Volunteer outreach coordinator jobs in Belfast

This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.

Main Purpose of the Role:

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.  
 
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK. 

Specific Tasks:

1. Proactive Family Support 

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days) 

• Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear  

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care 

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern 

2. Transitions Support 

· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including: 

· Moving between educational settings such as primary to secondary 

· Transitioning from paediatric to adult health services 

· Changes in mobility and independence (e.g. transitioning to using powerchairs)

· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK 

· Develop resources, guidance, and workshops to support families through transitions 

3. Wellbeing Tracking and Outcome Measurement 

· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security) 

· Collaborate with families to co-create action plans and track progress 

· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call. 

4. Community Engagement and Event Delivery 

· Organise and deliver regional meetups (minimum one per quarter) 

· Facilitate support groups (virtual and in-person) for parents, young people, and extended family 

· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability) 

5. Stakeholder Collaboration 

· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities 

· Represent Action Duchenne in Scotland and build relationships with local networks 

6. Administration and Reporting 

· Maintain accurate records of all interactions and support provided 

· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact 

· Support development of CRM processes and service delivery improvements 

7. Key Performance Indicators (KPIs): 

· New contact acknowledgement email: within 3 working days 

· New contact follow-up call: within 7–10 working days 

· Families contacted per week: 12–15 hours of direct contact 

· Regional meetups: 1 per quarter 

· Support groups delivered: 9–12 per year 

· CRM data entry: within 24 hours of interaction 

· Family outcomes tracked: via wellbeing questionnaire and action plan 

· Transition support delivered: tracked through engagement, resources, and feedback 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.

Please find below the job specification, including required skills and qualifications.

Help support our members and their families who are diagnosed or going through diagnosis of a rare neurological condition.

Provide support to those affected by a life changing diagnosis at a very difficult time and make a difference that counts!

Myaware is a charity dedicated to ensuring that all people living with or alongside myasthenia can live well, now and in the future. Due to demands on the service we are looking to expand our crucial support team which has provided an exciting opportunity to join the team.

You will be working with our dedicated support team to advise and support our members, over the phone, via email, in online sessions and at conferences and support groups in the community. Providing a listening ear and advice on living with myasthenia is essential as they navigate their diagnosis journey and learn how to live well with the condition.

Delivering support and advice for our members also involves using our CRM database and proactively maintaining and increasing our membership. It requires ongoing essential awareness raising of our work through annual initiatives and campaigns and through growing relationships with Healthcare Professionals and other neurological organisations.

Who are we?

Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia. 

We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition. 

We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors. 

Members of myaware have full access to a wide range of support services and events including our specialist  welfare rights advisor. 

Myaware supports people with myasthenia and their families.  We campaign for better medical services for people with myasthenia and work to inform medical professionals. 

The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK. 

Benefits

• Generous holiday allowance
• Perkbox account (global benefits and rewards platform)
• Group Life Assurance after 6 months of service 
• NEST workplace pension scheme
• Free inhouse staff benefits and welfare advice 
• Investment in your personal and professional development
• Annual salary review

Discretionary £1,000 increase after successful completion of probationary period

Application Instructions

Candidates should submit their CV and tailored covering letter by 23:30 on Friday 8th May 2026

Initial screening chats will take place on Thursday 14th May 2026

Interviews will be week commencing 25th May 2026

Interviews will be held over Microsoft Teams

Applications submitted without a tailored cover letter will not be considered.

This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by Myaware.

This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.

Job Title: Head of Insight and Impact
Reporting To: Assistant Director of Network Development and Impact 
Manages: Data Analyst (direct management), Data Coordinator (dotted line)
Contract: Permanent
Hours: Full time (36 hours per week, flexible)
Salary: £49,440 - £55,620 per annum (appointments are typically made at the lower end of the salary range)
Location: Remote (occasional travel to Leicester office & other UK locations as necessary)

About Home-Start UK

Home-Start is a federated charity consisting of a central national office – Home-Start UK - and over 170 geographically dispersed local Home-Start organisations, all working together under the same identity.

We recognise that being a parent has never been easy. Every Home-Start volunteer is trained to work alongside parents to overcome the challenges they are facing. We work with parents to build on their strengths and give them the support that they tell us they need. We offer no judgement – just compassionate, confidential help and expert support. This peer-to-peer support is key to the difference Home-Start makes and often our volunteers have lived experience of the challenges their families are facing themselves.

About The Role

Head of Insight and Impact is an exciting new leadership role for Home-Start UK at a critical time as we develop and prepare to launch our new, federation-wide strategy in early 2027. You will ensure we make best use of the data and evidence that we already hold and build the insight-led culture we need to deliver on our mission.

Your key responsibilities will be to:

• Lead the development of a shared, federation-wide approach to impact measurement, transforming how we understand, evidence and communicate the difference that Home-Start makes to babies, children and families.
• Develop and embed data systems, tools and capabilities at Home-Start UK and across our federation, aligning with and enabling delivery of our new strategy.
• Design and lead a consistent approach to monitoring and evaluating the support we provide at Home-Start UK to our federation, ensuring outcomes and learning are captured and shared.
• Lead Home-Start UK’s Impact Team and work collaboratively with colleagues across the organisation and with local Home-Start teams, leveraging collective skills and expertise.
• In this busy and varied role, you will put insight and impact at the heart of our work. In a typical day you could be working with our data analyst to visualise and present the results of our latest National Data Return to the Executive Leadership Team, running a feedback session with local Home-Start teams piloting new outcome measures, and/or ensuring colleagues in our Fundraising Team have the insight they need for proposal development.

Ultimately, your efforts will help ensure that our movement can reach and support more families with babies and children facing their toughest times.

The people at Home-Start are its most important resource. Home-Start UK has been accredited with Investors in People since March 2005, which recognises the commitment we give to developing our staff.

Benefits of working for Home-Start

• Flexible working
• Family friendly policy
• PayCare health cash plan
• Enhanced employer contribution pension
• Learning and development
• DAS Employee Assistance

If this sounds like your kind of opportunity, then we want to hear from you!

The closing date for applications is Tuesday 19th May at 4pm.
First stage interviews will take place virtually on week commencing 1st June.
Second stage interviews will take place in-person at our Leicester Office on week commencing 8th June.

Interested?

If you would like to find out more, please click the apply button. You will be directed to our website to complete your application for this position.

Home-Start UK is committed to Equality of Opportunity and Diversity. We wish to encourage applications from all parts of the community irrespective of gender, race, colour, age, sexual orientation or disability. 

No agencies please.