Jobs with multiple filters

About the Role

As we scale, we are looking for a Head of Operations to provide operational leadership to ensure the charity operates effectively, compliantly and sustainably in line with its mission and ethos. Working closely with the CEO, you will support the translation of the vision into reality by building strong foundations, enabling effective delivery, and supporting the scaling of the organisational from a regional base to a nationally impactful charity.

This is a pivotal role shaping how BeSpace grows. You will lead on strengthening systems, people, governance and operational delivery embedding accountability, and continuous improvement.

In this role, you will:

Strengthen governance, risk and compliance

· Develop and maintain robust governance frameworks and ensure legal and regulatory compliance

· Embed effective risk management processes

· Oversee key compliance areas including safeguarding, GDPR and reporting

Build operational systems and infrastructure

· Develop and implement scalable systems, processes and internal controls

· Improve data management (including CRM) and strengthen reporting

· Contribute to ensuring operational readiness to support national growth

· Work with external providers on IT and financial system integration

Lead people, culture and organisational development

· Oversee recruitment, onboarding and retention of a high-performing team

· Strengthen performance management and accountability frameworks

· Support and foster a values-led, healthy team culture aligned with BeSpace’s mission

Enable delivery, impact and growth

· Strengthen operational support for programme delivery and expansion

· Support the translation of strategic ambitions into practical systems and ways of working

· Improve data insight to inform decision-making

· Support development of fundraising infrastructure.

Contribute to wider organisational life

· Work collaboratively across the team to support evolving priorities

· Act as an ambassador for BeSpace’s values and Christian ethos

About You

We are looking for someone who:

· Has experience in operations, programme or an organisational role with increasing responsibility or has had operational leadership, ideally within a growing or changing organisation

· Has good experience in developing systems, processes and organisational infrastructure

· Can work closely with a CEO to translate vision into operational delivery

· Has excellent organisational and project management skills

· Is proactive, collaborative and relational leader who builds strong teams and culture

 It would be a bonus if you:

 · Are an experienced operational leader motivated by impact, flexibility, and supporting the growth of a mission-led organisation

· Have significantly enabled the scaling of a regional organisation to national growth operationally.

· Have experience in fundraising systems or donor management

Family Support Coordinator

Dravet Syndrome UK

Key Information

• Location: Home-based/remote,  with travel to national events throughout the year both for the Family Services and occasional travel for the wider needs of the organisation
• Salary: £28,000 - £32,000 per annum
• Hours: 40 hours per week
• Contract: Permanent
• Working Pattern: Monday-Friday, 9am-5.30pm, with occasional evenings and weekends (TOIL provided) 

About Us

Dravet Syndrome UK (DSUK) is the leading UK charity supporting people affected by Dravet Syndrome, a rare and severe form of epilepsy that impacts the whole family. Founded by parents in 2008, we provide family support, professional education and fund vital research to improve lives and create hope for the future. [Family Sup...JD v1 (1) | Word]

About the Role

We're looking for a compassionate and organised Family Support Coordinator to help deliver practical, emotional and financial support to families affected by Dravet Syndrome.

Working closely with the Head of Family Services, you'll be a key point of contact for families, supporting enquiries, coordinating grants, managing online communities, helping organise family events, and ensuring families can access the information and support they need.

This is a varied and rewarding role combining family support, community engagement, event coordination and administration. 

Key Responsibilities

Family Support

• Manage a caseload of families, providing practical and emotional support.
• Respond to enquiries and signpost families to appropriate services.
• Support newly diagnosed families, bereaved families, and those navigating transition to adulthood.
• Maintain accurate records using the charity's CRM system.

Grants & Community Support

• Coordinate family grant applications and payments.
• Moderate and support the charity's private Facebook community.
• Collect feedback and help improve family services.
• Escalate safeguarding concerns in line with policy.

Events & Engagement

• Support the delivery of the Annual Family Weekend Away and other family events.
• Assist with webinars, support programmes and educational activities.
• Build positive relationships with families and volunteers.
• Attend key family-facing events across the year. 

Administration

• Support reporting, record management and service administration.
• Ensure compliance with safeguarding, GDPR and organisational policies.
• Attend team meetings, training and charity events. 

About You

Essential

• Experience supporting children, adults and families.
• Experience supporting people with complex medical, learning or additional needs.
• Strong communication, organisational and relationship-building skills.
• Ability to provide empathetic, person-centred support.
• Experience using Microsoft Office and CRM/database systems.
• Understanding of safeguarding, confidentiality and GDPR.
• Ability to work independently and manage competing priorities.
• Willingness to travel and work occasional evenings and weekends.

Desirable

• Background in Health & Social Care, Mental Health, Community Development, Counselling or Education.
• Experience organising events or community activities.
• Knowledge of Dravet Syndrome or other neurological conditions.
• Full UK driving licence and access to a vehicle. 

Why Join Us?

• Make a meaningful difference to families affected by a rare and life-limiting condition.
• Join a supportive and flexible remote-working charity.
• Play a key role in delivering services that support hundreds of families across the UK.
• Be part of a passionate team committed to improving lives through support, education and research.