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Introduction to Action Duchenne:
Action Duchenne supports, empower and equip every Duchenne Muscular Dystrophy community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne, and has a number of staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
- Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
- Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
- Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
- Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
- Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
Main Purpose of the Role:
To ensure the charity operates within a robust governance framework and maintains high standards of compliance, risk management, and operational efficiency. This role will lead on policy development, governance reporting, administration progression and process improvement to support strategic objectives and regulatory requirements.
Key Responsibilities
- Governance and Compliance
- Maintain and update governance policies and registers, and development of Standard Operating Procedures.
- Act as the primary liaison for Board governance matters, including preparing Board papers, ensuring timely reporting and minuting.
- Monitor compliance with charity law, GDPR, and other regulatory requirements.
- Coordinate annual policy reviews and ensure staff adherence.
- Risk and Audit
- Maintain and update the organisational risk register for quarterly Board review.
- Support internal audits and external compliance checks.
- Develop and implement risk mitigation strategies.
- Operational Efficiency
- Review and streamline operational processes to improve efficiency, including IT and telephony, authorisations, filing and recruitment.
- Support budget monitoring and reporting in collaboration with Finance.
- Oversee contract management and supplier compliance.
- Reporting and Data
- Prepare governance and operational reports for the CEO and Board.
- Ensure accurate documentation and record-keeping for governance purposes.
- Be the organisation’s Data Protection Officer.
- Minute team meetings.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find the job description below. You can apply on our website, and the deadline for applications is 9am on Monday 16th March 2026.
Registered Charity
11 - 20
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.
The client requests no contact from agencies or media sales.
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Rare opportunity: Help those affected by road crashes and create lasting change with Brake, the renowned road safety charity.
Who we are: Brake is the national, acclaimed charity delivering the National Road Victim Service, a specialist, accredited, UK-wide support service for road victims, delivering case-managed care for anyone who has been bereaved or seriously injured in a road crash or who is supporting a road crash victim.
Not your average job: This is a highly specialised frontline role supporting people affected by traumatic road deaths and life-changing injuries. We are seeking candidates with a strong understanding of trauma-informed practice and experience supporting people through the impact of traumatic bereavement and/or injury.
You will provide a specialist trauma-informed and bereavement-informed approach to care, helping individuals and families navigate the immediate and long-term impact of sudden loss or catastrophic injury. You will undertake a comprehensive needs, risk and safety assessment from which a bespoke support plan will be agreed with the person and/or families, ensuring that immediate wellbeing needs, vulnerabilities and safeguarding considerations are identified and addressed.
By joining this role, you will make a profound difference to individuals and families during their most difficult moments, helping them regain stability, access practical and emotional support, and navigate the complexities of the criminal justice or coronial process with guidance and care.
Take a look at our comprehensive job description for more details.
What we offer:
- A generous 35 days of annual leave (including bank holidays and 3-day shutdown period between Christmas and New Year, pro-rata for part-time working patterns)
- Birthday day off (taken any time)
- Enhanced sick pay and compassionate leave
- Death in service benefit
- Pension
- Employee Assistance Programme
- Flexible working
- A rewarding role with purpose
- Be part of a skilled, friendly team with an engaged Board of Trustees
Who you are: We need energised and resilient self-starters with experience in supporting traumatic grief and post-traumatic stress. a background in providing high-quality emotional support and advocacy. Experience in the following sectors often provides a robust toolkit of high-level transferable skills: Police or criminal justice roles, family liaison, counselling or trauma support, health and social care, casework in any related field
Specifically seeking candidates with:
- Experience with people affected by trauma, sudden bereavement, or serious injury
- Understanding of trauma-informed practice and ability to provide support sensitively
- Experience identifying and responding to safeguarding and vulnerability concerns
- Strong advocacy skills ability to act as a powerful voice for service users, expertly navigating external networks, assemble resources and cross-functional support where required.
About us: At Brake, we are committed to creating a truly inclusive workplace where all colleagues feel valued, respected, and supported. We welcome applications from all backgrounds and life experiences, and particularly encourage candidates from the global majority, LGBTQIA+ community, and people with disabilities to apply.
We believe that diverse perspectives strengthen our work and enable us to deliver the best possible support to individuals and families affected by road trauma. As a proud Disability Confident employer, we don’t want you to ‘fit’ our culture, we want you to enrich it
If you are passionate about making a difference and share our vision for a world where no one is killed on our roads, we want to hear from you.
Not for traffic offenders: Due to the nature of our work we can't accept applications from traffic offenders. Candidates will be asked to disclose whether they have any unspent points on their licence at interview.
An enhanced DBS check is required due to the sensitive nature of our service.
Join us today and be part of the solution!
If writing a cover letter isn't your thing, why not send us a short video telling us about why you think you'd be a great for for our charity.
Registered Charity
51 - 100
We work to stop road deaths and injuries, support people affected by road crashes and campaign for safe and healthy mobility for all.
The client requests no contact from agencies or media sales.