Trust fundraiser jobs in edinburgh

About us

We’re Breast Cancer Now, the research and support charity. We’re the place to turn to for anything and everything to do with breast cancer. However, you’re experiencing breast cancer, we’re here. 

The brightest minds in breast cancer research are here. Making life-saving research happen in labs across the UK and Ireland. Support services, trustworthy breast cancer information and specialist nurses are here. Ready to support you whenever you need it. Dedicated campaigners are here. Fighting for the best possible treatment, services and care for anyone affected by breast cancer.

About the role

Do you live in the Kent, Sussex or Surrey area, have excellent local knowledge and the enthusiasm to build a fundraising patch?  

We’re launching a brand-new role focused on developing and nurturing meaningful relationships with new supporters. If you love connecting with people and want to make a difference for people affected by breast cancer, we’d love to hear from you.

Initially offered as an 18-month contract (with the potential to become permanent), this position will play a key part in an exciting pilot programme designed to grow long-term income through a new, locally based relationship fundraising team.

The successful candidate will have the chance to work on a large-scale project supporting and growing Asda Tickled Pink, our award-winning partnership with Asda and CoppaFeel! which has already raised over £100 million. You’ll work directly with passionate colleagues across Asda stores in your region – driving new fundraising initiatives, inspiring communities and celebrating the incredible generosity of supporters.

This is your chance to build powerful local connections with new supporters – individuals, clubs and societies, and local businesses – and help develop a thriving network of people that share our mission.

About you

With good community fundraising experience, you bring enthusiasm, strong communication skills and a genuine interest in people and relationship building.

You’re proactive, organised and adaptable with a positive approach to trying new things. A natural collaborator, you have a flexible approach to your work and thrive in a busy environment.

You’re confident in approaching new contacts and are experienced in developing new relationships from scratch which have delivered income in both the short and long term. Your approach to supporter stewardship is best in class and you've proven that you can take the initiative to make ideas happen.

Alongside these skills and your previous experience, you have the passion that will help grow engagement and income in your region.

Job description and benefits

Please download the job description and our attractive benefits package.

Primary location of role

This is a remote role, and the candidate will need to be based in the Kent, Sussex, or Surrey area. Regular travel will be required to meet supporters and visit Asda stores in your region, as well as occasional travel to our London office.

When applying

We hope you choose to apply for this role. To support your application, you’ll be asked to submit your anonymised CV. Please refer to the essential criteria on the person specification and clearly provide as much information as you can with examples, to demonstrate how and where you meet the criteria. If you’ve any immediate questions please contact the Breast Cancer Now recruitment team.

Our commitment to equity, diversity and inclusion

We’re committed to promoting equity, valuing diversity and creating an inclusive environment – for everyone who works for us, works with us, supports us and who we support.

Closing date Tuesday 11 November 9am

Interview date 19, 20 November 2025

We reserve the right to close this advert early. Therefore, to avoid disappointment please submit your application as soon as possible, if you’re interested in this opportunity.

Community Fundraiser - Home Counties

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Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research? ​

Brain Tumour Research is seeking an experienced and motivated fundraiser to join our team. As a key part of our fundraising efforts in our high-performing East region, you will have the opportunity to drive income generation through a variety of initiatives, including challenge events, fundraising groups, and corporate partnerships such as charity of the year. You will also be responsible for driving initiatives to increase our profile and supporter base within Buckinghamshire, Bedfordshire, Hertfordshire, Northamptonshire and Essex. 

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Key Responsibilities: ​

• ​Generate income across a range of community fundraising initiatives and events, with the opportunity to lead on key projects 
• Steward supporters to help drive the charity’s fundraising activities and growth 
• ​Work with the fundraising team to develop and maintain strong relationships with fundraisers, donors, partners, and key stakeholders ​
• Contribute towards the growth and success of fundraising efforts, ensuring a sustainable income stream for the vital ongoing funding of brain tumour research ​

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Requirements: ​​

• At least one year of fundraising experience, with a proven track record in income generation 
• Strong experience in supporter stewardship  
• Excellent communication skills, with the ability to engage and inspire supporters and partners alike ​
• Passion for Brain Tumour Research and its mission to fund research and ultimately find a cure 

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If you are looking for a fulfilling and impactful role and have the level of experience and skill we are looking for, we welcome your application.

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​We will give preference to those candidates living in the Bucks, Beds and Northants areas of this region.​​​

​We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.​

We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process.  Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.

Closing Date: 06th November 2025

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We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.

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Community Fundraiser - London​

Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research? ​

Brain Tumour Research is seeking an experienced and motivated fundraiser to join our team. As a key part of our fundraising efforts in our high-performing East region, you will have the opportunity to drive income generation through a variety of initiatives, including challenge events, fundraising groups, and corporate partnerships such as charity of the year. You will also be responsible for driving initiatives to increase our profile and supporter base within London.​

Key Responsibilities: ​​​

• Generate income across a range of community fundraising initiatives and events, with the opportunity to lead on key projects 
• Steward supporters to help drive the charity’s fundraising activities and growth 
• ​Work with the fundraising team to develop and maintain strong relationships with fundraisers, donors, partners, and key stakeholders ​
• Contribute towards the growth and success of fundraising efforts, ensuring a sustainable income stream for the vital ongoing funding of brain tumour research ​​

Requirements: ​​

• At least one year of fundraising experience, with a proven track record in income generation 
• Strong experience in supporter stewardship  
• Excellent communication skills, with the ability to engage and inspire supporters and partners alike ​
• Passion for Brain Tumour Research and its mission to fund research and ultimately find a cure 

​

If you are looking for a fulfilling and impactful role and have the level of experience and skill we are looking for, we welcome your application.​​

​For this role, the successful candidate must live in the London area.​​

​We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.

​

We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process.  Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.

Closing Date: 28th November 2025

​

We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.

​

About us

We’re Breast Cancer Now, the research and support charity. We’re the place to turn to for anything and everything to do with breast cancer. However, you’re experiencing breast cancer, we’re here. 

The brightest minds in breast cancer research are here. Making life-saving research happen in labs across the UK and Ireland. Support services, trustworthy breast cancer information and specialist nurses are here. Ready to support you whenever you need it. Dedicated campaigners are here. Fighting for the best possible treatment, services, and care for anyone affected by breast cancer.

About the role

Do you live in Birmingham, Coventry, or the surrounding area, have excellent local knowledge and the enthusiasm to build a fundraising patch?

We’re launching a brand-new role focused on developing and nurturing meaningful relationships with new supporters. If you love connecting with people and want to make a difference for people affected by breast cancer, we’d love to hear from you.

Initially offered as an 18-month contract (with the potential to become permanent), this position will play a key part in an exciting pilot programme designed to grow long-term income through a new, locally based relationship fundraising team.

The successful candidate will have the chance to work on a large-scale project supporting and growing Asda Tickled Pink, our award-winning partnership with Asda and CoppaFeel! which has already raised over £100 million. You’ll work directly with passionate colleagues across Asda stores in your region – driving new fundraising initiatives, inspiring communities, and celebrating the incredible generosity of supporters.

This is your chance to build powerful local connections with new supporters – individuals, clubs and societies, and local businesses – and help develop a thriving network of people that share our mission.

About you

With good community fundraising experience, you bring enthusiasm, strong communication skills and a genuine interest in people and relationship building.

You’re proactive, organised, and adaptable with a positive approach to trying new things. A natural collaborator, you have a flexible approach to your work and thrive in a busy environment.

You’re confident in approaching new contacts and are experienced in developing new relationships from scratch which have delivered income in both the short and long term. Your approach to supporter stewardship is best in class and you've proven that you can take the initiative to make ideas happen.

Alongside these skills and your previous experience, you have the passion that will help grow engagement and income in your region.

Job description and benefits

Please download the job description and our attractive benefits package.

Primary location of role

This is a remote role, and the candidate will need to be based in Birmingham, Coventry, or the surrounding areas. Regular travel will be required to meet supporters and visit Asda stores in your region, as well as occasional travel to our London or Sheffield offices.

When applying

We hope you choose to apply for this role. To support your application, you’ll be asked to submit your anonymised CV. Please refer to the essential criteria on the person specification and clearly provide as much information as you can with examples, to demonstrate how and where you meet the criteria. If you’ve any immediate questions, please contact the Breast Cancer Now recruitment team.

Our commitment to equity, diversity, and inclusion

We’re committed to promoting equity, valuing diversity, and creating an inclusive environment – for everyone who works for us, works with us, supports us and who we support.

Closing date 9am Monday 10 November 2025

Interview date Tuesday 18 and Wednesday 19 November 2025

We reserve the right to close this advert early. Therefore, to avoid disappointment please submit your application as soon as possible if you’re interested in this opportunity.

About This Job

As Fundraising Assistant at sister charities, ACCT UK and CCFA, you will play a key role in the growth of existing fundraising and in the creation of new income streams. Stewarding fundraisers, helping to develop new and existing fundraising campaigns, building relationships internally within the cadet organisations and externally with Trusts and Foundations, corporates and major givers. You will provide administrative and operational support, including maintaining the fundraising database. Working closely with the rest of the Development team and in particular the Marketing department to ensure that both charities can provide increasing financial support to cadets and adult volunteers across the UK.

Essential Skills

• Highly organised 

• Excellent communication skills both verbal and written 

• Excellent interpersonal skills 

• Strong understanding of Word and Excel 

Please refer to the attached Job Description for further information.

Our charity

ACCT UK is a national youth charity dedicated to improving the life chances of young people. The Combined Cadet Force Association (CCFA) is a charity dedicated to the promotion of the ideals and activities of the Combined Cadet Force in schools. Together we want to ensure that every young person has the opportunity to learn new skills, build confidence and be inspired through their cadet experience.

We want to develop the youth leadership and training abilities of adult volunteers whilst also helping young people to access cadet activities through fundraising, grant-making, developing new resources and direct support.

We strongly believe that everyone benefits when you help young people to develop their character and values through activities that stretch and mature them. We also know that when young people engage with others at a range of levels in their communities it builds confidence and improves empathy for other’s lives.

Who we are

You will join a small, friendly and supportive team who believe collaboration is the key to success. By joining our team you will help us to reach more young people and make a greater difference and we look forward to working with you. We actively promote and encourage you to explore ideas that improve all aspects of the charity’s work in pursuit of its charitable aims.

The charities are proud of our diverse teams, with people on different working patterns, from different backgrounds and at different life-stages. Our experience has taught us that having people with different perspectives and different lived experiences leads to better outcomes for our beneficiaries. If you are wondering if our organisation is for someone like you, the answer is yes! Please apply and explain how you, your experience, your talent and your potential are the right fit for this role.

What we can offer you

In addition to your salary, we offer all staff:

· Flexible working arrangements (you agree a working pattern with your line manager).

· The ability to work both from home and from our London office.

· Personal Accident Insurance, including loss of earnings cover and death benefit.

· 15 days of sick pay in any 12-month period (after 12 months employment - pro-rata for part time staff).

· A contributory pension scheme (you contribute at least 5% and we will contribute 10%).

· Good leave allowances (which are offered pro-rata for part time staff):

o 20 days annual leave plus Bank Holidays.

o Additional privilege leave, on set days each year, such as between Christmas and New Year.

o An additional five days of volunteering leave.

· Support for qualifications and personal development.

· Employee Assistance Programme.

· Season ticket loan.

· Railcard (if you are eligible)

· A caring and supportive team environment.

How to apply

Please send a covering letter that details how you meet the requirements of the job description along with a CV by 23:59 hrs on Sunday 9th November 2025.

Interviews will be held at Holderness House, 51-61 Clifton St, London EC2A 4DW during the week commencing Monday 24th November 2025.

Please note that as a charity dedicated to improving the lives of young people, we require staff to make a declaration about any relevant convictions, undergoing a Disclosure and Barring Service check. In addition, we will follow up references.

The Society of Antiquaries of Scotland is seeking a talented Fundraising Officer to join us at a pivotal moment in our history. As we approach our 250th anniversary, we are launching an ambitious multi-million-pound campaign to purchase and redevelop a listed building beside the National Museum of Scotland, creating a new national centre for heritage research, learning, and engagement.

This is a rare opportunity to play a key role in shaping a transformational fundraising project from the ground up. Working closely with the Head of Fundraising, you will help build relationships with major donors, trusts, and corporate partners, develop inspiring fundraising materials, and contribute to communications and events that bring our story to life. If you are creative, motivated, and eager to make a real impact, we would love to hear from you.

We are delighted to be partnering with STEM Learning to find their next Head of Fundraising. 

Fundraising has developed rapidly for the organisation in recent years, with investment, board-level commitment and a growing team driving success. With strong foundations in place and a portfolio of high-value partnerships across corporate, trust, foundation, and major donor income, they are now poised to scale their strategic influence and deepen their impact.

Reporting directly to the Chief Executive Officer and leading a five-strong team, the Head of Fundraising will shape and deliver the long-term fundraising strategy, strengthen the organisation's positioning as a trusted, high-impact partner, and drive sustainable, multi-year income growth that enables transformational change.

As Head of Fundraising, you will: 

• Lead the development and delivery of a high-level fundraising strategy, securing multi-year six-figure+ partnerships across corporates, trusts, foundations, major donors and HNWIs
• Manage, develop and inspire a team of 5 direct reports (responsibility for 7), fostering a proactive, collaborative and high-performing culture
• Engage senior stakeholders including the CEO, Chair, Trustees and senior partners to unlock networks and open opportunities
• Represent the organisation at senior-level networking events, conferences and sector forums, influencing decision-makers and strengthening brand positioning

Essential skills and experience: 

• A strategic, senior-level fundraiser with a proven track record delivering six-figure, multi-year partnerships from corporates. Experience across trusts, foundations, and/or major donors highly desirable
• A proactive new business mindset, with eagerness to meet with donors and attend events
• Strategic leadership experience, with proven ability to motivate and develop fundraising teams
• An experienced relationship-builder who has used confidence and gravitas to engage CEOs, trustees, C-suite leaders and high-net-worth individuals — and successfuly make compelling asks

STEM Learning offer a sector-leading employee benefits package, which includes 30 days annual leave in addition to bank holidays and up to 15% employer pension contributions. 

This is a mostly home-based role, with travel to N.England and London for office time and meetings. There are travel-cost reimbursements available - please discuss. 

Detailed briefing notes and full support with CV and cover letter will be provided for suitable applicants. 

Fundraising and Events Lead

Salary: £28,000 – £31,000 (pro rata)
Contract: 1-year fixed term (with view to make permanent)
Hours: Part-time (3–4 days per week)
Location: Remote, with occasional days in London and additional days for events (time off in lieu provided)
Reports to: CEO

About M7 Education

At M7 Education, our mission is simple — to level the educational playing field by making experiential learning accessible to every student. We believe one school trip can change a student’s entire outlook on education, yet too many miss out due to financial barriers.

We provide fully funded school trips and workshops for high pupil premium schools across England and Wales, taking care of both the funding and the logistics so that teachers can focus on inspiring their students.

We’re a small, dedicated team with big ambitions. We work flexibly, think creatively, and collaborate closely to make learning come alive for as many children as possible.

The Role

We’re looking for an enthusiastic and driven Fundraising and Events Lead to join our growing team. This is a new and exciting opportunity to shape the future of M7 Education’s fundraising strategy and be the driving force behind our next phase of growth.

You’ll take the lead in developing new income streams, building strong relationships with donors and fundraisers, and creating inspiring fundraising events and campaigns. Working closely with the CEO, you’ll have the freedom to innovate, test new ideas, and lay the groundwork for a future fundraising function within the charity.

This is a hands-on role that’s perfect for someone with experience in charity fundraising and event management who’s eager to make a tangible difference in education.

Key Responsibilities

• Develop and deliver a comprehensive fundraising strategy to increase income across multiple channels.
• Manage relationships with individual fundraisers, supporting their journeys and ensuring excellent stewardship.
• Plan, coordinate, and deliver fundraising events — both third-party events (such as the SuperHalfs series) and M7-run initiatives.
• Research, write, and submit compelling grant applications to trusts and foundations.
• Lead creative fundraising campaigns that engage new supporters and promote M7 Education’s mission.
• Build and maintain strong relationships with key stakeholders, sponsors, and community partners.
• Monitor fundraising performance, prepare reports, and evaluate impact to inform future growth.
• Contribute to the development of a future fundraising team, including volunteers and, in time, staff members.

Person Specification

Essential:

• Minimum of 3 years’ experience in charity fundraising, with a track record of generating income.
• Proven experience in event planning and delivery.
• Excellent communication and relationship-building skills.
• Strong organisational and project management abilities.
• Confident working independently and taking initiative in a small, fast-moving team.
• Ability to think creatively and strategically about income growth.

Desirable:

• Experience in the education or children’s charity sector.
• Skills in communications, social media, or email campaigns.
• Understanding of sporting events and community fundraising (e.g. marathons, challenges).
• Experience writing successful grant or trust funding applications.

What We Offer

• £28,000–£31,000 (pro rata) depending on experience
• Part-time (4–5 days per week)
• 30 days annual leave (pro rata) + additional time off during certain school holidays
• Paid professional development opportunities
• Highly flexible working environment (remote-first)
• Time off in lieu for event days
• Opportunity to shape and grow M7 Education’s fundraising function from the ground up

Our Culture

We’re a small team with high goals — adaptable, collaborative, and full of ideas. We value initiative and creativity, giving team members the freedom to experiment and test new approaches. If you’re someone who enjoys autonomy, thrives in a dynamic environment, and wants to see your work make a direct impact on children’s lives, you’ll fit right in.

# Fundraising # Fundraiser # FundraisingLead # Fundraising Management # Fundraising & Events

Fundraising Manager

We are looking for an experienced and adaptable Fundraising Manager to join the team at Winning Scotland, helping to drive sustainable income growth at an exciting time for the charity.

This is an excellent opportunity to join a small, ambitious organisation that’s making a real difference to the lives of young people in Scotland.

Position: Fundraising Manager
Location: Home-based/Scotland with 5 days per month in the Edinburgh office
Salary: £45,000 per annum plus benefits including 35 days holiday (including bank holidays), life assurance, and loyalty-based rewards such as health insurance, pension top-ups, or extra leave.
Hours: Full time (we would consider a 0.8 role on a pro-rata basis)
Contract: Permanent

Closing Date: Friday 7th November 2025 at 11.59pm

The Role

As Fundraising Manager, you’ll play a central role in helping Winning Scotland deliver sustainable growth by identifying and securing new income across trusts and foundations, corporate partnerships, statutory and government funding, and public sector contracts.

Working closely with programme leads and the senior leadership team, you’ll research, prioritise, and secure funding opportunities to support the charity’s ambitious growth plans over the next 2–3 years. You’ll also develop strong relationships with funders, write compelling funding applications, and provide excellent stewardship and reporting.

You’ll focus on growing income from institutional and corporate sources, while senior leaders continue to manage high-value individual donor relationships, allowing you to concentrate on developing strong pipelines and managing effective bids.

About You

You’ll be a skilled and motivated fundraiser with a solid understanding of the Scottish and wider UK funding landscape.

You’ll have:

• A proven track record of securing income from trusts, foundations, corporates and/or statutory sources
• Strong bid-writing and communication skills, with the ability to translate complex programme work into persuasive proposals
• Excellent relationship management and stewardship abilities
• The capacity to work independently, manage multiple priorities and meet deadlines

Ideally, you will also bring:

• Experience of strategic, high-value fundraising in a small or growing charity
• An understanding of issues affecting young people and youth-focused sectors
• Experience using design tools (e.g. Canva) to create professional proposals and reports
• Knowledge of international funding sources such as the US and Europe

Why Join Us?

Winning Scotland is a charity dedicated to helping young people in Scotland build confidence, resilience, and ambition by working with the adults and systems that shape their lives.

We’re currently delivering programmes that embed growth mindset, explore the potential of AI in learning, and drive cultural change through community engagement.

With a stable financial base and committed supporters, we’re ready to scale our work—and you’ll be at the heart of making that happen. You’ll join a supportive, values-driven team with the opportunity to make a tangible impact on young people’s lives across Scotland.

Benefits include:

• 35 days paid annual leave including the eight statutory bank holidays
• Life assurance
• Loyalty-based rewards including health insurance, pension top-ups, or extra leave
• Flexible working arrangements
• Supportive and collaborative culture

Other roles you may have experience within Fundraising Manager, Fundraiser, Trusts and Foundations, Corporate Partnerships Manager, Corporate Fundraising Manager, Fundraising Executive, Fundraising Officer, Senior Fundraiser, Partnerships Manager, Trust and Grants Manager, Senior Fundraising Manager, etc.

PLEASE NOTE: This role is being advertised by NFP People on behalf of the organisation.

Head of Developing Philanthropy

We are looking for a passionate and strategic Head of Developing Philanthropy to join the Environmental Funders Network (EFN) in this remote working role.

This is an exciting opportunity to play a key part in growing environmental philanthropy across the UK and to help inspire funders to support causes that sustain a thriving planet.

Position: Head of Developing Philanthropy
Location: Home-based (within 90 minutes of London by train)
Salary: £60,000 per annum, pro rata
Hours: Full time (nb. 80% FTE or flexible working considered for the right candidate)
Contract: Permanent

Closing Date: 11:59pm on Sunday 23rd November 2025

The Role

Working closely with EFN’s Executive Director, you will lead on growing the amount of funding flowing to environmental causes from UK funders – including trusts, foundations, and high-net-worth individuals – by connecting and engaging with those not yet funding environmental causes at scale, and inspiring and supporting them to start giving or to give more.

You will form part of EFN’s Leadership Team, deputising for the Executive Director as needed, and will likely line manage a small team of 3–4 individuals.

You will:

• Revise and implement EFN’s Growing Environmental Philanthropy (GEP) strategy, working with the Executive Director, Board and GEP Advisory Group.
• Raise awareness of the need for environmental philanthropy through partnerships, events, communications and media opportunities.
• Identify and engage new funders and advisors through meetings, events, field trips and speaking engagements.
• Provide inspiration, advice, and practical resources for funders and advisors to start or expand their environmental giving.
• Support wider programme delivery, including the Big Give’s Earth Raise campaign and partnerships with organisations such as the Beacon Collaborative and Climate Lead.
• Contribute to fundraising for EFN’s GEP programme and support EFN’s financial sustainability.

About You

You’ll bring at least five years’ experience in fundraising or a related industry, with a proven track record of building and managing relationships with individual donors or high-net-worth clients. You’ll be a confident communicator and creative thinker with a strong commitment to environmental and social justice.

You will have:

• Strategic leadership skills, with experience managing and mentoring teams.
• Excellent relationship management and influencing skills, with confidence in public speaking and representing EFN at high-profile events.
• Experience developing and delivering inclusive, outcome-focused events and programmes.
• Strong organisational and planning skills, with the ability to prioritise a substantial workload and work independently.
• Solid IT skills, including CRM systems (preferably Salesforce) and virtual meeting platforms.

Desirable:

• Experience coordinating networks of funders or organisations.
• Understanding of the funding landscape within the environment or NGO sectors.
• Experience in fundraising and/or managing online resources or websites.

Benefits Include:

• 25 days annual leave plus bank holidays (pro rata)
• 7% employer pension contribution
• Flexible working options
• Learning and development opportunities
• Equipment and office allowance

About the Organisation
The Environmental Funders Network (EFN) works to transform environmental philanthropy in the UK by increasing funding levels, improving effectiveness and supporting those creating a thriving planet. EFN engages more than 1,000 funder participants and 1,800 fundraiser participants through research, collaboration and knowledge-sharing.

PLEASE NOTE: This role is being advertised by NFP People on behalf of the organisation.

About us

Genetic Alliance UK is the national charity working to improve the lives of the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. We are an alliance of over 220 charities and support groups, uniting patient voices to campaign for timely diagnosis, better care, and improved access to treatments.

We host Rare Disease UK (the national campaign for implementation of the UK Rare Diseases Framework) and SWAN UK (the only dedicated support network for families of children with undiagnosed genetic conditions) and we run the annual Rare Disease Day campaign. 

About the role

This is a creative and purpose-driven role at the heart of our charity’s communications. As Senior Communications Officer, you’ll help us tell powerful stories, share our impact, and build connections with our members, supporters and partners.

You’ll lead on producing engaging digital content, managing our social media and newsletters, and keeping our website fresh and accessible. You’ll also support light-touch fundraising campaigns, helping us grow our income and supporter base.

This is an ideal role for someone who enjoys combining creativity with strategy, you’ll use your writing, design and digital skills to make our work visible and compelling, while ensuring the voices of those living with rare conditions remain at the centre of everything we do.

You’ll work closely with the Head of Membership and Communications and our new Director of Engagement and Impact, contributing ideas that strengthen how we engage all our audiences.

About you

We’re looking for someone who is:

• A strong communicator with at least two years’ experience in a communications role.

• Skilled in producing visual and written content for websites, social media and newsletters.

• Confident using digital tools (e.g. Canva, Adobe suite, Wordpress/Drupal).

• Organised, creative, and comfortable working both independently and collaboratively.

• Motivated by making a difference for people affected by genetic, rare and undiagnosed conditions.

Experience in the health, social care or charity sector would be an advantage, but curiosity and empathy matter just as much as direct experience.

What we offer

• Generous pension (5% employer, 3% employee)

• 25 days annual leave (pro rata) plus bank holidays

• Full office closure over Christmas and New Year

• Flexible, home-based working with supportive team culture

Location: Home-based (UK) – occasional travel required

Salary: £29,705 (pro rata £23,764 for 0.8 FTE)
Contract: Permanent, 28 hours per week (0.8 FTE)
Closing date: 27 November 2025