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This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Beacon for Rare Diseases hosts The Resources Hub, a 100% free and accessible e-learning platform created to support the rare disease community, including:
- Patient groups, patients and families
- Researchers and life science professionals
- Rare disease advocates
The Resources Hub brings together over 100 free resources, including written courses, video guides, webinars and recordings from events and conferences. These resources are designed to support people at every stage of their rare disease journey, whether they are just getting started or are part of a well-established organisation.
We are incredibly proud of the breadth and quality of what’s available on the Hub. However, much of our long-standing content is under-promoted, meaning that people don’t always find the right resource at the right time.
“The Resources Hub provides invaluable resources to help patient group leaders navigate challenges such as caring responsibilities, health issues, and employment.”
“It breaks down topics relevant to the rare community in a way that's easy to digest and empowering to take action!”
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About the role
We are looking for a social media volunteer to help us shine a light on the wealth of content already available within the Resources Hub.
In this role, you will:
- Spend time exploring our existing Resources Hub content
- Write 1–3 social media posts per resource, tailored for different platforms
- Help us build a reusable library of social media posts that we can draw on to promote resources when they are most relevant
This role is about helping people discover support that already exists, making it easier for patient groups and advocates to find information that could make a real difference to their work.
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Who this role would suit
This is a specific, project-based placement and would suit someone who already has experience in communications, social media or content creation.
You’ll be someone who:
- Enjoys writing clear, engaging social media copy
- Understands how to adapt messaging across different platforms
- Is comfortable working independently and managing their own time
- Can take guidance on tone and branding and run with it
While we don’t have capacity to provide training, you won’t be left on your own. We will:
- Provide clear direction on priorities and approach
- Share brand guidance and examples
- Review initial work to make sure everything feels aligned
- Have routine check-ins, provide feedback, and an end-of-placement review
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Time commitment and flexibility
This is a fully remote volunteering role, which we ideally hope can be completed within around three months. We anticipate a minimum commitment of approximately two hours per week, though a shorter, more intensive placement could also be arranged to suit the volunteer. We are open to having more than one volunteer on this project and do not expect a single person to work through the entire Hub.
Please note: we are looking for this placement to begin as soon as possible.
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Why volunteer with Beacon?
By volunteering with Beacon, you will:
- Help improve access to free, high-quality resources for the rare disease community
- Support patient groups, patients and advocates to build confidence and capacity
- Gain experience working with a well-established national charity
- Take on a clearly defined project with flexible working
Registered Charity
6 - 10
Beacon for rare diseases: ensuring that no one faces their rare journey alone
The client requests no contact from agencies or media sales.
Thank you!
Inclusive Boards is delighted to be supporting The Girls’ Network in the search to appoint their next Chair and two Trustees.
About The Girls’ Network
At The Girls’ Network, we believe that no girl should have her future limited by her gender, ethnicity, background or parental income.
Young people from lower-income families are significantly less likely to go on to higher education than their wealthier peers, which can have a lifelong impact on opportunity and earning potential. Recent years have also seen inequalities deepen and young people’s wellbeing adversely affected, particularly following the Covid-19 pandemic. These structural and social barriers disproportionately affect girls and young women from communities of least advantage.
We exist to challenge this inequality. Our mission is to inspire and empower girls and young women from underrepresented backgrounds to realise their ambitions, discover their self-worth, and develop the confidence and capacity to shape their own futures.
We work in communities of least advantage across England to deliver programmes that provide long-term, meaningful support.
About the Opportunities
The Girls’ Network is seeking a new Chair of Trustees to lead and support The Girls’ Network through their exciting next phase of growth, supporting an exceptional, values-driven team and ensuring they remain ambitious, accountable and true to their founding mission.
We are particularly interested to hear from candidates with:
- Experience of strategic leadership and governance within a complex organisation.
- Experience or understanding of the education / schools landscape.
- Good understanding of voluntary sector governance, funding and finance management.
- Thorough understanding of the legal duties, responsibilities, and liabilities of trusteeship.
- Demonstrable financial and commercial acumen, including experience in financial planning, oversight, risk management, and the establishment and monitoring of systems of control and accountability.
- A track record of driving innovation and organisational change, with the ability to apply insight to support the charity’s achievement of its strategic objectives.
- Experience of working across sectoral boundaries, leveraging partnerships and opportunities.
The Girls’ Networks is also seeking two talented and committed Trustees to join their Board. We are particularly interested in hearing from candidates with experience in one or more of the following areas:
- Fundraising
- IT and digital
We are also seeking Trustees from the North East, Merseyside, West Midlands who can bring their lived experience to add value to the Board. We also encourage applications from young Trustees and will support first-time Trustees to bring their valuable perspectives to the Board.
