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Burning Nights CRPS Support, Remote
Unpaid role, expenses paid
Posted 4 weeks ago Apply Now

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Burning Nights CRPS Support
Burning Nights CRPS Support
Remote
Unpaid role, expenses paid
Voluntary
Disability ∙ Health ∙ Mental Health

Actively Interviewing

This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!

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Job description

Are you an experienced content professional looking to use your skills for a meaningful cause?

Burning Nights CRPS Support is seeking a passionate and creative Content Lead Volunteer to help shape and deliver engaging content that raises awareness of a rare chronic pain condition, Complex Regional Pain Syndrome (CRPS), supports those impacted and strengthens our charity’s voice across multiple platforms.

This is an exciting leadership opportunity to guide and inspire a team of volunteer content writers, oversee content planning and development, and play a key role in delivering our communications strategy. From website articles and member publications to awareness campaigns and digital content, your work will help ensure that people living with CRPS, their families, healthcare professionals and supporters have access to high-quality, accurate and engaging information.

As a national charity supporting thousands of people affected by CRPS across the UK, we are looking for someone who combines strategic thinking with a hands-on approach, has excellent communication skills, and is passionate about making a real difference.

By joining our friendly and ambitious team, you will gain valuable leadership experience, develop your communications and marketing expertise, expand your professional network, and directly contribute to improving the lives of people living with one of the most painful long-term conditions known to medicine.

Key Tasks and Objectives

  • Lead a team of content writer volunteers.
  • Lead and co-ordinate internal projects, activities and campaigns that help build awareness of our organisation and its aims.
  • Building, leading and inspiring the content team, ensuring goals are agreed and communicated to support the achievement of our overall aims and projects.
  • Ensuring all content is on-brand, consistent in style, quality, and tone of voice, and ideally optimised for search and user experience across channels, including our website, our members' magazine, and social media.
  • Supporting the development of a communications strategy from the 3-year charity's strategy, focusing on the content section.
  • The implementation of a functional content calendar
  • Establishing workflow for requesting, creating, editing, publishing, and repurposing content
  • Operate as the point of contact for content volunteers in the team.
  • To also be an active part of the content team as a content writer.
  • Identifying, initiating and leading on content projects which align to the strategy and realise our goals.
  • Collaborate with the team
  • To contribute to the Annual Report or other reporting documents.
  • Protecting our charity brand identity, ensuring it is delivered consistently, both internally and externally.
  • Promote the charity across all our channels and forms of communication.
  • Ensure effective, regular communication to both internal and external audiences.
  • Support the review of progress and effectiveness of the Communications Strategy on an annual basis.

What are we looking for?

About You

To be successful in this role you will:

  • Have a real enthusiasm for excellence, innovation, continuous improvement and change.
  • Be a team leader who is positive, hands-on and able to get the best out of a team.
  • Have excellent interpersonal skills and are adept at building relationships with different stakeholders.
  • Have the ability to think strategically but also enjoy being at an operational level to support your team and key stakeholders.
  • Have a high level of attention to detail.
  • Have the ability to prioritise, plan and organise projects and to manage expectations.

Experience and Skills

  • The ability to communicate (verbal and non-verbal) to a wide variety of audiences including the public, various forms of media and on an individual basis.
  • Experience in building and leading a team.
  • Previous experience of working or volunteering for charities and/or volunteer organisations is desirable but not required.
  • Creativity 
  • Good IT skills.
  • Ability to motivate and enthuse others.
  • To be a part of a team.
  • Previous experience in marketing, communications, or related fields.
  • Strong leadership skills with the ability to motivate and inspire volunteers.
  • Experience of using Canva or similar design packages.
  • A strong network of PR and media contacts would be highly advantageous.

What's in it for you?

This is an exciting opportunity to use your communications and leadership skills to make a genuine difference to the lives of people affected by Complex Regional Pain Syndrome (CRPS), a debilitating and often misunderstood pain condition.

As our Content Lead Volunteer, you will play a key role in shaping how a national charity communicates with thousands of people across the UK. You will have the opportunity to lead and develop a team of talented volunteers, influence content strategy, and help raise awareness of a rare condition that urgently needs greater understanding and recognition.

In return, you will:

  • Gain valuable leadership and management experience within the charity sector.
  • Develop and enhance your content strategy, communications and marketing skills.
  • Build experience of managing and motivating a remote volunteer team.
  • Play a strategic role in shaping the voice and messaging of a growing national charity.
  • Expand your professional network and collaborate with passionate volunteers, trustees and healthcare stakeholders.
  • Receive ongoing support, training and development opportunities.
  • Enjoy flexible, remote volunteering that can fit around your existing commitments.
  • Experience the satisfaction of knowing your work is helping people living with CRPS and their families access support, information and hope.

Most importantly, you will ensure that no one affected by CRPS has to face their journey alone.

Organisation
Burning Nights CRPS Support View profile Organisation type Registered Charity Company size 51 - 100

To drive change for Complex Regional Pain Syndrome (CRPS) & ensure people whose lives have been touched by this condition are not alone.

Burning Nights CRPS Support logo Play
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Posted on: 03 June 2026
Closing date: 31 August 2026 at 23:30
Job ref: CCL02/2026
Tags: Campaigns, Communications, Marketing, Digital, Brand, Content Writing / Copywriting, Engagement / Outreach, Health / Medical, Mental Health, Public Relations, SEO, Social Media, Strategy, Web, Digital Fundraising
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