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Funded by The National Lottery Community Fund, Better Together for Healthy Bone Marrow is a three-year partnership programme of work (following a previous three-year funding period of collaboration) that supports people in England who are affected by a range of related rare bone marrow failures that are not caused by cancer.

Because of Better Together for Healthy Bone Marrow, people affected by these rare bone marrow failures will be better informed, less isolated, more connected, and more resilient.

Better Together for Healthy Bone Marrow builds on an existing collaboration between four small but mighty charities that support people living with related rare conditions that include bone marrow failure as a symptom.

The four partners in the Better Together for Healthy Bone Marrow project, are:

• The Aplastic Anaemia Trust – the grant holder and project lead 

• DC Action 

• Fanconi Hope 

• SDS UK

About this role 

This role is fully funded by The National Lottery Community Fund Partnerships programme to 31st August 2028. The role is 17.5 hours with flexible working to meet the needs of the right candidate. 

Key Responsibilities 

• Providing administrative support for the Steering Group, Delivery Team and Community Reference Group meeting cycles 

• Providing administrative support for the partners and all aspects of project work 

• Keeping the delivery plan up to date 

• Managing day to day requirements of the partners and their volunteers, such as fundraising tools and volunteer recruitment information. 

• Social media posts – supporting the creation and scheduling of posts 

• Event support (online and in-person) - marketing, ticketing and responding to enquiries 

• Answer general emails, and/or ensure they are answered by the right person from our team  

• Provide basic website support for people making donations or using our fundraising pages and keep relevant areas of the website up to date  

• Work with the Project Manager and team to plan communications to go to our supporters and think of new and interesting ways to engage them  

• Maintain contact records in the database and keep them up to date  

• Send occasional post  

• Provide project management / logistical support on projects that support our community  

• To attend and represent the Better Together partnership at events (occasional) 

• Collect and record data using the CRM and project dashboard for monitoring and evaluation purposes 

Person specification 

Are you excellent at document management? Do you love a well-maintained project plan and spreadsheet? Are you looking for a way to develop your joy for completing tasks into a role with more senior experience?

We’re looking for someone who loves speaking to people, problem solving and working out how best to support them. This role will involve speaking to lots of different stakeholders and responding to their needs, alongside supporting the

Better Together for Healthy Bone Marrow Project Manager with the overall programme delivery.

We want someone with a creative eye, who understands how to make appealing social media posts, and write communications in a clear and engaging way. 

You will bring experience of: 

• Administrative project tasks 

• Working multiple workstreams within a programme of work 

• Helping support people on email and phone

• Writing and creating basic web and social media copy 

• Marketing online events

We welcome applications from non-graduates. 

What we can offer you 

• Being part of a transformational multi-year project, which will have a huge impact on the lives of people living with very rare diseases.

• The chance to work alongside sector experts and ‘get stuck in’ to a wide range of activities within the project. 

• Job security to August 2028 as part of a programme team at an ambitious organisation 

Staff benefits 

• Flexible, remote working 

• A great team and team culture, including twice yearly staff meet ups in person 

• Pension contributions 

• Investment in training and development 

• Annual leave allowance of 28 days of holiday, plus bank holidays (pro-rata for part time staff) 

We welcome an informal chat with anyone who is interested in the role, get in touch with us via the email address on our website to arrange a call.