Senior patient involvement officer jobs

About the role

Cardiomyopathy UK's Director of Research and External Affairs leads the charity's research, policy and advocacy, and communications and marketing functions, with a team of four staff. The post-holder sets the strategic direction of the directorate, drives high-quality delivery,  upholds the charity's values, and represents the charity externally. The Director is a member of the charity's Leadership Team, working closely with the CEO to steer the charity forward. 

For the right person, this is an opportunity with real strategic scope. We want to build on our strong policy positions and evidence base and translate them into more proactive campaigning and influencing, moving from good policy thinking to concerted public affairs activity, strategic stakeholder engagement, and campaigns that achieve real change. 

The Director will also lead the next phase of our research work, following our inaugural research grant-funding activity and James Lind Alliance top ten work. They will work with the Research Manager and our clinical and academic partners to better define and deliver our ambitions.

Raising awareness of cardiomyopathy, its signs, symptoms and genetic risk, is also within the team's scope. Too many people are still diagnosed late because neither they nor their GP knew what to look for. The Director will drive our communications and marketing agenda purposefully, equally ensuring the charity’s external profile is actively managed and enhanced.

About you

We're looking for a leader who is a collaborative and inclusive, able to build trust with staff, colleagues, external partners and the Board. They will have strong strategic, analytical and planning skills, with the ability to develop coherent strategies. They will have experience as a senior leader/ manager in a charity, health, research or patient-focused organisation. See the Person Specification for further details.
 
Why join us?

Cardiomyopathy UK is the national charity for people affected by cardiomyopathy. We provide specialist nurse support, peer support, wellbeing services and trusted information to thousands of people each year, as well as influencing policy, supporting advocacy, and funding and enabling better research.

We are ambitious about our future. We are committed to quality, accountability and continuous improvement. Most importantly, we are committed to ensuring that everyone affected by cardiomyopathy can live well with the condition.

We are a family friendly employer with flexible and hybrid working. We offer an enhanced Employee Assistance Programme, additional annual leave linked to length of service, and an extra special occasion day each year.

We are midway through our five-year strategic plan, at a genuinely exciting moment, both for the charity and for cardiomyopathy more broadly. If you are excited by the opportunity to shape our Research and External Affairs work, lead a strong team and ensure we can clearly demonstrate the impact of our work, we would love to hear from you.

Community Builder (Community Development) – Leeds 

People-focused community engagement role supporting the armed forces community to connect, collaborate and lead local change

Salary: Up to £33,995 per annum   

Location: Remote in Leeds with travel within the UK. See the “Please Note” section below for further details.

Contract Type: Permanent

The Opportunity

We have an exciting opportunity for a COMMUNITY BUILDER to join our Community Development team, working to support local veterans to take an active role in their communities. 

This is a hands-on, relationship-led role focused on bringing people together, building trust, and enabling community-led action. You will work with veterans, local residents, community groups and organisations to strengthen connections and create opportunities for people to participate, contribute and thrive. 

If you are passionate about community engagement, relationship building, and supporting people to create positive local change, we would love to hear from you. 

About The Role  

As a Community Builder, you will work with members of the Armed Forces Community, particularly those who may face barriers to participation or engagement. 

This role may also be described in other organisations as a Community Development Officer or Community Engagement Officer. 

A Community Builder is a relationship-led professional who brings people together, builds trust, strengthens local networks and supports communities to take action on the things that matter most to them. 

In this role, you will be actively visible and present within your local community, building trusted relationships and supporting conversations that help people connect and collaborate. 

You will facilitate conversations with veterans, local residents and community groups to understand local strengths, interests and priorities. You will connect people with shared interests and ideas, helping to build collaboration and encourage community-led action. You will support community ideas to develop into practical activities, projects and opportunities, and you will work with local organisations and partners to strengthen community networks. 

This role brings together community engagement, facilitation and partnership working to create meaningful, long-term impact. 

What a Typical Two Weeks Might Look Like 

Community Development is a flexible role shaped by the needs of local people and communities, with some evening and weekend working required. 

To help you understand how the role operates in practice, we’ve included an example two-week working pattern attached. 

Please note this is for illustration only and will vary depending on community needs and priorities. 

About You  

We are looking for someone who is motivated by working with people and passionate about helping communities connect and thrive. 

You may already have experience in community development, or come from a background such as housing, social care, education, youth work or the wider charity sector. What matters most is your ability to build trusted relationships, engage people effectively and support collaboration that leads to positive change. 

You will be an excellent communicator, able to build trust, inspire action and work effectively with a wide range of people and organisations. You will also be comfortable working independently, managing a varied workload and developing strong working relationships across different groups.

We are looking for someone with:  

• A Community Development qualification and/or transferable Community Development skills and experience.

• An awareness of (or willingness to learn) Asset-Based Community Development (ABCD) – an approach focused on building on the strengths, skills and connections already present in communities. 

• Strong communication and interpersonal skills, with the ability to build relationships that drive action.  

• A track record of successful collaboration with internal and external partners and stakeholders.  

• Effective and efficient organisational and IT skills. 

PLEASE NOTE:  

• The successful candidate will need to be based within a 30-minute commute of their allocated locality and there is a requirement to travel regularly across the wider area (travel expenses covered).  The successful candidate must possess a valid full UK driver’s license and have access to a reliable vehicle with business insurance for work purposes.  

• There will also be a requirement for occasional travel to other UK locations for meetings and events depending on the charity’s needs such as our annual all colleagues in person event.   

• The successful candidate will work 35 hours per week over 5 days, Monday - Sunday. Core working days will be Monday to Friday; however, flexibility is essential, as regular evening and weekend work will also be required to meet the needs of the role. Working hours will vary to ensure a total of 70 hours is covered over a two-week period, so please take this into consideration before applying.  

• The successful candidate will be required to undergo a Disclosure and Barring Service (DBS) check   

About the Team  

You’ll be joining a supportive and collaborative team of Community Development professionals working across local communities to build relationships, develop partnerships and support community-led activity. Community Development Managers and Community Builders work closely together, sharing learning and supporting each other to deliver meaningful local impact. 

Please see the job description for more details.  

In return we can offer you: 

• Belonging to a team who make a difference to our community and value equality, diversity and inclusion. 

• 29 days’ annual leave plus 8 bank holidays, regardless of service -plus your birthday off to celebrate! 

• Opportunity to buy and sell up to 5 days annual leave per year. 

• Added to our free health scheme from day one, including discounts on dental, opticians, massages, and more - with the option to upgrade. 

• 3 volunteer days per year to support the Help for Heroes community.

• A generous salary sacrifice pension scheme with an 8% employer contribution and a minimum 3% employee contribution, plus life insurance up to 4× salary as an active member. 

Closing date: 23rd July 2026 

Please note: We may close this vacancy early should we receive a high volume of strong applications.

We are committed to equality, diversity and inclusion and welcome applications from all backgrounds.

The Head of Fundraising and Communications plays a pivotal role in shaping and driving Bowel Research UK's fundraising strategies and audience engagement initiatives.

This position is responsible for embedding and executing comprehensive fundraising strategies, growing the charity’s supporter base and income, building up new and under-developed income streams and communicating effectively with their audiences to expand their reach, and encourage financial and non-financial support to deliver the organisations mission.

You will have the autonomy and scope to drive elements of your work and take ownership of your own objectives. You will be required to collaborate on decisions to shape and deliver initiatives, programmes and processes as required for each area of income delivery. 

Key to the success of this role is a strong understanding of individual giving fundraising – an area that is underdeveloped at Bowel Research UK. This role blends the strategic oversight and leadership of a Head of Fundraising role, with the hands-on expertise of an IG fundraiser. Experience across other income streams would be a huge benefit as the role leads all fundraising income streams, but experience in individual giving is essential.

The successful candidate for this role will be someone who has already operated at a senior level within a charity such as at Senior Manager level, or Head of in a specific income stream.

Application notes 

Please download the Candidate Info Pack provided for further information about the role, timelines and next steps.

To progress your application, please contact THINK Recruitment to organise an informal screening call. Please note, we cannot shortlist candidates who have not had a screening call so please allow enough time to have a call before the closing date.

If you need assistance with downloading the pack or any reasonable adjustments to ensure you can engage with the selection process, please send an email to THINK Recruitment and our team will support you.

Closing date for applications: Midnight Tuesday 14th July 

There will be a two stage interview process: 

Stage 1 interviews: 22nd or 23rd July 

Stage 2 interviews: 29th or 30th July 

Bowel Research UK is looking for a permanent Research and Grants Manager to coordinate and evaluate the management of the charity’s research activities. This role covers all aspects of pre- and post-award research management, impact reporting, grant finance management and governance, co-ordination of the Charity’s scientific committees and shaping external scientific communications to supporters and other stakeholders. Additionally, you will foster and maintain strong relationships with researchers, serving as the primary point of contact for engaging with the research community. 

Bowel Research UK are bringing this permanent role following time spent with an interim postholder in position to create a solid foundation and understanding of what the role needs.

This is an opportunity to work with the UK’s leading specialist bowel cancer and bowel disease research charity. Bowel Research UK believe that a cure for bowel cancer and effective treatments to mitigate, or entirely eradicate, other bowel diseases is possible – but only if vital research is funded and investment made into the scientific and medical communities today, to see the benefits tomorrow. 

Bowel Research UK are a flexible employer, for this post they are looking for someone to be comfortable with joining the team in the London office once a month. If the post holder would prefer to work more regularly from an office base, the charity has office space at Royal College of Surgeons in central London. Most team members work from here on Tuesdays and Thursdays. 

For further information and to apply please follow the guidance in the Candidate Pack to arrange a conversation about your suitability for the role and next steps.

Closing date: midnight Wednesday 22nd July

The selection process will involve a two-stage interview process.