Patient experience volunteer volunteer volunteer roles in Manchester

Metabolic Support UK are excited to share that we are looking for new Trustees to join our board.

Following the retirement of several Trustees we’re keen to broaden the range of skills and experiences represented. Our work is guided by people with lived experience, and our Board of Trustees plays a central role in shaping our strategy and ensuring that our values are embedded across everything we do.

We welcome applications, particularly from those with expertise in the following areas:

• Charity fundraising: Leadership in a fundraising environment, ideally within the charity sector.
• Clinical Dietitians: Experience of supporting patients with IMD's with a understanding of the challenges faced around diet and IMD's.
• Young adult with a diagnosed IMD: who has lived experience of an IMD and has navigated the process of healthcare from paediatric to adult care.
• Researcher: Experience of Rare Disease treatment research.

Appointments are made on merit, and we are committed to creating a diverse, inclusive Board that truly reflects the communities we serve.


About Metabolic Support UK

Metabolic Support UK is the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs.

Since its inception in 1981, our organisation has strived to support those in the rare community, expanding new-born screening, accelerating the development of orphan drugs, and acting instrumentally in establishing EURORDIS, ensuring people living with IMDs have the best quality of life possible.

Metabolic Support UK Board of Trustees
Metabolic Support UK Board of Trustees are a group of dedicated volunteers who are committed to the charities aims.

The Trustee meets four times a year (virtual), with meetings held during the week from approximately 2.30-4.30pm

Trustees are encouraged to participate in charity campaigns and attend flagship events, e.g., our Annual Community Conference. Trustees are not paid, but out-of-pocket expenses are reimbursed. Trustees serve a three year term.



Are you passionate about building a more inclusive, sustainable and resilient economy? Are you looking for a meaningful way to use your finance expertise?  ECU is a small, dynamic non-profit working to transform the economy. Join us!

What will you be doing?

In addition to the responsibilities of all board members, the Treasurer will: 

1. Support the Board to review and monitor ECU’s financial performance and sustainability
2. Ensure the Board receives timely, accessible and accurate financial information
3. Support the team to develop and maintain robust and proportionate financial policies, processes and risk management systems

What are we looking for?

• Commitment to ECU’s mission and values
• Commitment to the legal duties and responsibilities
• Financial management experience, policies, risk
• Qualifications
• Able to interpret, interrogate and communicate financial information
• Work as part of a diverse team, and devote the time 

Desirable - treasurer experience

What difference will you make?

We have an ambitious vision for change, a strong analysis of the opportunities and barriers to progress, and a clear view of our role in building a better economy. Our board is committed, collaborative and inclusive, with a strong understanding of its role and remit, and a culture of open dialogue.

Before you apply

• Your interest in this role and what you could bring to it
• What would you want to learn and gain?

Interview 25 Feb in London (expenses paid)

Are you passionate about building a more inclusive, sustainable and resilient economy? Are you looking for a meaningful way to use your finance expertise?

ECU is a small, dynamic non-profit working to transform the economy so that everyone has the freedom and security to live a good life. 

We are now recruiting for ECU’s first Treasurer, who will lead at board level on monitoring ECU’s financial performance and sustainability, ensuring that we have robust financial policies and processes in place, and supporting other board members to fulfil their collective responsibilities around finance. 

This is an exciting time to join ECU. We have an ambitious vision for change, a strong analysis of the opportunities and barriers to progress, and a clear view of our role in building a better economy. Our board is committed, collaborative and inclusive, with a strong understanding of its role and remit, and a culture of open dialogue. Our work is challenging, fascinating, and fulfilling – and, with rising levels of inequality, an unfolding climate emergency, overstretched public services and a growing concentration of corporate power, it couldn’t be more important.