Trustee role volunteer roles in consett, county durham

Summary: Driving medical communication and patient-led research agenda for a complex medical condition 

Description: You could make a real difference to the lives of patients and doctors struggling with a rare disease. That's what we do at Mast Cell Action - a charity dedicated to supporting the Mast Cell Activation Syndrome (MCAS) patient community and improving the evidence base for the disease.

We work hand-in-hand with doctors and patients to develop materials that truly make a difference. And with the help of our medical advisory panel, we're constantly improving our activities to better serve our community.

But we're not done yet. We're looking for someone with a genuine interest in this area, with medical, health, NHS, and research experience to join our team. You'll be responsible for developing and executing our strategy to engage with the medical community, research organisations, NHS policymakers, and our community as a whole.

You'll lead multiple projects, collaborating with doctors to better understand and define our community, as well as initiating and executing new projects. And with your expertise, you'll ensure that all our communications are evidence-based and informative.

So, if you're passionate about making a real difference, come and join us at Mast Cell Action. Together, we can create a brighter future for patients and doctors alike.

You will lead a team of passionate volunteers and interns, working closely with our Operations Director to drive our mission forward. One of your key responsibilities will be to nurture and grow our Medical Advisory Panel, working hand-in-hand with supportive doctors and medical institutions. You'll be the face of the charity, representing us in all our interactions with these key stakeholders.

You’ll report directly to our trustee board, ensuring that all of our activities are aligned with our overall strategy and goals.

We're looking for a dynamic individual who can inspire and motivate their team to achieve great things. If you're passionate about healthcare and have experience working with medical institutions, this is the perfect opportunity for you. So why not join us at Mast Cell Action and help us make a real difference in the lives of patients and doctors?

What impact will they have?

At Mast Cell Action, we know that communicating, engaging, and educating the medical community and policy makers is crucial if we want to improve support for MCAS patients. And that's where you come in.

As our communications expert, you'll play a pivotal role in advancing patient care over time. You'll work closely with doctors, medical institutions, and policy makers to raise awareness of MCAS and advocate for better support for patients.

By effectively communicating the importance of MCAS and engaging with key stakeholders, you'll help improve patient outcomes and quality of life in the long run.

If you're passionate about making a real difference and have experience in healthcare communications, this is the perfect opportunity for you. 

About the volunteer 

What skills should they have

We are looking for a volunteer who has experience in the NHS and medical/research environment. If you're someone who can assess a situation and develop a clear strategy to achieve the desired outcome, we want to hear from you.

As our ideal candidate, you're an effective communicator who can engage with doctors and produce written and visual materials that really make an impact. You're also a team player who can work effectively as part of a multidisciplinary team.

Managing projects and team members is second nature to you, and you're able to keep everyone on track and motivated. And with your awareness of the political and economic landscape in the area of complex diseases, you can navigate through any obstacles that come your way.

If you're passionate about making a real difference in the lives of patients with complex diseases and have the experience we're looking for, we want you on our team at Mast Cell Action.

Skills

Medical related background 

Medical writing skills

Project management 

Team management 

Analytical and conversant with research methodologies

Where and when

Work remotely, flexible hours 

Meetings in London 

Trips to medical conferences around uk

Reasonable Expenses covered.

Job Description:
Youth Advantage UK is seeking a volunteer Director of National Impact to develop and lead its National Impact Directorate in identifying and delivering on opportunities for the organisation to grow its impact. The successful candidate will be responsible for ensuring the Directorate’s two Departments (Research and Project) produce high-quality research and related projects and events able to influence decision-making and policy on a national scale in line with the organisation’s strategic priorities. Working closely with the COO and the Policy and Ethics teams, the ideal candidate will use their prior experience to effectively guide and strengthen the organisation’s ability to enable evidence-based, national change. They should have excellent writing and speaking skills, IT literacy, and the ability to work well independently and in a team.

This role reports directly to the Chief Operating Officer.

Responsibilities:

● In line with the organisation’s strategic priorities, to lead the National Impact Directorate in designing, developing and implementing impactful research and project objectives.

● To line manage the Head of the National Impact Research Department and the Head of the National Impact Project Department, supporting them to effectively manage their own teams and to develop and implement the frameworks necessary for producing top quality research output (including academic articles) and subsequent events, campaigns and project relating to research findings and organisational strategy respectively.

● To work with HR in creating a strong National Impact Directorate composed of individuals with the appropriate skills and expertise. To ensure these volunteers are appropriately supported and trained during their period of service.

● To work alongside the Policy team to source potential commissions and influencing opportunities, shaping research and project focus and output accordingly.

● To develop short- and long-term strategies in relation to both aspects of the Directorate’s activity, ensuring that these align with the wider strategies of the organisation.

● To liaise with the Policy and Ethics teams on an ongoing basis, ensuring that their advice is incorporated into Directorate decisions and output.

● To take responsibility for relationships with key external stakeholders, at all times representing the organisation positively and professionally.

● To work on an on-going basis with the other members of the organisation’s Senior Leadership Team in determining its strategic priorities and incorporating these into the Directorate.

● To monitor, analyse and respond to external trends which impact on the organisation’s strategies and the National Impact Directorate’s activities.

● To work closely with the organisation’s Communications team in developing and implementing effective strategies to raise the organisation’s profile and impact.

● To create blogs and articles on related issues and to find and distribute information on related topics which may be of interest to the other organisation members.

● To support the Chief Executive Officer in presenting national impact strategies to Youth Advantage’s Trustees.

Requirements:

● Experience in research and planning, as well as leading key campaigns or programmes.

● High-level understanding of carrying out quality research, ideally in an area related to the organisation’s priorities.

● Excellent knowledge of a range of methods and approaches to effectively disseminating research results.

● Excellent leadership and organisational skills, with proven experience of setting priorities and motivating team members.

● Excellent writing and speaking skills.

● IT literacy, including proficiency with Microsoft Office and Google Suite.

● Ability to work well independently and in a team.

● Strong attention to detail and organisational skills.

● Ability to prioritise tasks and manage time effectively.

Benefits

● Gain valuable experience in leading a research and project team.

● Opportunity to work with a dedicated and passionate team.

● Flexible working hours.