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19 Individual giving and legacy senior fundraiser jobs
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Amersham, Buckinghamshire (Hybrid)
c. £75,000 per year
Full-time or part-time
Permanent
Job description
An exciting opportunity!
This is a rare and genuinely exciting opportunity to lead the UK's only dedicated charity supporting children, adults and families affected by MPS, Fabry disease and related lysosomal storage disorders. Following the current Chief Executive's planned move to become Managing Director of Rare Disease Research Partners (RDRP) in January 2027, the incoming CEO will take the helm of an organisation with over forty years of history, a trusted national reputation and a growing role on the international rare disease stage. The successful candidate will shape the strategic vision for more than 1,800 families, oversee the close partnership between the Society and its research subsidiary RDRP, and champion the patient and family ethos that sits at the heart of the organisation's work. It is an opportunity to combine ambitious strategic leadership with deeply meaningful, human impact, working alongside a committed Board, Senior Leadership Team and wider community of clinicians, researchers and pharmaceutical partners.
As our next Chief Executive, you will
- Define and deliver the MPS Society’s strategic vision.
- Provide confident oversight of governance, finance, compliance and reporting.
- Effectively manage the operational alignment between the MPS Society and RDRP.
- Always keep the members and family voice at the heart of strategy, service design and decision-making.
- Build and maintain senior-level relationships with statutory bodies, government agencies, pharmaceutical partners, clinical expert centres and other key stakeholders to support the Society’s objectives, influence policy and practice, and protect its professional reputation.
- Act as a visible and credible public voice to raise awareness, improve visibility, support, treatment access and outcomes for people affected by MPS, Fabry disease and related conditions.
- Collaborate with other rare disease bodies, patient organisations and other key audiences.
- Lead and empower the senior leadership team through effective delegation, early involvement in strategic discussions, clear accountability and support for individuals to flourish.
- Encourage an open, supportive work environment allowing creativity and building staff confidence.
- Help shape the future of the MPS Society.
About you
- Self-motivated, with the drive to lead the organisation through a period of change and transition.
- Unquestionable probity and personal integrity, given the trust placed in the CEO by families, trustees and partners.
- Exemplary written and verbal communication skills, able to convey complex scientific and clinical information to audiences ranging from clinicians to families with no prior knowledge of MPS disorders.
- Strong self-awareness, with insight into their own leadership style and impact on others.
- Emotional resilience, able to sustain performance while supporting a community facing life limiting conditions.
- A collaborative and empowering leadership style, able to build trust, delegate effectively and help individuals across the organisation flourish.
- Genuine passion for the Society's mission, with a family and member-first ethos.
- Confidence to build relationships across a wide range of stakeholders, from beneficiaries and Trustees to politicians, media and pharmaceutical partners.
- A proactive, positive approach, comfortable reacting to change and organising their own work to meet deadlines.
- Confidence speaking publicly on behalf of the organisation and the people it represents.
Why join us?
A close-knit, values-led culture. With just over thirty staff across the Society and RDRP combined, this is a place where the CEO can know the team personally, work closely with families day-to-day, and see the direct results of decisions rather than managing at a distance through layers of bureaucracy.
- Genuine autonomy to shape direction. The Board is explicitly looking to the new CEO to bring fresh thinking on technology, AI, and digital tools, and to give real freedom to modernise fundraising, services, and engagement rather than simply maintaining what already exists.
- A stable foundation to build from over forty years of track record, trusted relationships and a strong national reputation mean the incoming CEO can focus energy on vision and growth rather than firefighting or rebuilding credibility from scratch.
- Proximity to cutting-edge science: the Society's close relationship with RDRP gives the CEO regular exposure to advances in rare disease research and treatment access, while day-to-day research leadership sits with the RDRP Managing Director, allowing the CEO to focus on strategy, people and sustainability.
- A high-visibility, high-influence platform. Regular contact with government, pharmaceutical companies, clinicians and international rare disease bodies offers strong opportunities to build a public profile and personal network well beyond the charity sector.
- A team that already shares the mission. Staff are described as passionate about the Society's aims, and as having a family-first ethos, so the new CEO inherits a culture to lead and empower rather than one that needs to be built from the ground up.
- Work with a different kind of return. Beyond salary and career progression, this role offers the less tangible reward of knowing that strategic and financial decisions translate, into better support for families facing some of the rarest conditions in the country.
Benefits
Join us and you will be working for a caring charity offering:
- A competitive salary
- Generous annual leave
- Extra leave between Christmas and the New Year
- Contributory pension
- Life assurance (subject to the conditions of the scheme)
- Employee assistance programme offering support 24/7
Further information
The successful candidate must be eligible to work in the UK.
The main duties, responsibilities and requirements of this role can be viewed in the job description on our website.
Salary to be agreed depending on experience and will be pro-rata for part time hours.
This is an essential car user post. The applicant must hold a current UK driver’s licence, with no more than 6 points, have access to a car and be able and willing to drive UK wide as required.
This senior role requires flexibility in working hours and location. It is primarily offered on a hybrid basis with a minimum of 2 days in our Amersham, Buckinghamshire, office each week. As part of the role, UK and overseas travel is necessary, which may on occasion include early morning and/or evening working and sometimes overnight stays. We have policies in place to ensure that any unsociable hours worked over the weekend are fairly compensated through TOIL.
This role will require an Enhanced Disclosure and Barring check (DBS) details of which can be found in the job description.
For an informal discussion about the role or the work of the MPS Society, please contact Dr Fiona Stewart. Contact details can be found on the full job description. Kindly note, meetings with other relevant people will be available to shortlisted candidates at interview stage.
Application Instructions
Please include your CV with a supporting statement of no more than 800 words. Your supporting statement should include an answer to the question below:
The MPS Society supports individuals and families affected by mucopolysaccharidoses (MPS) and related disorders. What interests you about coming to work in this area, and what motivates you to contribute to supporting individuals and families affected by these conditions?
Organisation
MPS SOCIETY
View profile
Registered Charity
21 - 50
Registered Charity
21 - 50
To transform lives through specialist knowledge, support and advocacy, and research.
Refreshed on: 15 September 2026
Closing date: 25 September 2026 at 23:30
Job ref: 2026CEO
Tags: Campaigns, Communications, Policy, Advocacy, Business Development, Operations, Compliance / Quality, Data Protection, Health / Medical, Learning Disability, Risk Management, Safeguarding, Strategy, Youth / Children, Governance / Management
The client requests no contact from agencies or media sales.
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Remote
£40,000 - £45,000 per year
Full-time
Permanent
Disability
∙
Elderly
∙
Health
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Job description
REMAP is a national charity which helps disabled people across the UK, achieve greater independence and a better quality of life. Our community of volunteer engineers design and create equipment when no commercial alternative exists – at no charge to the individuals we help. We are the UK’s only charity providing innovative, custom made and personalised equipment for disabled people.
We are looking for an experienced Fundraising Manager to focus on leading and developing a diverse programme of fundraising activities that will generate sustainable income and support the organisation’s very compelling cause. REMAP is unique.
Our new Fundraising Manager will be ambitious and enthusiastic, with outstanding written communication and interpersonal skills who is able to develop excellent relationships with volunteers, donors and staff. They will:
- Develop and deliver an effective fundraising plans
- Build relationships with donors, trusts, foundations and corporate partners
- Manage applications, reporting and fundraising targets
- Work closely with REMAP's CEO and colleagues to communicate the impact of our work
To apply please submit your CV and Covering Letter outlining how you meet the personal specification by the deadline of midnight on Monday 28th September 2026. Interviews will take place online via Teams on 12th & 13th October 2026.
Organisation
www.remap.org.uk
View profile
Registered Charity
6 - 10
Registered Charity
6 - 10
REMAP exists to improve the quality of life for people who experience short or long-term disability through infirmity, illness or ageing.
Posted on: 09 September 2026
Closing date: 28 September 2026 at 00:00
Tags: Fundraising, Community Fundraising, Corporate Fundraising
The client requests no contact from agencies or media sales.
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London, Greater London (Hybrid)
£37,904 per annum (pro rata'd from £47,380 FTE)
Part-time
Permanent
Job description
Join the RHN Fundraising Team and help make a profound difference to the lives of people living with neuro-disability!
We’re looking for an experienced Trusts & Major Gifts Manager to lead and grow a key area of fundraising at the Royal Hospital for Neuro-disability. This is an exciting opportunity to shape our trusts and foundations and major gifts programme, build strong relationships with funders and supporters, and secure significant income to enhance the lives of our patients and their families.
With a 170-year legacy of philanthropy and an ambitious fundraising programme, you’ll play a pivotal role in helping the RHN continue to deliver services and activities.
Please note this a part-time role working 4 days a week.
Job title: Trusts and Major Gifts Manager
Department: Fundraising
Contract: Permanent, part time (4 days per week)
Salary: £47,380 per annum pro rata (£37,904 actual salary for the 4 days a week)
Location: Putney, South West London with 1 day per week working from home
Key responsibilities
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Lead income generation, driving the team to achieve an annual target of £1.25m+ and developing a strong, sustainable pipeline of trusts, foundations, statutory and lottery funding.
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Manage and develop the team, setting targets and KPIs, allocating opportunities effectively, and providing coaching, support and constructive feedback.
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Build and nurture funder relationships, identifying new prospects, developing tailored stewardship plans, and representing the RHN through meetings, visits and presentations.
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Develop compelling funding applications, working across the organisation to demonstrate impact, understand funding needs and secure multi-year and transformational grants.
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Stay ahead of the funding landscape, monitoring trends and emerging opportunities and advising on potential new sources of income.
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Oversee effective fundraising management, including budgets, reporting, CRM records, application deadlines and performance against targets.
Person specification: Essential (E) and Desirable (D)
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Educated to degree level (or equivalent) (E)
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Fundraising qualification (D)
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Working knowledge of fundraising best practice; at least 2 years’ experience of grant fundraising; proven record of securing gifts of 5/6 figures and multi-year opportunities (E)
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At least 2 years’ experience in a team management role (E)
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Experience of Raiser’s Edge (or similar fundraising database) as a tool in supporter relationship management and proficiency in Microsoft Office. Appropriate training can be provided. (E)
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Experience of using research techniques to acquire information about existing and prospective funders (E)
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Excellent prospect research and profile creation. (E)
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Excellent interpersonal skills – strong influencing, relationship building and networking skills to develop and nurture donor relationships. Ability to quickly establish rapport with a diverse range of people. (E)
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Ability to conceive and develop complex proposals (E)
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A flexible approach to work as this role will require some outside of normal office hours working. (E)
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Comfortable working in a hospital setting where interaction with patients, staff, and families is common place (E)
Why the Royal Hospital for Neuro-disability is a great place to work:
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Generous Annual Leave entitlement
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Free counselling and therapy sessions and other mental wellbeing support through our partner CIC Wellbeing
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Get involved in our free on-site wellbeing programs, including weekly yoga, and monthly pottery club (we are the UK’s only hospital with its own kiln)!
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Draw down a percentage of your monthly wages a few weeks early to help with unexpected costs.
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Financial support services such as low-interest loans and help with savings accounts through our partnership with London Capital Credit Union.
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Join our wellbeing networks to connect with people in our hospital; we have a Pride network, Women’s network, and our Race Equality network. We also have heritage events to celebrate the diversity of our workforce – most recently we had a South East Asian celebration.
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Free on-site parking (rare in London!)
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More benefits: Cycle2Work scheme, tech purchase support scheme, Blue Light Card discounts, and more
For more details and a full Job Description, please click the apply now button to be re-directed to our careers page.
Organisation
Royal Hospital For Neuro-Disability
View profile
Registered Charity
501 - 1000
Registered Charity
501 - 1000
The RHN is a charity, independent from the NHS but working closely with it, to provide the best possible care for people living with neuro-disability.
Refreshed on: 06 September 2026
Closing date: 25 September 2026 at 15:25
Tags: Fundraising, Corporate Fundraising, Major Donor, Trusts / Foundations, Digital Fundraising
The client requests no contact from agencies or media sales.
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Hamilton, South Lanarkshire (Hybrid)
£35,030 - £37,111 per year
Full-time
Permanent
Job description
Community Volunteers Enabling You (COVEY) has been a lifeline for children, young people and families across Lanarkshire since 1992. We provide one-to-one and group-based befriending, mentoring and family support services tailored to those who need it most. Our mission is to help children, young people and families become more resilient, safe and better equipped to reach their full potential.
As Fundraising Manager, you will lead the development of community fundraising, corporate fundraising and fundraising events (either held by us or undertaken by members of the public such as the Kiltwalk), helping COVEY grow sustainable unrestricted income and build long-term relationships with supporters.
This is a brand new role with real scope to build on COVEY’s trusted place in the local community, developing new fundraising opportunities and partnerships, as well as building on our existing relationships with volunteers, staff, trustees, supporters, funders, schools, employers, community partners and local networks.
You will also help shape fundraising activity linked to COVEY’s 35th anniversary in 2027, using this milestone to celebrate the children, young people and families we have supported over this time (and the volunteers and staff that made it happen), in turn raising our profile and build long-term supporter relationships beyond the anniversary year.
This role would suit someone who is confident, proactive and relationship-focused, with the ability to engage people, spot opportunities, make compelling asks, build partnerships and turn interest into meaningful support for COVEY.
What we’re looking for:
- A successful track record of generating income, developing partnerships, identifying new leads and converting opportunities into active support
- Previous experience of fundraising, which could include community fundraising, corporate fundraising, supporter stewardship, sponsorship, challenge events, employee fundraising, Charity of the Year partnerships, etc
- Excellent communication and relationship-building skills, including confidence in networking, presenting and making fundraising asks
- Strong planning and organisational skills, with the ability to manage fundraising activity, events, budgets, supporter communications and CRM records
- A collaborative, supporter-focused approach and a strong commitment to COVEY’s mission, values and outcomes
COVEY is entering an important period of growth. Our 2025-28 Strategy sets out ambitious plans to increase income, grow unrestricted funding, strengthen our external profile and develop wider community support for the charity. The Fundraising Manager will play a key role in achieving this, and will be able to shape exactly how we do this from the ground up.
What We Offer
We offer a rewarding and fulfilling role with the opportunity to develop your skills and career in an enriching environment. Our benefits package includes:
- 6% employer pension contribution
- 22 days annual leave (rising to up to 27 days) and 10 public holidays
- One special leave day to celebrate your birthday
- Flexible working
- HSF Health plan (including dental, optical, physio claim back, personal accident coverage, GP, mental health counselling, legal support, and discounts for gym, cinema, and shopping)
- Quarterly staff wellbeing activities
- Access to ScotWest Credit Union (loans, mortgages, and savings accounts)
- Access to learning and development opportunities
Organisation
Posted on: 01 September 2026
Closing date: 28 September 2026 at 15:18
Tags: Community Fundraising, Corporate Fundraising, Digital Fundraising
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