Patient Representative Volunteer Volunteer Roles in Liverpool
NRAS Board of Trustees recruiting Income & Generation Trustee.
NRAS – The National Rheumatoid Arthritis Society, is the only patient organisation in the UK with a specific focus on Rheumatoid Arthritis (RA) and Juvenile Idiopathic Arthritis (JIA). Founded in 2001 and now the leading organisation representing people living with RA and JIA, the charity has an exemplary reputation within the world of rheumatology. Working collaboratively with a wide range of stakeholders and other third sector organisations, NRAS offers services and support to patients, healthcare professionals, researchers and advocates for improved services and access to treatments.
Opportunity Description
NRAS is looking for an Income Generating & Fundraising Trustee with diverse skills and background in line with the people we represent.
Ideally Trustees will have close proximity to our cause - supporting all those with Rheumatoid Arthritis and Juvenile Arthritis in the UK, so preferably people with RA or adult Juvenile disease themselves or who have a close relation with RA or JIA but equally an understanding of working with the NHS or immunology would be as valuable.
We currently feel we are underrepresented on the board in the following area
· A Trustee with established and proven fundraising connections in particular with major donors and corporate relationship building
· A Trustee with experience at senior/board level or running own business.
· A Trustee who can actively support the Fundraising team and have ability/time to meet Trust & Grant giving representatives alongside CEO and/or Founder
The role of our Board is to oversee and ensure good governance, approve annual financial statement and budget, protect the charity from liability, minimise risk, ensure legal compliance, and participate in fundraising. They also support the CEO and review her performance.
There are 4 board meetings per year with some additional sub-committee obligations as well as an annual away day which all Trustees are expected to attend. While most board meetings have been conducted virtually during the pandemic there is a hope that at least two board meeting per year will be face to face with all attending at the charity’s offices in Maidenhead. There is an expectation that Trustees will be able to devote sufficient time to attending meetings and sub-committee meetings. If a Trustee fails to attend 2 or more meetings the Chair will discuss if there the role of a Trustee is appropriate for the individual.
We require people who are passionate about what they do and are prepared to support a great cause with equal drive and commitment. We are also keen to attract people who have a network of contacts and are willing to help us fundraise. The charity currently gets no statutory income. It's only by increasing our income that we can do more and we have so much more to do to support the 450,000+ people living with RA and 12,000 children and their families living with JIA in the UK.
What impact will this opportunity have?
We have excellent and committed existing trustees but with a more diverse board of people with a wider range of backgrounds and skills to support, help and guide the charity and the Senior Management Team, we believe we will be in a stronger position to the achieve aims and goals within our strategic plan.
What’s in it for you as a volunteer?
We believe this is a great opportunity to contribute in a key way to a vitally important cause. RA and JIA are painful, complex, disabling and life-long diseases with no cure. They are not well understood and people generally don't recognise the symptoms as being in need of urgent attention so there is often delay to diagnosis. You can be part of making the difference to thousands of peoples’ lives. Our vision is for people with RA or JIA to live life without limits. With fair access to care and without prejudice nor discrimination due to their condition.
Time commitment
Mostly during office hours, but some out of hours meetings
· 4 Board meetings per year (minimum of two in Maidenhead and others hybrid)
· Attendance at key events (e.g. parliamentary launch of a report, or major beneficiary event)
· Attendance at any major donor event
· Attendance at various Trustee Training both online and in person
· 2 or 3 sub-committee online meetings per year
· participate in other activities in support of NRAS and the Board as required.
The National Rheumatoid Arthritis Society (NRAS), is the only patient-led organisation in the UK specialising in rheumatoid arthritis (RA) and ...
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Why am I needed?
Tenovus Cancer Care wants to work closely with those most affected by cancer to ensure that what matters most to the communities in Wales is heard and addressed, whether this is through research, policy, or services.
The All-Wales Cancer Community (AWCC, or Community) was launched in summer 2022 and is an informal group of people affected by cancer who are interested in sharing their experiences to help make changes.
Often patients and their loved ones don’t get the opportunity to use their expertise to make change. The AWCC provides a way for anyone affected by cancer to engage with decision makers, through offering views, opinions, and ideas on existing / proposed services, research, policy, etc. or through signing up for a local campaign in their area. The Community is an ever-growing, dynamic and fluid group, in which members can contribute as much or as little as they like, and the opportunities offered will reflect this flexibility.
In order to set up the AWCC, we spoke to a group of keen and committed people with direct experience of cancer, so they could help us design and establish the group. We called this the AWCC steering group and they were key to achieving this Community. Now that the Community has been established, the purpose of the steering group is to help ensure that this continues to evolve alongside the needs of people affected by cancer in Wales, ensuring full involvement of people affected by cancer throughout.
We are looking for two new steering group members to join our group of six, to advise and help the AWCC ensure that everyone affected by cancer has a voice.
What will I be doing?
Members of the steering group meet via Microsoft Teams or Zoom, to contribute to the continuing development of the All-Wales Cancer Community by:
Contributing views, representing the voice of the public
Reviewing our ideas and giving feedback
Providing feedback on how we communicate with the AWCC
Discussing practical issues such as recruitment, and increasing diversity within the AWCC
Discussing opportunities that have been submitted (if required)
What skills and qualities do I need?
Currently living in Wales
Has been affected by cancer – or has been a carer for someone with cancer
Comfortable giving your opinion to a group in a polite but effective manner
Ability to participate in group discussions
Be respectful of others’ opinions
Listening skills
Maintain confidentiality where required
What support will I be given?
Each steering group meeting will be facilitated by a Tenovus Cancer Care member of staff. You will receive guidance on topics to be discussed and information on any tasks given. You will also be able to contact the Insight team by email for additional support, as required.
What’s in it for you?
The chance to gain experience of supporting Wales’ leading cancer charity.
Your involvement in this steering group helps ensure that this project has full involvement with patient and public representatives
As a member you will be contributing your views, representing the voice of the public
The opportunity to develop a range of skills whilst making a difference in your community
You may enjoy meeting new people and being a part of a project to ultimately help those affected by cancer
The chance to gain experience and to volunteer alongside our Insight and Policy team
Support from members of our Insight and Policy team who will be able to offer you advice, information and guidance in your role
Access to apply for our internal job vacancies
Reasonable expenses can be reimbursed in line with organisational policy
The satisfaction of knowing that you are making a vital difference to the work of Tenovus Cancer Care, and in particular the people who access our unique services.
A reference, should you require it for work purposes
Where will I be based?
The group will meet no more frequently than every third month, and no more than 4 times within 12 months.
What about the hours?
Steering group meetings are usually 2 hours long and happen twice a year – with the possibility of ad hoc meetings in between.
You may receive ad-hoc email communication in between, and we encourage engagement via this method when we need feedback/input outside of the scheduled meetings.
The client requests no contact from agencies or media sales.
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Healthwatch Advisory Board Chair
A remuneration of 4000.00 per annum
An Office Holder role whose purpose is to bring local knowledge and contacts to support the Healthwatch Halton Advisory Board deliver its statutory and strategic objectives and its annual Work Plan
1.2 To provide strategic leadership and inspiration for the Healthwatch Advisory Board so that it delivers its Purpose which is to:
• Provide ‘Reach’ – utilise local knowledge, ideas and capacity to build new relationships, including to: o enable more local people to be involved in the commissioning, the provision and scrutiny, including the standards of provision and whether and how they could and ought to be improved, of local health and social care services. o actively seek to ‘reach’ the diverse local communities that the Healthwatch serves.
• Act Local – translate local and national Healthwatch priorities into local initiatives, feeding into the Healthwatch intelligence gathering process.
• Advise – inform the Healthwatch’s strategic planning and thinking, help the Healthwatch remain relevant by proactively gathering and feeding back on views of local people regarding their need for, and experience of, local care services so Healthwatch can make these views known to persons responsible for commissioning, providing, managing or scrutinising local care services and to Healthwatch England.
• Connect and Influence – identify, engage with and enable access (‘open doors’) to relevant local and regional decision-makers and policy-formers, across all sectors; o broaden Healthwatch engagement with local ‘power bases’; o help the Healthwatch grow its supporter base, including helping to raise awareness of the Healthwatch in the local community.
• Be Pioneering/Pathfinding – identify and trial new ways of delivering Healthwatch ambitions and priorities and meeting objectives.
• Share – develop sustainable mechanisms to exchange learning, resources and ideas between Healthwatch. 1.3 To support and promote the work of the Healthwatch and ensure its values are evident in all its work.
2. DUTIES AND RESPONSIBILITIES
2.1 General Duties • To chair meetings of the Healthwatch Advisory Board and contribute to the development of its annual Work Plan. • In conjunction with Healthwatch management, act as champion for the Healthwatch in the Advisory Board area, for example, with local media and political leaders.
• To help provide the Healthwatch Advisory Board access to wider contacts, key organisations and individuals within a local area. To help ensure that the Healthwatch Advisory Board is well-briefed and in touch with issues with its geographical area.
• Provide leadership and expertise in a specific area or areas to support the work of the Healthwatch Advisory Board.
• Undertake practical action to help the Healthwatch Advisory Board deliver its agreed objectives.
• Represent the Healthwatch Advisory Board, as required, in developing beneficial relationships with local organisations, and community groups.
• In conjunction with Healthwatch management, hold or otherwise contribute to a local Annual Public Meeting to which the public in that locality is invited. 2.2 ADVISORY BOARD MEMBERS
• To ensure that the Healthwatch Advisory Board reflects the diversity of the community it serves and consists of a broad range of appropriate skills and experience.
• In conjunction with Healthwatch management, to lead the recruitment of Healthwatch Advisory Board Members for ratification by the Managing Engaging Communities Solutions CIC
• Ensure there is an induction programme for new Healthwatch Advisory Board Members.
Full details can be found in the jo description enclosed within application pack attached.
Closing date is 30 November 2023
Interviews will take place on Wednesday 13 December 2023
The client requests no contact from agencies or media sales.
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