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The Senior Supporter Engagement Manager will lead the strategic development of personalised, data‑driven supporter experiences that deepen engagement and maximise long‑term value. This role oversees the design and optimisation of multi‑channel supporter journeys, with a key focus on the creation and delivery of the email, SMS and What’s App communications, as well as our loyalty‑focused communications such as Cure Magazine, supporter newsletters and seasonal loyalty comm such as Christmas Cards. You’ll be a resident expert in marketing personalisation and data automation through martech tools.
Acting as the organisation’s expert in supporter experience design, the postholder ensures that every interaction — from the point that a supporter hits our database to long‑term stewardship — is timely, relevant, and insight‑led. You will use a mix of influence, coaching and collaboration skills to work across the organisation – working closely with Fundraising, Digital, Data, Business Intelligence, Insight, Policy and Campaigning, Volunteering, Info Services and Brand teams to embed a culture of continuous improvement and supporter‑centric thinking.
Most importantly you’ll be passionate about giving supporters a fantastic experience so that they stay longer, do more and feel like a valued part of getting to a cure for dementia.
Key Responsibilities:
Supporter Journey Development & Design
· Lead the end‑to‑end design of supporter journeys working collaboratively across all the organisation, taking an audience led approach in achieving our income, engagement and influence objectives, joining the dots and identifying opportunities for cross sell, upsell and integration of offers throughout a supporter's relationship with us.
· Oversea the mapping and optimisation of lifecycle journeys, ensuring they are insight‑driven, segmented, and aligned with organisational goals towards a cure.
Responsible for ensuring your teams are expert in our martech, and use testing frameworks (A/B, multivariate), data and performance insights to optimise journeys performance.
· Lead for automation of journeys within our martech, balancing efficiencies on resource with excellent supporter experiences.
· Lead for data, compliance and technical troubleshooting.
Data Selections & Audience Targeting
· Responsible for making audience targeting decisions ensuring accurate, timely, and insight‑led targeting for all fundraising and engagement activity.
· Working collaboratively with the BI team to ensure the development and application of data modelling and propensity models to predict supporter behaviour models that support tailored communications and efficient campaign delivery.
· Work closely with Data and Analytics teams to maintain data quality and optimise selection processes, and work with insight and BI to translate performance outputs into actionable recommendations for optimising our supporter journey performance.
· Ensure robust documentation, governance, and continuous improvement of data targeting and selection workflows
· Work collaboratively with the digital analytics team to ensure a strong connection between web and paid digital activity to avoid siloes across the stages of a supporter's experience with ARUK.
Supporter Loyalty & Stewardship Communications
· Lead the creation of loyalty‑focused communications that build long‑term relationships and increase lifetime value and deliver on our supporter experience principles – including communications such as Cure Magazine and E-newsletter.
· Work collaborative with Senior Supporter Relations Manager to develop stewardship frameworks that recognise and thank supporters at key moments – including the coordination of an ARUK approach supporter Christmas and Seasonal greetings.
· Ensure collaboration within these organisational supporter loyalty communications is effective leading for RACI and levels of approval.
· Lead for your team adhering to GDPR-aligned audience management and safe data activation.
Leadership & Collaboration
· Manage and develop a multi‑disciplinary team across your key responsibilities, fostering a culture of audience led, testing, continuous improvement and joined up thinking, planning and delivery.
· Build strong relationships with key stakeholders across fundraising, digital, brand, data, insight, info services, policy and campaigning, and research teams to ensure alignment and shared priorities.
· Responsible for keeping up to date on latest thinking, tools and technology for delivering effective Supporter Experiences, working closely with our Salesforce Technical Product Owner. And represent the charity in conferences, networking and influencing within the sector.
Knowledge, skills and experience needed:
· Extensive experience in supporter or customer journey design, CRM‑driven marketing personalisation and data automation
· Strong understanding of email marketing and supporter journey platforms and infrastructure, automation tools, and CRM systems.
· Familiarity of audience targeting segmentation and data selections.
· Familiarity with propensity modelling, predictive analytics, or working alongside data science teams.
· Proven ability to lead teams and manage complex, cross‑functional projects.
· Strong analytical mindset with the ability to translate insight into action.
· Excellent communication and stakeholder‑management skills.
· Demonstrable experience of leading supporter engagement programmes across multi-channel campaigns and activity.
· Demonstrable experience of working with external partners, including creative agencies, platform providers, research agencies, print and production houses.
· Demonstrable budget development and management experience.
· Deeply supporter‑centric, with a passion for creating meaningful experiences and supporter communications.
· Ability to distil complex data into simplified actionable insights that build the programme.
· Curious, analytical, and comfortable working with data and making driven decision‑making.
· Creative thinker who enjoys solving complex problems, particularly solving problems in collaboration with stakeholders.
· Collaborative, confident, and able to influence at all levels, particularly at a senior level across the organisation.
· Experience of coaching internal stakeholders, with strong workshop facilitation experience.
· Committed to continuous learning and innovation.
Additional Information:
Ways of working:
As part of our Agile ways of working, you will be required to work approximately 2 days a week from the office, which is subject to the requirements of the role and the business needs. Flexibility on where you work can be split between working from home and our office.
Roles that are classed as part of the Agile ways of working are not able to claim any costs for Mileage/Travel on Public Transport, Accommodation and/or Meals. This includes when attending the office for various meetings/events.
Our Office: Our office is at 3 Riverside, Granta Park, Great Abington, Cambridge, CB21 6AD.
Salary: Circa £56,000 per annum, plus benefits.
Please download the Vacancy Pack on our website for more information.
The closing date for applications is the 31st May 2026, with interviews being arrange once shortlisting has been completed. Please indicate in your covering letter if you are unable to attend an interview on a certain date. We would encourage you to submit your application at the earliest opportunity, as on occasion we may have to bring forward the interview date and/or the closing date based on the needs of the business. Although a possibility, this will only happen in exceptional circumstances. Please indicate in your covering letter if you are unable to attend an interview on a certain date.
We value diversity and are committed to creating an inclusive culture where everyone can be themselves and reach their full potential. We actively encourage applications from people of all backgrounds and cultures, particularly from those in the global majority, those with disabilities, men and those from the LGBTQIA+ community. Any offer of employment is however subject to you having the right to work in the UK.
As part of our commitment to being an inclusive employer and ensuring fairness and consistency in our selection process, we will handle your CV and application with the utmost confidentiality. Should you require any adjustments at either the application or interview stage, please contact us via our website.
How to apply: Please create an online account using our Online Recruitment Platform which can be accessed through our Job Vacancies page. You will be able to attach your CV to your application and track the status of your application.
About Alzheimer’s Research UK: Alzheimer's Research UK is the UK's leading dementia research charity. Our mission is to accelerate progress towards a cure. Today 1 in 2 people will be impacted by dementia, either through caring for a loved one, developing it themselves or tragically both. But there is hope.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
The Senior Fundraising Manager is responsible for delivering Brightside’s fundraising activity with a core focus on grants from trusts and foundations, and major donors. Reporting to and working closely with the CEO, the postholder will forge new relationships with major donors and manage our grant applications to support Brightside to achieve its fundraising targets. The postholder will deliver high quality stewardship across our major donor relationships and act as the key point of contact for all grant activity, working closely with the delivery teams to support funder relationship management and reporting.
The postholder will work closely with colleagues across the organisation to develop clear cases for support for potential funding projects, as well as managing our approach to individual giving and increasing regular donations. The role will involve working closely with the CEO and the trustees, who will provide warm introductions to their networks of potential major donors and support in their stewardship.
Please review the job description attachment at the end of the advert for full roles and responsibilities, application instructions, the essential criteria and further information on salary and benefits.
Responsible for:
Trusts and foundations:
Major donors:
Individual giving
Application instructions
Our mission is to help young people make confident and informed decisions about their future

The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
The Senior Partnerships Manager is responsible for developing, securing and stewarding our partnerships, with a particular focus on the corporate and higher education spaces. Reporting to and working closely with the CEO, the postholder will lead on relationship‑driven partnership development and account management, ensuring partners experience a professional, values‑aligned and impactful relationship with Brightside.
The postholder will steward these partnerships from initial engagement through to renewal, working closely with the Partnerships Lead to support renewals and identify opportunities for deeper partner engagement. The role will involve researching potential partnerships, securing meetings through outreach and networking, generating proposals, and delivering high‑quality ongoing stewardship to partners. In addition to corporate and higher education partners, the postholder will also steward relationships across government and the third sector.
Please note - this role will require extensive travel to London for partnership meetings, events and networking. Our ideal candidate would therefore be based in London or within commuting distance.
Please review the job description attachment at the end of the advert for full roles and responsibilities, application instructions, the essential criteria and further information on salary and benefits.
Responsible for
Pipeline development
Partnership management and stewardship
Application instructions
Our mission is to help young people make confident and informed decisions about their future

The client requests no contact from agencies or media sales.
Location: Home based within commuting distance of either Edinburgh, Cardiff or Belfast
Salary: £32,750 per annum
Hours: 35 hours per week
Closing date: Monday 19 May 2026 at midnight
Interview date: week commencing 25 May 2026 over video with possible second stage in person week commencing 1 June 2026
This is a full time fixed-term position for one year (with possible extension subject to funding).
Who we are looking for
Breakthrough T1D is the UK’s leading type 1 diabetes charity, dedicated to funding research, advocating for change, and supporting the T1D community. A year into our exciting rebrand from JDRF to Breakthrough T1D, we’re looking for a Senior Policy and Public Affairs Officer – Devolved Nations to help us build on this momentum.
The role of the Senior Policy and Public Affairs Officer - Devolved Nations is vital to achieving our UK-wide advocacy mission: to reduce health inequalities in type 1 diabetes, to widen access to type 1 diabetes treatments and technologies and to ensure that people with type 1 get access to emerging new treatments and future cures in the devolved nations.
You will lead on projects with key stakeholders and high-level Parliamentarians, such as our access to treatments and early detection work, as well as people with type 1 diabetes, policy makers and researchers. You will help to deliver Breakthrough T1D’s influencing plans, improving access to and choice of type 1 diabetes treatments and technology in the devolved nations.
Experience required
Experience of working successfully with politicians, their offices, Government departments, and other public affairs audiences to influence policy and to influence public/stakeholder discourse
Experience of leading public affairs delivery in one of more of the devolved nations
Experience in analysing Government policy in-depth and creating policy briefings
Experience of drafting briefings, reports and policy submissions
Experience of communicating across a range of parliamentary and professional stakeholders at all levels
Demonstrable knowledge, interest and experience of working in a public affairs and policy-based environment
Experience of organising stakeholder events
About Breakthrough T1D
Breakthrough T1D is the world’s leading charitable research funder into type 1 diabetes, improving lives until we find the cure. We are dedicated to our 400,000 strong type 1 community in the UK and work closely with our international affiliates across the world, including the US, Canada and Australia.
You will find a vibrant atmosphere and spirited team at Breakthrough T1D, always striving to make a difference to people living with type 1.
Employee benefits
As an employer we offer:
Hybrid working arrangements
Flexible working and will consider compressed hours
Generous annual leave entitlement – 25 days per year plus bank holidays for full-time staff with leave increasing after three and five years’ service
Health cash plan that allows you to claim for some treatments such as dental, optical and physiotherapy treatment
Season ticket and cycle loan
Pension scheme
Family-friendly policies – maternity, paternity, adoption and shared parental leave at enhanced rates
Personalised training to suit your career aspirations and professional development
Breakthrough T1D is an equal opportunity employer, we welcome applications from all individuals regardless of race, gender, disability, religious belief, sexual orientation or age.
Improving lives today and tomorrow by accelerating life-changing breakthroughs to treat, prevent, and, ultimately, cure T1D and its complications
What does it take to lead the national voice for special schools at a time of real change?
Chief Executive Officer (CEO) – National Association of Special Schools (NASS)
National – home-based, with regular travel across England and Wales, particularly London
£90,000–£110,000 per annum
Full-time, permanent.
About NASS
The National Association of Special Schools (NASS) is the membership association for special schools in England and Wales. We bring together independent special schools, non-maintained special schools, special academies, maintained special schools and multi-academy trusts with specialist provision.
We exist to inform, support and represent our members, helping specialist schools improve outcomes for children and young people with SEND and secure the place of specialist provision within the wider education system. NASS is known for being accessible, responsive and personal, combining national influence with practical support that members value as timely, human and trustworthy.
This is a pivotal moment for the organisation. In February this year, the Department for Education published a major white paper on SEND reform which will require NASS to both influence national policy on behalf of our members and children and young people, as well as support them to navigate the changes. Our new CEO will need to review our strategy while building on our strong platform and momentum to further deepen our influence and strengthen our internal capacity.
As our next Chief Executive, you will:
Why NASS?
Application
For full details of the role including how to apply, please download the full appointment brief. For an informal and confidential conversation about this position, please contact Jenny Hills at Harris Hill via apply button with times to speak and (optional but appreciated) a CV or professional profile which will be treated with the strictest confidence.
Closing date for applications: 9am, Monday 8th June 2026
As leading charity recruitment specialists and a certified B Corp, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.
Are you someone who can build trusted relationships across sectors, develop sustainable income, and turn strategic opportunities into meaningful impact?
Are you looking for a part-time, senior role where you can shape organisational direction, grow partnerships, and deliver programmes with national and international reach?
The Design in Mental Health Network (DiMHN) is a UK-based charity dedicated to improving mental health outcomes through better design. We are seeking a strategic and entrepreneurial Head of Partnerships & Programmes to play a central role in our next phase of growth.
In this role, success will mean building high-value partnerships, growing sustainable income, and delivering programmes that expand DiMHN’s impact and influence.
WHAT YOU'LL BE DOING
Reporting to the Chief Executive, you will:
WHO WE'RE LOOKING FOR
We are looking for a strategic, relationship-driven leader who can translate opportunity into impact, income, and influence.
Knowledge and experience
You will bring:
Knowledge of the mental health, healthcare, design, or built environment sectors is welcome, but not essential.
Personal attributes
You will be:
WHAT YOU'LL GET IN RETURN
As part of the team, you will benefit from:
NEXT STEPS
Please see https://bit.ly/DIMHNPartnershipsProgrammes for our Candidate Pack, application instructions and details about the interview process.
The Design in Mental Health Network (DiMHN) is a charity dedicated to improving the design of mental health environments.
The client requests no contact from agencies or media sales.
Transport for All has a strong reputation for leading the debate and advocating for change to improve the journeys made by disabled people. This role presents an opportunity for a strong leader with the commitment, enthusiasm and expertise to build on our success.
Our Chief Executive will be responsible for continuing to delivering the remainder of our 5-year strategy, whilst horizon-scanning to work with the team and wider DPO community to engage in the opportunities and changes ahead. We’re a small team and this is a wide-ranging role which includes:
• Representing the voice of the 16 million+ people in the disabled community by influencing policy and infrastructure decision-makers through our campaigns.
• Overseeing a highly regarded policy and public affairs function with associated communications and stakeholder engagement, maintaining our high profile and reputation with national and local governments.
• Ensuring the charity’s funding is robust and sustainable, looking at how we can diversify our income and direct it towards what matters through continuing to deliver our strategy and planning for our future.
• Overall responsibility for our successful training, research and consultancy business, building partnerships and further growth. This includes the National Accessible Transport Survey.
• Championing our award-winning support services for disabled people.
• Leading our expert teams through a period of growth and consolidation, embedding a strong organisational culture and matching our structure and systems to our upcoming challenges and increasing size.
You will report to and be supported by a well-functioning and committed Board of Trustees who are professionals with experience of working in the charity and transport sectors, as well as finance, legal and government backgrounds.
Transport Justice for disabled people.
The client requests no contact from agencies or media sales.
This is a new role leading on engagement in the Transport for the South East area, playing a vital role in building and strengthening local networks, supporting grassroots campaigning, and ensuring that disabled people’s experiences inform both regional and national influencing work. You’ll organise campaigns and forums, represent Transport for All at events, and work with service providers and councils to make transport fairer and more equitable.
We are a small, committed and disabled-led team working to make sure that disabled people’s voices are heard in politics, the media and beyond. This role is central to ensuring lived experience drives systemic change in London’s transport system.
You must be disabled and live in the South East of England to apply for this role
This role has a genuine occupational requirement of lived experience of disability. This explicitly includes those of us who are Deaf, neurodivergent, chronically ill, have a mental health condition, have age-related impairments, and people with both visible and non-visible impairments. If you do not meet the genuine occupational requirement, your application will not be shortlisted for an interview.
Transport Justice for disabled people.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Main Role & Responsibilities
The Director of Income Generation will lead the charity’s fundraising and income generation strategy with a particular focus on securing, managing, and growing funding linked to gambling, gaming and wider digital harm prevention, including funding overseen or commissioned via the Office for Health Improvement and Disparities (OHID).
This is a senior leadership role which sits on Ygam’s Senior Leadership Team (SLT) with responsibility for developing a diversified, sustainable income portfolio that enables the charity to deliver high-quality, UK-wide evidence-informed prevention activity aligned with national public health priorities.
The successful candidate will lead and empower a high-performing fundraising team, foster innovation, and build strong relationships with donors, funders, partners, and stakeholders across the UK. You will provide strategic direction and inspirational leadership across all income-generating activities, ensuring long-term financial resilience while upholding the charity’s values, reputation, and commitment to excellent supporter experience.
Working closely with the Chief Executive, Trustee Board, and Senior Leadership Team, you will shape organisational strategy, influence decision-making, and act as an external ambassador for the charity.
Who are we looking for?
We are looking for a strategic, values-driven fundraising leader with a strong track record of delivering income growth across multiple fundraising and business development streams.
You will bring credibility in working with or alongside public bodies such as OHID, or similar national commissioners and/or major funders, and demonstrate a clear grasp of the accountability, evaluation, and assurance requirements associated with levy-funded or statutory funding.
You will be an inspiring people manager, a confident communicator, and a credible senior leader who enjoys building relationships and making things happen at pace
The successful candidate will possess both strategic insight and hands-on experience, be networked across the charitable funding sector, combining commercial thinking with a deep understanding of the UK charity and fundraising landscape.
You will be a confident senior leader who combines strategic vision with operational rigour, has excellent stakeholder management skills. A commitment to evidence, impact, evaluation and collaboration will be central to your approach.
Above all, you will be motivated by our cause and committed to ethical, inclusive, and supporter-centred fundraising and wider income generation.
The client requests no contact from agencies or media sales.
Bowel Cancer UK is the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.
We currently have employees working across four nations in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to deliver our ambitious new strategy, On a Mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a world where nobody dies of bowel cancer.
Job Summary
As the Senior Public Affairs and Campaigns Officer, and with the support of the Senior Public Affairs and Campaigns Manager you will be responsible for the development, implementation and monitoring of public affairs and campaigns activity in order to achieve real change through influencing policy and legislation on health services which impact the lives of people affected by bowel cancer in England, with a particular focus on Westminster.
Safeguarding
Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.
Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.
We’re the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Release Counselling and Therapy for Women is entering an exciting new chapter.
Founded in Brighton and Hove in 2013, Release has grown from a small local charity into a financially robust organisation with a growing national reach. Under the leadership of our outgoing CEO, the charity has been transformed—moving from a challenging financial position to one with strong reserves, clear sustainability, and ambitious plans for growth.
We now provide affordable 1:1 online counselling to women across the UK, alongside specialist group programmes supporting maternal mental health and key life transitions. One-to-one counselling is a core offer and a vital income stream, enabling us to extend our reach while staying true to our values.
This period has also seen Release grow to working with over 20 dedicated volunteer counsellors, strengthening our capacity and community impact.
As our CEO steps down, Release is ready for its next phase—building on strong foundations, amplifying our national impact, and remaining firmly rooted in our purpose: being a charity that supports women’s mental health, run by women, for women.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
The People & Culture Director is responsible for leading the People Team, business partnering with the SLT to provide strategic, operational and change leadership across the charity.
This role will lead all people, culture, and organisational development activities across Ygam, ensuring they are aligned with Ygam’s values, strategy, and statutory responsibilities as a UK charity employer.
Success will be consolidating and building upon our existing structures to deliver a high‑performing, values‑driven, and inclusive culture which enables Ygam to achieve our objectives both now and in the longer-term
As a trusted member of the Senior Leadership Team (SLT), the postholder will act as a coach, adviser, and culture‑builder—championing equity, wellbeing, safeguarding, and effective leadership and line management across the charity, as well as playing a full role in cross-SLT pieces of work.
The role also plays a key part in bringing colleagues together by coordinating internal events, including the planning and delivery of all-staff Together Days.
Our commitment as a People Team is to help the wider staff group on their journey within Ygam. We aim to provide an environment which brings out the best in our team, so that they can provide the best possible service to the people we support.
Who are we looking for?
This post sits on the Senior Leadership Team (SLT). We are looking for a senior. experienced, credible, and values‑driven people director, who combines strategic insight with a deeply human approach.
You will be someone who believes that culture is created through everyday behaviours, relationships, and decisions, and who is comfortable working with complexity, ambiguity, and change.
You will bring significant leadership experience at this level across the full HR and People brief. as well as strong professional judgement alongside empathy, curiosity, and humility. You will be a confident self-starter able to challenge constructively while building trust at all levels of the organisation.
Above all, you will share our commitment to high-performing culture that is driven by our mission and values and be motivated by the opportunity to help create a workplace where people and volunteers feel safe, supported, included, and able to do their best work.
The client requests no contact from agencies or media sales.
We are looking for a highly motivated and organised individual with the ability to manage teams, build strategic relationships with employers to grow the Living Wage network, and develop projects that will grow our accreditations schemes and proactively influence change across a broad range of stakeholders in public life.
Direct a team and line manage multiple staff and freelancers, supporting them to deliver projects and contribute to the LWF business plan.
Monitor and evaluate the impact of our work to refine our strategy, deliver projects effectively and demonstrate the value of the real Living Wage.
Clearly communicate the evidence for positive change to grow the Living Wage movement. Encourage employers and key stakeholders to become champions of the Living Wage movement.
Oversee accreditation processes, identify and implement improvements to make our work more efficient.
Build and manage relationships with key stakeholders, policy makers and employers to support them to pay the real Living Wage and seek accreditation.
Create, develop and employ the tools and knowledge available to inform and advise employers on implementing the Living Wage throughout their organisation.
Remote role with travel across the UK particularly to Birmingham.
The client requests no contact from agencies or media sales.
Prospectus is proud to be partnering with our client, a small, specialist health charity dedicated to improving the lives of everyone affected by Dravet Syndrome.
Dravet Syndrome is a rare, life-long and life-limiting form of epilepsy that affects approximately one in every 15,000 people in the UK (around 2-4,000 people in total). It is a complex epilepsy syndrome so as well as severe, difficult-to-control seizures, people with Dravet Syndrome live with intellectual disability and a spectrum of associated difficulties including with speech and language, mobility, behaviours, eating and sleep. It is also common to have a co-diagnosis of autism and/or ADHD.
Founded in 2008 by a group of parents seeking support and information, DSUK has grown significantly over the past 17 years. Today, DSUK supports nearly 600 registered families across the UK and reaches over 2000 people in total, including parents and carers, siblings and bereaved families. As an organisation they deliver a range of impactful services aimed at improving the lives of beneficiaries through family support, professional education and medical research.
At a time of continued growth for the charity, and as medical advancements in the field continue (including clinical trials for the first gene therapies in rare epilepsy), DSUK are now looking to recruit a strategic, collaborative new CEO to help shape the next stage of their journey.
As the organisation’s new CEO, you will provide inspiring, values-driven leadership across the organisation, holding overall responsibility for the day-to-day operations and long-term growth. You will work closely with the Board of Trustees to develop and deliver the organisation’s next five-year strategy, steering organisational priorities, strengthening culture and ensuring the charity continues to grow, both in terms of scale and in impact. You will lead a small, dedicated, cross-functional team across family support, fundraising, communications and research, driving collaboration across all teams. You will also lead on impact and quality, embedding a culture of learning and continuous improvement. A key part of your role will involve developing and building strong relationships with a range of stakeholders, including families, professionals, researchers, pharmaceutical companies as well as other charities and funders. You will also represent DSUK at relevant conferences and sector events, both in the UK and occasionally internationally.
This is an exciting opportunity to shape the strategic direction of a small, specialist, growing organisation providing life-changing services. To apply for this role, you will be a confident, collaborative leader with significant senior leadership experience in the charity or not for profit sector (experience of working in a rare disease, health, disability or patient advocacy charity is desirable). You will have demonstrable experience of scaling an organisation, and navigating the complexity that growth brings. You will be a skilled communicator, confident at building relationships across health, care or community sectors. You will be resilient, adaptable and comfortable with the breadth and pace of working as a senior leader within a small charity.
If you are interested in applying for this exciting position, please submit your CV in the first instance. Should your experience be suitable, we will send you the full job description and will arrange for a call to fully brief you on the role.
At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process then please contact Victoria Savva at Prospectus.
Please note, this will be home-based with regular travel across the UK (and occasional international travel). Working hours are Monday to Friday, 09:00–17:30 (however some flexibility for evenings and weekends is required).
Recruitment Timetable:
Deadline for initial CV interest – Wednesday 20th May
Deadline for applications – Tuesday 26th May
First stage interviews - Monday 8th, Tuesday 9th or Thursday 11th June
Final stage interviews – Friday 26th June
A senior leadership opportunity to drive growth, build influence and secure the resources needed to tackle poverty and homelessness through access to safe, decent housing in the UK and around the world.
Location: Home-based with frequent travel to internal and external events, networking and other meetings in London and occasionally across the UK. Occasional international travel will also be required. All staff meetings are held in our ReStore, Romford.
About Habitat for Humanity Great Britain
Habitat for Humanity Great Britain (Habitat GB) is part of the global Habitat for Humanity Federation fighting global poverty and homelessness. We believe that a decent home helps to permanently break the cycle of poverty and allows families to achieve strength, stability, and self-reliance.
Habitat GB mobilises resources, partnerships, public engagement and advocacy to support high‑impact housing solutions in the UK and internationally, working closely with Habitat for Humanity International (HFHI) and the wider Habitat network.
Job Purpose
The Director of Fundraising & Partnerships is accountable for leading the vision, strategy and performance of Habitat GB’s fundraising, partnerships, engagement and resource mobilisation activity.
This role combines senior‑level engagement and income generation leadership with organisational and strategic responsibility. The postholder will design and deliver ambitious, sustainable income and partnership strategies; strengthen Habitat GB’s profile and positioning; and lead a high‑performing, values‑led team.
As a member of the Senior Leadership Team, the Director of Fundraising & Partnerships plays a key role in organisational leadership, transformation, and long‑term sustainability, working collaboratively across Habitat GB, the international Habitat network and with a wide range of external partners. This role has 4 direct reports, and an overall team of 10.
Key Accountabilities/Responsibilities:
Strategic Fundraising, Partnerships & Engagement
Income Management, Forecasting & Performance
Senior Partnerships, Stewardship & External Profile
Leadership & Management of the Fundraising & Partnerships Team
Organisational & Executive Leadership
We are looking for someone with:
Flexibility:
Habitat GB is seeking to rapidly expand its activities and impact to fight poverty across the world. This requires adaptability and an ambitious, dynamic and flexible team. The post holder is expected to be flexible in terms of location (within reason), line management, and duties and responsibilities.
Application Process:
We want our recruitment process to give you an opportunity to shine, to share your skills and experience as clearly as possible, and for you to find out more about Habitat for Humanity GB in return.
To apply for the role please send us your CV and a supporting statement (max two sides of A4) telling us about the skills and experience you would bring to the role and your motivation for applying, using the link found on our website.
Deadline for applications is Monday 25th May 2026 (at 11:59 pm).
We plan for first stage interviews to take place w/b 1st June 2026. Interviews may be held online, or in person in London (please note that we do not reimburse any expenses incurred during interviews).
Habitat for Humanity Great Britain (Habitat GB) is part of the international Habitat for Humanity network, tackling housing poverty around the world.