PWSA UK is a small charity providing lifelong support to all those affected by Prader-Willi Syndrome (PWS). PWS is a rare genetic condition causing an overwhelming and uncontrollable drive to eat that can be life-limiting, as well as learning and physical disabilities. We provide a dedicated helpline, a comprehensive information hub, a network of peer support groups, a varied programme of community events, training for professionals working with those with PWS, and support for vital research. Our aim is to help our amazing community overcome the challenges and live life to the full with PWS.
We are looking for a part time PWS Specialist Advisor for Scotland to support the PWS community in Scotland. PWS is a rare and isolating condition and our ambition it to reach families in Scotland to provide impactful advice, support, information and training. The ideal candidate will have an in-depth working knowledge of health and social care systems and education in Scotland as well as a belief in the potential and value of people with Prader-Willi syndrome.
You will need to be able to demonstrate excellent interpersonal and communication skills, as well as being self-motivated and able to engage with families, health care professionals and policy makers.
The position is part time (3 days a week) and is home based and ideal for someone living in Scotland
Please submit your CV and letter setting out your motivation and suitability for the post. Please visit our website for more information about our work. Interviews will be by Zoom on Tuesday 30th September
The client requests no contact from agencies or media sales.
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Together, the charities Sands and Tommy’s have formed a Joint Policy Unit (JPU) focussed on achieving policy change that will save more babies’ lives during pregnancy and the neonatal period and on tackling inequalities in loss, so that everyone can benefit from the best possible outcomes.
The JPU’s mission is to secure policy change that will reduce rates of miscarriage, stillbirth, pre-term birth and neonatal death, and to work to eliminate inequalities in these outcomes.
While there is widespread agreement on the need for change to improve the safety of maternity and neonatal services, what that change looks like is not clear. To save more babies’ lives we believe that a continued focus is required, and that governments should set new commitments to reduce perinatal mortality and preterm births, focused on matching the best-performing countries in Europe.
This role will be crucial to the continued success of the JPU unit; leading, shaping and coordinating all the unit’s work.
We are looking for an independent and assertive problem-solver, a policy expert who can manage multiple priorities, take the initiative, lead the national conversation and is as excited as we are about taking the helm of this venture for both of our organisations.
The successful candidate will need to have a substantial track record of effectively leading and implementing national policy and influencing programmes, driving change and achieving the desired impact.
You will have considerable experience across research, data analysis, policy development, public affairs and communications. Additionally, you will be well-versed in research and data management, including analysing complex data and evaluating policy developments.
Experience of being a member of a senior management team with successful, significant and relevant management and leadership experience is also essential.
The client requests no contact from agencies or media sales.
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WDC’s Games For Waves initiative engages the gaming and streaming communities to raise funds and awareness for whale, dolphin and ocean conservation. The Influencer Lead will help drive this mission by developing strategic digital fundraising events, managing relationships with creators and influencers, and creating impactful content.
Registered Charity
51 - 100
A world where every whale and dolphin is safe and free
The client requests no contact from agencies or media sales.