Programme director boys jobs

Charity Manager

The Noah Jordan Foundation

Location: Cornwall, UK
Salary: £35,000–£40,000 (depending on experience)
Hours: Full-time preferred (part-time may be considered)
Reporting to: Charity Director
Working closely with: Board of Trustees
Additional Requirements: Flexibility to work occasional evenings and weekends in line with events, campaigns and charity activities, with willingness and ability to travel across the UK as required.

About The Noah Jordan Foundation

The Noah Jordan Foundation is a fast-growing UK children’s charity established in memory of Noah, who died in 2024 from POLG mitochondrial disease, a rare and devastating paediatric mitochondrial disorder which can cause severe neurological deterioration and liver failure in children, and for which there is currently no effective treatment or cure.

Following Noah’s death, his family made him a promise: that his legacy would help change the future for children and families affected by mitochondrial disease.

The Foundation was established to deliver that promise through three charitable objectives:

Medical Research

Funding pioneering medical research to improve clinical management, accelerate the development of effective treatments and ultimately help drive progress towards cures for rare paediatric mitochondrial diseases, including POLG-related mitochondrial disorders.

Raising Awareness

Increasing awareness and understanding of mitochondrial disease amongst healthcare professionals, organisations and the wider public through campaigns, events, education and training.

Supporting Children and Families

Providing practical and emotional support to children and families affected by mitochondrial disease through information, resources, services and financial assistance where possible.

Since launching in September 2024, thanks to our incredible community, the Foundation has grown rapidly, raising more than £400,000 in just over 18 months.

Our Impact

The Foundation has already:

• Fully funded a three-year medical research PhD programme into POLG mitochondrial disease at the Mitochondrial Research Group (MRG) at Newcastle University, under the guidance of one of the UK’s leading Professors of Paediatric Mitochondrial Medicine, who also serves as a Charity Medical Advisor to the Foundation.
• Supported affected children, families and organisations across the UK.
• Developed national corporate partnerships and strategic relationships.
• Built a growing national supporter community and dedicated volunteer network.
• Established a growing national profile across mitochondrial disease awareness, fundraising and advocacy.
• Begun work towards funding further pioneering mitochondrial disease research and delivering long-term charitable impact.

Everything achieved so far has been built through passion, community and an unwavering commitment to creating meaningful change. Whilst we are proud of what has been achieved during our first 18 months, we believe this is only the beginning.

The Foundation is now entering an exciting and important phase of development as we strengthen long-term sustainability, diversify income, grow partnerships and build the organisational capability required to maximise impact for children and families affected by mitochondrial disease across the UK, whilst contributing towards change around the world through research, awareness and support.

We are seeking an exceptional individual to help build upon the momentum already created and shape the Foundation’s continued growth and long-term impact.

The Opportunity

This is an opportunity to help build a nationally recognised charity at an exciting and formative stage of its journey.

The Noah Jordan Foundation is building towards becoming a nationally recognised force for change within paediatric mitochondrial disease research, awareness and family support.

As the Foundation’s first full-time employee, the Charity Manager will play a key role in shaping the future culture, structure and direction of the organisation.

Reporting directly to the Charity Director and working closely with the Board of Trustees, you will help develop organisational strategy, grow income, strengthen operations, build partnerships and support the long-term sustainability of the Foundation.

The Charity Manager will act as the Foundation’s operational and fundraising lead, helping drive continued growth and maximise impact for children and families affected by mitochondrial disease.

This role requires someone equally comfortable developing strategy, building partnerships and driving income growth, whilst also rolling their sleeves up and supporting practical delivery where required.

One day may involve developing fundraising strategy, corporate relationships or marketing initiatives. Another may involve supporting volunteers, delivering events or solving operational challenges.

From partnerships, fundraising strategy and marketing to events, administration and operational support, the successful candidate will need to be comfortable contributing wherever required.

This role will suit someone ambitious, adaptable and proactive who thrives within fast-moving environments and enjoys building meaningful impact from the ground up.

For the right person, this is a rare opportunity to help shape a growing charity and leave a lasting legacy.

Key Responsibilities

Fundraising and Income Growth

• Lead and grow fundraising activity across the Foundation.
• Develop and manage corporate partnerships and sponsorship opportunities.
• Identify and secure trusts, grants and major donor funding.
• Support regular giving and community fundraising growth.
• Help develop long-term fundraising strategy and income diversification.
• Build and nurture relationships with donors, businesses, trusts and strategic partners.
• Develop proposals and pitches for supporters, businesses and stakeholders.
• Identify opportunities and support sustainable income growth.
• Strengthen supporter stewardship and donor relationships.
• Support fundraising campaigns and flagship charity initiatives.

Operations and Organisational Development

• Help build systems, processes and operational structures as the charity grows.
• Support governance, compliance and reporting requirements.
• Develop reporting frameworks and performance measures to support Trustee oversight and organisational growth.
• Support budget monitoring and financial administration alongside Trustees.
• Lead, support and help develop the Foundation’s dedicated volunteer network, helping build a positive, engaged and high-performing volunteer culture.
• Support CRM systems and fundraising pipeline management.
• Help develop internal processes to support sustainable long-term growth.
• Undertake additional responsibilities commensurate with the role where required.

Communications, Marketing and External Engagement

• Support planning and delivery of campaigns, events and public engagement activity.
• Lead marketing, communications and storytelling activity to strengthen awareness, supporter engagement and fundraising.
• Help develop campaigns that increase awareness and understanding of mitochondrial disease and strengthen the Foundation’s profile.
• Support content development across digital platforms and supporter communications.
• Represent the Foundation externally with professionalism, warmth and passion.
• Build and strengthen relationships with supporters, businesses and stakeholders.
• Represent the needs of affected children and families and help drive innovation, awareness and positive change.
• Work closely with the Charity Director on strategic development and future growth.

About You

We are seeking someone with:

• Approximately 5–10 years’ experience within fundraising, charity development, partnerships or organisational growth.
• A proven ability to build relationships and generate income.
• Strong communication, influencing and stakeholder engagement skills.
• Strong relationship-building and partnership development skills.
• Confidence developing proposals, presenting ideas and pitching to supporters, businesses and stakeholders.
• The ability to balance strategic thinking with practical delivery.
• A proactive, adaptable and solutions-focused mindset.
• A willingness to learn, develop and grow alongside a rapidly evolving organisation.
• A willingness to be hands-on and contribute wherever needed.
• Strong storytelling and communication skills, with an understanding of how marketing and communications drive awareness, fundraising and supporter engagement.
• Empathy, emotional intelligence and professionalism.
• A willingness to travel and support events across the UK.
• Flexibility to work occasional evenings and weekends.
• A full UK driving licence and access to transport.
• A genuine passion for meaningful work, long-term impact and improving outcomes for children and families affected by mitochondrial disease.
• Ambition, resilience and commitment to creating lasting impact.

We would particularly welcome applicants with experience in corporate partnerships, fundraising strategy, charity growth and development, community engagement, marketing and communications, events and campaigns, trusts and foundations, and organisational development and scaling.

We recognise exceptional candidates may not meet every element of the criteria listed above. If you are passionate about our mission, bring transferable experience and believe you could make a meaningful contribution to our future, we would encourage you to apply.

We understand that the right person may come from either the charity sector or a related professional background with transferable experience in partnerships, fundraising, business development, communications, marketing or organisational growth.

Experience working within a growing charity or purpose-led organisation would be highly advantageous.

Why Join Us?

This role offers the opportunity to:

• Help shape the future of a fast-growing children’s charity.
• Work closely with an ambitious and passionate leadership team.
• Build meaningful partnerships and projects with national impact.
• Directly contribute towards advancing pioneering mitochondrial disease research, raising awareness and supporting affected children and families.
• Be part of a community determined to create lasting change.
• Help build a charity designed to create lasting impact for generations to come.

We couldn't save Noah, but together, we can change what happens next.

The extinction of Mito, one stomp at a time.

A growing charity supporting boys and men is seeking a Monitoring & Evaluation Lead to strengthen impact measurement, quality assurance, organisational learning, and data systems across the organisation.

Part-time (28 hours per week / 0.8 FTE) | Hybrid – London
Salary: £32,928 (FTE £41,160)

Reporting to the Operations Director, this role will work closely with senior leadership and programme teams to ensure services are effective, data-informed, and aligned with the charity’s mission and values.

Key Responsibilities

• Develop and support impact and evaluation frameworks across services
• Embed a culture of learning and continuous improvement
• Lead on quality assurance processes and reporting
• Strengthen impact evidence for partnerships and funding
• Support and develop Airtable CRM systems, automations, and training
• Provide data insights and reporting for internal and external stakeholders
• Support GDPR compliance and data protection processes
• Explore safe and effective use of AI within evaluation and reporting

Person Specification

Essential

• Experience in impact evaluation, quality assurance, CRM oversight, and GDPR compliance
• Strong analytical, organisational, and communication skills
• Ability to manage competing priorities and collaborate effectively across teams
• Commitment to values-driven work and continuous improvement

Desirable

• Experience in the charity sector
• Knowledge of youth, family, or social policy
• Experience using AI within evaluation or insight work
• Training in data protection

The successful candidate will be aligned with values including resilience, empathy, inclusiveness, curiosity, and non-violence.

For more information, please submit your CV. Please note, due to the level of application, only successful candidates will be contacted with further information.

Deadline: ASAP, reviewing on a rolling basis

As leading charity recruitment specialists and a certified B Corp™, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.

This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.

Main Purpose of the Role:

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.  
 
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK. 

Specific Tasks:

1. Proactive Family Support 

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days) 

• Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear  

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care 

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern 

2. Transitions Support 

· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including: 

· Moving between educational settings such as primary to secondary 

· Transitioning from paediatric to adult health services 

· Changes in mobility and independence (e.g. transitioning to using powerchairs)

· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK 

· Develop resources, guidance, and workshops to support families through transitions 

3. Wellbeing Tracking and Outcome Measurement 

· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security) 

· Collaborate with families to co-create action plans and track progress 

· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call. 

4. Community Engagement and Event Delivery 

· Organise and deliver regional meetups (minimum one per quarter) 

· Facilitate support groups (virtual and in-person) for parents, young people, and extended family 

· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability) 

5. Stakeholder Collaboration 

· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities 

· Represent Action Duchenne in Scotland and build relationships with local networks 

6. Administration and Reporting 

· Maintain accurate records of all interactions and support provided 

· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact 

· Support development of CRM processes and service delivery improvements 

7. Key Performance Indicators (KPIs): 

· New contact acknowledgement email: within 3 working days 

· New contact follow-up call: within 7–10 working days 

· Families contacted per week: 12–15 hours of direct contact 

· Regional meetups: 1 per quarter 

· Support groups delivered: 9–12 per year 

· CRM data entry: within 24 hours of interaction 

· Family outcomes tracked: via wellbeing questionnaire and action plan 

· Transition support delivered: tracked through engagement, resources, and feedback 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.

Please find below the job specification, including required skills and qualifications.

About Action Duchenne 
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.

Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience. 

At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values: 

• Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability. 

• Empathetic – Approach challenges with understanding, considering the impact on people internally and externally. 

• Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters. 

• Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose. 

• Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard. 

The Events Officer will embody these values in every aspect of planning, delivering and evaluating events. 

What we offer: 

• 24-hour confidential Employee Assistance helpline 

• Private health insurance 

• Flexible hours 

• 5% employer pension contribution 

Main Purpose of the Role 
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination. 

This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community. 

 Specific Tasks 

1. Event Coordination and Logistics 

• Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team. 

• Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules. 

• Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels). 

• Manage registration processes for all events and ensure attendees receive timely, accurate joining information. 

• Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place. 

2. Administration and Operational Delivery 

• Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms. 

• Track planned expenditure and ensure costs align with budgets, escalating issues where necessary. 

• Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency. 

• Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally. 

3. Stakeholder and Supplier Management 

• Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery. 

• Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams. 

• Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions. 

4. Community and Engagement Support 

• Collaborate with Support Team colleagues to ensure events reflect community needs and priorities. 

• Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates. 

• Encourage and support attendance from families, young people, professionals and community partners. 

5. Data Management, Monitoring and Evaluation 

• Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions. 

• Collect and analyse feedback, producing short evaluation summaries to inform future planning. 

• Track attendance, trends and logistical improvements, contributing to quarterly reporting. 

6. Risk, Compliance and Quality Assurance 

• Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance. 

• Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne. 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets. 

Key Performance Indicators (KPIs) 

• Event logistics prepared within agreed timelines 

• Accurate event information published and updated within required timeframes 

• Participant satisfaction and engagement measured through surveys 

• Conference and event attendance targets met 

• CRM data entry completed within 2 working days of events 

• Budget expenditure tracked monthly with minimal variance 

• Effective delivery of regional and online events aligned with pre-agreed schedule 

Person Specification 

Knowledge & Experience 

Essential

• Experience organising in person events from start to finish for over 300 attendees. 

• Experience liaising with suppliers, venues and speakers. 

• Experience with CRM/data entry, with close attention to detail. 

• Experience organising and hosting remote events. 

• Understanding of hybrid events. 

Desirable

• Experience in the charity sector. 

• Knowledge of Duchenne or similar life-limiting conditions. 

Skills & Abilities 

Essential

• Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners. 

• Understanding of the importance of safeguarding around events. 

• Exceptional communication skills. 

• Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines. 

• Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement. 

• Skilled in problem solving, with a proactive, solutions focused approach. 

• Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations. 

• Digital proficiency including Microsoft Office, CRM systems and digital communication tools. 

Attributes 

Essential

• Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism. 

• Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions. 

• Resilient and adaptable, able to navigate complexity. 

• Creative, dynamic and innovative, with the ability to take ideas from concept to delivery. 

• Demonstrable commitment to equity, diversity and inclusion. 

• Personally, and professionally, responsible with high standards of integrity and accountability. 

• A sense of humour and the ability to bring warmth and humanity to the role. 

Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.