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Over past decades, enormous advances have been made in our understanding of MS. Research has got us to a critical point, and we can see a future where nobody needs to worry about their MS getting worse. Our Stop MS Appeal needs to raise £100 million to find treatments for everyone with MS.
Our Stop MS Champions help us reach more people and inspire them to get involved in our Stop MS Appeal by encouraging raising funds and awareness by delivering presentations, attending events and identifying new audiences to speak to. They inspire people to engage with and influence fundraisers and groups, enthuse people and make sure our community’s voice is heard.
As our Lead Stop MS Champion, you’ll motivate your team of Stop MS Champions to help reach more people and inspire them to get involved in our Stop MS Appeal.
By using your ability to motivate and support, you will oversee and lead a team of 5-10 Stop MS Champion volunteers, encouraging them to engage the people they know to raise funds and awareness, and provide reliable information and guidance.
You’ll also network to engage with and influence fundraisers and community groups, enthusing people by delivering presentations at events and finding new audiences to speak to. In this role, as well as developing your leadership, networking, influencing, communication, organisation and presentation skills, you’ll have a chance to be part of something amazing – you could help us stop MS.
Treasurer - ARFID Awareness UK
This is a fully remote role
Remuneration
Travel and subsistence will be paid for attendance at meetings in accordance with the ARFID Awareness UK expense policy where required. Board members are not remunerated for their Board/trustee work.
Responsible to:
Chair of Board of Trustees
Regular liaison with:
- Board of Trustees
- Executive Director/s
- Motion Accountancy
Duration of appointment:
Three-year term (with a possible extension of a further three years)
Overview:
Established in 2019 and supporting a community of over 30,000 families ARFID Awareness UK is the only registered UK charity dedicated to raising awareness and further information about Avoidant/Restrictive Food Intake Disorder. As a not-for-profit, we work to provide individuals, parents, carers and medical professionals with up-to-date relevant information, research and support.
We are equally committed to supporting medical professionals across varying specialities, by equipping them with the information they need to ensure that their patients receive an early diagnosis and have access to appropriate care.
Our charitable aims are to:
- Raising awareness about the condition within the medical and associated professions and the general public in such ways as the trustees shall determine;
- Providing advice and information in such ways as the trustees shall determine to enable and empower parents and carers to advocate for the children in their care;
- Facilitating research into the condition, the useful results of which will be published for the public benefit;
- Potentially providing grants of financial assistance to enable economically disadvantaged families to obtain necessary treatment and medication unavailable via the NHS.
- Advancing the education of the public in the subject of ARFID.
With regards to our structure, we are a Charitable Incorporated Organisation (CIO). As a CIO, our Charity Trustees are protected with limited liability, and whilst they are responsible for helping to manage the organisation, they do not hold dual roles of Company Director as they might with other charity structures.
Time commitment:
Trustees meet twice a year virtually. Meetings last approximately 2 hours.
The Remuneration and Finance, Risk and Investment Committee meet once a year virtually. Meetings last approximately 1 hour.
In addition, Trustees are expected to allow time for reading of papers and preparation for meetings, attending events training and induction. As a small charity there may also be the requirement for additional input up to 10 hours per annum as required specifically to your professional background and expertise
Purpose of the role:
Trustee (general)
The overall aim of the trustee role is to provide strong leadership, direction and expertise to the governance of ARFID Awareness UK.
The Board of trustees (‘the Board’) is the body with the legal duty to protect the mission and vision of the FSRH and to ensure that it is run in accordance with legal requirements.
The role of the Board is to provide good governance and leadership by:
- Shaping ARFID Awareness UK’s organisational strategy
- Approving organisational statutory policy
- Ensuring the organisation’s financial stability and sustainability, and agreeing the annual operational budget
- Appointing the Executive Director/s (who is overseen by the Chair of the Board on behalf of the Board)
- Providing support and constructive challenge to the Executive Director/s and their staff team
- Setting and monitoring procedures for assessing and managing risk
- Taking advice from Board members and external specialist advisors
- Ensuring oversight of the financial position of the charity and providing updates to the Board where appropriate.
As a charity and CIO Board members are charity trustees only. They do not represent any group or organisation in this role, and they must act in good faith and in the best interests of ARFID Awareness UK.
Treasurer
- Chair the Remuneration and Finance, Risk and Investment Committee (FR&IC):
- To review progress of financial elements of the operational plan and make recommendations to the Board of Trustees.
- To review the strategic plan in context of financial and budgetary impact.
- To review the annual budget and make recommendations to the trustees
- To receive and review proposals for new expenditure outside of the annual budget
- Advise the Remuneration Committee on the affordability of any changes to pay and or benefits.
- To receive reports at each meeting on financial performance and report as required to the Trustees
- To develop an Investment Policy and strategy
- To review the draft annual accounts along with the audit report, ensuring they are in accordance with relevant accounting standards and Charity Commission guidance
Person specification:
Essential:
- A financial accountancy qualification or equivalent experience (eg ACA, CIMA)
- Experience of investment, strategic planning and budgetary planning
- Ability to work effectively as a member of a diverse team whilst keeping in mind the responsibility of being an individual trustee
- Experience of guiding an organisation through growth and change
- Confident and effective communication skills including listening skills
- Understanding of the legal duties, responsibilities and liabilities of trusteeship
Desirable:
- Knowledge or experience of the charity sector
- Knowledge of the healthcare sector and/or ARFID
- Experience of board or committee membership in a charity, public sector or commercial organisation.
This role is advertised as part of TPP's Free Giving Back Services. This volunteer advertisement copy has been supplied to TPP and applicants apply direct to the organisation. Please contact the organisation directly if you have any questions about this volunteer role.
Bi Pride UK’s mission is to create spaces where people who experience attraction beyond gender can be freely visible and celebrate themselves and their identities. It’s not enough to be ‘welcome’ at Pride. We make up a very large proportion of the queer community – the 2021 Census actually shows we’re half of the community – and we deserve to be visible and celebrated in our own right.
There are many ways to make this happen, and we work in many ways to bring this change about:
- Outreach work with other Prides, LGBTQ+ organisations and bi organisations – our consultation work with local Prides, the UK Pride Organisers Network and local and national LGBTQ+ organisations works in a tailored way to make sure that bi inclusion is a top priority and is being done well
- Organising a high-profile annual Bi Pride event – from September 2019, Bi Pride UK made history with the largest ever gathering of bi people recorded. A performance stage, a panel stage, stall village, street food, and over 1,300 attendees. After going virtual with the BiFi Festival for 2020 due to Covid-19 and running a virtual Pride event in 2021, we came back in person in 2022 with a hybrid event, and have been running the event in this format ever since
- Building a strong online and virtual community – just as important as the rest of our work is making sure that people hear about it! People need to know what resources and spaces exist for them, and how they can connect with other people like them
The role:
We are looking for a volunteer to take a lead on our internal and external monitoring and evaluation work; gathering data about different areas of our activities to ensure that we are having as much impact as possible and can communicate that clearly to a variety of audiences. This role will also be responsible for collecting and assessing valuable evidence about the experiences of bi communities in the UK, helping the charity to share insight into the bi community.
Sitting within the Organisational Development team, this role is a crucial connecting point between teams to help the charity continually identify areas for improvement and growth. This is an exciting opportunity to grow within a small team and help to develop this area of the charity’s work, with aspirations to explore opportunities for longer-term, externally-funded research and evaluation projects, and develop a Policy function for the charity.
Ideal time commitment: approx. 5-10 hours per month; flexible.
Location: remote/ home based, in-person attendance at events is desirable.
Supported/ supervised by: the Head of Organisational Development, also working closely with the Organisational Development team.
Key tasks of this role will include:
- Working with the Head of Organisational Development to define impact in a way that allows us to begin measuring our work in a way that makes sense for a charity of our size and maturity;
- Continuing to develop and implement an impact strategy to sit alongside our strategic objectives;
- Liaising with volunteers across Bi Pride UK to develop internal systems and processes for evaluating our activities, projects, programmes and events;
- Leading on generating and analysing data for a variety of purposes, for example, to be used in briefings, annual impact reports, end-of-grant reports, and in social media posts;
- Promoting and sharing best practice to maximise impact within Bi Pride UK.
Our team volunteers remotely from anywhere in the UK, with some travel required occasionally (primarily for our flagship Pride event in London in August). All reasonable expenses incurred are reimbursed, including travel, lunch at away days and other all day events, and some childcare costs if required. Regular team meetings take place via conference call and are scheduled in line with the team’s best availability.
Volunteer specification:
- Interest and passion for tackling discrimination against and improving the visibility of people in the UK attracted to more than one gender;
- An understanding of the needs of people and communities in the UK attracted beyond gender;
- Commitment to the aims and objectives of Bi Pride UK;
- Experience of introducing and embedding processes, standards, and evaluating impact in a professional environment;
- Experience of working in collaboration with multiple teams;
- Strong project management, organisational, perseverance and administrative skills;
- Experience of writing accessible reports to express impact findings;
- Ability and willingness to contribute towards writing funding proposals;
- Excellent written and oral communication skills;
- Ability to communicate confidently, coherently and sensitively on complex issues of identity, power dynamics and privilege;
- Meticulous attention to detail;
- Strong team player, with the ability to self-motivate when working remotely.
The position is open to anyone over the age of 18. We welcome applicants from all backgrounds, especially minority groups such as applicants of colour, trans and non-binary applicants and disabled and/ or neurodivergent applicants. Bi Pride UK is aware of the barriers that can be faced in gaining traditional work experience, particularly for global majority, disabled and/ or neurodivergent and trans people. We will give weight to this and encourage people when applying to consider caring responsibilities, including parenthood, volunteering, and other non-paid experiences and responsibilities when making their application.
The client requests no contact from agencies or media sales.