Patients representative jobs in Birmingham
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Being in hospital can be really tough physically and emotionally. This is why our hospital charities do as much as they can to help patients and their families feel as supported as possible during their treatment. Each hospital charity provides the added extras that are "over and above" what the NHS can fund as standard. This includes life-saving equipment, state-of-the-art facilities, training and research, as well as free accommodation and patient comforts.
Across UHB Charity we are currently raising funds for a Total Body PET CT Scanner as well as our Children's and Newborn Appeals and Home from Home accommodation for civilians and military personnel, to name just a few.
As a Grants Manager you will help the Charity provide much needed equipment and facilities that will make a real difference to our patients and their families.
JOB TITLE: Grants Manager
SALARY: £40,000 per annum
HOURS: Full time - 37.5 hours
RESPONSIBLE TO: Charity Chief Executive
ACCOUNTABLE TO: Charity Chief Executive
LOCATION: Queen Elizabeth Hospital Birmingham
ROLE DESCRIPTION
The Grants Manager role is primarily based at Queen Elizabeth Hospital Birmingham for University Hospitals Birmingham Charity, with the expectation to travel to the other sites, Good Hope Hospital, Heartlands Hospital, and Solihull Hospital.
This post will oversee the Grants Team at the Charity, with the responsibility of overseeing the distribution of grant funding to projects that align with the charity's mission.
Working as part of a team, the role involves managing the full grant-making process, from designing funding programmes and assessing applications to monitoring funded projects and evaluating their impact. The manager works closely with applicants, trustees, and external stakeholders to ensure funding decisions are fair, transparent, and achieve meaningful outcomes.
They also develop grant policies, manage budgets, ensure compliance with governance and regulatory requirements, and use data and evaluation findings to improve funding strategies.
Strong relationship management, strategic planning, financial oversight, and decision-making skills are essential, along with a commitment to delivering positive social impact.
This role may involve occasional evening and weekend work at charity events and events organised by our supporters.
This role sits within our Grants Team and will oversee two Senior Grants Officers.
PRINCIPAL DUTIES
- Ensure grant programmes align with the charity's objectives and priorities.
- Review and update grant policies, procedures, and eligibility criteria.
- Manage grant application processes.
- Oversee grant management systems and databases.
- Conduct due diligence on applicants, including financial and governance checks.
- Prepare reports and recommendations for trustees or grant committees.
- Support decision-making meetings and record outcomes.
- Build positive relationships with grant applicants, funded organisations, and stakeholders.
- Provide advice and guidance to applicants throughout the process.
- Act as the main point of contact for grant recipients.
- Monitor funded projects to ensure grant conditions are met.
- Review progress reports and financial returns from grant recipients.
- Evaluate the impact of funded projects against agreed outcomes.
- Identify lessons learned to improve future grant programmes.
- Manage grant budgets and payment schedules.
- Ensure grants are awarded within approved budgets.
- Monitor expenditure and forecast future commitments.
- Work closely with finance teams to maintain accurate records.
COMMUNICATION
- Relaying accurate and timely information to the fundraising team, the Charity Chief Executive and Charity Trustees on a regular basis. Communicating with clinical and non-clinical staff within the hospital. Communicating with donors and stakeholders.
- Dealing with enquiries from the general public in a professional manner, disseminating information and ensuring that the appropriate action is taken, whilst maintaining the Charity’s policies and procedures.
PROFESSIONAL RESPONSIBILITIES
- Ability to present oneself in a professional manner as a representative of the hospital and the charity.
- To maintain confidentiality in all aspects of duty, including grant and donor data.
- To assist in maintaining accurate records and to complete and return as requested statistical data.
- To maintain an accurate effective database, recording essential information and providing statistical data in accordance with guidelines and policy using Raiser's Edge, Microsoft Office, Word and Access.
MISCELLANEOUS
- To represent the Charity in a variety of different contexts and to a variety of different audiences.
- To ensure that a positive image of the hospital and the Charity is projected at all times
- To hold a flexible approach to working hours (the role will require the post holder to work evenings and weekends as necessary)
- To hold a flexible approach to work when asked to take on other fundraising or admin duties when the team needs to cover holidays, or at times of workload pressure
- To adopt a supportive and collegiate approach when working with the fundraising team and other colleagues within the hospital
The Grants Manager will also carry out other projects and duties as directed by the Head of Fundraising, Director of Fundraising and Charity Chief Executive.
NOTES:
This is not intended to be an exhaustive list of responsibilities but more an outline framework against which the post holder will be given flexibility to define the detail. Any changes will be the subject of consultation with the post holder.
All employees must adhere to and perpetuate Charity Policies and Procedures relating to:
- Health and Safety
- No Smoking at Work
- Equal Opportunities in Employment, including responsibilities under the Disability Discrimination Act.
Your attention is drawn to the confidential nature of information collected within the NHS. The unauthorised use or disclosure of patient or other personal information is a dismissible offence and in the case of computerised information could result in a prosecution for an offence or action for civil damages under the Data Protection Act 1984.
Please note that employees are employed directly by the Charity and not the NHS.
Employees of the Charity are eligible to join a defined contribution pension scheme, to which the Charity will contribute 8% of an employee’s annual salary in addition to employee contributions.
Employees of the Charity are eligible for enhanced maternity and sickness pay.
Employees of the Charity receive 27 days holiday per year, plus Bank Holidays.
SKILLS/KNOWLEDGE/ABILITY:
Essential
- Financial Literacy
- Excellent written skills with first class spelling
- Use of Microsoft Office including Word, Excel, Access, Outlook, PowerPoint along with other software packages
- Ability to produce accurately typed and photocopied documents efficiently and to high standard
- Ability to ensure accurate data inputting
- Ability to work independently and under pressure, prioritising work to meet deadlines
- Ability to deal with heavy, unpredictable workloads
- Ability to set up and maintain organisational systems
- Ability to work flexibly to meet the needs of the charity
- Problem solving
- Record keeping
- Non-judgemental attitude
- Accepts responsibility for own decisions
- Ability to represent the Charity at events and functions
- Good interpersonal skills and ability to influence people at all levels
- Understanding and respect for the importance of patient confidentiality
- GCSE English Language or equivalent
- GCSE Mathematics or equivalent
Desirable
- Educated to degree level or equivalent
- Qualification in grant management, fundraising, communications, PR or marketing
- Understanding of the NHS and wider health and patient issues
EXPERIENCE
Essential
- Experience of working in a grant making environment
- Experience of presenting to audiences/groups
- Experience of administration in an office-based environment
- Experience of working on own initiative
- Previous experience of working with & reporting to Leadership teams / trustees
Desirable
- Experience of grant making strategy
- Team management experience
- Raiser's Edge donor database experience
- Experience of impact evaluation
ADDITIONAL INFORMATION
Essential
- A team player with a flexible approach
- Available to work out of hours if required.
Desirable
- Car driver with a clean licence
Registered Charity
21 - 50
Changing lives and saving lives for patients, families and staff at our hospitals
Thank you!
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
We are entering a period of unprecedented opportunity. Advances in treatment, increasing recognition of the condition, and growing awareness of healthcare inequalities provide a unique chance to strengthen our impact and expand our reach across the UK. Our ambition is bold: to engage and support at least 50% of the UK myasthenia community as members within the next five years, creating a movement that is representative, influential and impossible to ignore.
The successful candidate will lead the development of a thriving national community of people affected by myasthenia, ensuring that individuals and families feel connected, represented and empowered. They will transform community insight into meaningful campaigns, influence policy and healthcare decision-making, and position myaware as the authoritative voice for everyone affected by the condition.
Success in this role will be measured not only by influence and campaigning outcomes, but by the growth, engagement and mobilisation of our community. The Director will play a central role in delivering our ambition to reach, engage and retain 50% of the UK's myasthenia population as members and active supporters within five years, creating a change-maker movement that is representative of our goals.
Key Responsibilities
Community Growth and Engagement
- Contribute towards the development and delivery of a comprehensive membership growth strategy aimed at engaging at least 50% of the UK myasthenia community within five years.
- Build a deep understanding of the patient journey and identify opportunities to connect with people from diagnosis onwards.
- Lead the development of services, programmes and engagement approaches that increase membership recruitment, retention and participation.
- Ensure that people affected by myasthenia are at the heart of all organisational decisions, campaigns and strategic priorities.
- Create pathways for members, volunteers, supporters and ambassadors to actively contribute to myaware's work.
- Use data, insight and market intelligence to measure community reach, identify underserved groups and drive continuous improvement.
Campaigning, Policy and Influence
- Develop and implement a national campaigning and influencing strategy focused on awareness, equity of care, access to treatment and service improvement.
- Position myaware as a leading voice within healthcare, policy and rare disease discussions across the UK.
- Build strategic relationships with parliamentarians, government departments, NHS organisations, Integrated Care Boards, NICE, clinicians, researchers, industry partners and allied charities.
- Lead public affairs activity, including consultation responses, parliamentary engagement, policy briefings and stakeholder events.
- Ensure lived experience evidence informs policy development, healthcare decision-making and treatment access discussions.
Organisational Leadership
- Serve as a member of the Senior Leadership Team and contribute to organisational strategy and performance.
- Foster a culture of innovation, inclusion, collaboration and measurable impact.
- Work closely with fundraising, communications, partnerships, and service delivery colleagues to maximise organisational reach and effectiveness.
Awareness and Public Engagement
- Increase awareness and understanding of myasthenia among healthcare professionals, policymakers, media and the public.
- Lead initiatives that strengthen myaware's visibility, reputation and influence.
- Support the development of compelling campaigns, media activity and storytelling that inspire engagement and drive action.
- To be the spokesperson for myaware.
What Success Looks Like
Within five years, the postholder will have:
- Led significant growth in membership, progressing towards engaging at least 50% of the UK's myasthenia community.
- Increased participation in surveys, campaigns, events, volunteering and lived-experience activities.
- Established myaware as the recognised national voice for people affected by myasthenia.
- Secured meaningful influence in policy, healthcare and treatment access discussions.
- Generated evidence of improvements in awareness, service delivery, treatment access and patient representation.
- Built a highly engaged and empowered community capable of driving change at local, national and system levels.
Person Specification
Essential Experience
- Significant senior leadership experience within the charity, healthcare, membership, public affairs or advocacy sectors.
- Proven success in growing and engaging communities, memberships, movements or supporter bases at scale.
- Experience developing and delivering campaigning, influencing or public affairs strategies that have achieved measurable outcomes.
- Strong track record of building relationships with senior external stakeholders and decision-makers.
- Experience using data, insight and lived experience to shape organisational priorities and influence strategy.
- Experience leading, motivating and developing high-performing teams.
Essential Knowledge and Skills
- Outstanding strategic thinking and leadership abilities.
- Exceptional communication, influencing and relationship-building skills.
- Strong understanding of community mobilisation, supporter engagement and membership growth.
- Ability to translate complex healthcare and policy issues into compelling public narratives and calls to action.
- Strong analytical and performance management skills.
- Commitment to inclusion, co-production and patient-centred approaches.
Personal Attributes
We are looking for someone who is:
- Ambitious about building one of the UK's most engaged rare disease communities.
- Passionate about amplifying the voices of people with lived experience.
- Collaborative and inspiring.
- Politically astute and credible with senior stakeholders.
- Resilient, innovative and outcomes focused.
- Motivated by creating lasting change for people living with long-term health conditions.
Why Join Us?
myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
This is a rare opportunity to build a community movement capable of transforming lives. You will lead the growth of a national membership community, shape policy and healthcare conversations, and help ensure that every person affected by myasthenia feels informed, supported, represented and connected.
Together, we aim to ensure that within five years, at least half of everyone living with myasthenia in the UK knows, trusts and actively engages with myaware as their community, their advocate and their voice.
We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition.
We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors.
Members of myaware have full access to a wide range of support services and events including our specialist benefits and welfare advisor.
myaware supports people with myasthenia and their families. We campaign for better medical services for people with myasthenia and work to inform medical professionals.
The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK.
Benefits
- Generous holiday allowance
- Perkbox account (global benefits and rewards platform)
- Group Life Assurance after 6 months of service
- NEST workplace pension scheme
- Free inhouse staff benefits and welfare advice
- Investment in your personal and professional development
- Annual salary review
Application instructions
Candidates should submit their CV and tailored covering letter by: 11:30pm on Friday.4th September
Provisional interview dates will be week commencing: 28.9.26
Interviews will be held over Microsoft Teams.
Applications submitted without a tailored cover letter will not be considered.
This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by myaware.
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.
The client requests no contact from agencies or media sales.
The client requests no contact from agencies or media sales.