Person to person volunteer volunteer volunteer roles in Maidstone, kent

Fundraising advisors wanted to support East London Waterworks Park in developing and implementing our fundraising strategy.

East London Waterworks Park is a volunteer-led charity that has won a 2024 New London Architecture award and raised £2m towards buying land from the Department for Education to transform the 14-acre Thames Water Depot on Lea Bridge Road on the border of Waltham Forest and Hackney, into a new biodiverse park with natural swimming ponds, forest schools and community spaces. 

If you are a professional fundraiser and would like to help but are short on time, we would love to hear from you even if you are unable to get deeply involved. We would appreciate one-off or ongoing advice on the phone, online or in person. We would welcome feedback on our fundraising strategy and past applications, any advice about trust and grant fundraising, and any other advice you can give. 

The Fundraising Circle currently meets fortnightly on a Thursday evening on Google Meet and spends voluntary time outside of the meeting completing agreed tasks remotely. We understand that people may not have a lot of time to give, so we want to find volunteers who could give us one-off or ongoing strategic advice and support.

If you have experience in funding strategy, writing grants for funding applications, corporate fundraising, philanthropy, or any other aspect of fundraising, it would be great to hear from you. 

East London Waterworks Park is an exciting and ambitious project that offers many rewarding opportunities for our volunteers. You will have a significant impact on the creation of a new biodiverse community-owned park with free access natural swimming ponds and forest schools. 

By leading fundraising projects that explore how diverse professionals (architects, ecologists, web developers, community researchers etc.) collaborate to shape community infrastructure, volunteers will directly contribute to the development of a park that truly reflects the needs and desires of the local community. 

Without funding we won’t be able to make it happen. Your input will help us craft experiences that inspire, educate, and engage our service users, stakeholders, funders, and the general public, ultimately driving support for the park's mission and ensuring its long-term sustainability. So you will be directly contributing to the creation of a new biodiverse community-owned park with free access natural swimming ponds.

Get on board, join our Trustees.

The Global Legal Action Network (GLAN) is a unique non-profit organisation that works with affected communities to pursue innovative legal actions across borders, challenging states and other powerful actors involved with systemic injustice. Our vision is justice across borders. We have a Board of seven passionate and knowledgable Trustees. We are looking to expand this with up to three new appointments. 

ABOUT THE ROLE As a trustee, you will: Contribute to the strategic direction and governance of the charity. Ensure we remain true to our mission and comply with legal and financial responsibilities. Bring your skills, experience, and perspective to strengthen our board KEY REQUIREMENTS We are particularly keen to hear from: Those with lived experience of the kinds of harms GLAN aims to tackle, to ensure we are amplifying voices of those too often excluded, and to support our work addressing systemic injustices in a meaningful way. Black and Brown candidates who bring knowledge of, or have strong connections to, the Global South/Global Majority. Experience in movement building and strengthening civil society alliances. Candidates who bring expertise in the areas of Impact measurement, Fundraising or Marketing Candidates that will support GLAN to meet an increasingly challenging operating environment in terms of external risks and fundraising. Candidates who share GLAN’s values and can evidence a commitment to decolonial practice and anti-racism Candidates who are fully supportive of GLAN’s ambition to create an environment where employees have a strong, collective voice in matters affecting their work and wellbeing

Could you be our new Chair?  

Our fantastic Chair’s tenure will be coming to an end in 2026, so we are looking to appoint her successor to help Student Minds improve university communities so that every student gets the mental health support they need to reach their goals.

At Student Minds, we’re working to improve university communities so that no student is held back by their mental health. So it should come as no surprise that we are keen to reflect the communities we serve, maintain a diverse board and ensure student voices are represented. This is key to our mission and our continued impact. 

We are open-minded about the professional background of this individual and are mostly looking for someone with experience of leading effective, inclusive teams, of chairing complex organisations or meetings, and in building influential cross-sector partnerships.

Key responsibilities

Student Minds Chair is expected to commit to the following: 

• Preparation and attendance at four board meetings a year. Board meetings are held online and take place on weekdays from 5 - 7.30 pm. 

• Preparation and attendance at two in-person board away days each year, usually from 12.30 - 5 pm. These usually take place in Leeds and include a lunchtime or evening social.

• Monthly supervision calls with the Chief Executive

• Annual in-person appraisal of the Chief Executive 

• Support with board appraisals and recruitment 

• Ad-hoc meetings and conversations with the senior leadership team as required. This usually constitutes approximately a further five working days a year.

• Attendance at relevant task-group meetings and/or committees.

So, if you want to help shape the future of student mental health, download our recruitment pack to find out more!

How to apply?

1. For more information about the role responsibilities please download our recruitment pack that is linked

2. Download and complete our application form which is available via the link

3. Complete the Equality Monitoring Form. 

Application process

• Application closing deadline: Monday the 5th January at 11.59 pm - make sure you send your completed application form by this date

• Interviews: 27th January, with our Chair, Trustee and CEO

• Appointment: subject to approval by the Student Minds Board

The Charity for Action on Spiritual Abuse (formerly Replenished Life) is on a bold mission — and we need passionate, committed individuals to join us at a pivotal moment in our journey. 

Our Vision 

We believe in a world where everyone who has experienced harm in a spiritual, religious, or faith-based context is: 

• Heard and understood 

• Properly supported 

We are working towards a world where every faith and secular organisation: 

• Knows how to recognise and respond to spiritual abuse 

• Understands what a healthy religious or spiritual culture looks like 

Why Now? 

Thanks to a major Comic Relief Organisational Growth Fund grant, we are scaling up in big ways — expanding our support services, training programs, and research initiatives. With this growth comes an exciting opportunity: 
We’re recruiting 3 new trustees to join our dynamic and forward-thinking board. 

Who We're Looking For 

We are especially keen to hear from people with skills and experience in any of the following areas: 

• Financial planning and oversight 

• Strategic thinking and organisational development 

• Safeguarding and complaints handling 

• Policy, process, and quality assurance 

Whether you're already a trustee or exploring this role for the first time, if you believe in safer spiritual spaces and have time to give (around 1–2 days per month), we want to hear from you. 

We are committed to building a diverse trustee board that reflects the communities we serve, and we warmly welcome applicants from all backgrounds, faiths, and none. 

Why Become a Trustee? 

Being a trustee is more than governance — it’s purposeful leadership. It means: 

• Playing a vital role in a growing, impactful charity 

• Using your skills for social good 

• Collaborating with passionate, kind, and committed people 

• Gaining new experience and strategic insight (great for your career or personal growth!) 

• Helping shape national conversations around spiritual abuse, faith, and safeguarding 

We’ll support you every step of the way with training, resources, and a friendly, engaged trustee and leadership team. 

Time Commitment 

• Quarterly online board meetings (weekday evenings) 

• One in-person strategy day per year 

• Occasional reviews or input between meetings 

• Ongoing contribution to your portfolio area — within your flexible 1–2 days/month 

Practical Bits 

• This is a volunteer role (reasonable out-of-pocket expenses reimbursed) 

• Supportive induction and ongoing trustee development provided 

Ready to Make a Difference? 

To express your interest, contact Ruth Appleton through charity job message 

Download the full Trustee Recruitment Pack

Want a chat? Ruth is happy to talk more about the role before you apply. 

Dive into lasting impact: Fundraise for East London Waterworks Park to create and shape natural swimming ponds, ecological habitats and community gardens

East London Waterworks Park is a volunteer-led charity that has won a 2024 New London Architecture award and raised £2m towards buying land from the Department for Education to transform the 14-acre Thames Water Depot on Lea Bridge Road on the border of Waltham Forest and Hackney, into a new biodiverse park with natural swimming ponds, forest schools and community spaces. 

If you would like to help us develop our digital fundraising and our online offer, would you like to join our fundraising and communications teams in creating and implementing a strategy? We would love to hear from anyone with experience of fundraising online or with enthusiasm and a desire to test things out and learn as you go along. Recently we raised over half a million pounds through our Crowdfunder. Now we are looking to create a sustainable medium term income stream online.

The Fundraising Circle currently meets fortnightly on a Thursday evening on Google Meet and spends voluntary time outside of the meeting completing agreed tasks remotely. We understand that people may not have a lot of time to give, so we want to find volunteers who could give us one-off or ongoing strategic advice and support.

If you have experience in writing grants and funding applications, corporate fundraising, philanthropy, or any other aspect of fundraising, it would be great to hear from you. 

We are keen fundraisers but we are lacking professional in digital fundraising expertise and experience and we would love your help and input. We would welcome one-off advice on the phone or in person, as well as longer term volunteers. 

East London Waterworks Park is an exciting and ambitious project that offers many rewarding opportunities for our volunteers. You will have a significant impact on the creation of a new biodiverse community-owned park with free access natural swimming ponds and forest schools. 

By leading fundraising projects that explore how diverse professionals (architects, ecologists, web developers, community researchers etc.) collaborate to shape community infrastructure, volunteers will directly contribute to the development of a park that truly reflects the needs and desires of the local community. 

Without funding we won’t be able to make it happen. Your input will help us craft experiences that inspire, educate, and engage our service users, stakeholders, funders, and the general public, ultimately driving support for the park's mission and ensuring its long-term sustainability. So you will be directly contributing to the creation of a new biodiverse community-owned park with free access natural swimming ponds.

�� Guardian Light Foundation Board of Directors – Roles, Expectations & Benefits �� Our Mission

Guardian Light Foundation (GLF) is a for-profit social enterprise dedicated to transforming the lives of homeless and abused children, teenagers, and struggling single-parent families. We provide safe housing, education, career pathways, legal aid, and life-skills support to help individuals rebuild their lives with dignity and independence.

We are building not just an organisation — but a movement of hope, empowerment, and social impact.

�� BOARD EXPECTATIONS (Applies to ALL Members)

Every GLF board member plays a direct role in the success and sustainability of the organisation.

�� Core Expectations

• Fundraising Commitment:
  Every board member must actively participate in fundraising campaigns, donor outreach, and sponsorship drives.
  Each member is required to make a personal monthly donation to the organisation (amount optional but meaningful).

• Time Commitment:
  Minimum of 20 hours per month, including board meetings, subcommittee work, fundraising events, and strategic planning.

• Ambassadorship:
  Represent GLF publicly as a visible ambassador at community events, speaking engagements, and networking functions.

• Governance & Accountability:
  Ensure the organisation operates ethically, transparently, and in alignment with its mission and legal obligations.

• Strategic Leadership:
  Contribute skills, knowledge, and professional networks to advance the organisation’s growth, partnerships, and visibility.

• Passion for the Mission:
  Demonstrated commitment to supporting children, teenagers, and single-parent families experiencing hardship.

�� OVERALL BOARD MEMBER BENEFITS

• Prestige: Founding member of a ground-breaking national social enterprise.

• Networking: Exclusive access to philanthropists, public officials, and corporate leaders.

• Leadership Development: Gain board-level governance and strategic experience.

• Impact Legacy: Directly shape programs that provide homes, hope, and opportunity for hundreds of lives.

• Visibility: Public recognition through GLF website, media, and national campaigns.

• Personal Fulfilment: Be part of a purpose-driven organisation changing the narrative for children and families in need.

�� IDEAL CANDIDATE PROFILE (For All Roles)

We are looking for leaders who are:

• Deeply passionate about social impact, youth empowerment, and family stability.

• Professionally experienced (1+ years) in their area of expertise.

• Team players who bring creativity, positivity, and initiative.

• Connected and influential, willing to open doors and amplify GLF’s message.

• Dedicated, committing time, expertise, and monthly donations.

Position: Board of Director - Vice-Chairperson (Unpaid Volunteer Role)

Reports to: Board Chairperson

Location: Hybrid (remote + in-person events as needed)

Responsibilities:

• Support the Chairperson and act in their absence.

• Ensure all board decisions are actioned efficiently.

• Oversee special committees and task forces.

• Assist with performance evaluations of executive staff.

• Provide leadership continuity during transitions.

Requirements:

• Strong leadership and organisational skills.

• Prior experience in management or board governance.

Benefits:

• Executive leadership recognition.

• Key role in succession planning and governance strategy.

• Access to leadership networks and visibility opportunities.

Compensation:
This is an unpaid volunteer position.

Join our amazing volunteer team to raise awareness of the issues affecting blind and partially sighted people in relation to sport. You will give talks in person or virtually, sharing your own story to improve understanding of sight loss to sports clubs, sporting venues and facilities and community groups. You’ll be making a real difference to people living with sight loss by helping to improve accessibility and inclusivity, creating a sporting world without barriers.

What you’ll be doing
1. Talks to sports and physical activity providers to support and encourage them to consider the needs of blind and partially sighted people by sharing your story to audiences, for example, local leisure centres, sporting venues and sports clubs.
2. Delivering talks to raise awareness of existing sporting and physical activity opportunities for blind and partially sighted people.
3. Representing RNIB as an Ambassador for the Community Connection service.

What you’ll gain from the role
1. A chance to give something back in an area you are passionate about.
2. A chance to make a difference with a sense of achievement.
3. A chance to build a strong community of sports people with sight loss.
4. A chance to be part of a team of like-minded people, increasing your confidence and skills to talk to groups of people with impact, with an opportunity to develop your role into delivering independently over time.
5. Opportunity to explore different roles within our organisation including our internal recruitment vacancies

In return for donating your time we will support you with:
1. A rewarding role
2. A great Induction and Training, in particular training in public speaking and story telling will be given.
3. A supportive Manager
4. Regular catch-ups
5. Expenses
6. An opportunity to connect with other volunteers

How often will I be needed?

• 4 Hours per Month

Key requirements

• This role requires 1 reference.

Location

Region

• Northern Ireland

Who this opportunity will suit

• This role is reserved for blind and partially sighted applicants

Minimum age

• You must be at least 18 years old to apply

What skills and experience are needed?

• You’ll ideally have 1. Lived experience in playing, spectating, or delivering sport or physical activity sessions as a blind or partially sighted person. 2. Lived experience of issues affecting blind and partially sighted people in relation to sports and physical activity. 3. Be comfortable speaking to different audiences to share your sporting story, or a willingness to try with our support. 4. Have effective communication skills. 5. An outgoing friendly approach to meeting new people

Research & Policy Officer (Volunteer)

Purpose: To support research / policy projects in areas of the UK, ensuring strategic alignment, quality assurance, and effective collaboration that drives systemic change for young people across the UK.

Key Responsibilities

• Provide strategic oversight of research / policy projects, ensuring outputs are high-quality and impactful.

• Lead on drafting policy briefs and research reports, setting standards for evidence-based advocacy.

• Coordinate multi-stakeholder collaboration, i.e councils, commissions, and community organisations to deliver change.

• Identify emerging issues and opportunities, help in shaping the research agenda in line with organisational priorities.

• Represent the organisation in external meetings.

• Ensure consistency and coherence across multiple projects running in different localities.

Person Specification

• Background in social policy, law, health, climate, or political science, ideally with professional or postgraduate experience.

• Proven ability to manage complex projects and coordinate across multiple stakeholders.

• Excellent strategic thinking and communication skills, able to influence decision-makers.

• Strong IT and remote collaboration skills.

• Deep commitment to human rights

Use your financial expertise to help bring joy to children living through crisis. Join Clowns Without Borders UK as our Treasurer and play a vital role in strengthening a small, high-impact international charity.

Governance 

Our Board is the ultimate governance body for the charity, serving as stewards of its resources, and ultimately responsible for our strategy, operations and financial management. Our board ensures we comply with our governing document, charity law and pursue our objectives. They are responsible for providing support, guidance and decisions to the CWB team, ensuring the effective and efficient administration of the organisation. 

Trustees are elected for a 2-year term but with the opportunity to be re-elected. 

Trustee Responsibilities 

Strategy and Governance 

• Actively contribute to the Board of Trustees’ role in giving firm strategic direction to the charity, setting overall policy, defining goals and setting targets and evaluating performance against agreed targets 
• Supporting high standards of governance and risk management 
• Ensuring the organisation is accountable and transparent in its activities 
• Ensuring compliance with relevant charitable and company legislation 
• Safeguarding the interests of Clowns Without Borders’s beneficiaries 

Advocacy 

• Acting as an ambassador for Clowns Without Borders
• Overseeing, and presenting budgets, accounts, and financial statements to the board 

Treasurer’s Responsibilities 

Overseeing the financial matters of the charity 

Ensuring proper accounts and records are kept 

Develop and/or review and implement financial and reserves policies 

• Be a point of contact and lead on issues relating to financial matters of the charity 

o Implementing and monitoring financial controls and ensuring relevant systems are in place 

o Liaising with charity’s director to ensure annual accounts are compliant with Charity Commission guidelines when necessary 

o Liaising with the charity’s independent examiner where appropriate. 

• Drive financial strategy and planning 

o Lead financial discussions with the board team 

o Present strategic options for future financial planning 

o Set up models to help other directors/trustees evaluate financial position and planning 

Expertise 

• Qualified UK Chartered Accountant 
• Knowledge and experience of current financial practices relevant to small charities 
• Strong financial management and strategic experience 
• Good financial analysis skills. 
• Ability to communicate clearly 

Person Specification 

• Passionate about children’s rights 
• Embody the values of CWB and endeavor to maintain a spirit of joy, peace, compassion and kindness in the way we work together on the Board 
• Enthusiastic about our mission and able to support this through the sharing of ideas, professional expertise and networks 

Remuneration 

The position of Trustee is unpaid. However, all reasonable out-of-pocket expenses incurred will be reimbursed in line with our Expenses Policy. 

Join our amazing volunteer team to raise awareness of the issues affecting blind and partially sighted people in relation to sport. You will give talks in person or virtually, sharing your own story to improve understanding of sight loss to sports clubs, sporting venues and facilities and community groups. You’ll be making a real difference to people living with sight loss by helping to improve accessibility and inclusivity, creating a sporting world without barriers.

What you’ll be doing
1. Talks to sports and physical activity providers to support and encourage them to consider the needs of blind and partially sighted people by sharing your story to audiences, for example, local leisure centres, sporting venues and sports clubs.
2. Delivering talks to raise awareness of existing sporting and physical activity opportunities for blind and partially sighted people.
3. Representing RNIB as an Ambassador for the Community Connection service.

What you’ll gain from the role
1. A chance to give something back in an area you are passionate about.
2. A chance to make a difference with a sense of achievement.
3. A chance to build a strong community of sports people with sight loss.
4. A chance to be part of a team of like-minded people, increasing your confidence and skills to talk to groups of people with impact, with an opportunity to develop your role into delivering independently over time.
5. Opportunity to explore different roles within our organisation including our internal recruitment vacancies

In return for donating your time we will support you with:
1. A rewarding role
2. A great Induction and Training, in particular training in public speaking and story telling will be given.
3. A supportive Manager
4. Regular catch-ups
5. Expenses
6. An opportunity to connect with other volunteers

How often will I be needed?

• 4 Hours per Month

Key requirements

• This role requires 1 reference.

Location

Region

• Scotland

Who this opportunity will suit

• This role is reserved for blind and partially sighted applicants

Minimum age

• You must be at least 18 years old to apply

What skills and experience are needed?

• You’ll ideally have 1. Lived experience in playing, spectating, or delivering sport or physical activity sessions as a blind or partially sighted person. 2. Lived experience of issues affecting blind and partially sighted people in relation to sports and physical activity. 3. Be comfortable speaking to different audiences to share your sporting story, or a willingness to try with our support. 4. Have effective communication skills. 5. An outgoing friendly approach to meeting new people

Join our amazing volunteer team to raise awareness of sight loss and RNIB services at local events. You will give talks in person or virtually, sharing your own story to improve understanding of sight loss to local service providers and community groups. You’ll be making a real difference to people living with sight loss by helping to improve accessibility and inclusivity, creating a world without barriers.

What you’ll be doing:
• Giving talks to groups of people to raise awareness of sight loss in your local community by sharing your story to audiences, for example, local businesses, community and voluntary groups.
• Delivering Talks to raise awareness of RNIB services as a trusted source of support for blind and partially sighted people

• Representing RNIB as an Ambassador for the Community Connection service

What you’ll gain from the role:
• An opportunity to give something back.
• A chance to build a strong community.
• A sense of achievement through the difference you make.

• A chance to be part of a team of like-minded people
• An opportunity to develop and explore different roles with RNIB, including our internal job vacancies.

In return for donating your time we will provide:
• A supportive route to building your confidence in presenting and sharing your story with an audience.
• A rewarding experience.
• A great Induction and training.
• A supportive manager.
• Regular updates and catchups.
• Expenses.
• An opportunity to connect with other volunteers.

How often will I be needed?

• 4 Hours per Month

Key requirements

• 1 reference

Location

Region

• Northern Ireland

Additional location information

• Currently looking for applicants within the Belfast Area only!

Who this opportunity will suit

Minimum age

• You must be at least 18 years old to apply

What skills and experience are needed?

• • Lived experience of issues affecting blind and partially sighted people • Be comfortable speaking to different audiences to share your story, or a willingness to try with our support. • Able to communicate effectively. • Have an outgoing, friendly approach to meeting new people.

Make a real difference for young people in Greater Manchester!
Join the board of Change The Youth NW, a youth-focused charity empowering 5–18-year-olds through mentoring, life skills programs, and exciting activities. Shape the future of our charity, help young people thrive, and gain valuable governance experience.

About Us

Change The Youth NW is a non-profit providing meaningful opportunities, activities, and support for young people aged 5–18. We remove barriers like cost, travel, and accessibility, helping young people develop skills, confidence, and leadership to succeed in education, employment, and life.

Our projects include:​

• Youth development projects

• Sports & physical activities

• Residentials and day trips (e.g., Blackpool, Lake District, planned international trips)

• 1–2–1 mentoring and support

• Seasonal events and workshops

Our culture: Relaxed, supportive, flexible, with opportunities to shape new programs, attend social events, and gain hands-on experience in charity work.

Role Overview

We are seeking enthusiastic trustees to guide our charity’s strategy and governance. This is a chance to make a real impact, gain trustee experience, and contribute to a growing, energetic organisation.

Core Responsibilities

• Ensure the charity delivers its mission and operates legally and effectively

• Set long-term strategy and monitor progress

• Oversee finances, policies, and safeguarding

• Promote the charity’s values and reputation

• Offer advice, specialist knowledge, and support for new initiatives

Person Specification

Essential:

• Commitment to our mission and values

• Willingness to devote time and effort

• Confidence to share ideas and work collaboratively

• Understanding (or willingness to learn) trusteeship responsibilities

• Respect for safeguarding, confidentiality, and professionalism

• Commitment to the Nolan Principles of public life (selflessness, integrity, objectivity, accountability, openness, honesty, leadership)

Desirable:

• Experience with young people

• Skills in finance, safeguarding, youth work, administration, project planning, marketing, fundraising, or community engagement

Time Commitment

• Quarterly meetings (online or in person)

• Occasional involvement in policies, decisions, or events

• Optional involvement in programs or fundraising

Benefits

• Make a lasting impact on young people’s lives

• Gain trustee and governance experience

• Flexible hours and online participation

• Learn about charity management, safeguarding, and youth work

• Shape innovative programs and initiatives

How to Apply

Submit a short CV and covering statement explaining your interest and relevant skills or experience.

Join our amazing volunteer team to raise awareness of sight loss and RNIB services at local events. You will give talks in person or virtually, sharing your own story to improve understanding of sight loss to local service providers and community groups. You’ll be making a real difference to people living with sight loss by helping to improve accessibility and inclusivity, creating a world without barriers.

What you’ll be doing:
• Giving talks to groups of people to raise awareness of sight loss in your local community by sharing your story to audiences, for example, local businesses, community and voluntary groups.
• Delivering Talks to raise awareness of RNIB services as a trusted source of support for blind and partially sighted people

• Representing RNIB as an Ambassador for the Community Connection service

What you’ll gain from the role:
• An opportunity to give something back.
• A chance to build a strong community.
• A sense of achievement through the difference you make.

• A chance to be part of a team of like-minded people
• An opportunity to develop and explore different roles with RNIB, including our internal job vacancies.

In return for donating your time we will provide:
• A supportive route to building your confidence in presenting and sharing your story with an audience.
• A rewarding experience.
• A great Induction and training.
• A supportive manager.
• Regular updates and catchups.
• Expenses.
• An opportunity to connect with other volunteers.

How often will I be needed?

• 4 Hours per Month

Key requirements

• 1 reference

Location

Region

• Scotland

Who this opportunity will suit

Minimum age

• You must be at least 18 years old to apply

What skills and experience are needed?

• • Lived experience of issues affecting blind and partially sighted people • Be comfortable speaking to different audiences to share your story, or a willingness to try with our support. • Able to communicate effectively. • Have an outgoing, friendly approach to meeting new people.

Help safeguard our future: Join BBS UK as our Treasurer

Bardet-Biedl Syndrome UK (BBS UK) is seeking a new Treasurer to join our Board of Trustees and play a key role in ensuring the charity remains financially strong, sustainable, and well governed.

Bardet-Biedl syndrome (BBS) is a rare, complex genetic condition that causes blindness, learning disabilities, obesity, and a range of additional health challenges. BBS UK is the only UK charity dedicated to supporting individuals and families affected by BBS.

We provide advocacy services, NHS clinic support, publications, and community events that help people navigate life with BBS. Each year, we support over 700 individuals, working alongside a small team of dedicated part-time staff and committed volunteers.

It’s an exciting time to join our charity. We are looking to strengthen our governance and build on our financial foundations to support future growth and impact.

The role

As Treasurer, you will oversee the financial governance of BBS UK, working closely with the Board of Trustees, Operations Manager, and external accountant.

This is a strategic oversight role, not a hands-on bookkeeping position. Day-to-day financial administration is carried out by staff; the Treasurer provides assurance, guidance, and clarity to support good decision-making.

Key responsibilities include:

• Maintaining a strategic overview of the charity’s financial health

• Presenting clear summaries of financial information at Board meetings

• Advising Trustees on the financial implications of plans and decisions

• Overseeing the annual budget and supporting longer-term financial planning

• Ensuring appropriate financial controls and procedures are in place

• Supporting the preparation of annual accounts and liaison with the Independent Examiner

• Helping ensure appropriate reserves are maintained in line with policy

The Board of Trustees retains collective responsibility for the charity’s finances.

We’re looking for someone with:

Essential:

• Experience in finance, accounting, bookkeeping, or financial oversight

• Confidence interpreting financial information and explaining it clearly to non-financial colleagues

• Understanding of financial controls and good governance

• Ability to think strategically and identify financial risks

Desirable:

• Experience in a charity or not-for-profit setting

• Understanding of restricted and unrestricted funds

• Experience working with budgets or management accounts

We particularly welcome applications from people with lived experience of BBS or a connection to the BBS community, though this is not essential.

As a BBS UK Trustee, you will have:

• Induction, training, and ongoing support

• Reasonable expenses reimbursed

• Opportunities to develop new skills and contribute at a strategic level

• The chance to make a meaningful difference to a rare disease community

• Opportunities to collaborate with dedicated trustees, staff, and partners

Time commitment

• Attendance at four Board meetings per year (online, approximately 3 hours each)

• Reviewing financial information monthly or quarterly

• Additional input around budget setting and year-end accounts

• Attendance at our annual conference weekend (in person; expenses covered)

If you would like an informal conversation about the role before applying, we would be very happy to arrange a chat with our Chair.

BBS UK is committed to equality, diversity and inclusion, and we welcome applications from people of all backgrounds who share our values and want to support our community.