About the role
Cardiomyopathy UK's Director of Research and External Affairs leads the charity's research, policy and advocacy, and communications and marketing functions, with a team of four staff. The post-holder sets the strategic direction of the directorate, drives high-quality delivery, upholds the charity's values, and represents the charity externally. The Director is a member of the charity's Leadership Team, working closely with the CEO to steer the charity forward.
For the right person, this is an opportunity with real strategic scope. We want to build on our strong policy positions and evidence base and translate them into more proactive campaigning and influencing, moving from good policy thinking to concerted public affairs activity, strategic stakeholder engagement, and campaigns that achieve real change.
The Director will also lead the next phase of our research work, following our inaugural research grant-funding activity and James Lind Alliance top ten work. They will work with the Research Manager and our clinical and academic partners to better define and deliver our ambitions.
Raising awareness of cardiomyopathy, its signs, symptoms and genetic risk, is also within the team's scope. Too many people are still diagnosed late because neither they nor their GP knew what to look for. The Director will drive our communications and marketing agenda purposefully, equally ensuring the charity’s external profile is actively managed and enhanced.
About you
We're looking for a leader who is a collaborative and inclusive, able to build trust with staff, colleagues, external partners and the Board. They will have strong strategic, analytical and planning skills, with the ability to develop coherent strategies. They will have experience as a senior leader/ manager in a charity, health, research or patient-focused organisation. See the Person Specification for further details.
Why join us?
Cardiomyopathy UK is the national charity for people affected by cardiomyopathy. We provide specialist nurse support, peer support, wellbeing services and trusted information to thousands of people each year, as well as influencing policy, supporting advocacy, and funding and enabling better research.
We are ambitious about our future. We are committed to quality, accountability and continuous improvement. Most importantly, we are committed to ensuring that everyone affected by cardiomyopathy can live well with the condition.
We are a family friendly employer with flexible and hybrid working. We offer an enhanced Employee Assistance Programme, additional annual leave linked to length of service, and an extra special occasion day each year.
We are midway through our five-year strategic plan, at a genuinely exciting moment, both for the charity and for cardiomyopathy more broadly. If you are excited by the opportunity to shape our Research and External Affairs work, lead a strong team and ensure we can clearly demonstrate the impact of our work, we would love to hear from you.
First round interviews are scheduled to take place 20th/21st July
Second round interviews are scheduled to take place 3-6th Aug
Please note candidates will be asked to attend one interview in the Amersham office
We are happy to make any reasonable adjustments to the interview process - we will provide further details on this when contacting short-listed candidates.
The client requests no contact from agencies or media sales.
Thank you!
Lead the operations, governance and compliance that enable Solving Kids' Cancer UK to deliver its mission and impact for children and families affected by neuroblastoma. Reporting to the Chief Executive, you will play a critical role in ensuring the charity operates effectively, compliantly and sustainably.
This broad and varied leadership role spans governance, risk, HR, IT, data protection and organisational operations, supporting delivery of the charity's strategy through robust systems, policies and processes. Acting as Company Secretary, you will work closely with the CEO and Board of Trustees, providing advice on governance, regulatory requirements and best practice. As a member of the Leadership Team, you will oversee key operational functions, lead cross-organisational projects and deputise for the CEO where required.
Who are we looking for?
We are looking for a strategic, highly organised and values-driven leader with strong experience in charity operations, governance and compliance. You will have a track record of ensuring organisations are well run, compliant and effectively managed, with the ability to oversee multiple operational areas and support strong governance and decision-making at Board level.
You will be comfortable working across a broad remit, including governance, risk, HR, IT and data protection, and confident providing clear, practical advice to senior leaders and trustees.
Person specification
Key requirements include:
- Significant senior-level experience in operations, governance or compliance within a charity or similar environment.
- Strong understanding of charity governance and regulation, with experience supporting boards and senior leadership.
- Experience overseeing organisational functions such as HR, IT, data protection or risk.
- Proven ability to manage multiple priorities and lead cross-organisational work effectively.
- Strong judgement, integrity and the ability to handle sensitive matters with discretion.
See our Recruitment Pack for the full role description and specification and for information about Solving Kids' Cancer UK.
This is an opportunity to make a significant contribution at the heart of a small, ambitious charity where strong operations are a vital enabler of impact for children and families.
Location: Home-based, within easy reach of London, with regular travel to the London office and occasional UK-wide travel.
First-stage interview: Thursday 6 August
Second-stage interview: Thursday 13 August
Registered Charity
11 - 20
Our vision is a future where no child dies of the childhood cancer neuroblastoma or suffers due to the treatment they receive.
The client requests no contact from agencies or media sales.