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West Midlands Heritage Trust, along with its three partner project trusts, is seeking to appoint a new Trustee Treasurer to its board. This is an exciting opportunity to help guide our work in rescuing, restoring, and finding sustainable new uses for historic buildings in our region.
Who are we?
We are four building preservation trusts all based in the West Midlands, working together to share our knowledge and experience to save Historic Buildings at Risk.
West Midlands Heritage is made up of: West Midlands Historic Buildings Trust, Worcestershire Building Preservation Trust, and Wolverhampton Heritage Trust.
We aim to safeguard buildings of historical and/or architectural importance, within the West Midlands, Worcestershire and Warwickshire which are in danger of being lost. Our previous projects range in age and type from a 16th Century farmhouse to a Georgian townhouse and a Victorian Cemetery Chapel.
As well as projects to protect and rescue historic buildings, the Trusts organise a range of activities and events to encourage and involve our members and local communities, as well as contribute to professional development within the sector.
What are we looking for?
We are seeking a volunteer Trustee Treasurer with an interest in saving historic buildings at risk and contributing to their local community.
The Treasurer plays a key role in supporting the financial governance of the Trusts and helping to ensure their long-term sustainability. Working with fellow Trustees and staff, including a Finance Officer, the Treasurer will oversee financial reporting, budgeting and financial controls, and provide advice on financial matters affecting the organisation.
We welcome applications from individuals with experience in:
A recognised accounting qualification would be advantageous but is not essential.
It is not necessary to have previous trustee experience, as support and guidance will be given.
What the role entails
Trustees are elected for a 3-year term of office, and may offer themselves for re-election thereafter. Out of pocket expenses will be reimbursed.
We are keen to make the role of Trustee Treasurer accessible to all and will endeavour to make necessary arrangements for individuals unable to attend in person, including the use of online meeting platforms.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Artemis was founded in 2007 and has been delivering high-quality performing arts education in Bracknell ever since.
The charity is now operating at scale and is on track to achieve a turnover of £1 million in 2026, delivering theatre, dance and cheer provision alongside education and wellbeing outcomes for children, young people and adults. We work with around 600 people a week through classes, workshops and outreach.
This all means our Board of trustees is growing, and we are looking for a Trustee with experience of charity and theatre finance.
Please share a CV and cover letter, to be reviewed by our Co-chairs, who will reach out to shortlisted applicants.
Interviews will be online.
The first stage interview will be with a board member and either the CEO or Executive Director (who are also Artemis' founders).
If you are then invited to a second stage interview, it will be with two trustees, who will then share their recommendations with the board for voting.
To help transform the lives of people and communities with the aim of providing accessible and high-quality performing arts education and training.


The client requests no contact from agencies or media sales.
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This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Hope and Vision Communities is a small charity providing supported, move-on accommodation for people who have successfully completed residential rehabilitation. We have a Christian ethos, where everyone can be loved and accepted with a sense of belonging, with the hope and opportunity of a new life. We are growing to expand who we can help to other geographical areas.
We are seeking a volunteer to help our team with reconciling day to day accounts and bookkeeping, as well as some controlling and administration tasks depending on availability. Our ideal candidate would also be able to compute our annual accounts ready for review by an independent examiner.
In return we will give you support to succeed, a great group of people to work with and the chance to make a real difference to the people we support.
To give a home and hope in rebuilding life after addiction— empowering long-term recovery.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Our Finance team ensures smooth and transparent financial operations for the branch by maintaining accurate records, processing payments, and supporting financial reporting. This role suits someone organised, reliable, and comfortable working with spreadsheets or accounting software.
About the RSPCA
Founded in 1824 we have been saving animals for almost 200 years and are proud to be the oldest welfare charity around. It has always been our vision to live in a world where all animals are respected and treated with compassion, so our volunteers and employees work tirelessly to ensure that all animals can live free from pain and suffering.
Through our numerous campaigns, we seek to raise standards of care, and awareness of issues, affecting animals today. We rely heavily on our volunteers who play a significant role in enabling us to carry out this important animal welfare work every day!
The RSPCA MILTON Keynes & North Bucks Branch
The MILTON Keynes & North Bucks Branch is one of the branches of RSPCA, but we are also a separately registered charity looking after animals in our local area. Much of the animal welfare work of RSPCA is carried out through local branches, which is run by volunteers who have the support of the National Society of RSPCA.
Finance & Accounts Assistant Volunteer responsibilities
What we are looking for in a Finance & Accounts Assistant Volunteer
What we can offer you as a Finance & Accounts Assistant Volunteer
We hope you are interested in volunteering for our branch! Please follow the link to complete our Volunteer Application form.
Our voluntary roles are subject to an informal interview and trial period. We will ask you to provide contact details for two referees, and dependant on the position, you may need to sign an agreement and undergo specific training before starting the role.
Finance Trustee (and Co-Chair, Finance, Audit & Risk Committee)
Help end homelessness and shape the future of one of the UK's leading charities.
At Crisis, we believe that homelessness should not exist, and together we can end it. Our bold 10-year strategy is already driving change but with homelessness rising and funding challenges increasing, we know we must think differently, act courageously, and inspire more people to join us. For the first time in Crisis' nearly 60-year history, we are also becoming a direct housing provider.
We are now seeking an exceptional finance leader to join our Board of Trustees and help guide the organisation through an exciting and ambitious phase of our work.
This is an opportunity for a senior finance professional to use their expertise and strategic insight to influence decisions at the highest level, strengthen organisational resilience, and help drive lasting change for people experiencing homelessness across the UK.
About Crisis
We are the national charity for people experiencing homelessness. We help people out of homelessness and campaign for the changes needed to solve it altogether.
Our values are at the heart of everything we do. We're bold in our ambition, impactful in our approach, collaborative in how we work and equitable in championing fairness and inclusion.
About the role
As a Trustee, you will play a vital part in ensuring Crisis remains well governed, financially sustainable, and focused on achieving its mission.
Alongside the statutory responsibilities of being a trustee, you will bring specialist financial expertise to the Board and co-chair our Finance, Audit and Risk Committee. You will also contribute to oversight of our growing housing delivery function through membership of the relevant committee.
Working alongside fellow trustees and senior leaders, you will help shape long-term strategy, scrutinise performance, oversee risk, and ensure the organisation remains accountable, transparent and financially strong.
We are looking for someone with:
What you'll bring
We're looking for someone who combines strategic thinking with sound judgement and a collaborative approach. You'll be a trusted adviser who can challenge constructively, contribute to robust debate, and support effective decision-making. Most importantly, you'll share our belief that homelessness can be ended and be committed to helping make that vision a reality.
Diversity is hugely important to us at Crisis, and we want to make sure that our Trustees, staff and volunteers represent communities we support. As we continue to strengthen and broaden the perspectives represented on our Board, we particularly welcome applications from people with lived experience of homelessness, whose insight is invaluable to our work. We also encourage applications from people from LGBTQ+ communities, ethnic minority backgrounds, disabled people, and others who bring experiences and viewpoints that can contribute to a more inclusive and effective Board. Above all, we welcome candidates who share our values and are passionate about creating positive change.
Time commitment: Overall, the role requires approximately one day per month.
Remuneration
This is a voluntary, unremunerated trustee role.
Reasonable expenses will be reimbursed. We are also committed to removing barriers to participation and may consider support where loss of earnings would otherwise prevent involvement.
Term of appointment
Trustees are appointed for an initial three-year term, with the opportunity to be reappointed for a second term.
This is a rare opportunity to use your financial leadership and governance expertise to make a tangible difference to the lives of thousands of people experiencing homelessness.
If you are an experienced finance leader who wants to contribute your skills to a cause of national importance, we would love to hear from you, whether your background is in the private, public or voluntary sector.
How to apply:
Please apply by submitting a copy of your Curriculum Vitae (CV) and a covering letter, not exceeding two pages, highlighting your suitability for the position and why you are interested. You can apply via our website, Crisis Jobs, or by using the links contained in the 'Additional Resources' documents below.
Please also let us know if you require an informal conversation prior to applying for this role. All applications will be treated in the strictest confidence.
· Closing date: 9 October 2026
· Interviews held on: 2 November 2026
· Location: Central London, in-person.
Please let us know if you anticipate any issues with these dates
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Your expert understanding of charity and/or company accounts and financial management will ensure that trustees exercise their financial responsibilities. You will act as lead trustee on overseeing the annual audit, and advise on financial procedures, regular financial reporting and forecasting.
This will involve chairing the Trust’s Audit Committee, which meets once a year to receive draft charity accounts and audit reports for The Abbotsford Trust and its subsidiary Abbotsford Trading Company. The Committee is responsible for recommending accounts for approval to the Board of Directors, and for making recommendations on the appointment of auditors.
You will exercise oversight of the Trust’s financial management throughout the year through membership of the Executive Committee, which meets up to 10 times a year to receive financial reports from management. Trading Company management accounts are the responsibility of a separate Trading Company Board.
This role will suit someone with professional accountancy qualifications and experience of audited accounts. Ideally, but not necessarily, you will have experience of charity accounts.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Volunteer Opportunity – Treasurer Trustee
Independent Arts Isle of Wight
Do you have financial skills and experience that could help strengthen creativity, wellbeing, and
community connections across the Isle of Wight?
Independent Arts is seeking a Treasurer Trustee to join our Board and help support the charity’s
continued growth and sustainability.
Independent Arts works with people of all ages and backgrounds, using creativity and
participation in the arts to improve wellbeing, reduce isolation, build confidence, and
strengthen communities. We believe that creativity can have a positive impact on people’s lives,
and we are looking for someone who shares our values and wants to make a meaningful
contribution.
As Treasurer Trustee, you will play an important role in helping the Board oversee the charity’s financial affairs, ensuring strong financial governance and supporting informed decision-making. You will work alongside fellow trustees and staff to help ensure the organisation remains financially sustainable and able to continue delivering its valuable work across the Isle of Wight.
We are looking for someone who can offer:
• Experience in finance, accounting, budgeting, business planning, or financial
management
• The ability to understand and explain financial information clearly
• Strategic thinking and sound judgement
• A collaborative approach and willingness to contribute to Board discussions
• Commitment to good governance and the aims of Independent Arts
Previous charity trustee experience or a professional accounting qualification would be
welcome but is not essential. We encourage applications from people with relevant skills and
practical experience from a range of professional and personal backgrounds.
What you’ll gain from the role:
• The opportunity to make a meaningful impact within the local community
• Experience of charity leadership and governance
• The chance to use your professional skills for social good
• The opportunity to work alongside a passionate and committed Board and team
• A chance to support creativity, wellbeing, and inclusive community development across
the Isle of Wight
Time commitment
This is a voluntary role. The Treasurer Trustee will be expected to attend quarterly Board and
finance committee meetings and review papers in advance, with additional time required to
support the CEO in financial planning, Board and annual reporting activities.
Independent Arts is committed to equality, diversity, and inclusion and welcomes applications
from people of all backgrounds, experiences, and communities.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Would you like to join our Board of Trustees of Sheffield and Rotherham Wildlife Trust?
This year we are looking for three people to join our Board of Trustees at our AGM in October 26.
Trustees of the Sheffield and Rotherham Wildlife Trust (SRWT) are volunteers who together lead the organisation in the planning, resourcing and delivery of its activities, so that it can achieve its charitable objectives. An enthusiastic, committed and active Board of Trustees, with a good range of knowledge, skills, experience and personal qualities is vital to the healthy and effective running of the organisation.
The Board of Trustees:
lead the strategic development and planning of the Trust
develop and adopt appropriate policies
aim to ensure that the Trust is legally compliant and works to best practice wherever possible
supports, guides and advises the Trust’s staff and volunteers, especially the CEO and the Executive Team
This year, we are especially keen to hear from people who:
Have expertise, knowledge and experience in one or more of the of the following areas:
Marketing
Commercial management, business acumen, profit for purpose experience (with reference to our consultancy)
Green finance.
Enterprise development
Income generation
Legal experience
Health, Safety and safeguarding policy and compliance
Have a good knowledge of communities and/or natural environment in Rotherham
Can represent more of our diverse community in Sheffield & Rotherham
We are also recruiting for a Trustee to be our Treasurer who will have:
Professional accounting qualification (e.g. ACA, ACCA, CIMA, AAT)
Ability to analyse proposals and understand financial consequences
Understanding of financial risk
Skills & Experience
Trustees should demonstrate some or all of the following:
Passion for nature
Interest in and enthusiasm for the work of the Wildlife Trust
Experience of working as part of a decision-making group, board or committee either in a business or voluntary environment
Experience or knowledge of the legal requirements of a charity
Local knowledge of the places in which the Sheffield & Rotherham Wildlife Trust operates
Experience of financial management and budgeting in a business or voluntary environment
The following areas of expertise are always welcome on the Board:
Environmental Law/ Protected species
Land Management and Conservation
Community Outreach and Development
Education & Training, Working with Children and Young People
Advocacy & Campaigning
Research: relevant to the work of the Trust
Fundraising
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Across the UK, our volunteer groups play a vital part in supporting people affected by MS, bringing people together and connecting our local MS communities.
As a local group Finance Volunteer, you’ll make sure your group gets the most for their money. In this role you’ll be able to develop your financial and communication skills whilst working closely with other members of the group Coordinating Team.
Most importantly, you’ll be part of a team that provides vital support and services to people within your local MS community.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
About The Pinnacle Centre
The Pinnacle Centre is a third space in Birmingham helping young adults grow holistically. We work across three domains: personal development, sports and wellbeing, and community and belonging.
Vision 2030 is where that work is heading. We're building a multi-purpose centre in Birmingham — sports facilities, co-working space, an auditorium and a café — designed as a home for young adults to train, work, learn and gather.
Role Summary
You run Pinnacle's finance function day to day: accurate books, timely reporting, tight controls and no surprises. The CFO sets financial strategy; you own the numbers underneath it.
Key tasks
1. Bookkeeping & transactions
○ Record income and expenditure accurately and promptly.
○ Reconcile bank accounts, card transactions and payment platforms.
○ Process supplier invoices and volunteer expense claims in line with policy.
2. Reporting
○ Produce monthly management accounts with commentary, not just figures.
○ Report budget against actual by department and flag variances early.
○ Track restricted fund spend against funder conditions.
3. Controls & compliance
○ Enforce authorisation limits, expenses policy and segregation of duties.
○ Prepare for year end and support Companies House filings and the CIC annual report.
○ Keep records in a state that would survive scrutiny.
4. Budgeting support
○ Help each lead build a budget they can realistically hold.
○ Provide event and programme costings, including cost per participant.
○ Challenge spending that is unbudgeted or unjustified.
What we're looking for
● Qualified, part-qualified or experienced in bookkeeping and management accounts.
● Accurate and methodical — small errors bother you.
● Confident with accounting software such as Xero or QuickBooks.
● Familiar with restricted fund accounting in a charity or CIC context (desirable).
● Discreet and trustworthy with confidential information.
What we have to offer
● Real ownership of a function, not a task list — you will shape how it works, not just execute someone else's plan.
● A seat in a team building towards a 2030 horizon, with a clear line of sight to the leadership team.
● Access to our network of founders, professionals, entrepreneurs and investors through Pinnacle's events programme.
● Training, mentoring and the opportunity to build and lead a team of your own as the organisation grows.
● The reward of building something in your city that will outlast all of us.
Please note: this is currently a volunteer position. Reasonable expenses for travel, equipment and refreshments are reimbursed in line with our Expenses Policy. As Pinnacle grows and funding allows, we expect several senior roles to move to paid positions, and volunteers already in post will be considered first.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
🌎 VOLUNTEER FINANCE MANAGER / TRUSTEE TREASURER
UK-based | Remote | Flexible
Could your financial expertise help make a real difference?
We are looking for an experienced Finance Manager / Accountant to join our international charity on a voluntary basis and help strengthen our financial management as we grow.
Working closely with senior management, you will provide financial oversight, guidance and reporting, helping us make informed decisions and ensure our resources are managed responsibly.
What you'll do:
What we're looking for:
Professional qualifications such as ACA, ACCA or CIMA are welcome, but relevant experience is more important.
Why volunteer with us?
This is an opportunity to use your professional skills to support an international charity and directly contribute to work that makes a difference to communities in need.
⏰ Flexible commitment
📍 UK-based / Remote
❤️ Voluntary / Unpaid
If you're an experienced finance professional who would like to give something back and become part of our team, we'd love to hear from you.
Initially we are looking for a Finance Manager, however, if the board feels after a 3 month trial, the candidate is the right fit, this position could lead to a Trustee/Treasurer role.
Please send a short introduction and your CV.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Do you want to help guide and support a welcoming community centre in Calderdale
Do you want to help make Calderdale a more welcoming place for refugees and people seeking asylum?
Do you have experience in finance, accounting or company secretarial work?
We are looking for a Trustee Treasurer to join the Board of St Augustine’s Centre.
This is a voluntary role, but a vital one, helping to ensure our charity remains financially sustainable and well governed.
About St Augustine's Centre
St Augustine’s is a highly respected specialist charity working with people seeking asylum, and new refugees, who are rebuilding their lives in Calderdale. We help with advice on immigration and asylum and offer one-on-one support with welfare, housing, health, and access to wider services.
Renowned for our person-centered approach, we provide a welcoming, safe and inclusive space. We offer English language classes, training, creative, social, sports and wellbeing activities, trips and volunteering opportunities.
About the Trustee Treasurer role
Our current Trustee Treasurer is stepping down after more than seven years in the role. We are seeking someone with the right skills and experience to take on this important position.
Key responsibilities include:
Time commitment
Overall, the commitment is approximately 8 hours per month, with flexibility depending on your availability.
Support is available for trustees whose first language is not English.
At our vibrant centre in Halifax, we welcome and support refugees and people seeking asylum, helping them to rebuild their lives with dignity.



The client requests no contact from agencies or media sales.
Finance Committee Member (Volunteer)
British Horseback Archery Association (BHAA)
Are you looking to use your financial skills to support the growth of an exciting and emerging sport?
The British Horseback Archery Association (BHAA) is seeking a volunteer Finance Committee Member to help strengthen our financial governance as we continue to grow participation, develop our national programmes and represent Great Britain on the international stage.
This is an opportunity to make a genuine difference to a small but ambitious National Governing Body. Your expertise will help ensure we remain financially sustainable while investing in the future of horseback archery across the UK.
About the role
Working alongside the Chair and Board of Directors, you'll provide independent financial oversight and support by:
Reviewing budgets, financial reports and expenditure
Providing financial guidance on strategic decisions
Supporting good financial governance and accountability
Helping monitor organisational reserves and financial sustainability
Advising on financial policies and processes
Bringing an objective financial perspective to Board discussions when required
Who we're looking for
We're interested in hearing from people who have experience in areas such as:
Finance
Accounting
Financial planning
Audit
Charity finance
Commercial finance
Professional qualifications are welcomed but not essential. More important is a sound understanding of financial management and a desire to help a volunteer-led organisation succeed.
Time commitment
Approximately 2–4 hours per month, with occasional attendance at online Board meetings if required.
Why join us?
You'll have the opportunity to:
Help shape the future of a growing National Governing Body
Apply your professional expertise to a meaningful cause
Support the development of grassroots and international horseback archery
Work alongside a passionate and collaborative Board
Gain valuable experience in sports governance
If you're passionate about good governance and want to use your financial expertise to help a unique sport thrive, we'd love to hear from you.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
This is a chance to make a huge difference through volunteering as Trustee for a life-saving charity which has been having a positive impact in North Somerset since 1994. We provide professional, low cost counselling and mental health support for people who cannot get the help they need through the NHS and cannot afford to pay for private therapy. You will hear testimonies of adults and teenagers who have had their lives turned around because of Wellspring. The Finance Trustee plays a vital role in keeping our organisation on track by ensuring accounts are kept up to date and accurately, having oversight of all our financial matters and providing forecasting to help keep the charity viable and sustainable.
The Finance Trustee should be or have been a finance professional preferably with experience in accounting. You will keep in contact with the Director and Administrator regularly (1-2 times per month), and meet with the other friendly and caring Board of Trustees once every two months to report on our finances.
In detail the role inovles:
• Ensuring that proper accounting records are kept, and that appropriate accounting
procedures and controls are in place.
• Ensuring that robust and comprehensive financial policies are in place and being
implemented, and supporting the development of policies covering financial
reserves, and cost management.
• Monitoring and advising on the financial viability of the charity.
• Overseeing financial controls and adherence to systems, regularly liaising with
Director and Senior Administrator.
• Advising on the financial implications of the charity’s strategic plan, including
overseeing the charity’s financial risk-management process
• Ensuring investments and assets are maximised.
• Lead on the appointment of and liaison with the Independent Examiner.
• Oversee the development and implementation of systems for appraising, mitigating
and reporting corporate risk.
• Acting as Company Secretary for the Charity.
• Ensuring that the accounts are prepared and disclosed in the form required by
relevant statutory bodies, for example, the Charity Commission and/or the Registrar
of Companies.
• Keeping the board informed about its financial duties and responsibilities and
liaising with the Director to develop the financial understanding of the Board of
Trustees.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
The BDFA is seeking a new Volunteer Treasurer/Trustee to join our passionate and dedicated Board.
As a trustee, you will play a key role in shaping the strategic direction of the BDFA, ensuring strong governance, and helping to improve the lives of children, young people, and families affected by Batten disease across the UK.
The overall role of Treasurer is to maintain an overview of the organisation’s affairs, ensure its financial viability and ensure that proper financial records and procedures are maintained.
As our Treasurer, you will:
Ideal Background:
Fully qualified chartered accountant/financial qualifications and experience. Some experience of charity finance and fundraising.
We welcome suitably qualified applicants who share our commitment to inclusion, integrity, and advocacy, and who are willing to contribute their time, skills, and experience to drive meaningful change.
Trustees meet regularly (virtually and occasionally in person) and contribute to board discussions, sub-committees, and strategic projects, including attending our in person meeting once a year.
This is a voluntary role, but the personal and social impact is immeasurable.
About us
Batten disease is a very rare genetic disorder that affects the brain and nervous system. Symptoms sometimes begin in infancy and sometimes later in childhood, after apparently normal early development. Occasionally it may start in adulthood. In individuals suffering from Batten disease, nervous system function steadily declines, causing a wide variety of neurologic problems, including loss of vision and seizures. The life expectancy of a child born with Batten disease can vary, depending on the form of the disease and the age of onset. Some children die in early childhood, while others may be able to live into their teens or twenties.
The BDFA was registered as a charity in 2001 and our mission is “to enable children and adults who are affected by Batten disease to live life to the full and to provide families with the care and support they need so that they do not walk this path alone.” The BDFA offers informed guidance and support to families and the professionals who work with them, as well as actively raising awareness, and promoting research into the management of Batten disease to improve patient care pathways and ultimately find a cure.
Work Location: Remote
The client requests no contact from agencies or media sales.