Major donor volunteer roles

Do you have the experience and the drive to create change that aims to improve understanding, diagnosis and support for Endometriosis? 

This is an exciting time to join the Endometriosis UK trustee board, as the organisation expands and develops to achieve the changes that are needed to support those affected by the disease and to drive down diagnosis time. With trustees coming to the end of their time on the Board, we are looking for a Treasurer and two further Trustees to build on this momentum to strengthen our organisation and bring about change for those with endometriosis. We have a skills-based board, with Trustees having one or more identified skills, with the overall membership of the Board providing the complete set of skills.

Endometriosis impacts on the physical and mental health of 10% of women and those assigned female at birth in the UK, from puberty to menopause - although the impact can be felt for life. Yet it’s a disease most people have never heard of, do not understand and the cause is not known. It costs the UK economy around £11 billion every year in healthcare costs, loss of work and treatments and yet it isn’t recognised by most employers. As the UK’s leading charity for all those affected by endometriosis, we’re determined to change this and ensure that everyone gets prompt diagnosis and the best treatment and support.

We’ve big ambitions in our strategy, focused on supporting those with endometriosis, driving down diagnosis times, campaigning for improved treatments and access to services, raising awareness, and leveraging more money into research. We place people with endometriosis at the heart of all we do, and with an average time to get a diagnosis of over 9 years, the cause of the disease unknown and no cure, there is so much more they need and want. If we get our work right, we really can make a difference to the 1.5 million women and those assigned female at birth with endometriosis in the UK – and all those diagnosed in the future.

The pandemic had a major knock-on effect to the treatment and management of endometriosis. Cancelled surgeries and appointments left those with endometriosis unable to access treatments and support or get a diagnosis. We have a big job to do, increasing the support we provide, reaching everyone affected by endometriosis and ensuring they get the support they need. Despite being small we’ve achieved a lot. But there is so much more we want to do.

1. Treasurer

We are currently recruiting for a Treasurer to join our friendly, dynamic, experienced and effective Board of Trustees. Trustees are recruited based on their skills and experience, and for this role we are particularly seeking someone who can bring strong financial expertise and strategic insight to the Board.

In addition to the Treasurer role listed above, we are also looking for two additional new Trustees to join our board. 

2. Young Trustee

• Recent personal experience of the impact of living with endometriosis whilst at school
• Ability to bring insight and perspective about the experiences of a wide range of younger people living with endometriosis, including diagnosis
  May 2026
• Willingness to take on an advocacy role and to share your story in the media and in other ways to support Endometriosis UK’s campaigning and communications work
• Please note that legally trustees must be over the age of 18 in England and that we will provide support to young trustees who are new to trusteeship.

3. Endometriosis UK Trustee

• Personal or professional experience of diversity and inclusion issues
• Currently living in England, Northern Ireland, Scotland or Wales
• Charity Trustee experience
• Charity Senior Management experience
• HR expertise
• NED experience
• Experience of grant making / philanthropy

Closing date for applications – 9th June 2026

Interviews will be held in June/July, with initial interviews being held virtually on request, carried out by a small panel of trustees.

The role will start at a Board meeting on 28th November 2026, when our current trustees reach the end of their 6-year term of office. Prior to the roles starting, incoming Trustees will have the opportunity to observe a Board meeting in September, and induction will be planned in October.

The food system is unsustainable and unjust, and it’s damaging the health of a generation. We are a youth activist movement set up to challenge a food system that’s been set up to fool us all. We're looking for a new Chair who shares our passion for empowering youth leadership and transforming our food system

Letter from our Chair - Lucy Thomas

We are seeking a passionate and strategic individual to join our Board of Trustees, someone who brings strong commercial insight, business acumen, and ideally experience in fundraising and income generation.  This is an exciting opportunity to play a pivotal role in shaping the future of a respected national charity that continues to grow its reach and impact.

As a Trustee, you will also sit on our Commercial Advisory Group (CAG) a dynamic sub-group that advises on the Trust's commercial strategy, innovation, and sustainability.  You'll help us strengthen our commercial performance, explore new opportunities for growth and diversification, and ensure we remain on strong financial footing to deliver our vital mission.

We welcome applicants from all sectors and backgrounds.  Experience in marketing, partnerships, or charity leadership would be an advantage, but what matters most is your ability to bring fresh thinking, sound judgement, and a commitment to using your commercial experience for social good.

Background

Suzy Lamplugh Trust was founded by Diana and Paul Lamplugh following the disappearance of their daughter Suzy, a young estate agent, in 1986. Since then, the Trust has pioneered personal safety as a life skill and a public policy priority.

Our vision is to eliminate abuse, aggression and violence, creating a society where people are safer and feel safer.

Our mission is to reduce the risk and prevalence of abuse, aggression and violence with a specific focus on stalking and harassment through education, campaigning, and support.

What we do

• Campaigning - working in partnership with other charities, private and statutory organisations; raising awareness; influencing policy makers
• Education - advice; training; guidance; workplace support; free resources, information; consultancy
• Support - National stalking helpline and advocacy service; supporting people at increased risk of violence and aggression; community projects

About us

My Life Films is an award-winning charity that uses film and TV to enrich and support the lives of people living with dementia and their carers. My Life TV is our specialist on-demand streaming service, specifically designed to meet the cognitive needs of people living with dementia, for use within care settings and at home.

My Life TV is carefully curated to enable people living with dementia to feel stimulated and connected to the world, improving their mental health and supporting their essential care. 

Our high-quality content includes interactive shows like quizzes, singalongs, drawing and chair yoga; calming content, including animal and nature programmes and slow TV; a wide range of reminiscence programmes, from the 1960s onwards, and much more. 

Since launching in 2021 we work with highly respected content partners, as well as producing our own programming, in partnership with trusted organisations in the dementia care field, and more widely. The Alzheimer’s Society, BFI, Royal Parks, Museum of Brands, BBC Archive and National Trust are just some of the partners we are proud to work with.

We have ambitious plans to scale up its use, so we can reach and support as many people living with dementia as possible.

About the role

Stepping in at the helm of a well-established Board, and working closely with the highly experienced Executive Director, our new Chair will lead My Life Films through its next phase of growth and impact.

The new Chair will review and reinvigorate the charity’s governance, ideally including a board audit, as well as challenging and interrogating the group’s strategic plan.

This role will suit potential candidates who are ready to step-up to chair a not for profit organisation. This means they are likely to bring current or previous board experience as a non-executive or trustee. Candidates may have experience in the care sector, health sector, charity or foundation, possibly an organisation involved in supporting people living with dementia. This experience could enable candidates to draw on networks in the care, health, charity, voluntary sectors, social enterprise or foundation. It will be important that the new Chair can demonstrate a personal passion and commitment to improving the lives of people living with dementia.

The Chair will also help guide the Executive in optimising the existing model, developing new opportunities by helping expand networks and making introductions when necessary. They will act as a critical friend to Executive Director, coaching and challenging as required and providing leadership and strategic direction to the Board.

They will hold the organisation to the highest ethical standards, ensuring compliance with all regulatory requirements and that My Life Films is run in the best interests of its stakeholders.

The Board of Trustees is the governing body of the charity and is collectively responsible for its success. All trustees must take decisions in the interests of the charity.

My Life Films has a trading subsidiary – MLF Productions Limited – and it is expected that the Chair of My Life Films will also Chair the trading company.

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Selection Criteria

When applying, we ask candidates to highlight any areas of expertise they can bring in the areas identified below.

• Skills and Experience –

Governance / leadership

• Any experience of operating at Board level in the voluntary, public or private sector preferably with a knowledge of the Social Care sector.

• Understanding of good charity governance, including trustees’ legal duties, financial oversight and risk management.

• Experience of chairing effective meetings and facilitating inclusive, robust discussion and decision-making Experience of fundraising, advocacy, campaigning, or working with regulators, commissioners or major funders.

Strategy and finance

• Ability to think strategically, interrogate complex information and focus the Board on priorities, impact and long-term sustainability.

• Strong financial literacy and ability to scrutinize budgets, management accounts and risk registers (not necessarily as a finance professional).

People leadership

• Track record of leading senior individuals or teams; able to coach, support and hold to account a CEO

How to Apply

If you are interested in the role, Maana Ruia a trustee with My Life Films and a member of Enter The Boardroom Community would be happy to fix up a time to talk to you. 

Please submit your application to Julian Freeston  The application should comprise a Cover Letter detailing your suitability and desire for the role (no more than two pages) and an up-to-date CV (no more than four pages).

The application deadline is 5pm, 29th May 2026

This is an exciting time to join the Endometriosis UK trustee board, as the organisation expands and develops to achieve the changes that are needed to support those affected by the disease and to drive down diagnosis time. We are looking for a new Treasurer to build on this momentum to strengthen our organisation and bring about change for those with endometriosis. We have a skills-based board, with Trustees having one or more identified skills, with the overall membership of the Board providing the complete set of skills. 

Endometriosis UK is the largest UK charity for those with endometriosis. Endometriosis UK works to:

• Provide support to those with endometriosis and their families and friends

• Provide clear, objective information about the condition and its treatments

• Raise awareness amongst health professionals and the general public about the condition

• Support research into endometriosis.

This is an unpaid role. Reasonable pre-agreed travel expenses will be paid.

Time commitment:

• Five meetings a year, including preparation for meetings, reading papers etc; and attendance at an annual strategy day and AGM (held on the same days as Board meetings).

• Trustees have the opportunity to take part in Board sub-groups and project groups to develop aspects of the organisations’ work. Current sub-groups include the Finance Committee and Diversity & Inclusion Sub-Group. Trustees are also invited to attend Endometriosis UK events.

We are recruiting for one new treasurer to join the board. We are particularly looking for:

• Personal or professional experience of diversity and inclusion issues

• Marketing and digital marketing

• Communications and social media

• Campaigning and achieving change

• Experience of working in Primary Care

• Charity finance experience

• Currently living in Northern Ireland, Scotland or Wales

Personal experience of living with, or having a close family member with, endometriosis, is vital on our Board. Whilst we look favourably on applications from those in the endometriosis community, we already have Trustees with first hand lived experience and new trustees do not need to have endometriosis. 

We also particularly welcome applications from trustees from a range of backgrounds and experiences as part of our commitment to diversity.

The role will start at a Board meeting on 28th November 2026, when our current Treasurer reaches the end of their 6-year term of office. Prior to the roles starting, the incoming Treasurer will have the opportunity to observe a Board meeting in September, and induction will be planned in October.

Closing date for applications – 9th June 2026

Interviews will be held in June/July, with initial interviews being held virtually on request, carried out by a small panel of trustees.