Volunteer roles in East midlands

A great opportunity to play a role at an exciting stage of LRC’s growth!In 2025, the charity set-up a CRM system - after initial configuration, we now need a volunteer to help operationalise and is used optimally to achieve LRC’s goals.

In 2025, the charity set-up a CRM system using CiviPlus, a CRM system specific to the not-for-profit sector. We already have a technical volunteer who has helped with initial system configuration and can provide ongoing technical support.

The Lyme Resource Centre (LRC) is a charity with a mission to minimise risk of Lyme disease whilst enjoying the outdoors, by educating the public and healthcare professionals about ticks and Lyme disease. 

The charity has grown significantly over the past couple of years, and is now looking for volunteers to help with its next phase of evolution. 

Inscape School is a leading specialist setting supporting autistic children and young people aged 5 to 19 who have communication and social‑interaction needs. Based on the Together Trust Campus in Cheadle, our purpose‑built SEND environment removes barriers to learning, maximises independence, and celebrates every student’s achievements.

We provide holistic, personalised programmes tailored to each learner’s strengths and unique way of experiencing the world. Our multidisciplinary teams—comprising therapists, specialist teachers and behaviour support professionals—work collaboratively to help students build confidence, develop essential life skills, and work towards long‑term independence.

We are seeking to appoint a knowledgeable and committed Volunteer Governor with a strong educational background, particularly someone with expertise in SEND, curriculum quality, student outcomes and Ofsted frameworks.

As part of the governing body, you will contribute to ensuring that Inscape School provides sufficient, high‑quality teaching time to deliver a rich and effective curriculum. Governors play a vital role in holding senior leaders, including the Headteacher, to account for the school’s educational performance and for securing the best possible outcomes for learners. Achievement, curriculum and teaching are key areas evaluated by Ofsted, making this role central to the school’s ongoing improvement and success.

This appointment will serve as the governing body’s Achievement, Curriculum and Teaching Link Governor. The postholder will support the governing body in maintaining robust strategic oversight of the school’s educational performance, identifying strengths and areas for improvement, and helping ensure that the highest standards are consistently met.

If you are passionate about improving the life chances of autistic young people and have the expertise to influence educational quality at a strategic level, we would be delighted to hear from you.

Why we want you

Collectively, individual governors contribute their professional, specialist and general management skills to Inscape School (and its sub-groups) in a non-executive role.

Governors advise, challenge and support the leadership of the school / college and hold them to account for its management, the quality of the teaching and learning and the achievement, wellbeing and safety of pupils. Governors uphold the values and ethos of the College and ensure it works within its allocated budget, approving targets, policies, and monitoring the progress the school / college is making.

What you will be doing:

• Approving policies and the school/college quality improvement plan
• Promoting the well-being of students including independence, participation, diversity, inclusion, equal opportunities, and community cohesion
• Use your experience in Education to help shape what we do
• Read the documents for and attend all full Governing Body meetings and subgroups of which they are members
• Attend induction and relevant training events organised by the School or Together Trust
• Get to know the College and its staff by visiting the College and attending inset and other meetings to which Governors are invited by the principal
• Supporting decisions on safeguarding, equality, curriculum, resources, and student wellbeing

The skills you need:

• A strategic mindset – the ability to consider long-term goals, think beyond the day-to-day, and shape the College’s future direction
• Constructive evaluation skills – the confidence to review data and performance reports critically, offer thoughtful challenge, and contribute to continuous improvement
• Leadership and influencing skills – an ability to support and guide strategic decision-making, influence thinking, and work collaboratively with others
• Strong interpersonal and teamwork skills – you’ll be part of a collective, supporting respectful debate, inclusive discussions, and shared accountability
• Good planning and organisational skills – to prepare for meetings, follow up on actions, and balance responsibilities effectively alongside other commitments
• Ability to demonstrate a full understanding and appreciation of the principles of governance
• Experience in education – with insight into curriculum, teaching, learning, or assessment. Those with specialist SEND knowledge or experience of further education settings will be particularly valuable
• Most importantly, we’re looking for individuals who share our values of inclusion, equity, and ambition for young people. If you are passionate about education and have the capacity to support and shape our work, we’d love to hear from you

What's in it for you:

• Demonstrable leadership and strategic experience for CV
• Insights into special education

Creative Support is a national not-for-profit social care and supported housing provider with charitable status. We deliver personalised care and support for younger and older adults with learning disabilities, autism, mental health needs, physical disabilities and those at risk of homelessness or social exclusion.

Creative Support is governed by a dedicated Board of Trustees with expertise across social care, health, housing, finance, legal and related fields. As our current Chair approaches the end of her term, we are seeking a new Chair with senior social care experience and a strong understanding of commissioning, quality, risk, workforce, regulation and partnership working. The ideal candidate will champion our values and mission and lead with clarity and compassion.

About Creative Support:

We are one of the UK’s largest social care providers, supporting over 6,000 people each year across 70 local authorities and employing around 5,000 staff. With an annual turnover of £197 million, we are also a registered social housing provider with over 1,000 supported housing units and significant housing assets.

Creative Support is an Investor in People Gold employer, a Stonewall Diversity Champion and an inclusive organisation committed to increasing Board representation from BAME, LGBTQ+ and disabled communities, with zero tolerance for discrimination.

Our Mission and Values:

Creative Support promotes independence, inclusion, and wellbeing. We do this by working with the people we support, their families and others to meet individual needs and aspirations in a person-centred way. We provide high quality homes and support, enabling people to say:

- I live my best life in a place I call home

- I feel listened to, respected and valued

- I enjoy choices and rights and have control over my life

- I am supported to feel safe

- I am doing the things that matter to me

- I enjoy relationships with others

- I am connected to my community

- I am supported with my wellbeing

- I feel able to reach my full potential

Our We Care values underpin everything we do at Creative Support. We are: Welcoming, Empowering, Compassionate, Aspirational, Respectful, Effective.

About the Role:

The Chair is responsible for leading the Board, ensuring effective governance, and holding the Chief Executive and Board to account for delivering our mission, vision and strategy. The role involves providing inclusive leadership, ensuring Trustees understand their responsibilities, and working closely with the Executive Team to offer oversight, support and constructive challenge.

We are looking for a highly motivated individual with senior-level social care expertise, a commitment to our charitable purpose and person-centred values, and a belief in co-production with the people we support. The Chair must demonstrate vision, sound judgement and an inclusive, respectful leadership style.

The Chair is expected to commit sufficient time to:

- Attend six annual Board meetings, and relevant committee meetings (typically 2–3 hours in duration);

- Prepare thoroughly for meetings, including reading papers in advance;

- Lead the induction, support and supervision of Trustees;

- Undertake appraisal and support of the Chief Executive Officer;

- Act as an ambassador for Creative Support at internal and external events.

- Visit national services and engage with staff, the people who we support, and tenants.

The estimated time commitment for the Chair is approximately 4 days per month/48 days per year, although this may increase in response to organisational needs or during periods of change. Appointments are made for an initial period of 3 years and are subject to an annual appraisal. Terms begin at the conclusion of the Annual General Meeting in which the Chair is appointed.

The role of Chair of the Board of Trustees is remunerated in recognition of the significant time, responsibility and contribution required. The current remuneration for the Chair is £12,000 per annum, payable in monthly instalments of £1,000. This payment is taxable and is processed through the organisation’s payroll. Trustees, including the Chair, are appointed as office holders and are therefore neither workers nor employees. Remuneration arrangements are subject to periodic review in line with the organisation’s governance and remuneration policies.

We also pay all reasonable expenses associated with the role, including travel, overnight accommodation, subsistence and child care expenses if needed. Appointment will be made subject to the following satisfactory checks:

- References

- Declarations of Interest

- Fit and Proper Person Check

- Personal Declarations

- Enhanced DBS

- A £1.00 payment for shareholding membership (this can be provided in person when you first attend our Head Office)

We can send you a copy of our most recent Annual Report & Accounts - details on how to request this can be located on this roles listing on our company website or consult the FCA Mutuals Website, type in Creative Support and search under ‘documents’. You will find all previous annual reports and accounts listed and these can be viewed or downloaded at no cost. 

Please note that Creative Support is a Community Benefit Society with charitable status registered with the FCA, not a company or registered charity so you will not be able to access information about Creative Support via Companies House or the Charity Commission.

Recruitment Timeline:

Closing Date for Applications: 13 May 2026

Meet and Greet and Stakeholder interview panel: 17 June 2026

Final panel interviews: 30 June 2026

Offer and recruitment checks: July - August 2026

Co-opt at Board meeting: 10 September 2026

Formal vote at Annual General Meeting: 24 September 2026

Please keep these dates available upon application

At St John Ambulance, we are looking to develop our volunteering offer and become an even more integral part of our communities through delivering community first aid and education. 

We need people who have a passion for helping others, care about their communities and want to make a difference, supporting them to become safe and more resilient by sharing your first aid skills and knowledge. As a Community First Aider, you’ll deliver first aid to those in need through local events, as well as provide education to the public so that the ripple effect of First Aid grows.

Through supporting the growth of community partnerships, you will bring people along to our cause, growing our membership and fundraising base and spreading the message that First Aid Saves Lives. 

Through volunteering as a Community First Aider, you’ll get a huge sense of satisfaction and pride delivering an essential service. It’s great for you, great for your community and great for our nation, and it requires only a small commitment of your time. 

We will make sure you will have access to a proper induction to volunteering with SJA and the training you need for the role you take on. We will also provide you with a supportive environment while you are volunteering with us. Information about our volunteer roles are included in the role descriptions. What you can expect from SJA, and what we expect from those who volunteer with us, is included in the volunteer charter.

If you are successful you will need to undertake induction & training for the role which will be provided, tbc.

Closing date for these opportunities is: 28/12/2026

To apply for this opportunity please follow the link below:

Purpose of the Role

To join the board as a Volunteer Finanical Director, bringing governance knowledge and strategic thinking to strengthen board effectiveness, uphold the CIC's obligations, and ensure all decisions are made in the best interests of the community we serve.

Role and Responsibilities

1. Guide the Board

• Attend two to three board meetings per month, virtual or hybrid, and come prepared to contribute
• Help ensure decisions are made properly, recorded, and followed through
• Review and respond to decisions outside of meetings within 48 to 72 hours
• Support the review of policies and raise questions when something needs attention
• Support the development of projects and programmes by contributing ideas, strategic thinking, critical insight, and creative, innovative approaches, while bringing energy, boldness, and enthusiasm.

2. Keep Us on Track

• Contribute to strategic decision-making, policy approval, and organisational oversight
• Monitor organisational performance and support the Managing Director in delivery accountability
• Flag risks early and help ensure resources are used well and in line with our mission
• Keep the needs of the communities we serve at the centre of every decision

3. Be a Critical Friend

• Challenge and support the Managing Director with honesty and care
• Ask the questions that need to be asked, even when it is uncomfortable
• Help us grow in a way that is sustainable and grounded in our values

4. Champion What Matters

• Be an ambassador for Zion Wellness in how you show up and speak about us
• Participate in bi-directional mentorship exchanges with young people on the programme
• Ensure safeguarding, inclusion, and community interest are never an afterthought

What We Are Looking For

You will bring:

• A strong professional background in finance, budgeting, and strategic financial planning
• Confident, values-led leadership with the ability to represent the CIC's mission at board level
• A background in leadership, social impact, or community outreach
• Experience in creative direction, entrepreneurship, or project leadership
• Understanding of organisational strategy, stakeholder engagement, and partnership development
• A genuine commitment to systemic change and the communities we serve

It would be great if you also have:

• Governance experience such as trustee, governor, or board-level involvement, though this is not essential
• Experience in a charity, CIC, or grassroots organisation
• Training and induction will be provided for the right candidate

Please Note:  

This role is open to graduate and university students (aged 18+) who are looking to gain real leadership and governance experience. If you are early in your career and passionate about community impact, we want to hear from you. Ongoing support will be provided.

We are seeking a Treasurer/Trustee for The Historic Towns Trust, an educational charity that focuses on inspiring future generations to understand, appreciate and preserve their urban heritage. The Trust works in partnership with local historians, geographers and archaeologists to publish historical maps and atlases that give everyone a sense of belonging and custodianship.  Our unique multi-layer mapping techniques reveal a new way to visualise the complex development of Britain’s towns, enabling us to better analyse the impact of events and communities over time. We use our research to develop teaching materials for schools and to engage the public with free talks, empowering them with the knowledge and confidence to influence future decisions about their built environments.

Among our Trustees we have some of the leading academics in the fields of urban history and archaeology, architects, and business people, who share a passion for maps and history.  While the organisation has no central office and Trustees are spread across Britain, we meet frequently, usually but not exclusively in London.

The Trust has expanded significantly in recent years, increasing the number of maps and atlases we produce and developing educational and community outreach programmes to increase the impact of each map for the town it serves. The number and value of transactions we undertake (raising funds for projects, selling maps, taking on our first employee) has grown considerably and we are seeking a new Trustee to fill the role of Treasurer, helping us to re-shape the organisation for the future.

The Role

The Historic Towns Trust has the following financial activities

1. Income from our endowment

2. Income from sale of maps and atlases directly, through our website and through third party distributors

3. Income from grants and donations to HTT towards core activities

4. Holding of money raised for individual atlas and map projects

5. Expenditure on administration

6. Quarterly VAT filing

7. GiftAid collection and accounting

8. Annual audit

Currently three sub-committees (Projects, Communications and Resources) report to an Executive Sub-Committee (“ESC”) that reports to the Board of Trustees.  Each of these meets quarterly, with two Board meeting held in person in June and December, usually in London.

In the light of the recent growth in activities we are reviewing our operating structure.  This may include

· A new Educational sub-committee

· Splitting Resources between Administration and Sales/Marketing

· Recruitment of a paid part-time book-keeper

· Recruitment of an office administrator

The Treasurer will sit on ESC and will be responsible for the financial administration of the Trust and its reporting obligations to HMRC and the Charities Commission.  They will report to the Board on the financial position of the Trust on a quarterly basis, and lead deliberations on major investments. They will lead the audit.

As a Trustee they will have the opportunity to be engaged in our atlas and map activities, attending events and launches and contributing in any other way to the development of the Trust.

The Candidate

We are looking for an experienced, preferably qualified, accountant who has a passion for cartography, for urban history and for education.

Would you like to become an Ambassador for knus? We've introduced our new arm-chairing volunteer position.

If you're interested arm-chair volunteering (our most flexible, low commitment role) and applying to volunteer at knus, simply read through the information on this page and apply.

• Are you over 18 and living in the UK? You must be over the 18 years of age and live permanently in the UK.
• Do you have a mobile phone or laptop? You can do this role whether you are, whether it be on a sofa or on a plane.
• How much time can you give? As much as you want to do. We are flexible and like to work around you.
• Do you like to learn? We provide training for all volunteers that join us. You'll have access to our courses to help you advance your knowledge and certificates to add to your CV.

How does it work?

In 2025 we launched our arm chair volunteering initiative to help us spread the word about our service and to give people the opportunity to take part in surveys and projects to help us deliver the best mental health support to the UK public.

We'd like to embrace what you love doing, whether that be sharing on socials, proof reading, surveys, sharing experiences or getting involved in our fabulous projects.

Important information:

In order to volunteer for knus as an ambassador, you will need to complete a brief application form and a ID check. A DBS is not required for this role, however, if you wish to progress to another role you may need a disclosure. We do this to ensure of service remains a safe place to volunteer for all. Please do not worry about this, we will help you as much as we can.

Training is provided by us and our training partners. You will be required to attend this training using online conferencing software such as zoom or teams.

Do you enjoy organising things and making this happen?

Are you able to volunteer a few hours a week?

Yes? We’d love to hear from you.

We’re looking for admin volunteers to help with our daily operations.  We have a variety of ways you can get involved:

• Responding to client requests and enquiries
• Fundrasing and partnership management
• Managing and updating company databases
• Keeping track of partnership enquiries
• Maintaining internal, volunteer, and client records
• Drafting and mailing client correspondence and newsletters
• Organising events, scheduling meetings, and making travel arrangements
• Providing administrative support to other departments or projects as needed
• Performing other duties as agreed in advance

We’ve designed our volunteering programme to be flexible and adaptive to you.  All volunteering is 100% remote and you’re supported fully by our team.  You control what you do and how many hours per week you want to volunteer.  Some roles may require an Enhanced DBS check. If your application is successful, we will ask for a donation towards the cost of your enhanced DBS check if it's required for your role. This cost is £22.60.

Here’s some further information on what’s needed:

Are you over 18 and living in the UK?

You must be over the 18 years of age and live permanently in the UK.  You must be a UK resident to apply for this role.

Do you have a laptop?

A laptop and a quiet space to volunteer is essential.

How much time can you give?

A minimum of 2 hours per week is required. We are flexible and like to work around you.

Training

We provide accredited training with 3 short courses needing to be completed prior starting your volunteer role.  After, you’ll have access to over 90 accredited courses should you want to study further.

Do you enjoying talking with people and helping them based on your life experiences?

Are you able to volunteer a few hours a week?

Yes? We’d love to hear from you.

What is knus?

knus is the UK’s first free, confidential, mental health peer support and coaching online chat service. knus offers mental health educational plans, relaxation experiences and live workshops.

What does knus mean? 'hug' in Danish.

Here’s some further information on what’s needed:

Are you over 18 and living in the UK?

You must be over the 18 years of age and live permanently in the UK.

Do you have a laptop?

A laptop and a quiet space to volunteer is essential.

How much time can you give?

A minimum of 2+ hours per week is required. We are flexible and like to work around you.

Do you like to learn?

We provide training for all volunteers that join us. Our peer support training is accredited.  20-25 hours of volunteering training is required and is self led online.

If you’re interested head over to our website and we can have a chat or apply here.

Please note - all successful volunteers are required to donate the cost price of £22.60 for an Enhanced DBS check.  If you've got a current Enhanced DBS on the update service, this cost will not apply.

You must be a UK resident to apply for this role.

Role Purpose

To create content for AuDHD UK’s social media platforms by planning, creating, and sharing engaging content that raises awareness, fosters community, and supports the charity’s mission.

What will you be doing?

Content Creation 

• Design and produce creative, accessible social media posts, including graphics, videos, and written content.
• Schedule and publish posts across platforms such as Instagram, Threads, Facebook, and LinkedIn.
• Ensure consistency in branding, tone and messaging across all social media platforms. 

Planning 

• Help to maintain and update  a social media content calendar to ensure consistent and timely posting.
• Research social media trends, audience interests, and relevant topics to inform content.
• Stay up to date with platform algorithms and best practices. 

Additional Duties

• Collaborate with the Communications & Marketing Lead and other teams to align social media with broader campaigns and events.
• Stay informed about social media best practices and platform updates.
• Support the development of an inclusive and welcoming online community. 

What are we looking for?

Essential Skills & Attributes 

• Experience creating content for social media accounts for organisations or projects.
• Strong content creation skills, including graphic design and copywriting.
• Creativity, organisation, good written English and attention to detail.
• Commitment to AuDHD UK’s mission and values.
• Lived experience of AuDHD or neurodivergence (desirable). 

What difference will you make?

With our charity increasing in activity, our social media team are experiencing higher demand and we therefore would like to expand our team. 

Thank you for your interest in volunteering with VoiceAbility,

About VoiceAbility 

VoiceAbility is an independent charity and one of the UK’s largest providers of advocacy and involvement services. We deliver a wide range of service contracts funded by local authorities, health trusts and other voluntary and private sector organisations.  

We’ve been supporting people to have their say in decisions about their health, care, and wellbeing for over 40 years. We make sure people are heard when it matters most.  For more information on what Advocacy is and the services offered then please visit our website. 

Why Volunteer with VoiceAbility 

Volunteering with VoiceAbility gives you the opportunity to make a meaningful difference in your community by helping others ensure their voices are heard and valued. The roles we offer are deeply rewarding and may challenge you in new ways. You’ll develop your communication skills, meet new people, and gain a greater understanding of others, while enjoying a sense of personal fulfilment along the way! 

We ask for a minimum commitment of just 3 hours per week, but you’re welcome to volunteer for more if you’d like. Whether you're looking to give back to your community, learn something new, or simply enjoy connecting with others, we’d love to have you on board! 

Volunteer positions currently available in Bedfordshire

Relevant Person’s Representative (RPR) Support Volunteer

People in care homes should have a voice to communicate their needs wishes and wants. Some people need support with this, but don’t have friends and family available to assist them.  This means they’re entitled to have support from an RPR and volunteer, who are there to make sure they get the care they deserve.  Your role as an RPR Support Volunteer is to collaborate with the VoiceAbility RPR to make sure a person’s views are listened to when decisions are made about their care. 

As an RPR Support Volunteer you might: 

• Visit people in their care home, to make sure they’re getting the right care and support

• Talk with them about their feelings, thoughts and wishes 

• Raise concerns

• Keep detailed notes and records 

• Make a real difference to someone’s life 

Hospital Visitor Volunteer

Hospital Visitor volunteers visit hospital settings to ensure that people detained under the Mental Health Act are aware that they have a legal right to an IMHA qualified advocate.  The volunteers are instrumental in ensuring that clients get access to an advocate and can also support the work that advocates undertake.

This role entails weekly visits to either Townsend Court and Poplar Wards (Luton) on Fridays 1-4 or Fountains Court (Bedford) on Tuesdays or Wednesdays.

As a hospital volunteer, you might: 

• hold drop-in sessions

• attend events and ward meetings at local facilities 

• share information

• assist people to request advocacy support by completing a form online or calling our contact centre 

Support Session Volunteer

You’ll be supporting people over the age of 18 with disabilities, this may include those with poor mental health, learning difficulties, autism and other disabilities.  Your role will include supporting clients to understand and undertake a task on a one-to-one basis.  The task will vary from client to client as will the needs of the individual. 

As a support session volunteer, you might: 

• help people have their say when it matters most 

• Helping individuals navigate challenges and ensuring their needs are met 

• help people to make complaints and use local services 

All volunteering will take place Monday to Friday between 09:00 and 17:00.  You will need to be over 18 years old and be living in the UK. Please note that there is no opportunity to volunteer at weekends or in the evening. 

Safeguarding Commitment Statement 

VoiceAbility are committed to safeguarding all clients who access our services. All Volunteers will be required to undertake a DBS check at the appropriate level and provide contact details for a minimum of two referees in line with our safer recruitment practice. 

ED&I Statement 

VoiceAbility believes in fostering an inclusive workplace which welcomes, values and celebrates the diversity of its staff and partners, treats all on a basis of equality and encourages all to meet their maximum potential. 

VoiceAbility are a Disability Confident employer, any applicant that identifies themselves as having a disability and can demonstrate that they meet all the essential criteria for the role will be offered an interview. If you need to apply in a different way, please contact the Volunteering team for further options. 

To find out more click “Apply Now”.

Cambridge Nightline is a confidential and anonymous listening service run by students, for students.  We have been providing peer-to-peer support to students at the University of Cambridge and Anglia Ruskin University for over 50 years.  We offer support via telephone and instant messaging (IM), and open at night when other support services are often closed.

Cambridge Nightline has recently appointed a Board of Trustees, and is working towards becoming a registered charity.  Our aim as Trustees is to provide oversight and guidance to the student Executive Committee, whilst supporting them as much as possible to continue to lead the direction of the service.

We are now seeking a voluntary Treasurer to join the Board of Trustees.

For more details about Cambridge Nightline, job description and person specification, please see the attached recruitment pack.

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Role of Treasurer of the Board

The Treasurer of the Board of Trustees will take the lead at board level in assuming responsibility for the financial oversight of Cambridge Nightline.  You will work alongside the Board of Trustees and student Executive Committee in reviewing the organisation’s financial performance to ensure its finances are managed responsibly, in accordance with the objects of the organisation and with legal requirements.

The Treasurer of the Board will work closely with the Student Treasurer to oversee the budget and financial administration, and to ensure the sustainability of the organisation’s funding and reserves.  As Cambridge Nightline works towards becoming a registered charity, you will provide advice and guidance to the Board of Trustees to ensure financial compliance with charity law.

Every day, LGBTQ+ young people across the UK wonder whether things will ever get better. Whether they are navigating school, family, identity, or simply trying to find their place in the world, too many of them are doing it without the visibility, support, or role models they deserve. We exist to change that - to tell them clearly and consistently that it gets better, and that their lives have value exactly as they are.

It Gets Better UK is part of the global It Gets Better movement, present in over 20 countries. Since launching here in 2018, we have reached over 2.5 million people across all four nations through digital content, storytelling, and a growing volunteer community. We show up at Prides, we tell real stories, and we keep finding new ways to reach the young people who need to hear from us - through projects like our volunteer-led podcast and Voices of Wales, for example.

We are at a genuinely exciting point in our development. With a largely volunteer-led model that is embedded and working, and new trustees joining us to help shape our direction, we are focused on building a strategy that allows us to grow sustainably and serve LGBTQ+ young people more effectively across the UK. The people joining our board now will not just oversee that work - they will help design it.

We are looking for three new trustees, each bringing specific expertise:

• Fundraising and income generation - We are looking to diversify and strengthen our income base, with particular focus on grants, trusts and foundations and community fundraising. If you have professional fundraising experience and know how to build financial resilience in a values-led organisation, we want to hear from you.
• Marketing and communications - Our work is fundamentally about reaching people, and social media is central to how we do that. We are looking for someone with a strong understanding of digital platforms, content strategy, and how to build and engage audiences - particularly young people.
• Finance - Sound financial governance is essential as we plan for the future. We are looking for someone with a professional finance background who can support the board in its financial oversight responsibilities and help us build long-term resilience.

Because we are a largely volunteer-led charity, our trustees tend to be more operationally involved than you might find at a larger organisation. This is a hands-on role, and one that offers a genuine opportunity to contribute your expertise to something that matters.

Please see the recruitment pack for more information. 

Epilepsy Action is a national charity with a bold vision: to create a world without limits for people with epilepsy. In 2024 we launched an ambitious new strategy to grow our income and extend the support we offer. After a successful start, we are ready for the next stage in the strategy, and we are looking for new trustees to join our Board and help turn our ambition into lasting impact.

You will bring the skills, values and perspective to help our charity thrive, whether that’s a track record of leading growth and transformation, the ability to open doors through your networks, experience in health or the medical sector, or expertise in law, digital technology or fundraising.

We are committed to building a diverse, inclusive and effective Board that reflects the communities we serve, and people affected by epilepsy. We welcome applications from everyone and are particularly keen to hear from people who are underrepresented on charity boards, including people from ethnically diverse backgrounds, disabled people, LGBTQ+ people, and people of different ages and socio-economic backgrounds. We believe greater diversity makes for better decisions.

If you want to help shape a world without limits for people affected by epilepsy, and use your voice and influence to raise understanding of the condition, then we would love to hear from you.

Purpose of the Role 

The role of a trustee is to share the Board’s collective responsibility for the effective governance and leadership of the charity, setting our strategic direction and major policies in accordance with our objectives, vision, mission and values.

Epilepsy Action (registered as the British Epilepsy Association) is both a registered charity and a company limited by guarantee. As such, trustees are both charity trustees and company directors and have the statutory and legal duties which these roles impose.

This is a voluntary (unpaid) role with a three-year term of office, renewable for up to two consecutive terms.

You need to be able to commit approximately 6–12 days per year, including: 

• Four Board meetings per annum, plus meeting preparation 

• Subcommittee meetings (if applicable) 

• Strategy days, training, and occasional events 

Meetings are a combination of hybrid and fully remote, with an annual in-person meeting in September in Leeds. Overnight accommodation will be booked for trustees and travelling expenses reimbursed for in–person meetings. 

To Apply 

For any questions in advance of your application please contact us via our recruitment email.

To make an application please send your CV and a supporting statement to our recruitment email.

Your supporting statement should answer the following questions:

· What has drawn you to apply to be a trustee for Epilepsy Action?

· What are the main skills and experience that you bring that could benefit the charity?

· How do you think your values align with Epilepsy Action’s values of being supportive, empowering, inclusive and ambitious?

We also ask candidates to fill in the Trustee Application Questionnaire as part of the recruitment process.  This form includes sections for diversity monitoring, as well as skills and experience.

If you need any adjustments to support you to apply or take part in the recruitment process, please let us know.

Shortlisted candidates will be invited for an informal meeting where they will have a chance to find out more about our work.

Formal interviews will be with the Chair, the CEO and relevant members of the Board and / or Advisory Panels will take place at the end of May and beginning of June.