
• Contribute to policy, research, and sector dialogue to influence positive change.

Leadership & Culture

• Provide inspiring leadership to multidisciplinary teams, fostering a high-performance, values-driven culture.
• Build organisational capability in impact, service delivery, and wellbeing.
• Promote collaboration across the organisation, particularly with fundraising, engagement, and communications.
• Lead through change, ensuring services evolve with need and strategy.

Governance & Risk

• Contribute to Executive Team leadership, organisational strategy, and governance.
• Ensure services operate within legal, regulatory, and safeguarding frameworks.
• Manage operational and reputational risk relating to service delivery and impact.

Person Specification

Experience

• Significant senior leadership experience within the charity, health, social impact, or related sector.
• Proven track record of delivering measurable social impact and leading outcome-driven services or programmes.
• Experience of overseeing complex service delivery / operational functions.
• Demonstrable success in leading organisational or service transformation.
• Experience developing impact measurement, evaluation, or evidence frameworks.
• Experience influencing external stakeholders and building credibility within a sector or field.
• Experience leading and developing high-performing, multidisciplinary teams.

Knowledge & Understanding

• Strong understanding of physical and mental health and wellbeing, psychology and emotional wellbeing, prevention, and whole-person support.
• Knowledge of impact measurement, social value, and outcome frameworks.
• Understanding of safeguarding, quality, and regulatory considerations in service delivery (e.g. clinical governance requirements).
• Insight into the challenges affecting working people and communities (financial, health, social).
• Understanding of the charity sector, charity governance, and funding environment (desirable).
• Awareness of the automotive industry or willingness to quickly develop industry insight.

Skills & Capabilities

• Strategic thinker with strong delivery focus — able to translate vision into measurable outcomes.
• Operationally strong with ability to drive performance, quality, and improvement.
• Evidence-driven and analytical, able to use insight and data to shape decisions.
• Credible and influential communicator, internally and externally.
• Strong leadership presence with ability to inspire, engage, and lead through change.
• Collaborative and partnership-oriented.
• Strong judgement, integrity, and commitment to safeguarding and ethical practice.

Personal Qualities

• Passion for improving lives and delivering meaningful social impact.
• Purpose-driven, values-led, and mission aligned.
• Resilient, adaptable, and outcome focused.
• Curious, forward-thinking, and committed to learning and innovation.
• Empathetic and people-centred in approach.

Key Relationships

• Chief Executive and Executive Team
• Service Delivery and Impact teams
• Fundraising, Marketing & Communications teams
• Trustees and Board Committees
• External partners / organisations including automotive stakeholder or employers, health and wellbeing, welfare and charity, etc.

Success Measures

• Clear, demonstrable improvement in measurable charitable impact.
• Strong, high-quality, accessible health and wellbeing services.
• Recognised credibility as a health and wellbeing charity for the automotive industry.
• Robust impact evidence used to inform strategy, funding, and influence.
• Positive service outcomes, reach, and stakeholder confidence.