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Help Change the Future of Polycystic Kidney Disease Research
Patient & Public Involvement and Engagement (PPIE) Manager
PKD Charity
Remote (UK-based) | Part-time (22.5 hours / 3 days per week)
Salary: £33,000–£35,000 FTE pro rata (£19,800–£21,000 actual)
The PKD Charity is looking for an exceptional communicator and relationship-builder to lead patient involvement in groundbreaking PKD research.
This is not a standard engagement role.
You will help ensure that the voices, experiences and priorities of people living with polycystic kidney disease directly influence research, clinical studies and future healthcare decisions across the UK.
PKD affects around 70,000 people in the UK. It causes kidney failure, lifelong health complications and reduced life expectancy. There is currently no cure.
We believe research is stronger when patients are genuinely heard — not consulted as an afterthought.
That’s where you come in.
The Opportunity
As our Patient & Public Involvement and Engagement (PPIE) Manager, you’ll lead and shape involvement activity through the PKD Research Hub, working alongside patients, researchers, clinicians and partners to make research more inclusive, meaningful and impactful.
You’ll:
We’re Looking For Someone Who:
Experience in rare disease, kidney health or long-term conditions is welcomed but not essential.
Why Join Us?
At the PKD Charity, you’ll join a passionate national charity working to improve lives through:
This is a rare opportunity to shape a growing area of work with real national impact — while working flexibly as part of a supportive, mission-driven team.
What We Offer
✔ Fully remote working
✔ Flexible part-time hours (3 days / 22.5 hrs)
✔ 25 days annual leave pro rata + bank holidays
✔ Pension scheme
✔ Meaningful, purpose-driven work
✔ Opportunity to influence national research activity
Apply Now
For details on how to apply, please see the application pack.
Deadline 9am Monday 1st June. Interviews will provisionally be held online on Wednesday 10th June. However we will monitor applications on a rolling basis and may approach for interview at an earlier date. If we find the right candidate we may close the recruitment campaign at an earlier time, so we encourage you to get your applications in at the earliest opportunity.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
About Chapter One
Chapter One is a dynamic, growing charity with a vision of a world in which all children have the literacy skills needed to thrive. Our mission is to close the reading gap by providing children with one-to-one support at the time they need it most. We work in thirteen areas/regions of the UK and will support over 4,000 children in 2026-27.
Our unique Online Reading Volunteer programme pairs struggling five to seven-year old (P2-4) readers with reading support volunteers who are working professionals. The volunteer ask is very focused: readers commit 30 minutes a week to read with a child using a bespoke digital platform for an entire academic year. The results are transformative, boosting children's reading confidence and ability.
From a school perspective, online reading volunteers provide direct, meaningful literacy support for up to 10 pupils per class. The programme is particularly suitable for communities where it might be challenging to find parents and other volunteers who can commit to physically visiting schools to boost reading. For more information please visit our website and watch this short video!
About the Role
Chapter One is seeking a Scotland Programme Manager who is an excellent communicator and is able both to motivate and support schools and teachers to implement our online reading volunteers programme, and also to ensure that the programme’s impact and benefit to disadvantaged communities is maximised throughout the academic year.
The post is ideal for someone looking for part-time, flexible, term-time only work from a home base and who is able to travel frequently in and around Edinburgh and Glasgow. The postholder will be joining a team of established Programme Managers who work in different parts of the UK and will need to have some flexibility to work some additional hours during busy autumn weeks, and conversely to work fewer hours during quieter periods of the year.
Key Responsibilities:
Effectively explain Chapter One’s online reading volunteer programme and its benefits to school leaders and teachers.
Install, setup and maintain Chapter One equipment in participating classrooms. This will include technical configuration/troubleshooting of mobile internet hotspots with IT team support.
Organise and conduct initial teacher training and follow-up.
Ensure a smooth initial launch of Chapter One’s programme in every classroom.
Fully understand the operation of the Chapter One platform and database and effectively communicate this to others as needed.
Liaise with colleagues performing technical and volunteer support roles.
Through regular visits to/contact with schools, provide on-going embedded professional learning and support to teachers throughout the year as needed.
Proactively monitor classroom adherence/fidelity to the Chapter One model, including systematic review of data reports and volunteer feedback, taking proactive action to resolve problems that arise.
Analyse and manipulate data (largely in Google sheets) to produce reports and identify trends.
Create regular data summaries for all participating classrooms.
Lead annual review meetings for senior leadership at participating schools.
Support programme monitoring, evaluation and research as required.
Coordinate in person and virtual school ‘visits’ of volunteer teams to classrooms where necessary. This may include opportunities for Chapter One children to visit the office of the volunteers.
Liaison with corporate partners as required.
Weekly communication and status updates with Senior Programme Manager(s) and wider team.
As a new school year approaches, secure commitments from returning schools and help find and target new schools to join Chapter One’s programme.
We are looking for applicants with the following essential qualities:
Highly motivated individual with excellent interpersonal and organisational skills.
Proven track record of working at a senior level in education, project management or a related field.
Proven strength in both written and verbal communication.
Highly IT literate, with excellent computer skills, able to troubleshoot software and technical hardware issues, adept with Google suite and Microsoft Teams.
Ability to manipulate and analyse data to draw useful conclusions to improve programme delivery.
Proven ability to work independently.
Self-starter and quick learner.
Ability to adapt and embrace a changing environment.
Ability to drive and access to a car for work purposes.
Ideally, applicants will also have the following desirable qualities:
Two years of teaching/education experience with primary age children.
University degree.
How to Apply
Please send your CV (maximum 2 A4 sides) and a covering letter via Charity Jobs. Your covering letter (maximum 1 side of A4) should:
1) Explain your relevant experience and why you’re interested in this role at this point in your career.
2) Share your ability to be resilient when things are not going the way you thought, including clear examples of past experiences.
3) Explain how our organisational mission is in line with your values.
Applications that fail to meet these criteria will automatically be discounted. We understand that you may use AI to help craft your application, but do remember that we will be looking for individuals who write a letter that stands out. We want you to have every opportunity to shine and to show us your talents - please let us know if there is anything we can do to make sure the assessment process works for you.
Chapter One is an Equal Opportunity Employer. We value and celebrate diversity in backgrounds and experience and are deliberate about the kind of teams we are building. Literacy is a universal concern, and we need people from all backgrounds to maximise our innovation, creativity and impact. We especially welcome applications from persons who have experienced disadvantage and/or from those who are of Black, Asian and Minority Ethnic communities who are currently underrepresented in the organisation.
Chapter One is committed to safeguarding children and young people. All postholders are subject to satisfactory references and a PVG check. Copies of our Safeguarding Policy and Safer Recruitment Policy are available on request.
N.B. Shortlisting and phone screens are likely to take place week commencing Monday 1st June. For successful candidates, interviews are likely to take place week commencing Monday 8th June.
At Chapter One, we want to create a world where all children have the literacy skills needed to thrive.
The client requests no contact from agencies or media sales.
About Action Duchenne
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
The Events Officer will embody these values in every aspect of planning, delivering and evaluating events.
What we offer:
24-hour confidential Employee Assistance helpline
Private health insurance
Flexible hours
5% employer pension contribution
Main Purpose of the Role
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination.
This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community.
Specific Tasks
1. Event Coordination and Logistics
Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team.
Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules.
Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels).
Manage registration processes for all events and ensure attendees receive timely, accurate joining information.
Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place.
2. Administration and Operational Delivery
Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms.
Track planned expenditure and ensure costs align with budgets, escalating issues where necessary.
Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency.
Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally.
3. Stakeholder and Supplier Management
Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery.
Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams.
Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions.
4. Community and Engagement Support
Collaborate with Support Team colleagues to ensure events reflect community needs and priorities.
Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates.
Encourage and support attendance from families, young people, professionals and community partners.
5. Data Management, Monitoring and Evaluation
Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions.
Collect and analyse feedback, producing short evaluation summaries to inform future planning.
Track attendance, trends and logistical improvements, contributing to quarterly reporting.
6. Risk, Compliance and Quality Assurance
Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance.
Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Key Performance Indicators (KPIs)
Event logistics prepared within agreed timelines
Accurate event information published and updated within required timeframes
Participant satisfaction and engagement measured through surveys
Conference and event attendance targets met
CRM data entry completed within 2 working days of events
Budget expenditure tracked monthly with minimal variance
Effective delivery of regional and online events aligned with pre-agreed schedule
Person Specification
Knowledge & Experience
Essential
Experience organising in person events from start to finish for over 300 attendees.
Experience liaising with suppliers, venues and speakers.
Experience with CRM/data entry, with close attention to detail.
Experience organising and hosting remote events.
Understanding of hybrid events.
Desirable
Experience in the charity sector.
Knowledge of Duchenne or similar life-limiting conditions.
Skills & Abilities
Essential
Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners.
Understanding of the importance of safeguarding around events.
Exceptional communication skills.
Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines.
Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement.
Skilled in problem solving, with a proactive, solutions focused approach.
Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations.
Digital proficiency including Microsoft Office, CRM systems and digital communication tools.
Attributes
Essential
Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism.
Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions.
Resilient and adaptable, able to navigate complexity.
Creative, dynamic and innovative, with the ability to take ideas from concept to delivery.
Demonstrable commitment to equity, diversity and inclusion.
Personally, and professionally, responsible with high standards of integrity and accountability.
A sense of humour and the ability to bring warmth and humanity to the role.
Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Location: Remote (Based in England & Wales with occasional travel required)
Salary: £24,479 - £25,360 pro rata (£9,792 - £10,144 actual)
Hours of work: 14 hours per week
Contract type: Permanent
Why work for Kids Matter?
About us
Kids Matter is one of the UK’s fastest growing children’s charities.
Our vision is to see every child in need raised in a strong family. Our mission is to reduce the impact of poverty on children through community-based parenting programmes.
Research shows that group-based early intervention parenting groups are the most effective way to support children in need. We train peer facilitators in local churches - the largest voluntary body in the country - to run our affordable, accessible and highly effective parenting programmes, written by Clinical Psychologists. They come alongside parents and carers, building long-lasting community in addition to encouraging confidence and learning positive parenting skills.
We value difference and diversity, and we want our workplace to be built on shared values of equality and mutual trust, with team members representing the wide range of backgrounds and experiences that exist within the UK. We therefore actively encourage applications from people of diverse backgrounds and varied experiences, particularly those who are African, Afro-Caribbean, Asian or part of other minority ethnic communities, who have lived experience of the impact of low-income/low-support circumstances, and who are living with a disability or identify as being neurodivergent.
About the role
The Accounts Assistant role involves:
About you
Are you organised with good attention to detail? Do you have booking training or experience? Are you a Christian with an active faith in Jesus? Do you have a passion for Kids Matter’s vision of seeing every child in need raised in a strong family?
Then we would love to hear from you!
How to apply
You can apply for the Accounts Assistant position by clicking ‘Apply via Website’ and completing a copy of our online application form.
The deadline for applications is Monday 25th May at 4pm. All successful and unsuccessful applicants will be notified by email.
We also ask for all applicants to submit an Equal Opportunities Monitoring Form, which will be sent to you to complete following the submission of your application. This form will be used for anonymous analysis to ensure our overall recruitment procedures are fair and transparent. It will never be viewed or used as part of the selection process. It is optional to submit this form.
If you would like any application/interview support or you need any reasonable adjustments throughout the application process, or if you would like an informal phone call to ask questions or discuss the role, please contact Katie Washington (HR & Systems Manager).
Please see the job pack for more details on the role and application process.
We exist to reduce the impact of poverty on children in need across the UK.


The client requests no contact from agencies or media sales.
About This Job
Are you passionate about Agile delivery, team facilitation, and helping digital products reach their full potential? As an Agile Delivery & Scrum Manager within Cadet Digital Services, you will play a crucial role in ensuring that our digital platforms, including the Westminster MIS and its supporting applications, are delivered efficiently, collaboratively, and with a strong focus on user needs.
Working closely with the Product Owner, developers, QA engineers, and our Solutions Architect, you will lead Agile ceremonies, help maintain a healthy delivery rhythm, and support the refinement and organisation of work across multiple streams. You will play a key part in turning strategic intent into clear, actionable delivery plans, and will work autonomously to keep delivery flowing smoothly.
If you enjoy creating structure, coaching teams, solving delivery challenges, and helping technical and non technical colleagues work effectively together, this role offers the opportunity to directly shape how digital services support cadets and volunteers across the UK.
Essential Skills/Experience
· Experience working as a Scrum Master, Agile Delivery Manager, Agile Project/Delivery Coordinator, Business Analyst, or similar role within a digital or technology environment.
· Strong facilitation skills and confidence leading Agile ceremonies.
· Experience translating requirements into user stories and delivery ready artefacts.
· Experience collaborating with multidisciplinary teams (developers, testers, designers, product roles).
· Good understanding of Agile delivery practices (Scrum, Kanban) and practical application in real teams.
· Strong communication skills with the ability to work across technical and non technical groups.
· Ability to manage competing priorities, track risks, remove impediments, and keep work moving.
Please refer to the attached Job Description for further information.
Our charity
ACCT UK is a national youth charity dedicated to improving the life chances of young people. The Combined Cadet Force Association (CCFA) is a charity dedicated to the promotion of the ideals and activities of the Combined Cadet Force in schools. Together we want to ensure that every young person has the opportunity to learn new skills, build confidence and be inspired through their cadet experience.
We want to develop the youth leadership and training abilities of adult volunteers whilst also helping young people to access cadet activities through fundraising, grant-making, developing new resources and direct support.
We strongly believe that everyone benefits when you help young people to develop their character and values through activities that stretch and mature them. We also know that when young people engage with others at a range of levels in their communities it builds confidence and improves empathy for other’s lives.
Who we are
By joining ACCT UK you will help us to reach more young people and make a greater difference and we look forward to working with you. We actively promote and encourage you to explore ideas that improve all aspects of the charity’s work in pursuit of its charitable aims.
The charities are proud of our diverse teams, with people on different working patterns, from different backgrounds and at different life-stages. Our experience has taught us that having people with different perspectives and different lived experiences leads to better outcomes for our beneficiaries. If you are wondering if our organisation is for someone like you, the answer is yes! Please apply and explain how you, your experience, your talent and your potential are the right fit for this role.
What we can offer you
In addition to your salary, we offer all staff:
· Flexible working arrangements (you agree a working pattern with your line manager).
· The ability to work both from home and from our Aldershot office.
· Personal Accident Insurance, including loss of earnings cover and death benefit.
· 15 days of sick pay in any 12-month period (after 12 months employment - pro-rata for part time staff).
· A contributory pension scheme (you contribute at least 5% and we will contribute 10%).
· Good leave allowances (which are offered pro-rata for part time staff):
o 20 days annual leave plus Bank Holidays.
o Additional privilege leave, on set days each year, such as between Christmas and New Year.
o An additional five days of volunteering leave.
· Support for qualifications and personal development.
· Employee Assistance Programme.
· Season ticket loan.
· Railcard (if you are eligible)
· A caring and supportive team environment.
How to apply
Please send a CV and Cover letter that details how you meet the requirements of the job description by 2359hrs by Sunday 24th May 2026.
Interviews will be held virtually during the week commencing Monday 4th June 2026.
While AI tools can be beneficial, we value the personal touch and authenticity in job applications. We encourage you to highlight your unique experience, knowledge, skills, and abilities, ensuring all information is accurate. Please use AI tools responsibly and with integrity throughout the application and selection process.
Please note that as a charity dedicated to improving the lives of young people, we require staff to make a declaration about any relevant convictions, undergo both a Disclosure and Barring Service check and a Baseline Personnel Security Standard (BPSS) check (one of the requirements being that applicants must have been resident in the UK for 3 years). In addition, we will follow up references.
Please be advised that this position may close earlier than the stated deadline if a sufficient number of high-quality applications are received. To ensure your application is considered, we strongly recommend submitting it as soon as possible. Candidates will be notified of the next stage in the recruitment process if they are shortlisted.
Interview Process
Stage 1: Application questions
Stage 2: Assessment
Stage 3: Interview
Army Cadet Charitable Trust (ACCT) UK aims to give all young people the opportunity to develop and achieve through Army Cadets activities.



The client requests no contact from agencies or media sales.