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The International Prader-Willi Syndrome Organisation (IPWSO) is seeking a talented and motivated CEO who will deliver our organisational strategy which aims to improve the lives of all those affected by a rare genetically determined disorder called Prader-Willi syndrome (PWS).
The role of CEO at IPWSO is both challenging and rewarding. You can help deliver change for people affected by PWS from across the globe by helping us build solidarity, promoting scientific reasoning and research, helping to foster new relationships, supporting our members, and striving for equality for everyone affected by the syndrome.
You will work alongside passionate volunteers and experts in PWS from across all continents and with a skilled and small staff team based in the UK. We are all dedicated to making a tangible difference!
For the full person specification and the JD, please refer to the attachment below.
#CEO #Chief Executive #Chief Executive Officer
Please see the application pack for the full Job Description and Person Specification.
Apply on the Charity Job website and submit a copy of your CV with a covering letter of no more than two A4 pages, describing how you meet the requirements of the role and the criteria outlined in the Person Specification. Include in your covering letter the names, position, organisation, email, and telephone contact of two referees, one of whom should be your current/most recent employer. References will only be sought once your express permission has been granted.
We will be reviewing applications and interviewing applicants on a rolling basis. We encourage you to apply early, as the advertisement may close before the 19 February 2026.
To unite the global PWS community to collectively find solutions to the challenges of the syndrome.
The client requests no contact from agencies or media sales.
Company Description
Marie Curie is the UK’s leading end-of-life charity. We are the largest non-NHS provider of end-of-life care in the UK, the only provider across all 4 nations, delivering community nursing and hospice care across the country, while providing information and support on all aspects of dying, death, and bereavement. Our leading research pushes the boundaries of what we know about good end-of-life, and our campaigns fight for a world where everyone gets to have the best possible quality of life while living with an illness, they’re likely to die from.
Job Description
You’ll join Marie Curie’s in-house Creative team, working closely with colleagues across Marketing, Fundraising, Digital, Events and Communications. The team is responsible for delivering high-quality, on-brand creative across all channels, from fundraising campaigns and supporter communications to digital experiences and print materials. You’ll lead a well-established, talented team of designers and collaborate with external agencies and suppliers to bring the charity’s work to life.
As Design Manager, you’ll play a pivotal role in shaping Marie Curie’s visual identity and creative output. By setting design standards, inspiring your team, and championing innovation, you’ll ensure our creative work is consistently high quality, inclusive, and impactful. Your leadership will help strengthen our brand, deepen engagement with supporters and audiences, and support the charity in achieving its organisational and fundraising goals.
Your Impact:
- Lead and champion design excellence across the organisation, ensuring all creative outputs align with brand guidelines and strategic objectives.
- Develop and maintain a clear design vision that resonates with diverse audiences and supports Marie Curie’s mission.
- Inspire, manage and develop a team of designers, fostering a collaborative, high-performing culture.
- Oversee end-to-end design delivery, from concept to execution, ensuring quality, accessibility and deadlines are met.
- Work closely with the Studio Manager to plan resources and balance workloads across multiple projects.
- Own and develop key visual assets and lead the photography plan, working closely with the Stories team.
- Collaborate with internal stakeholders to translate briefs into compelling, effective design solutions.
- Ensure inclusive and accessible design principles are embedded in all outputs.
- Maintain governance standards, including brand compliance, copyright and legal requirements.
- Build strong relationships with external agencies and creative suppliers.
Key Requirements:
- Proven experience leading a high-performing design team in a creative or brand-led environment.
- Strong portfolio demonstrating excellence across digital and print design.
- Expert knowledge of Adobe Creative Suite and familiarity with emerging design tools and trends.
- Excellent leadership, communication and stakeholder management skills.
- Experience delivering a wide range of creative outputs, including digital, print, merchandise, photography and environments.
- Understanding of accessibility standards and inclusive design principles.
- Highly organised, detail-oriented and comfortable managing multiple priorities.
- Experience in the charity, healthcare or purpose-led sector is desirable but not essential.
- A genuine commitment to Marie Curie’s mission and values.
Application & Interview Process
- As part of your online application, you will be asked for a CV and supplementary details. Please review both the advert and job description and outline your most relevant skills, experience and knowledge for the role.
- Close date for applications: Sunday 1 February 2026. We encourage early applications, as we may close the application process sooner once we receive a sufficient number of qualifying applicants.
Salary: £37,000-40,000 per annum, depending on experience
Contract: Permanent, full-time (35h per week)
Location: Home-based with regular visits to the Embassy Garden office in London as required.
Benefits you’ll LOVE:
- Flexible working. We’re happy to discuss flexible working at the interview stage.
- 25 days annual leave (exclusive of Bank Holidays)
- Marie Curie Group Personal Pension Scheme (we will match your contribution up to 7.5%)
- Loan schemes for bikes; computers and season tickets
- Continuous professional development opportunities.
- Industry-leading training programmes
- Wellbeing and Employee Assistance Programmes
- Enhanced bereavement, family friendly and sickness benefits
- Access to Blue Light Card membership
- Subsidised Eye Care
Marie Curie is committed to its values, which underpin our work. We take stringent steps to ensure that the people who join our organisation through employment or volunteering, are suitable for their roles and are committed to safeguarding all our people from harm. This includes our staff, volunteers and all those who use or come into contact with our services. We are dedicated to creating not just a safe place to work but also a supportive and rewarding one.
We are committed to a world where everyone can thrive and fulfil their potential. We are devoted to the social justice imperatives and organisational benefits of full diversity, inclusion and equity in the workplace, and are a Stonewall champion. We actively encourage and welcome applications from candidates of diverse cultures, perspectives and lived experiences.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Breck Foundation
Breck Foundation is at the forefront of efforts to safeguard children and young people online. Our organisation was founded in 2014 in response to the tragic loss of Breck Bednar, a 14-year-old boy who was groomed and murdered by someone he met online. Our work aims to prevent this from ever happening again. Our work saves lives. We reach thousands of children and young people in schools and other community settings with Breck's story every year. Our talks and educational materials fill a gap in the current UK curriculum that otherwise leaves children vulnerable to online grooming and exploitation.
With 98% of young people now active internet users, current and future generations grow up having to navigate new and evolving digital dangers. We are committed to making the internet a place where children can live, play and thrive in safety. We are helping young people reclaim the internet.
The Role
Children’s online safety is both an important and an urgent issue and the need for our unique work here at Breck Foundation is greater now than ever. The primary purpose of this role is to help children and young people take practical steps to become more digitally resilient and be safer online. Our East of England Education Programme Officer will introduce the highly impactful Breck’s story into schools and other youth and community spaces and deliver inspiring, educational talks to students, parents and guardians, teachers and other groups in a ‘whole community’ approach.
The role is fully remote, but post holder will be willing and able to easily travel to various locations within the East of England as and when necessary to fulfil the requirements of the role as well as to engage with colleagues virtually and in person in London four times a year.
Main Duties and Responsibilities
Programme Delivery
- Coordinate all practical arrangements necessary for successful delivery and post-delivery activities in schools, including the timely transmission of digital files; and liaising with relevant colleagues to ensure timely delivery of materials and promotional merchandise to schools.
- Responsibility for delivering sessions tailored to educate/inform children/parents and teachers as well as carrying out all pre- and post-delivery engagements.
- Respond to any questions, disclosures or safeguarding concerns raised during sessions and follow up where necessary with the school safeguarding team or, where consent is secured, make onward referrals for additional support in specific cases.
- Contribute to the continuous development of all aspects of the programme, sharing new ideas and using best practice, including keeping programme presentations up to date or, when applicable, working on this together with relevant colleagues, ensuring that presentations used in schools across the organisation are always uniform and consistent.
- Maintain accurate records of programme activities, including record of input, output, and impact as well as demographics data, and monitor and periodically evaluate and report on impact.
Stakeholder Development/Management
- Seek and maximise opportunities for building relationships with groups of schools (primary and secondary) and relevant education/teaching groups, unions and networks, with a view to raising the profile of the programme and generating interest in it.
- Develop and manage ongoing relationships with individual schools to secure their repeat, annual participation in the programme or repeat bookings for paid presentations.
Publicity/Marketing/Communications
- Promote the offer to all types of schools (state and private), working with relevant colleagues to create impactful publicity/marketing assets and to make contact and register schools’ interests.
- Maximise opportunities for generating communication assets and publicity during delivery in schools, including through video recordings, photographs, testimonials, Vox Pops, collection of social media handles for mentions etc., ensuring to follow school guidance and secure necessary permissions.
Additional Duties and Responsibilities
- Objectively review the successes and achievements against agreed objectives, identifying strengths, weaknesses and risks, as well as suggesting improvement.
- Depending on experience and qualifications of post-holder, to be receptive to any other duties as required, in line with the needs of Breck Foundation.
- Develop and maintain good working relationships with colleagues and other professionals, and to participate in team meetings.
- To participate in personal supervision in accordance with Breck Foundation’s supervision and performance appraisal policy and attend agreed training as relevant.
- At all times to carry out the responsibilities of the post in a manner consistent with promoting equalities and diversity and demonstrate respect for colleagues and Breck Foundation’s aims and values.
- To maintain an awareness of own and others’ health and safety, comply with Breck Foundation’s Health and Safety policies and procedures and lone working policy.
- Some evenings and weekend are involved with time recovered flexibly or time off in lieu taken where agreed with the line manager.
In your cover letter, you should clearly show how your skills/experience and potential meet the required points under ‘Abilities/Experience’, ‘Qualification’, and ‘Knowledge/Skills’ as the short-listing decision will be based on assessment against these criteria. Where possible, give examples.
The client requests no contact from agencies or media sales.
Director of Operations
Lead with Purpose. Shape the Future of Christian Care.
Pilgrims’ Friend Society has been providing Christian care to older people for over 200 years. Today, as the UK faces an unprecedented ageing population, we are growing to meet the challenge and we need an exceptional leader to help us deliver our vision of fulfilled living for older people.
We operate 12 care homes and 9 housing schemes across England, with ambitious plans to expand to 15 homes and beyond. Our mission is clear: to provide outstanding care rooted in Christian values, and to partner with local churches so that older people experience dignity, community, and the love of Christ.
About the Role
As Director of Operations, you will:
- Lead and oversee our portfolio of established care homes and housing schemes.
- Ensure regulatory compliance, quality of care, and financial sustainability.
- Drive operational excellence, innovation, and efficiency through systems and processes.
- Work closely with our Executive Team to deliver our Growth and Renewal Programme, including new builds and acquisitions.
- Inspire and develop a talented team of managers and operational leaders.
This is a senior leadership role with significant influence on the future of our organisation and the lives of hundreds of older people.
About You
- We are looking for a strategic, values-driven leader who brings:
- Significant experience in adult social care operations or a closely related sector.
- Strong knowledge of regulatory, Health & Safety, and compliance frameworks.
- Proven ability to deliver quality and financial targets at scale.
- A collaborative leadership style, with a commitment to developing people and culture.
A personal Christian faith and alignment with our basis of faith(a genuine occupational requirement under the Equality Act 2010).
Why Join Us?
- Be part of a growing organisation with a clear vision and calling.
- Influence how society values older people and supports churches in ministry.
- Work in a culture that prioritises prayer, faith, and excellence.
- Competitive salary, generous holiday, pension scheme, and life assurance.
The client requests no contact from agencies or media sales.

