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This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Application deadline: 24th November at 9am GMT.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Help support our members and their families who are diagnosed or going through diagnosis of a rare neurological condition.
Provide support to those affected by a life changing diagnosis at a very difficult time and make a difference that counts!
Myaware is a charity dedicated to ensuring that all people living with or alongside myasthenia can live well, now and in the future. Due to demands on the service we are looking to expand our crucial support team which has provided an exciting opportunity to join the team.
You will be working with our dedicated support team to advise and support our members, over the phone, via email, in online sessions and at conferences and support groups in the community. Providing a listening ear and advice on living with myasthenia is essential as they navigate their diagnosis journey and learn how to live well with the condition.
Delivering support and advice for our members also involves using our CRM database and proactively maintaining and increasing our membership. It requires ongoing essential awareness raising of our work through annual initiatives and campaigns and through growing relationships with Healthcare Professionals and other neurological organisations.
Who are we?
Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition.
We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors.
Members of myaware have full access to a wide range of support services and events including our specialist welfare rights advisor.
Myaware supports people with myasthenia and their families. We campaign for better medical services for people with myasthenia and work to inform medical professionals.
The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK.
Benefits
Discretionary £1,000 increase after successful completion of probationary period
Application Instructions
Candidates should submit their CV and tailored covering letter by 23:30 on Friday 8th May 2026
Initial screening chats will take place on Thursday 14th May 2026
Interviews will be week commencing 25th May 2026
Interviews will be held over Microsoft Teams
Applications submitted without a tailored cover letter will not be considered.
This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by Myaware.
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.
The client requests no contact from agencies or media sales.
As Director of External Affairs across the Bild Group of four small charities (with collective turnover of approx. £3m/yr), you will have a deep commitment to human rights and improving people’s lives.
You will provide strategic direction and leadership to the External Relations function across all four charities in the group, taking overall responsibility for and providing thought-leadership on our strategic approach to policy, influencing, public affairs, stakeholder engagement.
You will play a lead role in planning, developing, and implementing the communication and external relations and wider engagement strategic plan to grow awareness and profile of Bild, Respond, Restraint Reduction Network (RRN) and ACT.
By sharing the impact of our work and programmes in improving the lives of people with learning disabilities, autism and /or mental health conditions, you will support Bild in becoming the sector leading provider of organisational and workforce development (and RRN in becoming the leading charity in reducing restrictive practices globally – and Respond as leaders in trauma informed therapy).
You will champion Bild and RRN’s brand, vision, mission and values acting as an ambassador for the organisation both internally and externally to partners, stakeholders and media.
Key Responsibilities and Duties:
Strategic Leadership:
Develop and implement an integrated communications and external relations strategy across the four charities in the group to raise our profile and to influence change which positively impacts on our beneficiaries, aligning media, campaigning, and public affairs with the charity’s mission and strategic priorities
Lead and inspire a high-performing team including Membership and Events Officer, Resources Coordinator and comms team as required
Comms & Marketing:
Plan, develop and implement strategic communications and marketing plans to maximise awareness of the Bild Group of charities across the broad spectrum of communications disciplines including media relations, stakeholder management, influencer engagement, ethical (impact focused) marketing, social and new media and the production of new materials and resources
Write, develop and produce materials such as infographics, press releases, briefing documents, media statements and online information suitable for stakeholders, including people with lived experience
Ensure effective marketing across all four charities focusing on impact and including ensuring we attend a range of external events and that all four websites are best practice.
Influencing & Public Affairs:
Working with the CEO, you will drive policy change by developing strategies to influence key decision makers through building relationships with parliamentarians, government departments, and sector stakeholders to ensure the charity's policy agenda is impactful
Lead proactive and reactive media engagement, calls and requests for information in order to capitalise on suitable opportunities for maximising the reach and impact of all four charities
Build our credibility as a thought leader in the sector
Stakeholder Engagement & Partnerships:
Build and sustain strategic alliances with senior civil servants, civil society groups, and community partners to increase the organization's influence and impact
Develop effective stakeholder relationship management processes that ensure partnerships of all levels are provided with a rich, immersive engagement experience with the organisation and the work that we do
Identify, liaise with and ensure positive relationships with key stakeholders – internal and external including media, government departments, partners, charities, providers, customers, other relevant parties to secure maximum impact for all four charities and their beneficiaries
Reputation, Brand Management & Marketing:
Champion the Bild group brands, promoting the mission, values and impact of the organisation and ensuring consistent, engaging narratives and high-quality storytelling across all external channels
Shaping the charity's profile and protecting its reputation through media relations, digital engagement, and consistent key messaging and building our credibility as thought leaders in sector.
Membership, Events & Communities:
By ensuring appropriate, effective and engaging communications to all relevant audiences and stakeholders, your role will support the growth and development of our membership, Communities of Practice and the event programme (including webinars and conferences).
Effectively plan, manage and lead a range of events for the Bild group of charities and associated marketing and communications
Develop framework for Communities of Practice and strategy for engagement and growth
Supporting Bild and RRN spokespeople with PR and media outreach
Keep abreast of communications and engagement activity within the sector and demonstrate an awareness of the impact these may have on existing and future communications activity
General Responsibilities
Contribute to evaluation and assessment of results against KPIs and tracking activity
Allocate, manage and evaluate budget spend
Identify resource requirements for activity across Bild group
Develop and maintain systems, databases and procedures to support Bild group communication activities
Plan, monitor, appraise and report progress of activity regularly with an innate understanding of how this supports activity across the Bild group
Plan, manage and oversee budgetary spend related to outsourcing specialist activities such as video editing and design
Ensure communications and marketing work complies with data protection and other legal, professional and agency requirements, standards and policies
Support the senior leadership team on any activity as required.
Personal Development
Be part of a culture of quality in all areas of communications, PR and marketing
Participate and contribute to individual performance appraisal and supervision sessions
Keep abreast of relevant initiatives and developments within the adult health and social care, education & disability sector and the wider communications / engagement profession
Undertake relevant training, as necessary including accessing new systems and software as required to support the role.
Organisational Responsibilities:
Access and work within Bild’s policies and procedures.
Attend internal cycle of team meetings relevant to this role.
Engage with line management, supervision (where appropriate) and appraisal process.
Comply with data protection regulations, ensuring that information on clients, employees, volunteers and other stakeholders remains confidential.
Take responsibility for personal learning and development with support from line manager.
Work in a manner that facilitates equal opportunities and inclusion for all.
Remain professional and respectful at all times, promoting positive relations with all those we encounter in our work.
Maintain health and safety and risk awareness for self and others across the organisation.
Undertake any other duties that Bild may require within the remit of this role.
This job description does not form part of the contract of employment. It is intended as a guide to the general scope of duties and is not definitive or restrictive. It is expected that some duties will change over time and this description will be subject to review with the postholder at their annual appraisal.
Person Specification
Job Title
Director of External Relations
Exceptional copy writing and verbal communication skills
Good presenting, negotiating and influencing skills
Excellent interpersonal skills and ability to build mutually beneficial relationships
The ability to work effectively within a small team
Ability to work under pressure, and plan, manage, and adapt own workload
A flexible, proactive and problem-solving approach to work
A motivated attitude and ability to work on own initiative
A commitment to human rights and modelling accessibility and inclusion throughout activity
Willingness to travel and work flexible hours as demanded by the post
Fit to undertake the duties of the post.
Experience/Skills/Competencies
Essential
Significant experience working in communications, policy and PR with demonstrable success
PR and media management experience, including both online and traditional PR
Experience of managing and implementing social media plans, including post development, scheduling, evaluation and monitoring feedback
Experience of overseeing the design and production of print and electronic publications, including website management and development
Experience of managing CRM systems and ensuring effective data capture and utilising data to inform decision making
Ability to analyse data and shape results into reports that inform decision making
Ability to build effective relationships and networks and establish credibility for Bild, RRN, Respond and Bild ACT
Ability to work collaboratively and develop positive relationships with colleagues, members and wider stakeholders
Demonstrated digital comms / social media skills and understanding of emerging digital marketing tools and platforms
Ability to use a variety of IT packages/databases including CRM systems.
Experience managing budgets and associated reporting
Ability to work remotely and regularly travel to in person events
Time management skills and ability to prioritise workload under pressure as part of a small but vibrant team
Strong awareness and interest in news/current affairs/politics and the broader third sector, social care and education sector.
Desirable
Experience working in the not-for-profit sector, preferably in another disability and/or membership charity
Strong understanding of education, health, social care, disability and not for profit environment
Strong media contacts within relevant trade sector publications
Ability to use externally managed media databases (such as Agility etc.)
Experience with conferences, webinars and hybrid events.
Experience supporting and manging a remote team
Education and Qualifications:
Other Requirements:
Commitment to anti-discriminatory practice and equal opportunities and able to apply awareness of diversity issues to all areas of work.
Regular travel to attend meetings and events.
Occasional evening meetings.
Legal requirements:
Enhanced DBS check.
Your application should include an up to date CV together with a supporting statement detailing how your skills and experience align with the job description and person specification.
Please note that we will be unable to progress applications from candidates who do not answer the screening questions.
Our vision is a society where everyone can enjoy the same rights and opportunities
The client requests no contact from agencies or media sales.
We are looking for an inspiring Support Services Manager to lead our supported housing schemes, ensuring high‑quality, person‑centred support for women and children across our services.
If you are passionate about transforming lives, improving service quality and leading dedicated teams — we’d love to hear from you.
About the Role
As Support Services Manager, you will:
Lead and develop high‑quality support services
Manage, motivate and develop staff
Champion safeguarding & risk management
Ensure housing & compliance excellence
Build impactful partnerships
Drive quality, governance & reporting
Manage budgets & resources
We’d love to hear from you if you have:
Essential experience & skills
Desirable
About Life:
Life is a national pregnancy support charity that helps over 60,000 people a year. Through our services, we help people – whoever they are – to meet pregnancy or pregnancy loss with courage and dignity so they can flourish.
Our services include:
Our values :
All our work is underpinned by the following universal human values:
Information about the role:
For further information, please see the attached job description.
Salary: £34,000 per annum
Hours: 35 hours per week over 5 days
Location: Home Based with Extensive Travel across the Midlands and South East England
Benefits:
At Life we are passionate about providing our employees with a supportive and engaging environment. As well as ongoing development and training, we offer our:
Safeguarding and Equality:
Life is committed to protecting all staff, volunteers and service users from harm of any kind. Life expects all staff and volunteers to share this commitment through our code of conduct.
We are committed to ensuring diversity and equality within our organisation by encouraging applications from all backgrounds.
All offers of employment will be subject to satisfactory references and appropriate screening checks. Life takes its obligation to protect the rights of children and vulnerable people very seriously; therefore, the successful candidate for this post will be also subject to extensive background checking, including an enhanced Disclosure and Barring Service check (DBS) which is paid for by the Charity.
The client requests no contact from agencies or media sales.
We seek to appoint a community pioneer for ‘Earthed’, a relatively new initiative that seeks to work across the Almondsbury and Severnside area (South Gloucestershire)
The successful applicant will be supported fully so they are free to wander and seek to respond to where God is calling. Applicants will be creative visionaries, who are resilient and able to respond to the challenges such a unique role will uncover.
This isn’t about running polished events or having everything figured out. It’s about bringing people together in simple ways - walks, time around a fire, moments of reflection - and seeing what grows.
The Community Pioneer for Earthed will cultivate spaces where people can connect - with one another, with nature, and with God. These spaces will be open, authentic, and welcoming, especially to those who are curious, questioning, or exploring faith.