Committee member volunteer roles in Glasgow

Shooting Star Children’s Hospices is seeking an experienced and dedicated academic with a strong interest in paediatric palliative care, or related field to join our Research Governance Committee as a Volunteer Academic Member. This is an excellent opportunity to contribute to the strategic development of research at a research active children’s hospice, to ensure that our research activities meet the highest standards of integrity, ethics and governance. 

You will work with the Committee Chair, the Research Fellow, and other committee members to support research that makes a meaningful difference to children with life-limiting conditions and their families as well as bereaved families, including those where a child died unexpectedly. 

Appointment to the Committee will be subject to confirmation by the Shooting Star Children’s Hospices Trustee Board.

Duties and key responsibilities

· Participate in quarterly meetings: Attend and contribute to online committee meetings held four times per year (papers and slide deck will be prepared by the Chair). 

· Review research proposals: Provide expert review of project proposals, contributing to the assurance of ethical and governance standards. 

· Support research oversight: Help ensure that all research complies with regulatory and ethical requirements and reflects best practices. 

· Contribute academic expertise: Share your knowledge and experience to strengthen the quality and impact of the charity’s research portfolio. 

· Promote collaboration: Encourage partnerships between Shooting Star Children’s Hospices and wider academic, clinical, and research communities. 

· Champion good governance: Actively promote equity, transparency, and excellence in research oversight. 

Essential skills and experience

· Proven experience in academic research, research governance, and research ethics. 

· Strong academic background in higher education, and health or social care research. 

· In-depth understanding of research compliance frameworks (e.g., GDPR, HRA, UKRIO, Caldicott Guidelines, or equivalent). 

· Ability to evaluate research proposals and provide constructive feedback. 

· Excellent communication and collaboration skills. 

· Confidence using virtual meeting platforms and digital collaboration tools. 

Desirable attributes

• Academic research background with a track record of publications in the area of paediatric palliative care or related field.

• Previous experience serving on or chairing a research committee or governance board.

• Commitment to promoting equity, diversity, and inclusion in research.

Commitment

• Quarterly committee meetings (Approximately 1 hour per meeting).

• Reviewing project proposals (Approximately 1 hour per month).

• Email communication and ad hoc queries (Approximately 1 hour per month).

• 2–3 years in the role would be appreciated for both parties to gain the most out of this experience.

• This is a voluntary role. Reasonable expenses related to attendance and participation will be reimbursed. 

We are seeking new Professional members of the Registry Steering Committee (RSC) to help shape the future of the Registry and ensure it meets the needs of people with CF, clinical teams, researchers and other stakeholders.

This is a voluntary role (unpaid), but reasonable expenses can be claimed for travel to attend meetings in person if required.

This role part time and home based.  This is a UK based role and candidates need to be UK based.

Term and commitment

• RSC membership term: three years (minimum one term).
• RSC meets quarterly (commitment to attend at least two meetings per year).

Who we’re looking for

We particularly welcome applications from CF professionals including:

• Adult and paediatric clinicians
• Early career professionals
• Pharmacists
• Allied health professionals
• Psychosocial workers

Applicants from across all four nations of the UK and from both adult and paediatric services are encouraged to apply.

Key responsibilities

• Contribute to strategic discussions and decision-making about the Registry’s direction.
• Review RSC papers and related documents outside scheduled meetings.
• Act as an advocate for the UK CF Registry.
• Optional: Join the Registry Data Review Group. This group meets online every six weeks and members provide Registry data request approval.

Essential experience and attributes

• Knowledge of cystic fibrosis and its key challenges.
• Ability to actively contribute to committee discussions and support informed decision-making.
• Ideally some experience working with the UK CF Registry or using its data outputs.
• CF clinicians and AHPs should be members of relevant professional bodies (e.g., BTS/BPRS, RCP/RCN, Cystic Fibrosis Specialist Group, CFMA).

Why join us? 

• Make a meaningful impact on the lives of people affected by CF.
• Shape future Registry development and research.
• Engage with purpose-led peers and develop transferable skills (e.g., application reviewing, public speaking).
• Demonstrate continuing professional development through voluntary service.

Together we’re uniting for a lie unlimited for people living with CF. Add your experience and voice to the RSC and help steer the future of CF care and research.

Your Experience. Your voice. Your Impact.