Media relation officer jobs in edinburgh

Are you a social media whizz with a passion for telling powerful stories? Keen to progress in your career in public relations and digital communications while making a real impact in the charity sector? Join Dravet Syndrome UK as a Marketing and Communications Manager (home based,16 hours/week) and bring your creativity and energy to a role where you’ll help shape our online presence, generate meaningful media coverage, and connect communities through engaging content.

Reporting to the Head of Marketing and Communications and working with the Marketing, Communications and Fundraising Manager in this varied position, you’ll drive DSUK’s social media activity, creating and scheduling posts across our social media channels. Alongside engaging online audiences, you’ll be instrumental in our proactive PR work—writing press releases, pitching stories to key media, responding to journalist enquiries, and helping develop compelling family case studies for campaigns. As part of a passionate and supportive team, you’ll collaborate to measure the impact of our communications and marketing work.

If you’re ready to grow your career in communications and want to make a difference for families affected by Dravet syndrome, we want to hear from you.

As part of DSUK’s commitment to safeguarding, the postholder is expected to undertake an enhanced DBS check.

About Dravet Syndrome UK

Dravet Syndrome UK (DSUK) is a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.

The charity was founded in October 2008 by a small group of 30 families. Today, DSUK is a registered charity helping over 550 families with support, education, and research programmes, underpinned by a world-class Medical Advisory Board.

What you will bring

Essential

· Demonstrable experience in planning and delivering engaging and targeted social media content to build community, raise awareness and drive engagement.

· Hands-on experience managing websites (using WordPress), delivering e-marketing campaigns (e.g. Mailchimp or similar), and applying SEO principles and other techniques to optimise digital communications and online visibility.

· Demonstrable experience in media relations, including writing press releases, working with case studies and successfully pitching and responding to a range of media (online, press, radio, broadcast)

· Demonstrable experience of working in charity, patient advocacy or healthcare sectors

· Ability to deal with people at all levels with empathy, tact and credibility

· Excellent written and verbal communication skills, with an ability to distil large amounts of information and present it in engaging and innovative ways for a variety of audiences

· Demonstrable design skills and knowledge of desktop publishing software e.g. using Canva to create in-house designs for social media and our website

· Act as a brand guardian, ensuring external designers and agencies understand and apply our brand, visual identity, and corporate communications guidelines effectively

· Strong organisational and project management skills, with the ability to prioritise

· Be a self-starter and team player with experience of remote working, and able to work effectively with colleagues using remote technology (e.g. Zoom, Google meets, etc)

Desirable

· Membership of a professional body such as Chartered Institute of Public Relations and/or a commitment to continuous professional development

 Why join Dravet Syndrome UK?

Join our dynamic and growing charity, where you'll thrive in an exciting and engaging environment. We are proud to be a family-oriented charity experiencing growth and fuelled by an ambitious plan for expansion. Our dedicated team is deeply connected to our core audience, and their motivation stems from witnessing our impact on people's lives. Join us today and contribute to making a lasting difference in the lives of those we support.

The closing date for applications is Wednesday, 24 September 2025, with shortlisting interviews taking place in early October with job to commence November 2025.

Our commitment to diversity

As part of our ambitions to improve equality and diversity, we welcome applications for this role from those who identify under any of the protected characteristics under the Equality Act 2010, which include race, age, disability, sex, religion or belief, sexual orientation, gender reassignment, marriage & civil partnership, and pregnancy and maternity.

We are seeking a dynamic Policy Officer to join our policy team, to support our lobbying and advocacy work, raise the profile of specialist FE with parliamentarians and represent the views of members. The work is varied, including monitoring parliamentary activity, undertaking research, meeting with members, helping to prepare consultation responses and analysing government proposals and published policies. The postholder will also take a lead in communicating Natspec’s policy positions to members and other stakeholders.

The main duties of the role include:

• Monitoring parliamentary and media activity to alert the Natspec team to relevant issues
• Maintaining and developing Natspec’s parliamentary database, increasing links with MPs and ministers
• Undertaking research to support Natspec’s policy work
• Preparing news stories, press releases and social media content, and identifying media opportunities to promote Natspec’s work and policy positions
• Working with Natspec member colleges, supporting them in their local lobbying work, and establishing network meetings
• Supporting the Senior Policy Manager and Senior Policy Officer with consultation responses, reports, publications, articles and data analysis.

We are looking for a self-motivated, innovative, dynamic and enthusiastic individual with good written and verbal communication skills, and the ability to develop strong working relationships. You don’t need to have a background in learning difficulties or disabilities or further education, although a demonstrable interest in these areas would be welcome. You should, however, have some prior experience of policy work, including undertaking research and analysis, understand parliamentary processes, and be able to quickly develop your understanding of education and funding policy relevant to specialist FE.

While you will be home-based, you will be in frequent contact with your colleagues both online and in-person and there will be plenty of opportunities to work outside of the home, attending meetings and visiting colleges. You will need to travel to London on a regular basis. You must be able to work flexibly, sometimes under pressure, and thrive on the unpredictability of policy work. 

Position title: Communications Manager

Reports to: Director of Operations

Direct reports: None currently

Key stakeholders: UKMSA staff, members and volunteers, Board of Trustees, Sheds and Shedders, the public

Location: Remote (with occasional UK travel)

Salary: Level 4 – £35,000-£45,000

The Communications Manager plays a vital role in shaping how UK Men’s Sheds Association (UKMSA) communicates, both internally and externally, and with the community at its heart. Operating with a high degree of autonomy and professional expertise, the postholder leads the development and delivery of communication strategies that connect, inform, and inspire.

This is not just a messaging role. Rather, it’s about building trust, clarity, and connection across UKMSA communities. Internally, the Communications Manager helps staff feel informed, included, and united across a remote-working environment. The post holder will coordinate internal communications, shape the tone and culture of how information flows, and ensure the brand is consistently and professionally represented.

With volunteers, especially UKMSA’s Ambassadors, the Communications Manager plays a key part in ensuring people feel heard, valued, and kept in the loop, especially during moments of change or challenge. They will work closely with the Head of Volunteering and the wider team to keep the voices and experiences of Shedders, Sheds and Shed Networks at the centre of UKMSA’s communications.

Externally, the postholder curates and amplifies the stories, impact, and energy of the Shedding movement. They manage the website and social media channels, support the CEO and Chair in their digital visibility, and respond to external enquiries with professionalism and purpose.

This is a mission-driven role that sits at the heart of how UKMSA connects with the world. It requires emotional intelligence, editorial judgement, and a deep appreciation for the unique volunteer-led spirit of the movement. The postholder will be confident working across staff, volunteers, trustees, and media, joining the dots, finding the story, and ensuring communications always reflect UKMSA’s values and community.

Key responsibilities:

1. Internal communications

· Develop and deliver internal communication approaches that ensure staff across a remote-working environment are kept informed, connected, and engaged.

· Coordinate and facilitate regular team meetings, updates, and communications, including all-staff briefings, newsletters, and shared messaging.

· Work with the CEO and senior team to plan in-person staff meetings, designing the content, format and approach so the sessions align with staff and organisational requirements.

· Design and implement mechanisms that foster internal cohesion and trust, drawing on ideas and good practice for remote working teams.

· Work closely with the senior team to ensure that important updates - strategic, operational, or cultural - are communicated in a timely, consistent, and accessible way.

· Uphold and promote a consistent tone of voice across all internal messaging, ensuring that staff understand and reflect UKMSA’s values and identity in how they communicate.

· Working with the Operations Officer, support the creation and internal rollout of branded materials and ensure consistency in logo use, templates, formatting, and professional standards across the organisation.

2. Community and organisational communications

· Act as a key link between staff, trustees, volunteers (particularly Ambassadors), and other internal stakeholders to ensure information is shared clearly, consistently, and inclusively.

· Collaborate with the Head of Volunteering to ensure that UKMSA’s volunteers are kept informed and involved, particularly during organisational updates, change, or key moments.

· Help embed a culture of openness and two-way communication, ensuring volunteers and trustees feel heard, recognised, and informed, and that their contributions are visible and valued.

· Coordinate messaging across staff and teams so that different groups across UKMSA receive the right information, in the right way, at the right time.

· Support senior leaders in maintaining effective communication with the Board of Trustees, including updates, briefings, and key documents.

3. External communications

· Manage and maintain the UKMSA website and social media channels, working with our external web designer to ensure content is accurate, up to date, and aligned with the organisation’s values and tone.

· Source, shape, and share stories from Shedders, volunteers, and communities to celebrate and amplify the impact of the Shedding movement.

· Lead on the production of UKMSA’s regular newsletter Shoulder2Shoulder, Review and develop the newsletter on a regular basis, in collaboration with staff and volunteers.

· Collaborate with staff and volunteers to collect and develop case studies and lived experience content and ensure these are shared meaningfully and respectfully.

· Support the Membership Manager and Director of Income and Investments to ensure any promotional activity for external partners is aligned with UKMSA’s communications strategy, delivers clear value, and is proportionate.

· Support Director of Income and Investments to shape and deliver marketing campaigns and communications aimed at generating income and supporter engagement

· Support the CEO and Chair in their digital communications - drafting content, advising on tone and timing, and increasing the visibility of their leadership voices, in the service of UKMSA.

· Respond to media and external communications queries, draft press releases where appropriate, and act as the first point of contact for general communications enquiries.

· Monitor UKMSA’s external presence and ensure consistency in messaging, tone and branding, across platforms and partners.

Key expertise required:

· Professional communications experience, with a strong track record in planning and delivering internal and external communications in a mission-led or purpose-driven organisation.

· Excellent writing and editing skills, with the ability to tailor tone, structure, and content for different audiences: from staff and volunteers to trustees, partners, and the wider public.

· Confidence leading internal communications across a remote or distributed team, including experience developing engaging formats, regular updates, and a shared organisational voice.

· Experience working with or alongside volunteers, trustees, or community stakeholders, and a strong appreciation for the importance of inclusive, two-way communication.

· Brand and tone-of-voice awareness, with the ability to maintain consistency and quality across channels, platforms, and contributors.

· Digital confidence, with experience managing websites (e.g. WordPress), social media channels, and email communications tools (e.g. Mailchimp), and using them strategically to reach different audiences.

· Storytelling and content development skills, with the ability to source, sensitively shape, and amplify stories that reflect lived experience and community impact.

· Strong organisational and planning skills, able to manage multiple priorities, coordinate with colleagues across teams, and deliver work to deadline with attention to detail.

· Collaborative mindset, with the confidence to influence tone, content, and strategy while also being hands-on in delivery and responsive to others’ needs and input.

· Judgement and discretion, with experience handling sensitive information, managing risk in communications, and supporting senior leaders with professional external representation.

· Genuine connection to UKMSA’s mission, with a respectful, values-led approach that centres the role of volunteers and champions the voice of the Shedding movement.

What success looks like:

· Staff feel informed, connected, and part of a shared organisational culture, even while working remotely. Internal updates are timely, engaging, and reflect a consistent tone that supports clarity, trust, and inclusion.

· Volunteers and trustees feel included and valued; they know what’s happening, understand UKMSA’s direction, and feel that communication is a two-way conversation, not a broadcast.

· The organisation’s public-facing communications are professional, values-led, and consistent. Social media, the website, and external content reflect the tone, mission, and energy of the Shedding movement.

· The CEO and Chair have visible, coherent digital profiles, supported with high-quality content and strategic messaging that reflects the voice and values of UKMSA.

· Good news stories from Shedders and communities are regularly shared, boosting the visibility of the movement and building pride and momentum across the network.

· Communications activity is intentional and well-prioritised. There is a clear rhythm to communications, and reactive work is handled without pulling focus from core messaging and strategy.

· The Communications Manager is seen as a trusted and thoughtful voice, able to advise colleagues, manage sensitive messaging, and champion quality and consistency in how UKMSA speaks.

· Volunteers remain central, not just as recipients of messages, but as contributors to and shapers of UKMSA’s communication story.

This job is not:

· This is not a campaigning or advocacy role. The Communications Manager will not be responsible for policy development, public affairs, political engagement, or influencing strategy.

· This is not a research or insight role. While storytelling and community voice are central to this role, the postholder will not be responsible for conducting research, writing reports (although the post-holder will support staff to get their reports right), or managing evaluation processes.

· This is not a marketing or income generation role. Although the postholder will support the visibility and professionalism of UKMSA’s public-facing presence, they will not lead fundraising, product marketing, or commercial campaigns. They will work with the Membership Manager and Director of Income and Investment if this is required.

· This is not a senior strategic leadership role. While the postholder contributes to strategy within their area and works closely with senior colleagues, they are not expected to set or lead cross-organisational strategy.

· This is not a purely reactive or administrative role. The Communications Manager is expected to take initiative, bring ideas, and shape how UKMSA communicates - internally and externally - in proactive and creative ways.

Closing date:-9th October 1200hrs
Interview: 22nd October

PWSA UK is a small charity providing lifelong support to all those affected by Prader-Willi Syndrome (PWS). PWS is a rare genetic condition causing an overwhelming and uncontrollable drive to eat that can be life-limiting, as well as learning and physical disabilities. We provide a dedicated helpline, a comprehensive information hub, a network of peer support groups, a varied programme of community events, training for professionals working with those with PWS, and support for vital research. Our aim is to help our amazing community overcome the challenges and live life to the full with PWS.

We are looking for a part time PWS Specialist Advisor for Scotland to support the PWS community in Scotland. PWS is a rare and isolating condition and our ambition it to reach families in Scotland to provide impactful advice, support, information and training. The ideal candidate will have an in-depth working knowledge of health and social care systems and education in Scotland as well as a belief in the potential and value of people with Prader-Willi syndrome.

You will need to be able to demonstrate excellent interpersonal and communication skills, as well as being self-motivated and able to engage with families, health care professionals and policy makers.

The position is part time (3 days a week) and is home based and ideal for someone living in Scotland

Community Fundraiser - Home Counties

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Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research? ​

Brain Tumour Research is seeking an experienced and motivated fundraiser to join our team. As a key part of our fundraising efforts in our high-performing East region, you will have the opportunity to drive income generation through a variety of initiatives, including challenge events, fundraising groups, and corporate partnerships such as charity of the year. You will also be responsible for driving initiatives to increase our profile and supporter base within Buckinghamshire, Bedfordshire, Hertfordshire, Northamptonshire and Essex. 

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Key Responsibilities: ​

• ​Generate income across a range of community fundraising initiatives and events, with the opportunity to lead on key projects 
• Steward supporters to help drive the charity’s fundraising activities and growth 
• ​Work with the fundraising team to develop and maintain strong relationships with fundraisers, donors, partners, and key stakeholders ​
• Contribute towards the growth and success of fundraising efforts, ensuring a sustainable income stream for the vital ongoing funding of brain tumour research ​

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Requirements: ​​

• At least one year of fundraising experience, with a proven track record in income generation 
• Strong experience in supporter stewardship  
• Excellent communication skills, with the ability to engage and inspire supporters and partners alike ​
• Passion for Brain Tumour Research and its mission to fund research and ultimately find a cure 

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If you are looking for a fulfilling and impactful role and have the level of experience and skill we are looking for, we welcome your application.

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​We will give preference to those candidates living in the Bucks, Beds and Northants areas of this region.​​​

​We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.​

We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process.  Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.

Closing Date: 26th September 2025

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We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.

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