Patient and family support worker jobs in Belfast

Do you want to make a real difference to the lives of people affected by kidney disease?

We’re looking for an experienced manager who wants to be part of work that genuinely transforms lives.

About Kidney Care UK

There are 7.2 million people with some form of chronic kidney disease (CKD) in the UK, equivalent to 1 in 10 people. There are one million people in the UK who have CKD but are not aware of it.

Since 1975, Kidney Care UK has been at the forefront of supporting people with kidney disease. From our early days when we campaigned to introduce donor cards in the UK, we have worked hard to support and represent the interests of everyone affected by kidney disease.

About the Patient Support Service

The Patient Support Service provides practical, emotional and financial support for anyone affected by chronic kidney disease. Whatever the need presented, we empower people living with CKD and their families and carers to understand their options and make informed choices to positively navigate their experience of CKD. We’ll walk alongside them for as long as they need us to.

About the role

We are looking for a passionate and inspirational individual to lead our Patient Support service across Scotland & Northern Ireland. You and your team will reach kidney patients at their point of need and ensure they are supported or signposted to the services that will improve their wellbeing and maximise outcomes in line with the objectives of the service as directed by the Programme Manager/Head of Service. 

Alongside our other Regional Managers, you will be the national face of Kidney Care UK patient support services, raising awareness of the service and the Charity and building strong relationships with the kidney patients, renal units, Kidney Patient Associations (KPAs), health professionals and other kidney stakeholder groups in your regions. 

Key Responsibilities

• Lead a team of five Patient Support Officer’s to deliver an accessible, valued and effective service across your designated region. Responsibility for the training, development and wellbeing of the regional team. 
• Lead the delivery of Kidney Care UK service and funder required outcomes into service delivery aligned with the Kidney Care Patient Support service strategy.
• Through in-person attendance at stakeholder events and meetings, build strong relationships with key decision makers and influencers in health and care commissioning and delivery in your region.
• Develop and maintain effective monitoring and measurement to demonstrate the outputs and effectiveness of the service and its impact on patient experience and outcomes. 
• Using data and insight, report internally and externally with updates on regional issues, needs and challenges to inform service development.
• Manage the budget designated for your region, keeping accurate records of expenditure and reporting.
• Act as an organisational Designated Safeguarding Person in accordance with policy and procedures.

​About you

We’d love to hear from you if you have:

• Understanding of the workings of NHS patient care pathways.
• Experience of delivering patient support services in a kidney or related health condition environment.
• Understanding of kidney disease and the needs of people with kidney disease, their families and their carers.
• The ability to influence, inspire and effectively manage a team.
• Excellent interpersonal skills including the ability to listen, with experience in building credibility with senior external stakeholders and managing relationships with diplomacy.

Experience of working within an NHS charity or large health related fundraising environment is highly desirable,as is understanding of relevant UK benefits legislation and entitlements.

Please note: You must live within one of the regions (Scotland or Northern Ireland) and have the ability to travel within those regions independently and on a regular basis. There may also be some travel across the UK.

What we offer

Working at Kidney Care UK is incredibly rewarding and you will see the life-changing impact that the charity has on kidney patients and their families:

• Flexi-time – we are flexible about start and finish times, and flexible about your location.
• Annual and Christmas leave – we offer 25 days annual leave for full time employees plus bank holidays. We also close for three days between Christmas and New Year, and you don’t need to take this from your annual leave allowance.
• Pension – you’ll be eligible for and auto-enrolled into a pension scheme where your employer will contribute 8% of your salary.
• Health cashback plan – ability to claim back a wide variety of routine medical treatments.
• Employee Assistance Programme – access to a wide variety of support including counselling, health resources and advice.
• Cycle2Work scheme
• Learning and development – you’ll be able to access the full benefits of our membership of Fundraising Everywhere, Charity Comms and NVCO.

Apply today
If you feel the role is for you we’d love to hear from you.

Press Apply, where you will be asked to upload a recent CV which includes a cover letter. In your cover letter please demonstrate in no more than 2 sides of A4 how you meet the person specification within the job description.

CVs submitted without a cover letter will automatically be rejected.

Closing Date: 3rd August (9am)

Provisional Interview Dates:

Ist stage interviews: 7th or 10th August 

2nd stage interviews 18th August

Please note we will be reviewing applications as they come in and may choose to close the advert early.

We look forward to hearing from you.

The Community Engagement & Support role is about providing greater sustainability and resilience for the Fahr’s Disease community and Fahr Beyond as a charity. The post holder will be building the capacity for Fahr Beyond to provide support for people living with Fahr’s and their families through creating a volunteer network that can provide an ongoing fortnightly support group. Additionally, through working with other organisations, the post holder will develop more support pathways and opportunities for patients; this is envisioned as strategic work within the Parkinson’s and Dementia space.

This post will also play a key role in bridging Fahr Beyond’s work with the community and medical professionals to develop awareness of Fahr’s Disease.  

What will you do in the role?

Volunteer Mobilisation & Management

• Support the development of a volunteer strategy for Fahr Beyond
• Actively manage the establishment of a volunteer network utilising prior expressions of interest, and you will support the onboarding of volunteers
• The main point of contact for volunteers and help resolve matters they may have

Engagement & Communication

• Monitor and respond to incoming correspondence to Fahr Beyond, along with assigning any actions for response to the appropriate volunteer
• Support the trustees and volunteers with managing Fahr Beyond’s social media
• Work with Fahr Beyond volunteers to ensure that Fahr Beyond maintains regular communications with patients, medical professionals, and key partners
• ·Represent Fahr Beyond at sector events and/or meetings, particularly with organisations we are a member of

Project & Event Management

• Support (and if required coordinate) Fahr Beyond’s education and awareness events for Fahr’s Disease, and events connecting multiple stakeholders in the Fahr’s Disease space
• Support volunteers in creating fundraising and community involvement activities (online and potentially in-person) 

Today, 12 children and young people will be diagnosed with cancer. We’ll stop at nothing to make sure they get the right care and support at the right time.  

• Salary: c. £56,000 
• Full or Part Time – Open to both options 
• Permanent
• Location: We honestly don’t mind. You’ll be expected to travel between our London (Farringdon) and central Bristol offices as well as other locations across the UK. Either of our office locations or remote home working is acceptable. Please clearly state your preferred location in your application. 
• Closing date: 19 July 2026 (11:59pm) 
• First stage interviews: w/c 10 August
• Second stage interviews: w/c 17 August 

Change lives in a life-changing career

When a child or young person is diagnosed with cancer, their whole world can feel like it’s falling apart. Independence is taken and confidence is stolen. Stability no longer exists. The future suddenly feels uncertain.

The impact of cancer on young lives is more than medical. That’s why we exist. Our specialist social workers help children and young people with cancer and their families navigate the emotional and practical impact of cancer. We remove barriers, solve problems and prioritise wellbeing. And we stop at nothing to make sure they get the right care and support at the right time.

We challenge the systems and policies that surround children and young people, we highlight gaps and campaign for change. Because we know what a better future could look like. And we know what we need to do to make that future a reality. We need to push harder, reach further and work smarter. And we need the right people on our team to help us get there. People like you.

About the role

We’re looking for a Head of Diversity, Equity, Inclusion and Belonging (DEIB) with experience of designing and embedding organisational DEIB strategies and leading culture change at a senior level to join our CEO Office.

This is a pivotal leadership role at a critical moment in our DEIB journey. You will lead the development of our next DEIB strategy, building on our ‘Brave, Not Perfect’ commitments and driving forward meaningful, measurable change across the organisation. Working closely with the CEO and Executive Team, you will shape the vision, influence decision-making and ensure DEIB is fully embedded across our culture, systems and ways of working.

You’ll act as both a strategic lead and an organisational change expert – engaging colleagues, supporting leaders, and ensuring our work reflects the diverse needs of the children and young people we support. This role does not have direct reports but carries significant influence across the organisation, requiring strong leadership, resilience, and the ability to bring others on the journey.

What will I be doing?

No two days are the same at Young Lives vs Cancer. So, summarising your ‘day to day’ isn’t easy. Here are some of the main things you’ll be doing, but you’ll find more details in the job description.

The next step in Young Lives vs Cancer’s diversity, equity, inclusion and belonging journey 

• Building on the work in ‘Brave, not Perfect’ to develop the next iteration of DEIB strategy at Young Lives
• To engage the organisation in the development and context of this work, and to deliver a programme model for the delivery of the goals within the strategy, including monitoring and evaluation 

Build on strong foundations

• To evaluate and develop our programme of internal DEIB engagement ‘DEIB Confident’ to reflect the goals within the next phase of DEIB strategy
• To support and develop our existing staff led networks, and the creation of new ones
• To lead and develop our approach to Equity Impact Assessment
• To coach, advise and challenge senior leaders and allies within the organisation

Leadership

• To role model the culture we want to see at Young Lives vs Cancer, through your behaviour, ways of working and approach to leadership 
• As a Head of department, you will be a key senior leader and manager, providing visible and confident leadership for all of our workforce at Young Lives vs Cancer, and taking a holistic organisational view in all matters – holding our strategy and vision for young cancer patients at heart.

What do I need? 

Diverse perspectives and unique skillsets are at the heart of Young Lives vs Cancer. If you're passionate about making a positive impact and eager to learn, we encourage you to apply, even if you don't meet the criteria and person specification fully. Your potential is what matters most to us, and we’re committed to fostering an inclusive and supportive work environment to help you develop.

The key skills we’re looking for in this role are:

• Experience of developing and implementing an EDI strategy at a senior level 
• Understanding and knowledge of EDI legislation, policies and best practices 
• Experience of managing change initiatives and a practical approach to culture change including through systems, policy and procedures 
• Experience of leading, inspiring and motivating staff 
• A good leader with ambition and conviction and the ability and desire to inspire staff at all levels. 
• Demonstrable influencing skills and ability to develop networks both internally and externally 
• Experience of facilitating activities across geographically dispersed operations
• A respected project and change expert with personal confidence
• Understanding of oppression and the barriers that marginalised people face, and strong commitment to deliver anti-oppressive practices
• Demonstrate that Young Lives vs Cancer’s values are at the heart of everything you do: Curious, Creative, Collaborative, Changemaking, and Courageous

What will I gain?

For people to reach their full potential, they need the right environment. As a member of Team Young Lives, you’ll be made to feel supported, valued and appreciated. Here’s how we do it:

• Flexible working: we’re open to working hours outside of 9 - 5 and we can talk through your flexibility requirements at interview stage
• Wellbeing days: four days a year to do what works for you – from catching up on training to going for a walk
• Generous annual leave allowance
• Great family/caring leave entitlements
• Enhanced pension
• Access to our employee savings scheme

To find out more about our benefits package, have a look on our website.

Our commitment to Diversity, Equity, Inclusion and Belonging

At Young Lives vs Cancer, we recognise that opportunities for too many people remain a condition of their sex, ethnicity, class, gender identity, disability, sexual orientation – or a combination. This has never been acceptable to us as an organisation. We don’t just accept difference, we value it, celebrate it, nurture it and we thrive because of it.

We’re on a journey to be reflective of the diverse children, young people and families we support. We know we aren’t there yet, and we’re passionately committed to taking actions and making changes to be a truly diverse, inclusive and equitable organisation. This includes taking anti-oppressive action and removing barriers in our recruitment practices. Our Diversity, Inclusion, Equity and Belonging strategy will tell you more.

To ensure fairness and consistency to select the best candidate for this role, all our applications are anonymised up until an interview has been confirmed. We recognise the benefits of AI, but if you're considering using it to submit your application, we encourage you to reflect on the value AI adds. AI tools often lack the personal touch and authenticity that set candidates apart. We want to hear your unique perspective, experiences, and skills, so we encourage you to tell us about your skills and experiences in your own voice.

Accessibility

We’re committed to providing reasonable adjustments throughout our recruitment process and we’ll always aim to be as accommodating as possible.Please let us know in your application form of any adjustments or access requirements we could make to help you with the application process and interview.

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