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The Huntington's Disease Association is a UK registered charity that supports people affected by Huntington's disease across England and Wales. We provide information, advice and support to families, friends, and healthcare professionals.
We are looking for three new team members to join our team of Specialist Huntington's Disease Advisers to support people affected by Huntington’s disease.
The roles available are:
• Bath, Somerset, Wiltshire, North & East Devon, Weston Supermare & Wiltshire Specialist Huntington’s Disease Adviser (part-time, 28 hours)
• East and South Yorkshire Specialist Huntington’s Disease Adviser (part-time, 21 hours)
• Surrey and South London Specialist Huntington’s Disease Adviser (part-time, 21 hours)
All roles available are home-based, but must be living in the area specified in the job title, as the job involves extensive travel within the region and occasional travel across England and Wales.
We are looking for an enthusiastic, self-motivated person who is dedicated and committed to the welfare of families affected by Huntington’s disease, developing and improving the quality of care that they receive. You will need to have skills gained within a Health and Social Care profession. Your main responsibilities will be to offer help, information, advice, support and education to everyone affected by Huntington’s disease and professionals involved in supporting them.
All three vacancies are on a part-time permanent contract. Due to team-wide commitments, you must be available to work on Tuesdays. All other working days (in line with contracted hours) may be flexible around your individual needs and the needs of the role. Regular working pattern will be agreed with your line manager upon successful appointment.
This is a fantastic opportunity for the right candidate to bring their knowledge, skills and experience to our organisation.
Learn more about the role in the job pack included.
We are committed to equal opportunities in our recruitment process and in order to find out how well we are doing, we collect monitoring data. This will not form part of the selection process in any way and will be used for monitoring purposes only. Providing this information is voluntary.
The Huntington's Disease Association is looking for someone with the ability to work in a way that promotes the safety and wellbeing of adults at risk, children and young people. We follow safer Recruitment practices to ensure we are safeguarding the people we work with. We require the successful candidate to provide two employment references and undergo a Disclosure and Barring Service (DBS) check for enhance disclosure before joining the charity.
Full details of how we securely handle the data you provide to us as part of the recruitment process can be found in our privacy notice for job applicants on our website.
Click on 'apply' to begin your application. To ensure your consideration, you must upload both a CV and cover letter (make sure to press 'upload' for both documents before completing the application process!).
Your application must include which of the 3 vacancies you are applying for. You must be located within the areas the role covers. Your cover letter should also include why you are applying for the role and how you meet the requirements of the person specification. The job description and person specification can be found within the job vacancy pack.
Applications submitted without a CV and cover letter will not be considered.
Closing date for applications is Sunday 17 May, 5pm.
First round interviews will be held online Thursday 4 - Friday 5 June. Second round interviews will be held in-person in London Thursday 11 - Friday 12 June.
Benefits
* 25 days annual leave plus public holidays (pro rata for part-time staff)
* 1 additional cultural or wellbeing leave day (pro rata for part-time staff)
* A pension scheme with 3% employer contribution
* Medicash scheme
* Travel-to-work scheme
* Flexible working approach
* Family forward policies
* Supportive and positive working environment
* Fantastic learning and development opportunities
We improve care and support services for people with Huntington’s disease, educate families and professionals, and champion people’s rights.



Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
About us
Our mission is to make life better for carers. Across the UK today, 5.8 million people are carers, supporting a loved one who is older, disabled or seriously ill. We provide information and advice on caring, help carers connect with each other, campaign with carers for lasting change, and use innovation to improve services.
About the role
This is an exciting new post; with oversight of Carers Wales information and advice service, training and learning offer, and Employers for Carers support. Find out more about Employers for Carers Wales on our website.
As part of a small and busy team, the post holder will be required from time to time to support with delivery of these services, as well as playing a key role in their strategic development.
About you
We are looking for someone with a background in service delivery; with experience of providing information and advice, and designing and delivering training and learning.
The ideal post holder will be equally comfortable planning strategically and rolling up their sleeves to deliver. This means we need someone who is a great communicator with excellent leadership skills who can also turn their hand to managing budgets and client accounts, helping us to plan the future development of our services offer.
You’ll be fluent in Welsh including in written correspondence with a solid understanding of carers and the issues and challenges they face.
Diversity and inclusion
Carers UK is committed to becoming a diverse and truly inclusive organisation; fostering an environment and working culture that celebrates and promotes diversity and inclusion. We strive to create a workplace where our colleagues and volunteers can truly be themselves and feel like they belong and constantly seek to ensure all voices are heard.
To embrace this culture of diversity, our employee and volunteer recruitment should reflect our stakeholders and the society that we serve and support, regardless of age, race, gender, sexual orientation, physical abilities, disabilities or religious practices. We value individual diversity and are actively building diverse teams here at Carers UK and value our colleagues from a wide range of backgrounds.
As a membership charity for carers, we particularly seek employees and volunteers with a real understanding of the issues faced by carers. Reasonable adjustments can be made to the process and role, dependent on the needs of the applicant.
We are proud to be an Employers for Carers member. We have signed the Menopause Workplace Pledge and achieved the Disability Confident Employer accreditation. We aim to offer interviews to those who have a disability covered under the definition outlined in the Equality Act 2010 and who meet the minimum criteria for the role. The minimum criteria can be found under the Essential section of the Person Specification of the recruitment pack. Please let us know if your application is being made under the Disability Confident Scheme. You are not required to share the nature of your disability or long term health condition. You will need to state in your email application that you are making your application under the Disability Confident Scheme as you consider yourself to be disabled, or as having a disability. If you meet the minimum criteria then you will be offered an interview.
At Carers UK we want our application process to be as accessible as possible. If you need any adjustments to apply, please email the recruitment team to discuss.
The closing date for applications is Friday 15 May 2026 at 5pm.
Carers UK anonymises all applications prior to shortlisting.
Carers UK reserves the right to appoint at any stage, should an outstanding candidate emerge.
Carers UK are actively interviewing as we receive applications.
Carers UK may carry out online and social media checks before a formal offer is made.
The client requests no contact from agencies or media sales.
About the team
The Philanthropy Team raises income for Impetus and for Impetus partner charities. The team consists of 15 staff. Impetus has an annual income of c.£11 million which we are looking to grow significantly within the next few years. The team is led by the Director of Philanthropy and Partnerships.
The Philanthropy Team works with major donors, corporates and grant making trusts, as well as collaboratively with colleagues across the organisation to ensure we make a compelling case to generate new financial commitments and wider support for our work. The team also deliver a high-quality engagement programme of volunteering and pro bono for Impetus’s corporate supporters.
Impetus is driven by a shared belief in tackling the barriers that hold back young people from disadvantaged backgrounds in education and employment. Alongside investing extensive financial and non-financial support in our charity partners through our Investment Team we also seek to influence decision makers to design and implement evidence led policy and direct new resources to get young people the support they need through our Public Affairs team. We are resolutely focused on outcomes, driven by quality evidence.
You would be joining a team that is passionate, ambitious, determined and warm. We care deeply for our colleagues, our charity partners and the young people we serve.
Why work with us?
Working at Impetus means joining an organisation that is serious about impact and serious about people. Our values actively guide how we make decisions, how we work together and how we deliver change.
In the Philanthropy & Partnerships Team, you will:
- Be part of a high-performing and respected fundraising team
- Build meaningful, long-term relationships with thoughtful, impact-driven donors
- Develop your skills across the full fundraising cycle, supported by strong leadership
- Work on some of the charity sector’s most exciting and long-term partnerships
- See a clear connection between your work and improved outcomes for young people
If you are motivated by purpose, enjoy working to a high standard, and want to be part of a team that is ambitious about both impact and excellence, we would be delighted to hear from you.
Harbi Jama,
Director of Philanthropy & Partnerships
About this role
This role is a 12‑month maternity cover, supporting an important phase of delivery and development within the Philanthropy team. The postholder will work closely with colleagues to maintain momentum in new business activity while contributing to strategic account management and stewardship.
The Head of Development is a senior role within the Philanthropy Team, with a primary focus on new business development. This includes identifying, cultivating and securing new funding relationships across trusts, foundations, corporates, co‑investment partners and high‑net‑worth individuals.
Alongside new business delivery, the role also provides strategic account management for a small portfolio of high-value partners, ensuring smooth transitions from acquisition into long term stewardship.
This role works alongside the Head of Philanthropy, with both roles contributing to the success of the Philanthropy Team. The Head of Philanthropy leads on deep stewardship and retention, while the Head of Development focusses on new income generation and building relationships with new funders and partners.
The postholder will work closely with the Director of Philanthropy & Partnerships, Philanthropy Directors as well as Senior Research and Insights Manager, contributing specialist expertise, strong delivery and sound judgement, while operating within agreed strategy and governance frameworks.
Key responsibilities:
New business development
- Support the Director of Philanthropy & Partnerships and Development Director on the development and delivery of the new business plan in line with the fundraising strategy
- Works with the Senior Research and Insights Manager to identify emerging funding trends, opportunities, market opportunities and best practice
- In collaboration with the Development Director and Growth and Insights Director, lead the delivery of agreed cultivation strategies for priority prospects, proactively progressing relationships from qualification through to solicitation and conversion, leveraging senior stakeholders, board members, donor advocates and wider networks
- Develop and deliver compelling cultivation strategies and tailored pitch plans for priority prospects, including designing and building new donor acquisition vehicles (e.g. committees, cultivation events and targeted communications), working collaboratively with colleagues across Impetus
- Lead and support high-level meetings, pitches and negotiations with prospective donors, positioning Impetus as a credible and strategic partner
- Work with trustees, senior leaders and pro bono supporters to leverage networks and secure introductions to new prospects
- Ensure high-quality written and verbal communications with prospective donors
Account management and stewardship
- Build and maintain professional, long-term relationships within the portfolio, escalating strategic issues or risks promptly.
- Manage a targeted portfolio of high-value donors of six figures and supports on seven figure partnerships, ensuring excellent stewardship, timelyreporting and meaningful engagement
- Act as a relationship lead for selected donors, building trust and ensuring a smooth transition from new business to long-term stewardship
- Own and deliver tailored account plans for assigned donors, with a focus on renewal, upgrade and long-term relationship value
- Oversee the delivery of high-quality donor communications for assigned donors, including reports, impact updates, and engagement opportunities
- Ensure robust portfolio management, including accurate forecasting, pipeline management, and use of CRM systems
- Identify opportunities to deepen relationships through increased giving, multi-year commitments or broader engagement with Impetus’ work
- Works closely with Development Director on supporting Funds i.e. Connect, Skills, Attainment or Engage as needed
- Supports or leads on committees such as Futures or Real estate
- Represent Impetus externally with professionalism and credibility
Cross-team working and organisation contribution
- Build and maintain professional, long-term relationships within the portfolio, escalating strategic issues or risks promptly.
- Ensure consistent standards and best practice across account management and donor stewardship
- Collaborate closely with the Head of Philanthropy to ensure seamless handover from acquisition to stewardship and a coherent donor experience.
- Contribute insight from prospecting and market scanning to inform proposition development and strategic planning
- Ensure all activity aligns with Impetus’ gift acceptance, due diligence and ethical fundraising policies
- Champion best practice in prospecting, pipeline management and new business development across the team
- Build a collaborative, inclusive, high quality team culture aligned with Impetus’ values
Person specification
Essential:
- A strong track record of raising six-figure+ philanthropic income from grant-making trusts and foundations, corporate foundations and/or individual donors, including experience with high-net-worth individuals
- Proven ability to lead and deliver the full fundraising cycle, from prospecting and cultivation through to solicitation, stewardship and renewal
- Demonstrated strategic thinking, planning and delivery skills, with the ability to generate ideas, translate them into practical account plans, and execute them effectively
- Excellent research, prospecting and qualification skills, with the judgement to prioritise high-value opportunities
- A proactive, creative and innovative approach to fundraising, with the ability to adapt and develop creative donor centred approaches
- Experience operating with senior stakeholders, including trustees, board members and other high-level external partners
- Outstanding relationship management skills, with the ability to establish, manage and deepen trusted relationships with internal and external stakeholders
- Highly collaborative, contributing positively to team objectives and cross-organisational priorities
- Excellent written and verbal communication skills, with the ability to communicate impact and value clearly and persuasively
- Strong financial and portfolio management skills, including the ability to plan, forecast and deliver against income targets and budgets
- Ability to work well under pressure, managing multiple priorities and deadlines effectively
- A clear commitment to Impetus’ mission and values
- A strong commitment to equality, diversity and inclusion
Desirable
- Experience managing and stewarding multi-year, five- to seven-figure partnerships.
- Experience line managing and developing fundraisers or relationship managers.
- Experience working within a charity, foundation, venture philanthropy or intermediary organisation.
- Familiarity with CRM systems (e.g. Salesforce), income forecasting and portfolio reporting.
- Experience supporting or contributing to new business development strategies at a senior level.
About Impetus
At Impetus, our focus is on helping young people achieve positive education and employment outcomes to increase their chance of leading fulfilling and successful lives, irrespective of their background.
We tackle the three most difficult challenges that affect a young person’s ability to succeed in life in Britain today:
- Lost learning through absence, suspensions, exclusions from school
- Stagnation in education attainment outcomes, which means many are missing out on key qualifications like GCSE English and maths
- The large numbers of young people out of education, training and employment
We use our deep expertise and high calibre networks to give the best non-profits working in these sectors the essential ingredients to have a real and lasting impact on the young people they serve.
Through a powerful combination of long-term funding, direct capacity building support from our experienced team and our pro bono partners, alongside research and policy influencing to drive lasting systems change, we work towards a society where all young people can thrive in school, pass their exams and unlock the doors to sustained employment, for a fulfilling life.
We are resolutely focused on outcomes and impact, driven by quality evidence.
You would be joining a team that is passionate, rigorous, determined, creative and warm. We care deeply for our colleagues, our portfolio partners and the young people we serve.
Impetus is a registered charity and our charity number is 1152262.
Our Values
In 2022 the Impetus staff agreed the following set of Values to act as our guiding principles as an organisation and help us to remain focused on achieving our mission to support young people from disadvantaged backgrounds.
We are brave and curious
We are bold and brave in our pursuit of better outcomes for young people. We lead with curiosity and stay open to new perspectives. We support one another to take considered risks and learn together.
We bring high trust, high challenge
We build strong, long-term relationships through honesty, kindness, integrity, and respect. We create the space for open, constructive challenge, where colleagues, partners and supporters feel safe to speak up, hold each other to account, and bring their best in pursuit of our mission.
We are evidence led and results driven for young people
We pursue excellence for the young people we work with, are wholly committed to better outcomes, unapologetically results driven, and accountable for our actions.
We thrive through diversity
We seek to embed diversity of thought, background and experience in every aspect of our work. We are open, thoughtful and proactive in better understanding and challenging our assumptions to better deliver the change we seek.
We always seek collaboration
We will not succeed alone. We seek meaningful, productive partnerships with others to achieve our mission and drive systems change for young people.
Our commitment to equality, diversity and inclusion
We believe that a diverse workforce leads to an organisation that is more open, creative and gets better results.
We want our team at Impetus to represent the diversity of the people and communities we serve. We also want our team to be one where different experiences, expertise and perspectives are valued, and where everyone is encouraged to grow and develop.
We want to reach a diverse pool of candidates. We are happy to consider any reasonable adjustments that potential employees may need to in order to be successful.
We recognise the importance of a good work/life balance. We do everything we can to accommodate flexible working, including working from home, working part-time job shares and other arrangements.
Please just let us know in your application or at any stage throughout the process (and beyond) if these are options you’d like to explore.
Impetus is an equal opportunity employer and is determined to ensure that no applicant or employee receives less favourable treatment on the grounds of age, disability, gender reassignment, marriage and civil partnership, race, religion or belief, sex and sexual orientation. We value diversity and welcome applications from people of all backgrounds.
Our employee benefits
Impetus appreciates the invaluable contribution made by all employees and wishes to encourage and reward loyalty, motivation and experience. We therefore offer a range of benefits and policies which aim to assist employees during various stages of their lives and careers. For more information on these, please download the job information pack from our website.
How to apply
Please click on the "Apply for this job" button.
You will need to:
- Complete the online form (including the equal opportunities monitoring form).
- Upload a comprehensive CV and supporting statement.
The supporting statement should be no more than two sides of A4 and should address the criteria in the person specification.
You should also include the contact details of two referees, one of whom must be your current or most recent employer. Referees will only be approached with your express permission.
As part of our commitment to flexible working we will consider a range of options for the successful applicant. All options can be discussed at interview stage.
The deadline for applications is Sunday 17th May 2026, 11:59pm.
Interviews:
1st Interviews will take place on w/c 25th May 2026.
2nd Interviews will take place on w/c 1st June 2026.
You will also be required to provide proof of your eligibility to work in the UK.
Personal Data
Your personal data will be shared for the purposes of the recruitment exercise. This includes our HR team, interviewers (who may include other partners in the project and independent advisors), relevant team managers and our IT service provider if access to the data is necessary for performance of their roles. We do not share your data with other third parties, unless your application for employment is successful and we make you an offer of employment. We will then share your data with former employers to obtain references for you. We do not transfer your data outside the European Economic Area.
Impetus transforms the lives of young people from disadvantaged backgrounds by ensuring they get support to succeed in school, in work and in life.
