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Chief Executive, Cavernoma Alliance UK
Home-based within the UK
28 hours (including some evening and occasional weekend work)
Actual salary: £35,840 to £38,079
Equivalent full-time salary: £48,000 to £51,000
Cavernoma Alliance UK is a well-established UK charity supporting people affected by cavernoma, a rare condition involving clusters of abnormal blood vessels in the brain or spinal cord.
Founded in 2005 by people with lived experience of cavernoma, we provide peer support, trusted information, awareness raising and research advocacy for the cavernoma community. We also work closely with leading neurologists, neurosurgeons and researchers across the UK to help improve clinical care, information and research for people affected.
We are now looking for a new Chief Executive to lead and be an ambassador for the work of CAUK. This is a meaningful and varied role in a small charity where your contribution will be visible. It would suit someone looking for a senior charity role with real purpose, flexibility and a close connection to the community they support.
You will be joining an organisation with a supportive Board of Trustees, a staff team that cares deeply about the community we serve, highly committed volunteers, and strong clinical and research partnerships.
We are in the second year of our five-year strategy, ‘Together For a Cure - 2025 to 2030’, and are making good progress across our priorities. The current Chief Executive is leaving after three and a half years in post to take up a new opportunity, and the charity is in a positive and stable position.
A major focus for the role over the coming years will be supporting delivery of a five-year UK-wide clinical trial starting in August 2026. This study could potentially identify the first medication treatment for cavernoma.
Alongside this, the role will focus on maintaining sustainable income, supporting high quality peer-led services through our Head of Volunteering and Member Services and volunteer team, and continuing to grow CAUK’s reach and awareness, particularly online.
We would particularly welcome applications from people with previous charity management experience, whether within a small charity or in a more senior role within a larger organisation. We are also open to applicants who can demonstrate a strong understanding of the charity sector through trustee, professional or voluntary experience.
This is a home-based role with flexibility, although there will be occasional travel across the UK, typically every 1 to 2 months, including meetings in London.
If you would like an informal conversation about the role before applying, we would be happy to arrange this with the current Chief Executive and/or Chair of Trustees.
Key dates
Applications open: 27 May 2026
Closing date: 9am, 22 June 2026
Stage 1 interviews will be held virtually during the last week of June.
Stage 2 interviews will be held in person shortly afterwards.
How to apply
To apply, please read our Recruitment Pack carefully and then complete our online application form using the link below. You will also need to email your CV to us using the contact details provided in the Recruitment Pack.
Please note that applications submitted without both a completed application form and CV will not be considered.
We are unable to accept enquiries or applications from recruitment agencies.
To have a cure for cavernoma that people living in the UK can access.



The client requests no contact from agencies or media sales.
Headway UK – the brain injury association, supports thousands of people every year. Every 90 seconds, someone is admitted to a UK hospital with a brain injury. Brain injury can happen to anyone, of any age, at any time. The Communications Team raises vital awareness so that everyone affected by brain injury has the support they need to live well.
Make a real difference to life after brain injury. Join us as Headway UK and be part of a dynamic, forward-thinking, creative Digital Communications Team that raises vital awareness for brain injury survivors.
This exciting role will allow you to use your excellent communication and technical skills to create high-quality, optimised content, taking a data-led approach to maximise reach and engagement. You will work with colleagues across the organisation to promote our mission of improving life after brain injury.
What you will do
About you
We’re seeking a creative, enthusiastic and effective website and social media professional to join our communications team. Reporting to the Digital Communications Manager, you will be responsible for maintaining and developing the charity’s online presence.
You might already have some experience of using website and social media platforms in a professional capacity in your current role, or you’ll be able to demonstrate extensive knowledge and innovative use of social media and CMS platforms.
Download a job description and personal specification.
Benefits
As a staff member at Headway UK you’ll have access the following range of benefits:
Financial Security
Flexible Working
Wellbeing
Holidays and leave
Benefits
About us
Headway UK plays a pivotal role in supporting individuals and families affected by brain injuries. Our comprehensive services encompass rehabilitation, counselling, and practical assistance to help survivors regain independence and improve their quality of life. Headway UK is at the forefront of raising awareness about the challenges faced by those with brain injuries and advocates for their rights, ensuring they receive the care and understanding they deserve. Through a combination of educational initiatives, community outreach, and personalised support, Headway UK strives to rebuild lives, offering a lifeline to those navigating the complexities of brain injury recovery.
Embark on a fulfilling career with Headway UK, join our compassionate team and contribute to our mission of rebuilding lives after brain injury. Make a meaningful impact with Headway UK, where every role plays a crucial part in empowering those on the path to recovery.
Safeguarding
At Headway UK we are committed to the safeguarding and welfare of vulnerable adults. We expect all our staff and volunteers to share this commitment. We follow best practice as set out within the Care Act 2014. All successful applicants will be subject to safer recruiting procedures and will be required to complete mandatory pre-employment checks including a DBS check and two satisfactory references.
Equality diversity & inclusion
We recognise, value and champion diversity and inclusion. We want to ensure are staff population reflect the diverse service users that we support. For us diversity and inclusion is about building happy teams, full of people that want to learn and be inspired by each other, by our different experiences and backgrounds. Inclusion means providing the people we recruit with opportunities and valuing everyone’s contributions and perspectives.
We are also committed to removing barriers for applicants with a disability during our recruitment process, upon appointment and as an employee.
Please don’t hesitate to contact us if you need support with the application or you would like a chat about what it’s like to work with us.
Thank you for your interest in Headway UK and we look forward to getting to know you!
How to apply
Use the following links to apply online:
Closing date: Monday 22 June 2026
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Description:
Job Title: Physical Health Connector
Responsible to: Senior PHC
Location: Community based across Birmingham and Solihull with flexible outreach and hybrid working (work from home 3 to 4 days a week expected)
Contract: Fixed term to 31st March 2027
Working Hours: Fulltime 37.5 (9 day fortnight every other Monday-non working)
Salary: £26,227.50
The Active Wellbeing Society
The Active Wellbeing Society (TAWS) is a community benefit society and cooperative working with communities to identify, mitigate and remove barriers that prevent them from living active and connected lives.
As part of our approach, we are excited to be working in partnership to develop a health connector service which will focus on improving health outcomes for people with severe mental illness.
We are working in collaboration with Primary Care Networks (PCN) and The Primary Care Mental Health Teams who are delivered as part of a partnership between Forward-Thinking Birmingham (FTB) and the Birmingham and Solihull Mental Health Foundation Trust (BSMHFT).
Job Purpose:
The Physical Health Connector will work within TAWS to support people experiencing mental health challenges, severe mental illness (SMI), and health inequalities to improve their physical health and wellbeing.
The role focuses on relationship based support, community engagement, and system navigation, helping people overcome barriers to accessing physical healthcare and wider support. The post holder will act as a trusted, nonclinical bridge between individuals, communities, and statutory services, particularly primary care.
Requirements:
Experience, Knowledge and Values:
Additional Requirements
Benefits:
We offer our team members a comprehensive staff benefits offering to include:
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Help Change the Future of Polycystic Kidney Disease Research
Patient & Public Involvement and Engagement (PPIE) Manager
PKD Charity
Remote (UK-based) | Part-time (22.5 hours / 3 days per week)
Salary: £33,000–£35,000 FTE pro rata (£19,800–£21,000 actual)
The PKD Charity is looking for an exceptional communicator and relationship-builder to lead patient involvement in groundbreaking PKD research.
This is not a standard engagement role.
You will help ensure that the voices, experiences and priorities of people living with polycystic kidney disease directly influence research, clinical studies and future healthcare decisions across the UK.
PKD affects around 70,000 people in the UK. It causes kidney failure, lifelong health complications and reduced life expectancy. There is currently no cure.
We believe research is stronger when patients are genuinely heard — not consulted as an afterthought.
That’s where you come in.
The Opportunity
As our Patient & Public Involvement and Engagement (PPIE) Manager, you’ll lead and shape involvement activity through the PKD Research Hub, working alongside patients, researchers, clinicians and partners to make research more inclusive, meaningful and impactful.
You’ll:
We’re Looking For Someone Who:
Experience in rare disease, kidney health or long-term conditions is welcomed but not essential.
Why Join Us?
At the PKD Charity, you’ll join a passionate national charity working to improve lives through:
This is a rare opportunity to shape a growing area of work with real national impact — while working flexibly as part of a supportive, mission-driven team.
What We Offer
✔ Fully remote working
✔ Flexible part-time hours (3 days / 22.5 hrs)
✔ 25 days annual leave pro rata + bank holidays
✔ Pension scheme
✔ Meaningful, purpose-driven work
✔ Opportunity to influence national research activity
Apply Now
For details on how to apply, please see the application pack.
Deadline 9am Monday 1st June. Interviews will provisionally be held online on Wednesday 10th June. However we will monitor applications on a rolling basis and may approach for interview at an earlier date. If we find the right candidate we may close the recruitment campaign at an earlier time, so we encourage you to get your applications in at the earliest opportunity.
The client requests no contact from agencies or media sales.
The Senior Evidence & Evaluation Manager will sit within the Impact & Evidence directorate at the heart of Youth Futures Foundation.
Working with three Heads of Evaluation, the Deputy Director and the Director, you will help ensure our evaluations are designed to generate credible evidence of what works.
You will:
lead the design, commissioning and management of impact evaluations, including RCTs and QEDs. This will include feasibility or developmental work where interventions are not yet ready for full impact evaluation.
work closely with independent evaluators and delivery partners and colleagues in our Programmes & Grants and Policy & Communications directorates to assess the evaluability of interventions, and lead the design and delivery of large-scale, complex impact evaluations.
contribute to strengthening our ‘evaluation architecture’, leading projects that enhance data infrastructure and access to administrative datasets, and set standards for methodological rigour in the sector.
In addition, you will lead other aspects of the team’s commissioning. This may include developing policies and processes, supporting the Heads of Evaluation to strengthen commissioning practice.
This role can be based at our Birmingham, Leeds or London hub. We currently operate a hybrid model of two-days per week in the office and three-days from home.
For more information on this role, please download our job recruitment pack.
Due to receiving high volumes of interest in our opportunities, this vacancy may close earlier than the advertised deadline. To ensure your application is considered, please submit it as soon as possible.
We are the national What Works Centre for youth employment, with a specific focus on marginalised young people.



The client requests no contact from agencies or media sales.